Kimberely and Autumn

[Guest guest]

Autumn, no the tests you mentioned have not been done on either or

. s' C3 was deficient in last years batch of immune testing,

but no followup tests were ordered as a result, and has the low C4.

I have been researching some sites since I got s results last week ,

and know more now than I did with my last post. It is disconcerting to say

the least, but fits in so much with the way they both present and the

infections they are susceptable to, and it seems possible to connect some

other things, too, or at least it sheds light on other puzzles to their

health issues. I will have to wait until their immunologist can explain it

better to me, in how it effects them as individuals, but I have many

questions I wouldnt mind posing to others with a complement deficiency.

Foremost, and Kimberely might help here, is there a term for a complement

deficiency other than saying just that? In combination with the IgA

deficiency, is there a 'group' category (for instance theres SCID, CVID,

Brutons etc and its none of these but is there some term other than the

longwinded 'Selective IgA deficiency and complement C4 deficiency'-in

s case) ? We are still waiting on the post pneumococal results to come

in, so I dont yet know if there is a problem there too.

, mum to and

> Hi ,

>

> Mark has had low C4's for a long time now. It can mean any number of

> things, but is usually associated with autoimmune issues/diseases. What

was

> the actual number? A low C1 is usually what they test when looking for

> hereditary angioedema. The test is called C1-Esterase. Did they do a

CH50?

> I hope that things turn around soon for you and your family.

>

> Autumn (Mom to Mark Cd5-Cd19 PID and )

>

>

> This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the

sole responsibility of the poster and should not be taken as professional

advice.

>

>