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Hi Sophie

I have been doing ABA with my Son for over 3 years now(he is nearly 7yrs old now) , he has learnt alot with this so much so that when they LEA decided to decrease hours to eventually stop (because he was doing so well!) I decided my only option would be to give up work and home educate him myself. I do feel ABA has been brilliant for us as he is very academic but i think as with every therapy you can only take it so far, even though he has learnt alot he is still lacking in areas of play & socialisation, now im sure if i had done Sonrise he would be playing wonderfully but may have not got so far academically, but who knows i can only guess.

I know Caudwell children fund still for ABA, think it is £2000 a year.

x

To: Autism-Biomedical-Europe From: camilleri.sophie@...Date: Wed, 22 Feb 2012 21:51:12 +0000Subject: Thinking about doing ABA for my son, advice please.

Confused.com about what therapy to do for my son, hes currently in a mainstream school and he is doing well, he goes for half a day at the mo, and I was going to find a therapy for when he comes out of school at 12. Really stuck at the moment, I feel that he needs more as he isnt getting enough at school. Also, can you get some kind of funding for therapy and if so, who can I talk to about this?ThanksSophie

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Hi Sophie

I have been doing ABA with my Son for over 3 years now(he is nearly 7yrs old now) , he has learnt alot with this so much so that when they LEA decided to decrease hours to eventually stop (because he was doing so well!) I decided my only option would be to give up work and home educate him myself. I do feel ABA has been brilliant for us as he is very academic but i think as with every therapy you can only take it so far, even though he has learnt alot he is still lacking in areas of play & socialisation, now im sure if i had done Sonrise he would be playing wonderfully but may have not got so far academically, but who knows i can only guess.

I know Caudwell children fund still for ABA, think it is £2000 a year.

x

To: Autism-Biomedical-Europe From: camilleri.sophie@...Date: Wed, 22 Feb 2012 21:51:12 +0000Subject: Thinking about doing ABA for my son, advice please.

Confused.com about what therapy to do for my son, hes currently in a mainstream school and he is doing well, he goes for half a day at the mo, and I was going to find a therapy for when he comes out of school at 12. Really stuck at the moment, I feel that he needs more as he isnt getting enough at school. Also, can you get some kind of funding for therapy and if so, who can I talk to about this?ThanksSophie

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Hi Sophie

I have been doing ABA with my Son for over 3 years now(he is nearly 7yrs old now) , he has learnt alot with this so much so that when they LEA decided to decrease hours to eventually stop (because he was doing so well!) I decided my only option would be to give up work and home educate him myself. I do feel ABA has been brilliant for us as he is very academic but i think as with every therapy you can only take it so far, even though he has learnt alot he is still lacking in areas of play & socialisation, now im sure if i had done Sonrise he would be playing wonderfully but may have not got so far academically, but who knows i can only guess.

I know Caudwell children fund still for ABA, think it is £2000 a year.

x

To: Autism-Biomedical-Europe From: camilleri.sophie@...Date: Wed, 22 Feb 2012 21:51:12 +0000Subject: Thinking about doing ABA for my son, advice please.

Confused.com about what therapy to do for my son, hes currently in a mainstream school and he is doing well, he goes for half a day at the mo, and I was going to find a therapy for when he comes out of school at 12. Really stuck at the moment, I feel that he needs more as he isnt getting enough at school. Also, can you get some kind of funding for therapy and if so, who can I talk to about this?ThanksSophie

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Ah thank you for your response , I suppose, I just dont know what my son

is able to achieve, he sits on my lap and reads his school books (slowly) but I

think this is brilliant, but he wont start a conversation, thats what I would

like for him to be able to do, and the same as your child, enjoy playing with

other kiddies, someone recently gave me a form on the sonrise programme,but I

worry about taking my son away from real life and giving him real intense

therapy, but Im sure he would benefit from the intense therapy. He is only 4.5

xx

>

>

> Hi Sophie

>

> I have been doing ABA with my Son for over 3 years now(he is nearly 7yrs old

now) , he has learnt alot with this so much so that when they LEA decided to

decrease hours to eventually stop (because he was doing so well!) I decided my

only option would be to give up work and home educate him myself. I do feel ABA

has been brilliant for us as he is very academic but i think as with every

therapy you can only take it so far, even though he has learnt alot he is still

lacking in areas of play & socialisation, now im sure if i had done Sonrise he

would be playing wonderfully but may have not got so far academically, but who

knows i can only guess.

>

> I know Caudwell children fund still for ABA, think it is £2000 a year.

>

> x

>

>

>

> To: Autism-Biomedical-Europe

> From: camilleri.sophie@...

> Date: Wed, 22 Feb 2012 21:51:12 +0000

> Subject: Thinking about doing ABA for my son,

advice please.

>

>

>

>

>

>

> Confused.com about what therapy to do for my son, hes currently in a

mainstream school and he is doing well, he goes for half a day at the mo, and I

was going to find a therapy for when he comes out of school at 12. Really stuck

at the moment, I feel that he needs more as he isnt getting enough at school.

> Also, can you get some kind of funding for therapy and if so, who can I talk

to about this?

>

> Thanks

> Sophie

>

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Ah thank you for your response , I suppose, I just dont know what my son

is able to achieve, he sits on my lap and reads his school books (slowly) but I

think this is brilliant, but he wont start a conversation, thats what I would

like for him to be able to do, and the same as your child, enjoy playing with

other kiddies, someone recently gave me a form on the sonrise programme,but I

worry about taking my son away from real life and giving him real intense

therapy, but Im sure he would benefit from the intense therapy. He is only 4.5

xx

>

>

> Hi Sophie

>

> I have been doing ABA with my Son for over 3 years now(he is nearly 7yrs old

now) , he has learnt alot with this so much so that when they LEA decided to

decrease hours to eventually stop (because he was doing so well!) I decided my

only option would be to give up work and home educate him myself. I do feel ABA

has been brilliant for us as he is very academic but i think as with every

therapy you can only take it so far, even though he has learnt alot he is still

lacking in areas of play & socialisation, now im sure if i had done Sonrise he

would be playing wonderfully but may have not got so far academically, but who

knows i can only guess.

>

> I know Caudwell children fund still for ABA, think it is £2000 a year.

>

> x

>

>

>

> To: Autism-Biomedical-Europe

> From: camilleri.sophie@...

> Date: Wed, 22 Feb 2012 21:51:12 +0000

> Subject: Thinking about doing ABA for my son,

advice please.

>

>

>

>

>

>

> Confused.com about what therapy to do for my son, hes currently in a

mainstream school and he is doing well, he goes for half a day at the mo, and I

was going to find a therapy for when he comes out of school at 12. Really stuck

at the moment, I feel that he needs more as he isnt getting enough at school.

> Also, can you get some kind of funding for therapy and if so, who can I talk

to about this?

>

> Thanks

> Sophie

>

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Sophie, my son isnt talking yet, he can read and knows alot of words and i can prompt him to talk and occasionally he has said words spontaniously, we have started with a new speech therapist that also does talk tools so i think this will help my son. I was put off with sonrise as its soooo intense and i dont have a supportive family so i would have to find outside volenteers and to be honest i think that would do my head in always having someone here all of the time, i dont have a very big house, my son's education room is AKA the lounge, lol! I am happy with ABA it has helped him hugely but i dont feel it covers everything and you do need some form of play therapy in there aswell.

x

To: Autism-Biomedical-Europe From: camilleri.sophie@...Date: Wed, 22 Feb 2012 22:20:31 +0000Subject: Re: Thinking about doing ABA for my son, advice please.

Ah thank you for your response , I suppose, I just dont know what my son is able to achieve, he sits on my lap and reads his school books (slowly) but I think this is brilliant, but he wont start a conversation, thats what I would like for him to be able to do, and the same as your child, enjoy playing with other kiddies, someone recently gave me a form on the sonrise programme,but I worry about taking my son away from real life and giving him real intense therapy, but Im sure he would benefit from the intense therapy. He is only 4.5 xx>> > Hi Sophie> > I have been doing ABA with my Son for over 3 years now(he is nearly 7yrs old now) , he has learnt alot with this so much so that when they LEA decided to decrease hours to eventually stop (because he was doing so well!) I decided my only option would be to give up work and home educate him myself. I do feel ABA has been brilliant for us as he is very academic but i think as with every therapy you can only take it so far, even though he has learnt alot he is still lacking in areas of play & socialisation, now im sure if i had done Sonrise he would be playing wonderfully but may have not got so far academically, but who knows i can only guess.> > I know Caudwell children fund still for ABA, think it is £2000 a year.> > x > > > > To: Autism-Biomedical-Europe > Date: Wed, 22 Feb 2012 21:51:12 +0000> Subject: Thinking about doing ABA for my son, advice please.> > > > > > > Confused.com about what therapy to do for my son, hes currently in a mainstream school and he is doing well, he goes for half a day at the mo, and I was going to find a therapy for when he comes out of school at 12. Really stuck at the moment, I feel that he needs more as he isnt getting enough at school. > Also, can you get some kind of funding for therapy and if so, who can I talk to about this?> > Thanks> Sophie>

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Sophie, my son isnt talking yet, he can read and knows alot of words and i can prompt him to talk and occasionally he has said words spontaniously, we have started with a new speech therapist that also does talk tools so i think this will help my son. I was put off with sonrise as its soooo intense and i dont have a supportive family so i would have to find outside volenteers and to be honest i think that would do my head in always having someone here all of the time, i dont have a very big house, my son's education room is AKA the lounge, lol! I am happy with ABA it has helped him hugely but i dont feel it covers everything and you do need some form of play therapy in there aswell.

x

To: Autism-Biomedical-Europe From: camilleri.sophie@...Date: Wed, 22 Feb 2012 22:20:31 +0000Subject: Re: Thinking about doing ABA for my son, advice please.

Ah thank you for your response , I suppose, I just dont know what my son is able to achieve, he sits on my lap and reads his school books (slowly) but I think this is brilliant, but he wont start a conversation, thats what I would like for him to be able to do, and the same as your child, enjoy playing with other kiddies, someone recently gave me a form on the sonrise programme,but I worry about taking my son away from real life and giving him real intense therapy, but Im sure he would benefit from the intense therapy. He is only 4.5 xx>> > Hi Sophie> > I have been doing ABA with my Son for over 3 years now(he is nearly 7yrs old now) , he has learnt alot with this so much so that when they LEA decided to decrease hours to eventually stop (because he was doing so well!) I decided my only option would be to give up work and home educate him myself. I do feel ABA has been brilliant for us as he is very academic but i think as with every therapy you can only take it so far, even though he has learnt alot he is still lacking in areas of play & socialisation, now im sure if i had done Sonrise he would be playing wonderfully but may have not got so far academically, but who knows i can only guess.> > I know Caudwell children fund still for ABA, think it is £2000 a year.> > x > > > > To: Autism-Biomedical-Europe > Date: Wed, 22 Feb 2012 21:51:12 +0000> Subject: Thinking about doing ABA for my son, advice please.> > > > > > > Confused.com about what therapy to do for my son, hes currently in a mainstream school and he is doing well, he goes for half a day at the mo, and I was going to find a therapy for when he comes out of school at 12. Really stuck at the moment, I feel that he needs more as he isnt getting enough at school. > Also, can you get some kind of funding for therapy and if so, who can I talk to about this?> > Thanks> Sophie>

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Sophie, my son isnt talking yet, he can read and knows alot of words and i can prompt him to talk and occasionally he has said words spontaniously, we have started with a new speech therapist that also does talk tools so i think this will help my son. I was put off with sonrise as its soooo intense and i dont have a supportive family so i would have to find outside volenteers and to be honest i think that would do my head in always having someone here all of the time, i dont have a very big house, my son's education room is AKA the lounge, lol! I am happy with ABA it has helped him hugely but i dont feel it covers everything and you do need some form of play therapy in there aswell.

x

To: Autism-Biomedical-Europe From: camilleri.sophie@...Date: Wed, 22 Feb 2012 22:20:31 +0000Subject: Re: Thinking about doing ABA for my son, advice please.

Ah thank you for your response , I suppose, I just dont know what my son is able to achieve, he sits on my lap and reads his school books (slowly) but I think this is brilliant, but he wont start a conversation, thats what I would like for him to be able to do, and the same as your child, enjoy playing with other kiddies, someone recently gave me a form on the sonrise programme,but I worry about taking my son away from real life and giving him real intense therapy, but Im sure he would benefit from the intense therapy. He is only 4.5 xx>> > Hi Sophie> > I have been doing ABA with my Son for over 3 years now(he is nearly 7yrs old now) , he has learnt alot with this so much so that when they LEA decided to decrease hours to eventually stop (because he was doing so well!) I decided my only option would be to give up work and home educate him myself. I do feel ABA has been brilliant for us as he is very academic but i think as with every therapy you can only take it so far, even though he has learnt alot he is still lacking in areas of play & socialisation, now im sure if i had done Sonrise he would be playing wonderfully but may have not got so far academically, but who knows i can only guess.> > I know Caudwell children fund still for ABA, think it is £2000 a year.> > x > > > > To: Autism-Biomedical-Europe > Date: Wed, 22 Feb 2012 21:51:12 +0000> Subject: Thinking about doing ABA for my son, advice please.> > > > > > > Confused.com about what therapy to do for my son, hes currently in a mainstream school and he is doing well, he goes for half a day at the mo, and I was going to find a therapy for when he comes out of school at 12. Really stuck at the moment, I feel that he needs more as he isnt getting enough at school. > Also, can you get some kind of funding for therapy and if so, who can I talk to about this?> > Thanks> Sophie>

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Sophie

When we did ABA ( going back nearly 14 yrs ago) my son was often poorly, awful

sleep pattern etc etc so his programmes were mainly play !So e.g. half hour

therapy session was 25 mins play ! This included physical/rough and tumble/

puzzles/art and craft /music etc later we had sessions which were just on

getting him to be able to ask for stuff or requesting ( so one programme only

for the whole session) . So you can individualise sessions based on your needs.

HTH Nina

> >

> >

> > Hi Sophie

> >

> > I have been doing ABA with my Son for over 3 years now(he is nearly 7yrs old

now) , he has learnt alot with this so much so that when they LEA decided to

decrease hours to eventually stop (because he was doing so well!) I decided my

only option would be to give up work and home educate him myself. I do feel ABA

has been brilliant for us as he is very academic but i think as with every

therapy you can only take it so far, even though he has learnt alot he is still

lacking in areas of play & socialisation, now im sure if i had done Sonrise he

would be playing wonderfully but may have not got so far academically, but who

knows i can only guess.

> >

> > I know Caudwell children fund still for ABA, think it is £2000 a year.

> >

> > x

> >

> >

> >

> > To: Autism-Biomedical-Europe

> > From: camilleri.sophie@

> > Date: Wed, 22 Feb 2012 21:51:12 +0000

> > Subject: Thinking about doing ABA for my son,

advice please.

> >

> >

> >

> >

> >

> >

> > Confused.com about what therapy to do for my son, hes currently in a

mainstream school and he is doing well, he goes for half a day at the mo, and I

was going to find a therapy for when he comes out of school at 12. Really stuck

at the moment, I feel that he needs more as he isnt getting enough at school.

> > Also, can you get some kind of funding for therapy and if so, who can I talk

to about this?

> >

> > Thanks

> > Sophie

> >

>

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Sophie

When we did ABA ( going back nearly 14 yrs ago) my son was often poorly, awful

sleep pattern etc etc so his programmes were mainly play !So e.g. half hour

therapy session was 25 mins play ! This included physical/rough and tumble/

puzzles/art and craft /music etc later we had sessions which were just on

getting him to be able to ask for stuff or requesting ( so one programme only

for the whole session) . So you can individualise sessions based on your needs.

HTH Nina

> >

> >

> > Hi Sophie

> >

> > I have been doing ABA with my Son for over 3 years now(he is nearly 7yrs old

now) , he has learnt alot with this so much so that when they LEA decided to

decrease hours to eventually stop (because he was doing so well!) I decided my

only option would be to give up work and home educate him myself. I do feel ABA

has been brilliant for us as he is very academic but i think as with every

therapy you can only take it so far, even though he has learnt alot he is still

lacking in areas of play & socialisation, now im sure if i had done Sonrise he

would be playing wonderfully but may have not got so far academically, but who

knows i can only guess.

> >

> > I know Caudwell children fund still for ABA, think it is £2000 a year.

> >

> > x

> >

> >

> >

> > To: Autism-Biomedical-Europe

> > From: camilleri.sophie@

> > Date: Wed, 22 Feb 2012 21:51:12 +0000

> > Subject: Thinking about doing ABA for my son,

advice please.

> >

> >

> >

> >

> >

> >

> > Confused.com about what therapy to do for my son, hes currently in a

mainstream school and he is doing well, he goes for half a day at the mo, and I

was going to find a therapy for when he comes out of school at 12. Really stuck

at the moment, I feel that he needs more as he isnt getting enough at school.

> > Also, can you get some kind of funding for therapy and if so, who can I talk

to about this?

> >

> > Thanks

> > Sophie

> >

>

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Hi Sophie

I recommend you look at RDI (relationship development intervention). Best way to start is to read the fantastic blog of Zoe who uses RDI with her son.

http://notnigellanotjamie.blogspot.com/

I've used both ABA and RDI amongst other things - and RDI is definitely a bettter fit for the areas of life you are interested in addressing.

Good luck

Thinking about doing ABA for my son, advice please.

>

>

>

>

>

>

> Confused.com about what therapy to do for my son, hes currently in a mainstream school and he is doing well, he goes for half a day at the mo, and I was going to find a therapy for when he comes out of school at 12. Really stuck at the moment, I feel that he needs more as he isnt getting enough at school.

> Also, can you get some kind of funding for therapy and if so, who can I talk to about this?

>

> Thanks

> Sophie

>

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Share on other sites

Hi Sophie

I recommend you look at RDI (relationship development intervention). Best way to start is to read the fantastic blog of Zoe who uses RDI with her son.

http://notnigellanotjamie.blogspot.com/

I've used both ABA and RDI amongst other things - and RDI is definitely a bettter fit for the areas of life you are interested in addressing.

Good luck

Thinking about doing ABA for my son, advice please.

>

>

>

>

>

>

> Confused.com about what therapy to do for my son, hes currently in a mainstream school and he is doing well, he goes for half a day at the mo, and I was going to find a therapy for when he comes out of school at 12. Really stuck at the moment, I feel that he needs more as he isnt getting enough at school.

> Also, can you get some kind of funding for therapy and if so, who can I talk to about this?

>

> Thanks

> Sophie

>

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Share on other sites

Hi Sophie

I recommend you look at RDI (relationship development intervention). Best way to start is to read the fantastic blog of Zoe who uses RDI with her son.

http://notnigellanotjamie.blogspot.com/

I've used both ABA and RDI amongst other things - and RDI is definitely a bettter fit for the areas of life you are interested in addressing.

Good luck

Thinking about doing ABA for my son, advice please.

>

>

>

>

>

>

> Confused.com about what therapy to do for my son, hes currently in a mainstream school and he is doing well, he goes for half a day at the mo, and I was going to find a therapy for when he comes out of school at 12. Really stuck at the moment, I feel that he needs more as he isnt getting enough at school.

> Also, can you get some kind of funding for therapy and if so, who can I talk to about this?

>

> Thanks

> Sophie

>

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Hi Sophie,

Just to add my thoughts here to some good ones already.... We've been running a

PEACH ABA programme for just over 2 years now initially at home with short times

at nursery and then increasing to the point where now Hugo is full-time in

mainstream school with one of his tutors as his shadow at school.

I would say that it was hard at the beginning having people in my house all the

time but the results were worth it (I have another younger child so just wasn't

able to do a lot of stuff with him myself) but I would also want to point out

strongly that play was a huge part of Hugo's programme. Most of his sessions

were essentially 'play' and he never really realised he was actually learning

stuff until we moved onto basic phonics etc. when we were getting ready for him

starting Reception. Play skills both in terms of how to play and how to

interact with other children when playing at nursery were the main focus for a

very long time for us at the same time as working on speech, stuff like toilet

training and other basic life-skills. Our programme therefore was 'all

encompassing' but with a heavy emphasis on the type of play stuff where Hugo was

lacking so that he could actually join in more at nursery / school. I think

this is one of the common misconceptions about ABA and certainly when any Speech

Therapists / OT etc. visited him in the early days who knew very little about

ABA, they were very surprised at the extent to which it just was actually a

session of what appeared to be playing (obviously with a lot of thinking behind

it but Hugo never saw that!)

So, I would just say please don't rule out ABA as not offering play skills - the

right programme can definitely teach these - we're living proof of that as

Hugo's play skills are amazing now - purely as a result of the work done on his

programme.

Good luck with finding the right solution for your child.

Best wishes,

Lorna

x

> >

> >

> > Hi Sophie

> >

> > I have been doing ABA with my Son for over 3 years now(he is nearly 7yrs old

now) , he has learnt alot with this so much so that when they LEA decided to

decrease hours to eventually stop (because he was doing so well!) I decided my

only option would be to give up work and home educate him myself. I do feel ABA

has been brilliant for us as he is very academic but i think as with every

therapy you can only take it so far, even though he has learnt alot he is still

lacking in areas of play & socialisation, now im sure if i had done Sonrise he

would be playing wonderfully but may have not got so far academically, but who

knows i can only guess.

> >

> > I know Caudwell children fund still for ABA, think it is £2000 a year.

> >

> > x

> >

> >

> >

> > To: Autism-Biomedical-Europe

> > From: camilleri.sophie@

> > Date: Wed, 22 Feb 2012 21:51:12 +0000

> > Subject: Thinking about doing ABA for my son,

advice please.

> >

> >

> >

> >

> >

> >

> > Confused.com about what therapy to do for my son, hes currently in a

mainstream school and he is doing well, he goes for half a day at the mo, and I

was going to find a therapy for when he comes out of school at 12. Really stuck

at the moment, I feel that he needs more as he isnt getting enough at school.

> > Also, can you get some kind of funding for therapy and if so, who can I talk

to about this?

> >

> > Thanks

> > Sophie

> >

>

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Hi SophieLike Lorna we have been running a PEACH ABA programme for nearly 2 years now. Harry is non-verbal and had no idea about how to play or what toys were for. We began quite slowly, doing 15 hours weekly and building up so that we run a pretty full programme now - and a mix of home based ABA + 3 afternoon sessions at the local mainstream primary in the reception class. It has been hard work to set up the programme, finding the right tutors being the hardest part for us. We committed to the aprroach even before he was statemented and I think that helped us get some support from the local authority with funding - there does though seem to be a lot of variance between authorities in different areas in terms of what they will fund. Our Case Manager (from PEACH) is wonderful and

moves the programme along to meet his changing needs. One of the criticisms levelled at ABA is how adult directed it is, however for Harry he has needed this "scaffolding" and structure as he truly had no idea about how to play/interact/communicate with other children. It is hard always having somone in your home for so many hours, but I figure it won't be forever and as we see progress it kind of mitigates that a bit. I did consider trying to do some of the tutoring, but soon dismissed that idea; organising the ABA, doing bio-med, plus work and kids is enough! I think what ever therapy you hear about will have people for and against it, it's about finding the one that most suits your child and you as a family. Best of luck with it all though and I'd bee happy to give you more detail about what we do, how we set it up etc if you wanted.Jayne To: Autism-Biomedical-Europe Sent: Thursday, 23 February 2012, 12:57 Subject: Re: Thinking about doing ABA for my son, advice please.

Hi Sophie,

Just to add my thoughts here to some good ones already.... We've been running a PEACH ABA programme for just over 2 years now initially at home with short times at nursery and then increasing to the point where now Hugo is full-time in mainstream school with one of his tutors as his shadow at school.

I would say that it was hard at the beginning having people in my house all the time but the results were worth it (I have another younger child so just wasn't able to do a lot of stuff with him myself) but I would also want to point out strongly that play was a huge part of Hugo's programme. Most of his sessions were essentially 'play' and he never really realised he was actually learning stuff until we moved onto basic phonics etc. when we were getting ready for him starting Reception. Play skills both in terms of how to play and how to interact with other children when playing at nursery were the main focus for a very long time for us at the same time as working on speech, stuff like toilet training and other basic life-skills. Our programme therefore was 'all encompassing' but with a heavy emphasis on the type of play stuff where Hugo was lacking so that he could actually join in more at nursery / school. I think this is one of the common

misconceptions about ABA and certainly when any Speech Therapists / OT etc. visited him in the early days who knew very little about ABA, they were very surprised at the extent to which it just was actually a session of what appeared to be playing (obviously with a lot of thinking behind it but Hugo never saw that!)

So, I would just say please don't rule out ABA as not offering play skills - the right programme can definitely teach these - we're living proof of that as Hugo's play skills are amazing now - purely as a result of the work done on his programme.

Good luck with finding the right solution for your child.

Best wishes,

Lorna

x

> >

> >

> > Hi Sophie

> >

> > I have been doing ABA with my Son for over 3 years now(he is nearly 7yrs old now) , he has learnt alot with this so much so that when they LEA decided to decrease hours to eventually stop (because he was doing so well!) I decided my only option would be to give up work and home educate him myself. I do feel ABA has been brilliant for us as he is very academic but i think as with every therapy you can only take it so far, even though he has learnt alot he is still lacking in areas of play & socialisation, now im sure if i had done Sonrise he would be playing wonderfully but may have not got so far academically, but who knows i can only guess.

> >

> > I know Caudwell children fund still for ABA, think it is £2000 a year.

> >

> > x

> >

> >

> >

> > To: Autism-Biomedical-Europe

> > From: camilleri.sophie@

> > Date: Wed, 22 Feb 2012 21:51:12 +0000

> > Subject: Thinking about doing ABA for my son, advice please.

> >

> >

> >

> >

> >

> >

> > Confused.com about what therapy to do for my son, hes currently in a mainstream school and he is doing well, he goes for half a day at the mo, and I was going to find a therapy for when he comes out of school at 12. Really stuck at the moment, I feel that he needs more as he isnt getting enough at school.

> > Also, can you get some kind of funding for therapy and if so, who can I talk to about this?

> >

> > Thanks

> > Sophie

> >

>

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Hi SophieLike Lorna we have been running a PEACH ABA programme for nearly 2 years now. Harry is non-verbal and had no idea about how to play or what toys were for. We began quite slowly, doing 15 hours weekly and building up so that we run a pretty full programme now - and a mix of home based ABA + 3 afternoon sessions at the local mainstream primary in the reception class. It has been hard work to set up the programme, finding the right tutors being the hardest part for us. We committed to the aprroach even before he was statemented and I think that helped us get some support from the local authority with funding - there does though seem to be a lot of variance between authorities in different areas in terms of what they will fund. Our Case Manager (from PEACH) is wonderful and

moves the programme along to meet his changing needs. One of the criticisms levelled at ABA is how adult directed it is, however for Harry he has needed this "scaffolding" and structure as he truly had no idea about how to play/interact/communicate with other children. It is hard always having somone in your home for so many hours, but I figure it won't be forever and as we see progress it kind of mitigates that a bit. I did consider trying to do some of the tutoring, but soon dismissed that idea; organising the ABA, doing bio-med, plus work and kids is enough! I think what ever therapy you hear about will have people for and against it, it's about finding the one that most suits your child and you as a family. Best of luck with it all though and I'd bee happy to give you more detail about what we do, how we set it up etc if you wanted.Jayne To: Autism-Biomedical-Europe Sent: Thursday, 23 February 2012, 12:57 Subject: Re: Thinking about doing ABA for my son, advice please.

Hi Sophie,

Just to add my thoughts here to some good ones already.... We've been running a PEACH ABA programme for just over 2 years now initially at home with short times at nursery and then increasing to the point where now Hugo is full-time in mainstream school with one of his tutors as his shadow at school.

I would say that it was hard at the beginning having people in my house all the time but the results were worth it (I have another younger child so just wasn't able to do a lot of stuff with him myself) but I would also want to point out strongly that play was a huge part of Hugo's programme. Most of his sessions were essentially 'play' and he never really realised he was actually learning stuff until we moved onto basic phonics etc. when we were getting ready for him starting Reception. Play skills both in terms of how to play and how to interact with other children when playing at nursery were the main focus for a very long time for us at the same time as working on speech, stuff like toilet training and other basic life-skills. Our programme therefore was 'all encompassing' but with a heavy emphasis on the type of play stuff where Hugo was lacking so that he could actually join in more at nursery / school. I think this is one of the common

misconceptions about ABA and certainly when any Speech Therapists / OT etc. visited him in the early days who knew very little about ABA, they were very surprised at the extent to which it just was actually a session of what appeared to be playing (obviously with a lot of thinking behind it but Hugo never saw that!)

So, I would just say please don't rule out ABA as not offering play skills - the right programme can definitely teach these - we're living proof of that as Hugo's play skills are amazing now - purely as a result of the work done on his programme.

Good luck with finding the right solution for your child.

Best wishes,

Lorna

x

> >

> >

> > Hi Sophie

> >

> > I have been doing ABA with my Son for over 3 years now(he is nearly 7yrs old now) , he has learnt alot with this so much so that when they LEA decided to decrease hours to eventually stop (because he was doing so well!) I decided my only option would be to give up work and home educate him myself. I do feel ABA has been brilliant for us as he is very academic but i think as with every therapy you can only take it so far, even though he has learnt alot he is still lacking in areas of play & socialisation, now im sure if i had done Sonrise he would be playing wonderfully but may have not got so far academically, but who knows i can only guess.

> >

> > I know Caudwell children fund still for ABA, think it is £2000 a year.

> >

> > x

> >

> >

> >

> > To: Autism-Biomedical-Europe

> > From: camilleri.sophie@

> > Date: Wed, 22 Feb 2012 21:51:12 +0000

> > Subject: Thinking about doing ABA for my son, advice please.

> >

> >

> >

> >

> >

> >

> > Confused.com about what therapy to do for my son, hes currently in a mainstream school and he is doing well, he goes for half a day at the mo, and I was going to find a therapy for when he comes out of school at 12. Really stuck at the moment, I feel that he needs more as he isnt getting enough at school.

> > Also, can you get some kind of funding for therapy and if so, who can I talk to about this?

> >

> > Thanks

> > Sophie

> >

>

Link to comment
Share on other sites

Hi SophieLike Lorna we have been running a PEACH ABA programme for nearly 2 years now. Harry is non-verbal and had no idea about how to play or what toys were for. We began quite slowly, doing 15 hours weekly and building up so that we run a pretty full programme now - and a mix of home based ABA + 3 afternoon sessions at the local mainstream primary in the reception class. It has been hard work to set up the programme, finding the right tutors being the hardest part for us. We committed to the aprroach even before he was statemented and I think that helped us get some support from the local authority with funding - there does though seem to be a lot of variance between authorities in different areas in terms of what they will fund. Our Case Manager (from PEACH) is wonderful and

moves the programme along to meet his changing needs. One of the criticisms levelled at ABA is how adult directed it is, however for Harry he has needed this "scaffolding" and structure as he truly had no idea about how to play/interact/communicate with other children. It is hard always having somone in your home for so many hours, but I figure it won't be forever and as we see progress it kind of mitigates that a bit. I did consider trying to do some of the tutoring, but soon dismissed that idea; organising the ABA, doing bio-med, plus work and kids is enough! I think what ever therapy you hear about will have people for and against it, it's about finding the one that most suits your child and you as a family. Best of luck with it all though and I'd bee happy to give you more detail about what we do, how we set it up etc if you wanted.Jayne To: Autism-Biomedical-Europe Sent: Thursday, 23 February 2012, 12:57 Subject: Re: Thinking about doing ABA for my son, advice please.

Hi Sophie,

Just to add my thoughts here to some good ones already.... We've been running a PEACH ABA programme for just over 2 years now initially at home with short times at nursery and then increasing to the point where now Hugo is full-time in mainstream school with one of his tutors as his shadow at school.

I would say that it was hard at the beginning having people in my house all the time but the results were worth it (I have another younger child so just wasn't able to do a lot of stuff with him myself) but I would also want to point out strongly that play was a huge part of Hugo's programme. Most of his sessions were essentially 'play' and he never really realised he was actually learning stuff until we moved onto basic phonics etc. when we were getting ready for him starting Reception. Play skills both in terms of how to play and how to interact with other children when playing at nursery were the main focus for a very long time for us at the same time as working on speech, stuff like toilet training and other basic life-skills. Our programme therefore was 'all encompassing' but with a heavy emphasis on the type of play stuff where Hugo was lacking so that he could actually join in more at nursery / school. I think this is one of the common

misconceptions about ABA and certainly when any Speech Therapists / OT etc. visited him in the early days who knew very little about ABA, they were very surprised at the extent to which it just was actually a session of what appeared to be playing (obviously with a lot of thinking behind it but Hugo never saw that!)

So, I would just say please don't rule out ABA as not offering play skills - the right programme can definitely teach these - we're living proof of that as Hugo's play skills are amazing now - purely as a result of the work done on his programme.

Good luck with finding the right solution for your child.

Best wishes,

Lorna

x

> >

> >

> > Hi Sophie

> >

> > I have been doing ABA with my Son for over 3 years now(he is nearly 7yrs old now) , he has learnt alot with this so much so that when they LEA decided to decrease hours to eventually stop (because he was doing so well!) I decided my only option would be to give up work and home educate him myself. I do feel ABA has been brilliant for us as he is very academic but i think as with every therapy you can only take it so far, even though he has learnt alot he is still lacking in areas of play & socialisation, now im sure if i had done Sonrise he would be playing wonderfully but may have not got so far academically, but who knows i can only guess.

> >

> > I know Caudwell children fund still for ABA, think it is £2000 a year.

> >

> > x

> >

> >

> >

> > To: Autism-Biomedical-Europe

> > From: camilleri.sophie@

> > Date: Wed, 22 Feb 2012 21:51:12 +0000

> > Subject: Thinking about doing ABA for my son, advice please.

> >

> >

> >

> >

> >

> >

> > Confused.com about what therapy to do for my son, hes currently in a mainstream school and he is doing well, he goes for half a day at the mo, and I was going to find a therapy for when he comes out of school at 12. Really stuck at the moment, I feel that he needs more as he isnt getting enough at school.

> > Also, can you get some kind of funding for therapy and if so, who can I talk to about this?

> >

> > Thanks

> > Sophie

> >

>

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Share on other sites

Thank you all very much for your responses.

I am going to have a real good look into both RDI and ABA, everything just seems

so expensive, is it only Caurdwell that can help us mums out or are there any

other means of support?

Thanks again for taking the time to respond.

Sophie

> > >

> > >

> > > Hi Sophie

> > >

> > > I have been doing ABA with my Son for over 3 years now(he is nearly 7yrs

old now) , he has learnt alot with this so much so that when they LEA decided to

decrease hours to eventually stop (because he was doing so well!) I decided my

only option would be to give up work and home educate him myself. I do feel ABA

has been brilliant for us as he is very academic but i think as with every

therapy you can only take it so far, even though he has learnt alot he is still

lacking in areas of play & socialisation, now im sure if i had done Sonrise he

would be playing wonderfully but may have not got so far academically, but who

knows i can only guess.

> > >

> > > I know Caudwell children fund still for ABA, think it is £2000 a year.

> > >

> > > x

> > >

> > >

> > >

> > > To: Autism-Biomedical-Europe

> > > From: camilleri.sophie@

> > > Date: Wed, 22 Feb 2012 21:51:12 +0000

> > > Subject: Thinking about doing ABA for my son,

advice please.

> > >

> > >

> > >

> > >

> > >

> > >

> > > Confused.com about what therapy to do for my son, hes currently in a

mainstream school and he is doing well, he goes for half a day at the mo, and I

was going to find a therapy for when he comes out of school at 12. Really stuck

at the moment, I feel that he needs more as he isnt getting enough at school.

> > > Also, can you get some kind of funding for therapy and if so, who can I

talk to about this?

> > >

> > > Thanks

> > > Sophie

> > >

> >

>

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Share on other sites

Hi Sophie - bit late responding here, but wanted to say that son-rise is also an

option for you and doesnt have to be too expensive. There are trained child

facilitators in the Uk who will do outreaches ie. they will come to your home

and 'play' with your child -working on the things you have discussed as

challenges. It may be worth having a chat with one of them about this - I could

forward details if you like. There is also lots of free video footage available

on line. I would recommend 'connecting with autism'on facebook - really

practical and easy to follow, as well as the many videos available on the

son-rise site (www.autismtreatmentcenter.org). The son-rise approach is nowhere

near as rigid/intensive as it used to be - some people do part-time progs after

school, and I know of families doing part-time son-rise/part-time school-

usually this is after a full time prog when they are integrating back into

school (www.helpinghenry.co.uk is an example). I trully believe that the

son-rise approach is an avenue you should consider (admittedly I am biased as

that's the approach I use for my son, along with other inputs).

Good luck , Sue

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Hi Sophie - bit late responding here, but wanted to say that son-rise is also an

option for you and doesnt have to be too expensive. There are trained child

facilitators in the Uk who will do outreaches ie. they will come to your home

and 'play' with your child -working on the things you have discussed as

challenges. It may be worth having a chat with one of them about this - I could

forward details if you like. There is also lots of free video footage available

on line. I would recommend 'connecting with autism'on facebook - really

practical and easy to follow, as well as the many videos available on the

son-rise site (www.autismtreatmentcenter.org). The son-rise approach is nowhere

near as rigid/intensive as it used to be - some people do part-time progs after

school, and I know of families doing part-time son-rise/part-time school-

usually this is after a full time prog when they are integrating back into

school (www.helpinghenry.co.uk is an example). I trully believe that the

son-rise approach is an avenue you should consider (admittedly I am biased as

that's the approach I use for my son, along with other inputs).

Good luck , Sue

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Share on other sites

Sophie, you'll probably do this anyway, but before you pay any money to a

consultant or therapist, you want to have a good talk with them at least,

without charge, and see them relate to your child. A good consultant will do

this willingly. Another idea might be, as he's only four and half, is to do

something about his needs in the afternoon, to play. As he's in school in the

morning. If you do that you can invite some little mates over as he goes along.

HTH Eileen. Have you thought about talking to Jane Stooks? xx

> > > >

> > > >

> > > > Hi Sophie

> > > >

> > > > I have been doing ABA with my Son for over 3 years now(he is nearly 7yrs

old now) , he has learnt alot with this so much so that when they LEA decided to

decrease hours to eventually stop (because he was doing so well!) I decided my

only option would be to give up work and home educate him myself. I do feel ABA

has been brilliant for us as he is very academic but i think as with every

therapy you can only take it so far, even though he has learnt alot he is still

lacking in areas of play & socialisation, now im sure if i had done Sonrise he

would be playing wonderfully but may have not got so far academically, but who

knows i can only guess.

> > > >

> > > > I know Caudwell children fund still for ABA, think it is £2000 a

year.

> > > >

> > > > x

> > > >

> > > >

> > > >

> > > > To: Autism-Biomedical-Europe

> > > > From: camilleri.sophie@

> > > > Date: Wed, 22 Feb 2012 21:51:12 +0000

> > > > Subject: Thinking about doing ABA for my son,

advice please.

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > Confused.com about what therapy to do for my son, hes currently in a

mainstream school and he is doing well, he goes for half a day at the mo, and I

was going to find a therapy for when he comes out of school at 12. Really stuck

at the moment, I feel that he needs more as he isnt getting enough at school.

> > > > Also, can you get some kind of funding for therapy and if so, who can I

talk to about this?

> > > >

> > > > Thanks

> > > > Sophie

> > > >

> > >

> >

>

Link to comment
Share on other sites

Sophie, you'll probably do this anyway, but before you pay any money to a

consultant or therapist, you want to have a good talk with them at least,

without charge, and see them relate to your child. A good consultant will do

this willingly. Another idea might be, as he's only four and half, is to do

something about his needs in the afternoon, to play. As he's in school in the

morning. If you do that you can invite some little mates over as he goes along.

HTH Eileen. Have you thought about talking to Jane Stooks? xx

> > > >

> > > >

> > > > Hi Sophie

> > > >

> > > > I have been doing ABA with my Son for over 3 years now(he is nearly 7yrs

old now) , he has learnt alot with this so much so that when they LEA decided to

decrease hours to eventually stop (because he was doing so well!) I decided my

only option would be to give up work and home educate him myself. I do feel ABA

has been brilliant for us as he is very academic but i think as with every

therapy you can only take it so far, even though he has learnt alot he is still

lacking in areas of play & socialisation, now im sure if i had done Sonrise he

would be playing wonderfully but may have not got so far academically, but who

knows i can only guess.

> > > >

> > > > I know Caudwell children fund still for ABA, think it is £2000 a

year.

> > > >

> > > > x

> > > >

> > > >

> > > >

> > > > To: Autism-Biomedical-Europe

> > > > From: camilleri.sophie@

> > > > Date: Wed, 22 Feb 2012 21:51:12 +0000

> > > > Subject: Thinking about doing ABA for my son,

advice please.

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > Confused.com about what therapy to do for my son, hes currently in a

mainstream school and he is doing well, he goes for half a day at the mo, and I

was going to find a therapy for when he comes out of school at 12. Really stuck

at the moment, I feel that he needs more as he isnt getting enough at school.

> > > > Also, can you get some kind of funding for therapy and if so, who can I

talk to about this?

> > > >

> > > > Thanks

> > > > Sophie

> > > >

> > >

> >

>

Link to comment
Share on other sites

Sophie, you'll probably do this anyway, but before you pay any money to a

consultant or therapist, you want to have a good talk with them at least,

without charge, and see them relate to your child. A good consultant will do

this willingly. Another idea might be, as he's only four and half, is to do

something about his needs in the afternoon, to play. As he's in school in the

morning. If you do that you can invite some little mates over as he goes along.

HTH Eileen. Have you thought about talking to Jane Stooks? xx

> > > >

> > > >

> > > > Hi Sophie

> > > >

> > > > I have been doing ABA with my Son for over 3 years now(he is nearly 7yrs

old now) , he has learnt alot with this so much so that when they LEA decided to

decrease hours to eventually stop (because he was doing so well!) I decided my

only option would be to give up work and home educate him myself. I do feel ABA

has been brilliant for us as he is very academic but i think as with every

therapy you can only take it so far, even though he has learnt alot he is still

lacking in areas of play & socialisation, now im sure if i had done Sonrise he

would be playing wonderfully but may have not got so far academically, but who

knows i can only guess.

> > > >

> > > > I know Caudwell children fund still for ABA, think it is £2000 a

year.

> > > >

> > > > x

> > > >

> > > >

> > > >

> > > > To: Autism-Biomedical-Europe

> > > > From: camilleri.sophie@

> > > > Date: Wed, 22 Feb 2012 21:51:12 +0000

> > > > Subject: Thinking about doing ABA for my son,

advice please.

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > Confused.com about what therapy to do for my son, hes currently in a

mainstream school and he is doing well, he goes for half a day at the mo, and I

was going to find a therapy for when he comes out of school at 12. Really stuck

at the moment, I feel that he needs more as he isnt getting enough at school.

> > > > Also, can you get some kind of funding for therapy and if so, who can I

talk to about this?

> > > >

> > > > Thanks

> > > > Sophie

> > > >

> > >

> >

>

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