Need to vent!

December 30, 2002

I am so mad! I have been waiting for about three weeks for this

entire process to get going. Our first visit with CT was on 12/6.

By the time our Pedi got the referral to the Insurance Co., it was

12/16. Yesterday,(12/30) I called to check on the status of the

referral and the Ins. Co told me that they just began to process the

referral on 12/26! When I asked how long this usually takes to be

approved, the Ins, person told me that at the most, it will be 30

days. 30 DAYS!!!!! That is just for approval! Then we have to do

the molding for the DOC Band and then it has to come back and get

fitted! I can't believe that this process is soooo slow. For a

condition that should be fixed at the youngest age possible, for the

shortest treatment time, you would think that the Insurance Co would

speed things up a bit!

I am sure that you all can sympathize with this problem. I am sorry

to complain but, Mackenzie is already 5 1/2 months old. I wanted to

get this over with, while she was still fairly unaware of it all.

Thanks for listening,

Genine & Mackenzie-5 1/2 months (still waiting to be " Banded " )

Atlanta

December 30, 2002

Oops, sorry, i said to check out her site and didnt give a link! its

www.geocities.com/karikoskela/gracies_page.html

Hopefully that works lol

Kari & Gracie, North Carolina

Need to vent!

>

> > I am so mad! I have been waiting for about three weeks for this

> > entire process to get going. Our first visit with CT was on 12/6.

> > By the time our Pedi got the referral to the Insurance Co., it was

> > 12/16. Yesterday,(12/30) I called to check on the status of the

> > referral and the Ins. Co told me that they just began to process the

> > referral on 12/26! When I asked how long this usually takes to be

> > approved, the Ins, person told me that at the most, it will be 30

> > days. 30 DAYS!!!!! That is just for approval! Then we have to do

> > the molding for the DOC Band and then it has to come back and get

> > fitted! I can't believe that this process is soooo slow. For a

> > condition that should be fixed at the youngest age possible, for the

> > shortest treatment time, you would think that the Insurance Co would

> > speed things up a bit!

> >

> > I am sure that you all can sympathize with this problem. I am sorry

> > to complain but, Mackenzie is already 5 1/2 months old. I wanted to

> > get this over with, while she was still fairly unaware of it all.

> >

> > Thanks for listening,

> > Genine & Mackenzie-5 1/2 months (still waiting to be " Banded " )

> > Atlanta

> >

> > For more plagio info

December 31, 2002

Genine, I do understand your frustration. My daughter was

diagnosed at 4 months of age. She did not finally get DOCbanded

until 12/23/02 which made her closer to 9 months than 8. I thought I

was low on time to correct her head, but CT told me that 9 months of

age is the average age to begin correction. I know that everyone

tells you that 3 to 6 months of age, but that is usually when they

diagnose the problem. Hang in there and you will get her " banded " .

has not even so much as missed a nap because of the DOCband.

It's like she doesn't even know it is there. Good luck to you all!

Dustie, mom to , DOCband 12/23/02

> I am so mad! I have been waiting for about three weeks for this

> entire process to get going. Our first visit with CT was on 12/6.

> By the time our Pedi got the referral to the Insurance Co., it was

> 12/16. Yesterday,(12/30) I called to check on the status of the

> referral and the Ins. Co told me that they just began to process

the

> referral on 12/26! When I asked how long this usually takes to be

> approved, the Ins, person told me that at the most, it will be 30

> days. 30 DAYS!!!!! That is just for approval! Then we have to do

> the molding for the DOC Band and then it has to come back and get

> fitted! I can't believe that this process is soooo slow. For a

> condition that should be fixed at the youngest age possible, for

the

> shortest treatment time, you would think that the Insurance Co

would

> speed things up a bit!

>

> I am sure that you all can sympathize with this problem. I am

sorry

> to complain but, Mackenzie is already 5 1/2 months old. I wanted

to

> get this over with, while she was still fairly unaware of it all.

>

> Thanks for listening,

> Genine & Mackenzie-5 1/2 months (still waiting to be " Banded " )

> Atlanta

March 7, 2006

>

> Hi,

> I just need to vent about an incident that happened Friday. No

one

> else really " understands " these things and I need to blow off some

> steam. My son has Aspergers and is in 6th grade. Friday I got a

> call from school saying that he hit a kid in PE and said he wanted

> to kill him and was brought to the office and has been suspended

> from PE the counselor who called had very little additional

> information. I love getting calls from school at work – I have

> caller ID and just cringe when I see the call come in. Of course I

> was caught off guard and didn't really know what to say so I hung

> up, thought about it and called back. My son has an IEP that

calls

> for help in PE during competitive situations. In elementary

school

> they had a para who shadowed him in PE. When he got to middle

> school they didn't want to do that so they have a para for the

whole

> PE class and call it good. So when I called back I asked about my

> son's IEP and if there was a para " helping " him with this

incident?

> I was told it happened in the locker room and she could not go in

> there.

>

> So, here is the story from my son.

> They were playing a game in PE. He was getting very frustrated

and

> mad because they were losing. Someone stole the ball from him

which

> made him madder. They lost the game. He was upset and went over

to

> a random kid on the other team and hit him in the arm a couple

times

> (when he does this it is not hard, more of an action) and said he

> wanted to kill him. Then the teacher came over and … get this – I

> still can't believe it…. told him to do 25 pushups. My son was in

a

> meltdown and refused the teacher was mad and took him to the

> office.

>

> So my concerns are 1) Where was the para and who was noticing that

> my son was getting mad during the game? He is very vocal when he

is

> mad and there is not mistaking it. 2) Maybe one of the most

> inappropriate things ever done during one of my son's meltdowns

> would be to tell him to do 25 pushups in front of the whole class –

> I just can't believe it. 3) My son has a behavior plan which

calls

> for him to be sent to a quiet place (like the office) to de-

escalate

> this was not met until after repeatively ordering him to do

pushups.

> 4) He is suspended from PE for the quarter and I feel like the

para

> and the teacher need to be suspended for not doing their jobs.

>

> I wrote a very lengthy e-mail to the school stating all my

concerns

> in a nice manner (I took out the part where I called the PE

teacher

> an arrogant fool) and am awaiting the reply. They will try and

> smooth things out and nothing will change – they may even decide

he

> can't handle PE and suggest an alternate.

>

> **just got the e-mail** The PE teacher thought my son was

> disrespectful (for not doing pushups during a meltdown) and that

is

> why he is expelled. I guess it is okay to hit a student and make

a

> death threat, but to fail to please the macho PE teacher is worth

> suspension – I'm in total disbelief. They are making my son

prepare

> written apologies to the teacher (not the other student). I think

> the teacher needs to apologize to my son!

>

> Thanks for listening

>

I have the same problem with my 5 year olds behavior at school. I am

new to this support group. I thought your questions were very

interesting.

Here are some responses that I had to your questions

1) Is there anyone that is happy with there IEP? My son is

currently on a 504, but his school would like him to have and IEP.

They have been very supportive, but I just don't see how this will

help my child. Are there any schools for Asperger children only?

2) I think that it is absolutely inappropriate to use

humiliation for a punishment on a child, ESPECIALLY a child who is

already self conscious.

3) Again they didn't handle the situation properly.

4) It's hard to say if because they handled it inappropriately

or because of the condition of your child whether or not he should

be suspended from P.E. But that raises another thought that I have

had. I just don't see how my son will ever be able to function in a

regular school.

And why can't I find a school for Asperger children only? Does

anyone know of any? Anywhere?

August 24, 2010

Sorry that you are have a rough time. I hope that you have a good Dr. and that

you find the right meds soon so that you can feel better. I know its hard and

there are days that make you want to give up but you can't. Three things I was

told by a very wise woman to remember every day. Take pride in whatever you

accomplish each day(even the simple thing), Keep your sense of humor( laughter

is always the best medicine), and take enjoy in every day that you get. It is

hard to do but I keep trying, I hope that practice will make it better.

This said that doesn't mean that you can't get mad and need to vent. Oh boy, I

need to vent. So I saw my new pcp and got my test results. I don't have RA. I

was told I had it eight years ago. I was treated for it, giving meds for it,

spent the last six years so sick and doped up I couldn't get up without throwing

up. All that time wasted, the things I missed out on, and that my kids missed

because I had no money. I glad I don't have RA(SORRY). mad that I don't have

RA, scared because I don't know what is wrong, and tired so tired. I am so

crazy sorry that's wrong I am nuts, Nut #3 my sisters are Nut #1 & 2. LOL. My

family wants me to sue my old pcp but I don't know if I have the strength to

fight him. That it would be worth the energy. Thanks for reading. I hope and

pray for better times for all. Good night. Sleep with Angels.

Jean

August 24, 2010