Research Autism survey re autism research priorities

[Guest guest]

Hello all

Thanks so much to those of you who've filled in this (awful) survey and

especially for all the great points you have raised on the survey.

Agree it needed a lot more explanation and context, as well as a lot of other

changes (in fact, probably a complete re-write).

I've written to the Chair of RA asking them to withdraw it and do it properly,

including consulting with parents, practitioners and autistic people

(consultation is not RA's strong point) about the scope and format of the

survey.....so I hope with all our combined efforts, the point has been made.

More reassuringly, I was pleased to hear that Tony Charman and his colleagues at

the Centre for Research into Autism Education (CRAE) will be doing a much more

sophisticated consultation with stakeholders around what autism research

priorities should be. I have much more confidence in Tony and co's

professionalism and look forward to that - will keep you posted about

developments.

Thanks again

Zoe x

[Guest guest]

Thanks for the update Zoe. Is the survey now closed ?Natasa Reply-To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Date: Fri, 16 Mar 2012 09:41:56 -0000To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Subject: Research Autism survey re autism research priorities

Hello all

Thanks so much to those of you who've filled in this (awful) survey and especially for all the great points you have raised on the survey.

Agree it needed a lot more explanation and context, as well as a lot of other changes (in fact, probably a complete re-write).

I've written to the Chair of RA asking them to withdraw it and do it properly, including consulting with parents, practitioners and autistic people (consultation is not RA's strong point) about the scope and format of the survey.....so I hope with all our combined efforts, the point has been made.

More reassuringly, I was pleased to hear that Tony Charman and his colleagues at the Centre for Research into Autism Education (CRAE) will be doing a much more sophisticated consultation with stakeholders around what autism research priorities should be. I have much more confidence in Tony and co's professionalism and look forward to that - will keep you posted about developments.

Thanks again

Zoe x