Fwd: Plagiocephaly and Neglect

[Guest guest]

Ok, this is the email that I HAD to send Mr. , note that I did not call him Doctor, I treated him like the uneducated person he is, and I had to use the term "emotional response" because I love when Doctors, especially men, feel the need to equate a mother's concern with emotional hysteria, which was the equivalent of his response about plagio. I did not add everything that I wish now I had, but I wanted him to at least get the idea that he had no clue. I didn't blast him, because I really don't expect Doctors to know absolutely everything there is to know on every given medical condition, but what I think is worse than that is when a Doctor uses his personal opinions or feelings to parents, rather than saying, "you know, I need to do some research on this because I don't know a whole lot about it, and I'll get back to you"- that Doctor will get more respect from me than one who chooses to willingly, blindly lead someone down the wrong path.

' Mom

Dear Mr. Soll,

I am a member of a group whose children suffer from plagiocephaly. It has come to my attention that you feel all children who have this condition are those that have been neglected. Although your answer may have been based on children in orphanages, especially in China, who are left in cribs all day and night that do develop a flattened skull as a result, you must educate yourself more fully on the topic before creating widespread misinformation, further hampering parents abilities to seek and recieve proper treatment for this condition.

My son developed plagio from intrauterine constraint, he was nearly 10 lbs. and very squished at birth. Although his smaller eye, and stunted ear went undetected as plagio related, he was diagnosed with torticollis (a tightened or shortened sternomastocloid muscle) at 2 months old. My son did not have full rotation to the left, and repositioning him midline would only result in the muscle pulling that head back, like a rubber band, to the shoulder. We resolved this after 10 months of aggresive physical therapy. Although we tried like hell, repositioning failed to work for us as his torticollis was far from resolved in the interim, and his plagio worsened as a result.

The AAP has recommended that ALL parents utilize the Back to Sleep Campaign to reduce the chances of SIDS. Although that has decreased the number of SIDS (and wonderfully so), it has also made plagiocephaly the epidemic of our era. You have children sleeping 14 hours a day in crib (babies do that), there are swings, there are bouncers- these children are not left in them for prolonged periods of time, citing neglect, the increase of nighttime hours has impacted those that are more susceptible to plagio. You have babies in the NICU who develop scaphocephaly, a long and narrow headshape, due to Nurses and Doctors placing children to sleep on their sides. The list of reasons that plagio is complex and cannot be summed up to neglect goes on and on.

Many Doctors feel seeking treatment for a smaller eye, a misaligned jaw, misaligned ears, and droopier cheek, are simply cosmetic related and not justified. I cannot, in common sense, comprehend that the medical community would not find any correlation that a shift of balance (ears, eyes, jaw) could contribute to problems of having successful, non-problematic function of those body parts (i.e., this shift can cause TMJ, ear infections, vision problems).

The purpose of this email is not one of ill-will, the intent here is to educate you further, in the hopes that you will carry this information forward and replace your emotional opinion with that of research, and educated answers. There are many Doctors who have no idea what plagio is. There are many Doctors that do not know that torticollis plays a huge role in secondary plagio- I certainly was never alerted about plagio, and in fact, only through the internet did I afford myself, and my son, the treatment he needed. I hope that you will be bold enough to learn a bit more about it, and if a parent should come your way, or a fellow Doctor seeks your medical opinion, you will have researched this matter whole-heartedly so that an educated answer will help those parents understand plagiocephaly as a condition and what treatment options are available while the skull is still maleable. Thanks for your time. I appreciate you reading this in its entirety. Happy Holidays.

Lyle

rella1234@...

[Guest guest]

,

Great letter!! I hope he at least takes the time to reply to

everyones emails. I doubt it though.

> Ok, this is the email that I HAD to send Mr. , note that I did

not call

> him Doctor, I treated him like the uneducated person he is, and I

had to use

> the term " emotional response " because I love when Doctors,

especially men,

> feel the need to equate a mother's concern with emotional hysteria,

which was

> the equivalent of his response about plagio. I did not add

everything that I

> wish now I had, but I wanted him to at least get the idea that he

had no

> clue. I didn't blast him, because I really don't expect Doctors to

know

> absolutely everything there is to know on every given medical

condition, but

> what I think is worse than that is when a Doctor uses his personal

opinions

> or feelings to parents, rather than saying, " you know, I need to do

some

> research on this because I don't know a whole lot about it, and

I'll get back

> to you " - that Doctor will get more respect from me than one who

chooses to

> willingly, blindly lead someone down the wrong path.

>

> ' Mom

>

> Dear Mr. Soll,

> I am a member of a group whose children suffer from plagiocephaly.

It has

> come to my attention that you feel all children who have this

condition are

> those that have been neglected. Although your answer may have been

based on

> children in orphanages, especially in China, who are left in cribs

all day

> and night that do develop a flattened skull as a result, you must

educate

> yourself more fully on the topic before creating widespread

misinformation,

> further hampering parents abilities to seek and recieve proper

treatment for

> this condition.

>

> My son developed plagio from intrauterine constraint, he was nearly

10 lbs.

> and very squished at birth. Although his smaller eye, and stunted

ear went

> undetected as plagio related, he was diagnosed with torticollis (a

tightened

> or shortened sternomastocloid muscle) at 2 months old. My son did

not have

> full rotation to the left, and repositioning him midline would only

result in

> the muscle pulling that head back, like a rubber band, to the

shoulder. We

> resolved this after 10 months of aggresive physical therapy.

Although we

> tried like hell, repositioning failed to work for us as his

torticollis was

> far from resolved in the interim, and his plagio worsened as a

result.

>

> The AAP has recommended that ALL parents utilize the Back to Sleep

Campaign

> to reduce the chances of SIDS. Although that has decreased the

number of

> SIDS (and wonderfully so), it has also made plagiocephaly the

epidemic of our

> era. You have children sleeping 14 hours a day in crib (babies do

that),

> there are swings, there are bouncers- these children are not left

in them for

> prolonged periods of time, citing neglect, the increase of

nighttime hours

> has impacted those that are more susceptible to plagio. You have

babies in

> the NICU who develop scaphocephaly, a long and narrow headshape,

due to

> Nurses and Doctors placing children to sleep on their sides. The

list of

> reasons that plagio is complex and cannot be summed up to neglect

goes on and

> on.

>

> Many Doctors feel seeking treatment for a smaller eye, a misaligned

jaw,

> misaligned ears, and droopier cheek, are simply cosmetic related

and not

> justified. I cannot, in common sense, comprehend that the medical

community

> would not find any correlation that a shift of balance (ears, eyes,

jaw)

> could contribute to problems of having successful, non-problematic

function

> of those body parts (i.e., this shift can cause TMJ, ear

infections, vision

> problems).

>

> The purpose of this email is not one of ill-will, the intent here

is to

> educate you further, in the hopes that you will carry this

information

> forward and replace your emotional opinion with that of research,

and

> educated answers. There are many Doctors who have no idea what

plagio is.

> There are many Doctors that do not know that torticollis plays a

huge role in

> secondary plagio- I certainly was never alerted about plagio, and

in fact,

> only through the internet did I afford myself, and my son, the

treatment he

> needed. I hope that you will be bold enough to learn a bit more

about it,

> and if a parent should come your way, or a fellow Doctor seeks your

medical

> opinion, you will have researched this matter whole-heartedly so

that an

> educated answer will help those parents understand plagiocephaly as

a

> condition and what treatment options are available while the skull

is still

> maleable. Thanks for your time. I appreciate you reading this

in its

> entirety. Happy Holidays.

> Lyle

> rella1234@a...

[Guest guest]

NICE NICE NICE!!! Very well written and put . See, if I send

him anything I'm still so mad I'd address it: Dear Dr. Jacka@@:

So it's best I wait another day or 2 - LOL

Debbie Abby's mom DOCGrad

MI

> Ok, this is the email that I HAD to send Mr. , note that I did

not call

> him Doctor, I treated him like the uneducated person he is, and I

had to use

> the term " emotional response " because I love when Doctors,

especially men,

> feel the need to equate a mother's concern with emotional hysteria,

which was

> the equivalent of his response about plagio. I did not add

everything that I

> wish now I had, but I wanted him to at least get the idea that he

had no

> clue. I didn't blast him, because I really don't expect Doctors to

know

> absolutely everything there is to know on every given medical

condition, but

> what I think is worse than that is when a Doctor uses his personal

opinions

> or feelings to parents, rather than saying, " you know, I need to do

some

> research on this because I don't know a whole lot about it, and

I'll get back

> to you " - that Doctor will get more respect from me than one who

chooses to

> willingly, blindly lead someone down the wrong path.

>

> ' Mom

>

> Dear Mr. Soll,

> I am a member of a group whose children suffer from plagiocephaly.

It has

> come to my attention that you feel all children who have this

condition are

> those that have been neglected. Although your answer may have been

based on

> children in orphanages, especially in China, who are left in cribs

all day

> and night that do develop a flattened skull as a result, you must

educate

> yourself more fully on the topic before creating widespread

misinformation,

> further hampering parents abilities to seek and recieve proper

treatment for

> this condition.

>

> My son developed plagio from intrauterine constraint, he was nearly

10 lbs.

> and very squished at birth. Although his smaller eye, and stunted

ear went

> undetected as plagio related, he was diagnosed with torticollis (a

tightened

> or shortened sternomastocloid muscle) at 2 months old. My son did

not have

> full rotation to the left, and repositioning him midline would only

result in

> the muscle pulling that head back, like a rubber band, to the

shoulder. We

> resolved this after 10 months of aggresive physical therapy.

Although we

> tried like hell, repositioning failed to work for us as his

torticollis was

> far from resolved in the interim, and his plagio worsened as a

result.

>

> The AAP has recommended that ALL parents utilize the Back to Sleep

Campaign

> to reduce the chances of SIDS. Although that has decreased the

number of

> SIDS (and wonderfully so), it has also made plagiocephaly the

epidemic of our

> era. You have children sleeping 14 hours a day in crib (babies do

that),

> there are swings, there are bouncers- these children are not left

in them for

> prolonged periods of time, citing neglect, the increase of

nighttime hours

> has impacted those that are more susceptible to plagio. You have

babies in

> the NICU who develop scaphocephaly, a long and narrow headshape,

due to

> Nurses and Doctors placing children to sleep on their sides. The

list of

> reasons that plagio is complex and cannot be summed up to neglect

goes on and

> on.

>

> Many Doctors feel seeking treatment for a smaller eye, a misaligned

jaw,

> misaligned ears, and droopier cheek, are simply cosmetic related

and not

> justified. I cannot, in common sense, comprehend that the medical

community

> would not find any correlation that a shift of balance (ears, eyes,

jaw)

> could contribute to problems of having successful, non-problematic

function

> of those body parts (i.e., this shift can cause TMJ, ear

infections, vision

> problems).

>

> The purpose of this email is not one of ill-will, the intent here

is to

> educate you further, in the hopes that you will carry this

information

> forward and replace your emotional opinion with that of research,

and

> educated answers. There are many Doctors who have no idea what

plagio is.

> There are many Doctors that do not know that torticollis plays a

huge role in

> secondary plagio- I certainly was never alerted about plagio, and

in fact,

> only through the internet did I afford myself, and my son, the

treatment he

> needed. I hope that you will be bold enough to learn a bit more

about it,

> and if a parent should come your way, or a fellow Doctor seeks your

medical

> opinion, you will have researched this matter whole-heartedly so

that an

> educated answer will help those parents understand plagiocephaly as

a

> condition and what treatment options are available while the skull

is still

> maleable. Thanks for your time. I appreciate you reading this

in its

> entirety. Happy Holidays.

> Lyle

> rella1234@a...

[Guest guest]

Another nice job!

Dustie, mom to

> Ok, this is the email that I HAD to send Mr. , note that I did

not call

> him Doctor, I treated him like the uneducated person he is, and I

had to use

> the term " emotional response " because I love when Doctors,

especially men,

> feel the need to equate a mother's concern with emotional hysteria,

which was

> the equivalent of his response about plagio. I did not add

everything that I

> wish now I had, but I wanted him to at least get the idea that he

had no

> clue. I didn't blast him, because I really don't expect Doctors to

know

> absolutely everything there is to know on every given medical

condition, but

> what I think is worse than that is when a Doctor uses his personal

opinions

> or feelings to parents, rather than saying, " you know, I need to do

some

> research on this because I don't know a whole lot about it, and

I'll get back

> to you " - that Doctor will get more respect from me than one who

chooses to

> willingly, blindly lead someone down the wrong path.

>

> ' Mom

>

> Dear Mr. Soll,

> I am a member of a group whose children suffer from plagiocephaly.

It has

> come to my attention that you feel all children who have this

condition are

> those that have been neglected. Although your answer may have been

based on

> children in orphanages, especially in China, who are left in cribs

all day

> and night that do develop a flattened skull as a result, you must

educate

> yourself more fully on the topic before creating widespread

misinformation,

> further hampering parents abilities to seek and recieve proper

treatment for

> this condition.

>

> My son developed plagio from intrauterine constraint, he was nearly

10 lbs.

> and very squished at birth. Although his smaller eye, and stunted

ear went

> undetected as plagio related, he was diagnosed with torticollis (a

tightened

> or shortened sternomastocloid muscle) at 2 months old. My son did

not have

> full rotation to the left, and repositioning him midline would only

result in

> the muscle pulling that head back, like a rubber band, to the

shoulder. We

> resolved this after 10 months of aggresive physical therapy.

Although we

> tried like hell, repositioning failed to work for us as his

torticollis was

> far from resolved in the interim, and his plagio worsened as a

result.

>

> The AAP has recommended that ALL parents utilize the Back to Sleep

Campaign

> to reduce the chances of SIDS. Although that has decreased the

number of

> SIDS (and wonderfully so), it has also made plagiocephaly the

epidemic of our

> era. You have children sleeping 14 hours a day in crib (babies do

that),

> there are swings, there are bouncers- these children are not left

in them for

> prolonged periods of time, citing neglect, the increase of

nighttime hours

> has impacted those that are more susceptible to plagio. You have

babies in

> the NICU who develop scaphocephaly, a long and narrow headshape,

due to

> Nurses and Doctors placing children to sleep on their sides. The

list of

> reasons that plagio is complex and cannot be summed up to neglect

goes on and

> on.

>

> Many Doctors feel seeking treatment for a smaller eye, a misaligned

jaw,

> misaligned ears, and droopier cheek, are simply cosmetic related

and not

> justified. I cannot, in common sense, comprehend that the medical

community

> would not find any correlation that a shift of balance (ears, eyes,

jaw)

> could contribute to problems of having successful, non-problematic

function

> of those body parts (i.e., this shift can cause TMJ, ear

infections, vision

> problems).

>

> The purpose of this email is not one of ill-will, the intent here

is to

> educate you further, in the hopes that you will carry this

information

> forward and replace your emotional opinion with that of research,

and

> educated answers. There are many Doctors who have no idea what

plagio is.

> There are many Doctors that do not know that torticollis plays a

huge role in

> secondary plagio- I certainly was never alerted about plagio, and

in fact,

> only through the internet did I afford myself, and my son, the

treatment he

> needed. I hope that you will be bold enough to learn a bit more

about it,

> and if a parent should come your way, or a fellow Doctor seeks your

medical

> opinion, you will have researched this matter whole-heartedly so

that an

> educated answer will help those parents understand plagiocephaly as

a

> condition and what treatment options are available while the skull

is still

> maleable. Thanks for your time. I appreciate you reading this

in its

> entirety. Happy Holidays.

> Lyle

> rella1234@a...

[Guest guest]

,

That was an excellent response as well. You and Gaby have

really spoken well for the group. Thank you so much.

Marci

> Ok, this is the email that I HAD to send Mr. , note that I

did not call

> him Doctor, I treated him like the uneducated person he is, and

I had to use

> the term " emotional response " because I love when Doctors,

especially men,

> feel the need to equate a mother's concern with emotional

hysteria, which was

> the equivalent of his response about plagio. I did not add

everything that I

> wish now I had, but I wanted him to at least get the idea that he

had no

> clue. I didn't blast him, because I really don't expect Doctors to

know

> absolutely everything there is to know on every given medical

condition, but

> what I think is worse than that is when a Doctor uses his

personal opinions

> or feelings to parents, rather than saying, " you know, I need to

do some

> research on this because I don't know a whole lot about it, and

I'll get back

> to you " - that Doctor will get more respect from me than one

who chooses to

> willingly, blindly lead someone down the wrong path.

>

> ' Mom

>

> Dear Mr. Soll,

> I am a member of a group whose children suffer from

plagiocephaly. It has

> come to my attention that you feel all children who have this

condition are

> those that have been neglected. Although your answer may

have been based on

> children in orphanages, especially in China, who are left in

cribs all day

> and night that do develop a flattened skull as a result, you must

educate

> yourself more fully on the topic before creating widespread

misinformation,

> further hampering parents abilities to seek and recieve proper

treatment for

> this condition.

>

> My son developed plagio from intrauterine constraint, he was

nearly 10 lbs.

> and very squished at birth. Although his smaller eye, and

stunted ear went

> undetected as plagio related, he was diagnosed with torticollis

(a tightened

> or shortened sternomastocloid muscle) at 2 months old. My

son did not have

> full rotation to the left, and repositioning him midline would only

result in

> the muscle pulling that head back, like a rubber band, to the

shoulder. We

> resolved this after 10 months of aggresive physical therapy.

Although we

> tried like hell, repositioning failed to work for us as his

torticollis was

> far from resolved in the interim, and his plagio worsened as a

result.

>

> The AAP has recommended that ALL parents utilize the Back to

Sleep Campaign

> to reduce the chances of SIDS. Although that has decreased

the number of

> SIDS (and wonderfully so), it has also made plagiocephaly the

epidemic of our

> era. You have children sleeping 14 hours a day in crib (babies

do that),

> there are swings, there are bouncers- these children are not

left in them for

> prolonged periods of time, citing neglect, the increase of

nighttime hours

> has impacted those that are more susceptible to plagio. You

have babies in

> the NICU who develop scaphocephaly, a long and narrow

headshape, due to

> Nurses and Doctors placing children to sleep on their sides.

The list of

> reasons that plagio is complex and cannot be summed up to

neglect goes on and

> on.

>

> Many Doctors feel seeking treatment for a smaller eye, a

misaligned jaw,

> misaligned ears, and droopier cheek, are simply cosmetic

related and not

> justified. I cannot, in common sense, comprehend that the

medical community

> would not find any correlation that a shift of balance (ears,

eyes, jaw)

> could contribute to problems of having successful,

non-problematic function

> of those body parts (i.e., this shift can cause TMJ, ear

infections, vision

> problems).

>

> The purpose of this email is not one of ill-will, the intent here is

to

> educate you further, in the hopes that you will carry this

information

> forward and replace your emotional opinion with that of

research, and

> educated answers. There are many Doctors who have no idea

what plagio is.

> There are many Doctors that do not know that torticollis plays a

huge role in

> secondary plagio- I certainly was never alerted about plagio,

and in fact,

> only through the internet did I afford myself, and my son, the

treatment he

> needed. I hope that you will be bold enough to learn a bit more

about it,

> and if a parent should come your way, or a fellow Doctor seeks

your medical

> opinion, you will have researched this matter whole-heartedly

so that an

> educated answer will help those parents understand

plagiocephaly as a

> condition and what treatment options are available while the

skull is still

> maleable. Thanks for your time. I appreciate you reading this

in its

> entirety. Happy Holidays.

> Lyle

> rella1234@a...

[Guest guest]

Thanks