Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 Hello everyone, This mail comes to the group from the UK. Our son, Joe, is now eight months old and has been diagnosed (by ourselves, using the Internet for research) to have the condition Positional Plagiocephaly. Our community Doctors have repeatedly told us over that past months that his unusual head shape is " nothing to worry about " and that " it will return to normal " . We are now aware that, at this late stage, that it will probably not return to normal and may even cause other problem, such as with his sight or jaw, in later life. We are kicking ourselves for simply trusting the local health staff and not taking it upon ourselves to investigate earlier. With our new found knowledge, we are obviously very worried about what can be done him in the UK. All of the information we have found and all the available treatment appears to be based in the US. Can anyone advise us of any specialists or help we can get in the UK, or how we could go about getting help in the US. Thank you in advance. Steve, & Joe. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2000 Report Share Posted October 25, 2000 -Dear Steve and Joe I know of two doctors in europe, one is through a DOC clinic in Spain. i'm told it is one half of an hour outside of Barcelona. I have two e-mail addresses from a doctor there. They are: info@... and littefi@..., this second e- mail is to a Dr. Joan Pinyot i Garros, whom i have corresponded with a few times. There is also a Dr. Blecher, who is the doctor we were seeing, he is located in Geissen, Germany, but I know he travels to the UK and Spain and other places throughout Europe. His e-mail address is: Joerg.c.blecher@... and his office phone number is: 0641-99-46274. I hope this information is of some help. If you have any questions i can help with just let me know. Good Luck. Oh also try the website: www.plagiocefalio.com Marcia -- In Plagiocephalyegroups, steve.haley@b... wrote: > Hello everyone, > > This mail comes to the group from the UK. > > Our son, Joe, is now eight months old and has been diagnosed (by > ourselves, using the Internet for research) to have the condition > Positional Plagiocephaly. > > Our community Doctors have repeatedly told us over that past months > that his unusual head shape is " nothing to worry about " and that " it > will return to normal " . We are now aware that, at this late stage, > that it will probably not return to normal and may even cause other > problem, such as with his sight or jaw, in later life. > > We are kicking ourselves for simply trusting the local health staff > and not taking it upon ourselves to investigate earlier. With our > new found knowledge, we are obviously very worried about what can be > done him in the UK. All of the information we have found and all the > available treatment appears to be based in the US. > > Can anyone advise us of any specialists or help we can get in the UK, > or how we could go about getting help in the US. > > Thank you in advance. > > Steve, & Joe. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2000 Report Share Posted October 25, 2000 Steve, , and Joe I know of two doctors in europe, one is through a DOC clinic in Spain. i'm told it is one half of an hour outside of Barcelona. I have two e-mail addresses from a doctor there. They are: info@... and littefi@..., this second e- mail is to a Dr. Joan Pinyot i Garros, whom i have corresponded with a few times. There is also a Dr. Blecher, who is the doctor we were seeing, he is located in Geissen, Germany, but I know he travels to the UK and Spain and other places throughout Europe. His e-mail address is: Joerg.c.blecher@... and his office phone number is: 0641-99-46274. Also try the website www.plagicefalio.com. I hope this information is of some help. If you have any questions i can help with just let me know. Good Luck. Marcia > Hello everyone, > > This mail comes to the group from the UK. > > Our son, Joe, is now eight months old and has been diagnosed (by > ourselves, using the Internet for research) to have the condition > Positional Plagiocephaly. > > Our community Doctors have repeatedly told us over that past months > that his unusual head shape is " nothing to worry about " and that " it > will return to normal " . We are now aware that, at this late stage, > that it will probably not return to normal and may even cause other > problem, such as with his sight or jaw, in later life. > > We are kicking ourselves for simply trusting the local health staff > and not taking it upon ourselves to investigate earlier. With our > new found knowledge, we are obviously very worried about what can be > done him in the UK. All of the information we have found and all the > available treatment appears to be based in the US. > > Can anyone advise us of any specialists or help we can get in the UK, > or how we could go about getting help in the US. > > Thank you in advance. > > Steve, & Joe. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.