feeling like !@*^%$#

[Guest guest]

Dear gang,

I just wanted to drop a note and say how much I appreciate all of you. I know

I pop in from time to time and it may be days or even weeks between posts, but I

always think of everyone and hope that you all are getting through your day

well.

The big dragon has made a happy little nest in the middle of my spirit and it

seems he will be here a while again. I am not sleeping well, I hurt all over, I

am swollen to the point that if they threw me in water I would not sink. LOL! I

have had to take my rings off again, gosh I hate doing that. It makes me feel

that I am losing the battle I fight everyday. I have kept myself from taken more

than a few pain pills, meaning the pain is not so big that I can't handle it on

my own. But if it does get any bigger I am on my way down the pain pill road.

Also at this point pred is still a thought. I am not willing to give up my pred

freedom just yet. I need to try and tough this out without the pred. I know that

it is there and that I can fall back on it if I need to and I will just not yet.

So three things happened all at about the same time to let this dragon come

back. They started me on a new medication, Remicade. I dropped off the pred.

They lowered my MTX to just about half. These things started around the end of

November. I was fine with the first two IV's of Remicade, but I think it took

about that long for my body to feel the absence of my normal 1.4cc MTX shot and

to feel the now .8cc shot. So about 5 weeks into all the changes my body is

saying " hold on " . I have a few choices. I can wait until this hard time passes

or I can give it up and go back on the meds that I know help. What to do?

I did get qualified for state assistance for the 20% and deductible for

Medicade. I received the letter a few days ago. So now I know that I am back on

track and will be getting my third Remicade on Feb 7th. I hope that taking my

third dose a month late won't make me more sick than I already am. I just have

to pay for prescriptions out of pocket again. I did get help about a year and

half ago from an elderly assistance program, they sent an application to the

manufacture for the meds I was on and Immunx sent me 6-8 bottles of MTX and 200

Leucovorin pills for free. Well out of the blue the lady from there called me

Friday. She is sending me another application and I will be getting help through

them again. That is a big help. I just hope that my pain pills are on the list.

Well I better go and sit in a different spot for a while. LOL!!

Do you ICQ? I do! My number is 145599444. Drop me a note:)

How about Yahoo IM, I am bigred82799.

~~I HOPE YOU DANCE~~

crimsons@...

[Guest guest]

,

Wow, I sure hope you feel better soon! I would give your new treatment plan a

good try before you give up...but you should ask your doctor about that??? I

take MTX on Tues. and I hate Thursdays...it usually takes a couple of days to

make me feel bad. I take it by injection also...so that kind of suprises me.

I'm not really familiar with Remicade and how it makes you feel...I guess it's

hard to tell with all the changes at once what is causing what huh?

I wish you a good evening of rest and relaxation. I hope you feel better real

soon. Med changes are hard. I'll say a prayer for you and be thinking of you

as you get through this difficult time.

Love, Kim

---------------------------------

[Guest guest]

,

Wow, I sure hope you feel better soon! I would give your new treatment plan a

good try before you give up...but you should ask your doctor about that??? I

take MTX on Tues. and I hate Thursdays...it usually takes a couple of days to

make me feel bad. I take it by injection also...so that kind of suprises me.

I'm not really familiar with Remicade and how it makes you feel...I guess it's

hard to tell with all the changes at once what is causing what huh?

I wish you a good evening of rest and relaxation. I hope you feel better real

soon. Med changes are hard. I'll say a prayer for you and be thinking of you

as you get through this difficult time.

Love, Kim

---------------------------------

[Guest guest]

,

Wow, I sure hope you feel better soon! I would give your new treatment plan a

good try before you give up...but you should ask your doctor about that??? I

take MTX on Tues. and I hate Thursdays...it usually takes a couple of days to

make me feel bad. I take it by injection also...so that kind of suprises me.

I'm not really familiar with Remicade and how it makes you feel...I guess it's

hard to tell with all the changes at once what is causing what huh?

I wish you a good evening of rest and relaxation. I hope you feel better real

soon. Med changes are hard. I'll say a prayer for you and be thinking of you

as you get through this difficult time.

Love, Kim

---------------------------------

[Guest guest]

Oh, Dear ,

You have tried so hard to get on the right combo of meds, and then

this! Well, you might have to have your doc raise the MTX dose a

bit. You might even have to temporarily go on a small dose of " roids. "

I know, I know, I don't like them either, but 8 mg a day keeps me

from having a *lot* of pain. The dragon roars, and we are forced to

listen and suffer some more..thank goodness you can get some medical

help now. I hope your pain meds are on that free list . How

about sleep?? Are you getting enough rest, or not?? That makes a really

big difference for most of us I think..I know when I get a good night of

sleep, everything seems a little better. It's very difficult to get the rest

that

your body needs when having pain. Please keep us updated hon, you are

in my prayers and thoughts daily!

Love you, your forever friend...Tricia

feeling like !@*^%$#

> Dear gang,

> I just wanted to drop a note and say how much I appreciate all of you. I

know I pop in from time to time and it may be days or even weeks between

posts, but I always think of everyone and hope that you all are getting

through your day well.

> The big dragon has made a happy little nest in the middle of my spirit

and it seems he will be here a while again. I am not sleeping well, I hurt

all over, I am swollen to the point that if they threw me in water I would

not sink. LOL! I have had to take my rings off again, gosh I hate doing

that. It makes me feel that I am losing the battle I fight everyday. I have

kept myself from taken more than a few pain pills, meaning the pain is not

so big that I can't handle it on my own. But if it does get any bigger I am

on my way down the pain pill road. Also at this point pred is still a

thought. I am not willing to give up my pred freedom just yet. I need to try

and tough this out without the pred. I know that it is there and that I can

fall back on it if I need to and I will just not yet.

> So three things happened all at about the same time to let this dragon

come back. They started me on a new medication, Remicade. I dropped off the

pred. They lowered my MTX to just about half. These things started around

the end of November. I was fine with the first two IV's of Remicade, but I

think it took about that long for my body to feel the absence of my normal

1.4cc MTX shot and to feel the now .8cc shot. So about 5 weeks into all the

changes my body is saying " hold on " . I have a few choices. I can wait until

this hard time passes or I can give it up and go back on the meds that I

know help. What to do?

> I did get qualified for state assistance for the 20% and deductible for

Medicade. I received the letter a few days ago. So now I know that I am back

on track and will be getting my third Remicade on Feb 7th. I hope that

taking my third dose a month late won't make me more sick than I already am.

I just have to pay for prescriptions out of pocket again. I did get help

about a year and half ago from an elderly assistance program, they sent an

application to the manufacture for the meds I was on and Immunx sent me 6-8

bottles of MTX and 200 Leucovorin pills for free. Well out of the blue the

lady from there called me Friday. She is sending me another application and

I will be getting help through them again. That is a big help. I just hope

that my pain pills are on the list.

> Well I better go and sit in a different spot for a while. LOL!!

>

> Do you ICQ? I do! My number is 145599444. Drop me a note:)

> How about Yahoo IM, I am bigred82799.

> ~~I HOPE YOU DANCE~~

> crimsons@...

>

>

>

[Guest guest]

Oh, Dear ,

You have tried so hard to get on the right combo of meds, and then

this! Well, you might have to have your doc raise the MTX dose a

bit. You might even have to temporarily go on a small dose of " roids. "

I know, I know, I don't like them either, but 8 mg a day keeps me

from having a *lot* of pain. The dragon roars, and we are forced to

listen and suffer some more..thank goodness you can get some medical

help now. I hope your pain meds are on that free list . How

about sleep?? Are you getting enough rest, or not?? That makes a really

big difference for most of us I think..I know when I get a good night of

sleep, everything seems a little better. It's very difficult to get the rest

that

your body needs when having pain. Please keep us updated hon, you are

in my prayers and thoughts daily!

Love you, your forever friend...Tricia

feeling like !@*^%$#

> Dear gang,

> I just wanted to drop a note and say how much I appreciate all of you. I

know I pop in from time to time and it may be days or even weeks between

posts, but I always think of everyone and hope that you all are getting

through your day well.

> The big dragon has made a happy little nest in the middle of my spirit

and it seems he will be here a while again. I am not sleeping well, I hurt

all over, I am swollen to the point that if they threw me in water I would

not sink. LOL! I have had to take my rings off again, gosh I hate doing

that. It makes me feel that I am losing the battle I fight everyday. I have

kept myself from taken more than a few pain pills, meaning the pain is not

so big that I can't handle it on my own. But if it does get any bigger I am

on my way down the pain pill road. Also at this point pred is still a

thought. I am not willing to give up my pred freedom just yet. I need to try

and tough this out without the pred. I know that it is there and that I can

fall back on it if I need to and I will just not yet.

> So three things happened all at about the same time to let this dragon

come back. They started me on a new medication, Remicade. I dropped off the

pred. They lowered my MTX to just about half. These things started around

the end of November. I was fine with the first two IV's of Remicade, but I

think it took about that long for my body to feel the absence of my normal

1.4cc MTX shot and to feel the now .8cc shot. So about 5 weeks into all the

changes my body is saying " hold on " . I have a few choices. I can wait until

this hard time passes or I can give it up and go back on the meds that I

know help. What to do?

> I did get qualified for state assistance for the 20% and deductible for

Medicade. I received the letter a few days ago. So now I know that I am back

on track and will be getting my third Remicade on Feb 7th. I hope that

taking my third dose a month late won't make me more sick than I already am.

I just have to pay for prescriptions out of pocket again. I did get help

about a year and half ago from an elderly assistance program, they sent an

application to the manufacture for the meds I was on and Immunx sent me 6-8

bottles of MTX and 200 Leucovorin pills for free. Well out of the blue the

lady from there called me Friday. She is sending me another application and

I will be getting help through them again. That is a big help. I just hope

that my pain pills are on the list.

> Well I better go and sit in a different spot for a while. LOL!!

>

> Do you ICQ? I do! My number is 145599444. Drop me a note:)

> How about Yahoo IM, I am bigred82799.

> ~~I HOPE YOU DANCE~~

> crimsons@...

>

>

>

[Guest guest]

;

When we were taking the rem. treatment our Doc did not lower the pred or the

mtx 5mg day pred /about 21mg mtx one time a week and it did not seam to matter

with the rem the only thing I hope is the rem. works for you as it did not us

also wach the blood presure and for incresed pain if you start any of this see

your doc right away we did not and enned up in the er and over night many a time

( I'm a slow learner or just male stubern ) also keep track of you eye sight

this is not to scare you but they are things my rummy never told me but the er

cewed me out for also keep a list of all meds you take at all times on you and

have you husban have one also it can stop you from trying to think when your in

so much pain that thinking is the last thing you want to do ( fact good thing

for us all to do as I know you ladys say use men never think so this way were in

the clear and do not have to LOL)

Marty G.

feeling like !@*^%$#

> Dear gang,

> I just wanted to drop a note and say how much I appreciate all of you. I

know I pop in from time to time and it may be days or even weeks between

posts, but I always think of everyone and hope that you all are getting

through your day well.

> The big dragon has made a happy little nest in the middle of my spirit

and it seems he will be here a while again. I am not sleeping well, I hurt

all over, I am swollen to the point that if they threw me in water I would

not sink. LOL! I have had to take my rings off again, gosh I hate doing

that. It makes me feel that I am losing the battle I fight everyday. I have

kept myself from taken more than a few pain pills, meaning the pain is not

so big that I can't handle it on my own. But if it does get any bigger I am

on my way down the pain pill road. Also at this point pred is still a

thought. I am not willing to give up my pred freedom just yet. I need to try

and tough this out without the pred. I know that it is there and that I can

fall back on it if I need to and I will just not yet.

> So three things happened all at about the same time to let this dragon

come back. They started me on a new medication, Remicade. I dropped off the

pred. They lowered my MTX to just about half. These things started around

the end of November. I was fine with the first two IV's of Remicade, but I

think it took about that long for my body to feel the absence of my normal

1.4cc MTX shot and to feel the now .8cc shot. So about 5 weeks into all the

changes my body is saying " hold on " . I have a few choices. I can wait until

this hard time passes or I can give it up and go back on the meds that I

know help. What to do?

> I did get qualified for state assistance for the 20% and deductible for

Medicade. I received the letter a few days ago. So now I know that I am back

on track and will be getting my third Remicade on Feb 7th. I hope that

taking my third dose a month late won't make me more sick than I already am.

I just have to pay for prescriptions out of pocket again. I did get help

about a year and half ago from an elderly assistance program, they sent an

application to the manufacture for the meds I was on and Immunx sent me 6-8

bottles of MTX and 200 Leucovorin pills for free. Well out of the blue the

lady from there called me Friday. She is sending me another application and

I will be getting help through them again. That is a big help. I just hope

that my pain pills are on the list.

> Well I better go and sit in a different spot for a while. LOL!!

>

> Do you ICQ? I do! My number is 145599444. Drop me a note:)

> How about Yahoo IM, I am bigred82799.

> ~~I HOPE YOU DANCE~~

> crimsons@...

>

>

>

[Guest guest]

;

When we were taking the rem. treatment our Doc did not lower the pred or the

mtx 5mg day pred /about 21mg mtx one time a week and it did not seam to matter

with the rem the only thing I hope is the rem. works for you as it did not us

also wach the blood presure and for incresed pain if you start any of this see

your doc right away we did not and enned up in the er and over night many a time

( I'm a slow learner or just male stubern ) also keep track of you eye sight

this is not to scare you but they are things my rummy never told me but the er

cewed me out for also keep a list of all meds you take at all times on you and

have you husban have one also it can stop you from trying to think when your in

so much pain that thinking is the last thing you want to do ( fact good thing

for us all to do as I know you ladys say use men never think so this way were in

the clear and do not have to LOL)

Marty G.

feeling like !@*^%$#

> Dear gang,

> I just wanted to drop a note and say how much I appreciate all of you. I

know I pop in from time to time and it may be days or even weeks between

posts, but I always think of everyone and hope that you all are getting

through your day well.

> The big dragon has made a happy little nest in the middle of my spirit

and it seems he will be here a while again. I am not sleeping well, I hurt

all over, I am swollen to the point that if they threw me in water I would

not sink. LOL! I have had to take my rings off again, gosh I hate doing

that. It makes me feel that I am losing the battle I fight everyday. I have

kept myself from taken more than a few pain pills, meaning the pain is not

so big that I can't handle it on my own. But if it does get any bigger I am

on my way down the pain pill road. Also at this point pred is still a

thought. I am not willing to give up my pred freedom just yet. I need to try

and tough this out without the pred. I know that it is there and that I can

fall back on it if I need to and I will just not yet.

> So three things happened all at about the same time to let this dragon

come back. They started me on a new medication, Remicade. I dropped off the

pred. They lowered my MTX to just about half. These things started around

the end of November. I was fine with the first two IV's of Remicade, but I

think it took about that long for my body to feel the absence of my normal

1.4cc MTX shot and to feel the now .8cc shot. So about 5 weeks into all the

changes my body is saying " hold on " . I have a few choices. I can wait until

this hard time passes or I can give it up and go back on the meds that I

know help. What to do?

> I did get qualified for state assistance for the 20% and deductible for

Medicade. I received the letter a few days ago. So now I know that I am back

on track and will be getting my third Remicade on Feb 7th. I hope that

taking my third dose a month late won't make me more sick than I already am.

I just have to pay for prescriptions out of pocket again. I did get help

about a year and half ago from an elderly assistance program, they sent an

application to the manufacture for the meds I was on and Immunx sent me 6-8

bottles of MTX and 200 Leucovorin pills for free. Well out of the blue the

lady from there called me Friday. She is sending me another application and

I will be getting help through them again. That is a big help. I just hope

that my pain pills are on the list.

> Well I better go and sit in a different spot for a while. LOL!!

>

> Do you ICQ? I do! My number is 145599444. Drop me a note:)

> How about Yahoo IM, I am bigred82799.

> ~~I HOPE YOU DANCE~~

> crimsons@...

>

>

>