Re: Second opinions and referells

[Guest guest]

I'm in the process of trying to do this.

The idea came from the helpline worker at the Challenging Behaviour Foundation.

Do ring them! They have a leaflet and other materials on line. Also they can

send you (free) DVDs. they contain helpful information. I also bought a book

" Challenging Behaviour " CUP by Emerson et al. - costs £40 but I paid £32 because

I get a discount from this publisher's bookshop.

I could lend it to you but only for a couple of weeks as I really do need it.

The book is v. useful as it tells you what a functional assessment and a

functional analysis is. Also shows how wide challenging behaviour is – useful.

The book focuses on severe LD – again very useful and makes a nice change from

reading books which ignore autism with SLD.

I then got an appt with local CAMHS LD people who tried to put me off. They said

they could do ABC charts. I said but there's much more to a functional

assessment than ABC harts (and showed them the chart on the book). I also said

that Emerson said while ABC charts were easy to do the evidence was that they

were unreliable. After 1 1/2 hours the upshot was that the psychiatrist was

going to look into a referral.

A letter was written and now it's up to my GP to secure the funding. It seems

that Cambs and borough NHS Trust (the mental health trust) has no budget of

its own - they just get commissioned to do a few things by the local PCT. The

local PCT says they don't have a contract with the Maudsley) although PALS told

me they do!). So it looks like it is now a matter of getting exceptional cases

funding.

Once the funding is on place it's a 10 weeks wait for the first appt from

referral.

GP wanted more info why referral necessary. I outline his SIB and other

challenging behaviour and also made the point that if we couldn't sort out the

challenging behaviour then he would have to move to a 52 week placement.I am

seeking a referral to the LD service of CAMH at the Maudsley. The autism CAMH

service is for higher functioning children and YP.

So watch this space...

Margaret

>

> Spoke to CP yesterday regarding 's OCD and waiting list.

> He was seen 2 yrs ago where they decided he didn't actually have OCD, I have

explained to this man that the situation is now much worse and even school are

reporting major problems just getting through the day. The thing is though, he

is still saying his team are not convinced this isn't just " Autistic Anxiety "

probably something related to " toddlers diahrea " (sigh).

> I asked him if we can have a referrel to the Maudsley but he said they had

never needed to refer anyone to the Maudsley, I told him the regardless of their

history with others I would like that referrel, he then said there would be a

budgeting issue.

> So how have any of you got referrels?

> TIA

> Vicky

>

[Guest guest]

I'm in the process of trying to do this.

The idea came from the helpline worker at the Challenging Behaviour Foundation.

Do ring them! They have a leaflet and other materials on line. Also they can

send you (free) DVDs. they contain helpful information. I also bought a book

" Challenging Behaviour " CUP by Emerson et al. - costs £40 but I paid £32 because

I get a discount from this publisher's bookshop.

I could lend it to you but only for a couple of weeks as I really do need it.

The book is v. useful as it tells you what a functional assessment and a

functional analysis is. Also shows how wide challenging behaviour is – useful.

The book focuses on severe LD – again very useful and makes a nice change from

reading books which ignore autism with SLD.

I then got an appt with local CAMHS LD people who tried to put me off. They said

they could do ABC charts. I said but there's much more to a functional

assessment than ABC harts (and showed them the chart on the book). I also said

that Emerson said while ABC charts were easy to do the evidence was that they

were unreliable. After 1 1/2 hours the upshot was that the psychiatrist was

going to look into a referral.

A letter was written and now it's up to my GP to secure the funding. It seems

that Cambs and borough NHS Trust (the mental health trust) has no budget of

its own - they just get commissioned to do a few things by the local PCT. The

local PCT says they don't have a contract with the Maudsley) although PALS told

me they do!). So it looks like it is now a matter of getting exceptional cases

funding.

Once the funding is on place it's a 10 weeks wait for the first appt from

referral.

GP wanted more info why referral necessary. I outline his SIB and other

challenging behaviour and also made the point that if we couldn't sort out the

challenging behaviour then he would have to move to a 52 week placement.I am

seeking a referral to the LD service of CAMH at the Maudsley. The autism CAMH

service is for higher functioning children and YP.

So watch this space...

Margaret

>

> Spoke to CP yesterday regarding 's OCD and waiting list.

> He was seen 2 yrs ago where they decided he didn't actually have OCD, I have

explained to this man that the situation is now much worse and even school are

reporting major problems just getting through the day. The thing is though, he

is still saying his team are not convinced this isn't just " Autistic Anxiety "

probably something related to " toddlers diahrea " (sigh).

> I asked him if we can have a referrel to the Maudsley but he said they had

never needed to refer anyone to the Maudsley, I told him the regardless of their

history with others I would like that referrel, he then said there would be a

budgeting issue.

> So how have any of you got referrels?

> TIA

> Vicky

>

[Guest guest]

I'm in the process of trying to do this.

The idea came from the helpline worker at the Challenging Behaviour Foundation.

Do ring them! They have a leaflet and other materials on line. Also they can

send you (free) DVDs. they contain helpful information. I also bought a book

" Challenging Behaviour " CUP by Emerson et al. - costs £40 but I paid £32 because

I get a discount from this publisher's bookshop.

I could lend it to you but only for a couple of weeks as I really do need it.

The book is v. useful as it tells you what a functional assessment and a

functional analysis is. Also shows how wide challenging behaviour is – useful.

The book focuses on severe LD – again very useful and makes a nice change from

reading books which ignore autism with SLD.

I then got an appt with local CAMHS LD people who tried to put me off. They said

they could do ABC charts. I said but there's much more to a functional

assessment than ABC harts (and showed them the chart on the book). I also said

that Emerson said while ABC charts were easy to do the evidence was that they

were unreliable. After 1 1/2 hours the upshot was that the psychiatrist was

going to look into a referral.

A letter was written and now it's up to my GP to secure the funding. It seems

that Cambs and borough NHS Trust (the mental health trust) has no budget of

its own - they just get commissioned to do a few things by the local PCT. The

local PCT says they don't have a contract with the Maudsley) although PALS told

me they do!). So it looks like it is now a matter of getting exceptional cases

funding.

Once the funding is on place it's a 10 weeks wait for the first appt from

referral.

GP wanted more info why referral necessary. I outline his SIB and other

challenging behaviour and also made the point that if we couldn't sort out the

challenging behaviour then he would have to move to a 52 week placement.I am

seeking a referral to the LD service of CAMH at the Maudsley. The autism CAMH

service is for higher functioning children and YP.

So watch this space...

Margaret

>

> Spoke to CP yesterday regarding 's OCD and waiting list.

> He was seen 2 yrs ago where they decided he didn't actually have OCD, I have

explained to this man that the situation is now much worse and even school are

reporting major problems just getting through the day. The thing is though, he

is still saying his team are not convinced this isn't just " Autistic Anxiety "

probably something related to " toddlers diahrea " (sigh).

> I asked him if we can have a referrel to the Maudsley but he said they had

never needed to refer anyone to the Maudsley, I told him the regardless of their

history with others I would like that referrel, he then said there would be a

budgeting issue.

> So how have any of you got referrels?

> TIA

> Vicky

>

[Guest guest]

PS I know it's OCD you are worried about but it probvably leads to challenging

behaviour! Don't know if they have a specialist OCD service but I think the LD

service would be the right one for ?

Margaret

> >

> > Spoke to CP yesterday regarding 's OCD and waiting list.

> > He was seen 2 yrs ago where they decided he didn't actually have OCD, I have

explained to this man that the situation is now much worse and even school are

reporting major problems just getting through the day. The thing is though, he

is still saying his team are not convinced this isn't just " Autistic Anxiety "

probably something related to " toddlers diahrea " (sigh).

> > I asked him if we can have a referrel to the Maudsley but he said they had

never needed to refer anyone to the Maudsley, I told him the regardless of their

history with others I would like that referrel, he then said there would be a

budgeting issue.

> > So how have any of you got referrels?

> > TIA

> > Vicky

> >

>