vancomycin gains but how to

[Guest guest]

Hi,

I posted a while ago about a course of vancomycin that we gave our son and he

has now finished it and we've seen definite gains over a 6 week period, both

with language and also his constipation.

To give an example of the language gains, he was struggling beforehand to

sequence the sounds in a simple word like " biscuit " and now he is pronouncing

this with ease and combining words and even using 4 words together in some

cases.

The problem is that we stopped the vancomycin 1 week ago and already i can see

he is slipping back into his old constipation problems.

Whilst on vancomycin (after a hellish week of die off) he was going 2 or 3 times

a day with no straining or posturing. Now back to 'normal', he tries to go at

various times during the day getting very distracted by his attempts to go, then

by the end of the day he lies on the floor in pain with his legs crossed really

tightly and we end up having to pull them apart to help him go. I know that

going only once per day is not that bad but surely this behaviour with crossed

legs and wincing and resisting it is not normal?

When it comes out it isn't super dried out or hard. It is going back to being

more yellowish, during vancomycin it was more brown.

I'm so confused because if this behaviour had originally been caused by a

fissure or the traumatic memory of a fissure, why was it suddenly fine on

vancomycin?

We are giving probios and vits/mins but wonder if there is anything else we

should be doing? Its so heartbreaking that I can see the progress reversing and

don't know what to do about it. I should add that so far nothing has reversed

with his language gains yet.

Sorry for all the gory details but if this rings a bell with any of you please

tell me what to do as I am desperate and confused.

thanks for reading