Re: Yorkshire and Help and advice for starting SCD, please!

[Guest guest]

Hi and thanks for the information I've been given so far - think I need some

feedback from Dr Yeoh to a few questions I've sent her and perhaps to talk to

those listers with some experience of SCD off list: would that be OK (Sophie,

Lorna and anyone else!)? Especially concerned about number of eggs in many of

the recipes ...

Re Yorkshire members: I know a few people doing biomed to varying degrees,

mainly through my position as link worker at AWARE - Airedale and Wharfedale

Autism Resource http:/www.awareuk.org Please feel free to get in touch - we're

a parent support group in Airedale and Wharfedale and a pretty friendly lot!

BTW, my son was also on a very successful ABA programme for several years with

Autism Partnership, Leeds, in case anyone is interested in going down that

route, too.

Thanks again, Margaret

> >

> >

> > Hello, I haven't posted for a while but we had a consultation with Dr

> > Yeoh at The Breakspear last week and she has suggested we move

> > from the

> > GF/CF diet (nearly eight years later!) to SCD with my twelve year old

> > son and I don't really know where to start ... other than here! Sorry

> > if this is a bit long ...

> >

> > We had the GF/CF diet more or less sussed, although as my son is

> > mainstream and very social so whenever he went to people's houses or

> > away on trips, he would take HNI enzymes. Most of the time he is doing

> > very well both in and out of school, but he does have an ongoing issue

> > with weekly tummy aches and occasional bouts of vomiting. Both issues

> > have decreased over the years, partly helped when we took out

> > boiled/fried/scrambled eggs, too, but they ARE still there - and

> > often,

> > but not always, co-incide with times of heightened emotions: anxieties

> > re SATS or sport event, and evn birthday and christmas - when he

> > really

> > is NOT negatively emotional!

> >

> > He has been having CBT with his therapist (he was on ABA for several

> > years but no longer needs their input) since he started secondary

> > school

> > last September but the anxieties continue - although not at school

> > where he is much happier than at primary - so I think Dr Yeoh is right

> > and it is worth trying the SCD. Howver, at 165cm and weighing just 45k

> > (and with hollow legs and doing various sports up to eight times a

> > week

> > - and that's apart from PE!), I can't imagine how I will fill him

> > up and

> > he not lsoe weight! My husband (a similar build to my son) is an

> > insulin-dependent diabetic who runs so needs LARGE amounts of complex

> > carbs, so a family change to all SCD is out of the question - my

> > husband

> > would quickly end up on the floor with hypoglycaemia and

> > life-threatening fits - so I am, understandably, anxious about how

> > to do

> > this.

> >

> > I am also not an experienced baker (having been with a type 1 diabetic

> > for 20 years), so I really need the easiest/tastiest recipes for bread

> > and muffins and any advice people have, please, such as breadmachines,

> > do I need a yoghurt maker, should he still be casein free (he's been

> > doing very well on goat's milk so far)! I am up in Yorkshire and don't

> > know anyone here who is doing SCD but if there is a specific support

> > group, preferably in the UK, I'd love to know! Thanks for reading

> > this!

> >

> > Yours, hopefully, Margaret

> >

> >

> >

> >

> > No virus found in this message.

> > Checked by AVG - www.avg.com <http://www.avg.com>

> > Version: 2012.0.1913 / Virus Database: 2114/4828 - Release Date: 02/23/12

> >

>

[Guest guest]

Hi and thanks for the information I've been given so far - think I need some

feedback from Dr Yeoh to a few questions I've sent her and perhaps to talk to

those listers with some experience of SCD off list: would that be OK (Sophie,

Lorna and anyone else!)? Especially concerned about number of eggs in many of

the recipes ...

Re Yorkshire members: I know a few people doing biomed to varying degrees,

mainly through my position as link worker at AWARE - Airedale and Wharfedale

Autism Resource http:/www.awareuk.org Please feel free to get in touch - we're

a parent support group in Airedale and Wharfedale and a pretty friendly lot!

BTW, my son was also on a very successful ABA programme for several years with

Autism Partnership, Leeds, in case anyone is interested in going down that

route, too.

Thanks again, Margaret

> >

> >

> > Hello, I haven't posted for a while but we had a consultation with Dr

> > Yeoh at The Breakspear last week and she has suggested we move

> > from the

> > GF/CF diet (nearly eight years later!) to SCD with my twelve year old

> > son and I don't really know where to start ... other than here! Sorry

> > if this is a bit long ...

> >

> > We had the GF/CF diet more or less sussed, although as my son is

> > mainstream and very social so whenever he went to people's houses or

> > away on trips, he would take HNI enzymes. Most of the time he is doing

> > very well both in and out of school, but he does have an ongoing issue

> > with weekly tummy aches and occasional bouts of vomiting. Both issues

> > have decreased over the years, partly helped when we took out

> > boiled/fried/scrambled eggs, too, but they ARE still there - and

> > often,

> > but not always, co-incide with times of heightened emotions: anxieties

> > re SATS or sport event, and evn birthday and christmas - when he

> > really

> > is NOT negatively emotional!

> >

> > He has been having CBT with his therapist (he was on ABA for several

> > years but no longer needs their input) since he started secondary

> > school

> > last September but the anxieties continue - although not at school

> > where he is much happier than at primary - so I think Dr Yeoh is right

> > and it is worth trying the SCD. Howver, at 165cm and weighing just 45k

> > (and with hollow legs and doing various sports up to eight times a

> > week

> > - and that's apart from PE!), I can't imagine how I will fill him

> > up and

> > he not lsoe weight! My husband (a similar build to my son) is an

> > insulin-dependent diabetic who runs so needs LARGE amounts of complex

> > carbs, so a family change to all SCD is out of the question - my

> > husband

> > would quickly end up on the floor with hypoglycaemia and

> > life-threatening fits - so I am, understandably, anxious about how

> > to do

> > this.

> >

> > I am also not an experienced baker (having been with a type 1 diabetic

> > for 20 years), so I really need the easiest/tastiest recipes for bread

> > and muffins and any advice people have, please, such as breadmachines,

> > do I need a yoghurt maker, should he still be casein free (he's been

> > doing very well on goat's milk so far)! I am up in Yorkshire and don't

> > know anyone here who is doing SCD but if there is a specific support

> > group, preferably in the UK, I'd love to know! Thanks for reading

> > this!

> >

> > Yours, hopefully, Margaret

> >

> >

> >

> >

> > No virus found in this message.

> > Checked by AVG - www.avg.com <http://www.avg.com>

> > Version: 2012.0.1913 / Virus Database: 2114/4828 - Release Date: 02/23/12

> >

>

[Guest guest]

Hi and thanks for the information I've been given so far - think I need some

feedback from Dr Yeoh to a few questions I've sent her and perhaps to talk to

those listers with some experience of SCD off list: would that be OK (Sophie,

Lorna and anyone else!)? Especially concerned about number of eggs in many of

the recipes ...

Re Yorkshire members: I know a few people doing biomed to varying degrees,

mainly through my position as link worker at AWARE - Airedale and Wharfedale

Autism Resource http:/www.awareuk.org Please feel free to get in touch - we're

a parent support group in Airedale and Wharfedale and a pretty friendly lot!

BTW, my son was also on a very successful ABA programme for several years with

Autism Partnership, Leeds, in case anyone is interested in going down that

route, too.

Thanks again, Margaret

> >

> >

> > Hello, I haven't posted for a while but we had a consultation with Dr

> > Yeoh at The Breakspear last week and she has suggested we move

> > from the

> > GF/CF diet (nearly eight years later!) to SCD with my twelve year old

> > son and I don't really know where to start ... other than here! Sorry

> > if this is a bit long ...

> >

> > We had the GF/CF diet more or less sussed, although as my son is

> > mainstream and very social so whenever he went to people's houses or

> > away on trips, he would take HNI enzymes. Most of the time he is doing

> > very well both in and out of school, but he does have an ongoing issue

> > with weekly tummy aches and occasional bouts of vomiting. Both issues

> > have decreased over the years, partly helped when we took out

> > boiled/fried/scrambled eggs, too, but they ARE still there - and

> > often,

> > but not always, co-incide with times of heightened emotions: anxieties

> > re SATS or sport event, and evn birthday and christmas - when he

> > really

> > is NOT negatively emotional!

> >

> > He has been having CBT with his therapist (he was on ABA for several

> > years but no longer needs their input) since he started secondary

> > school

> > last September but the anxieties continue - although not at school

> > where he is much happier than at primary - so I think Dr Yeoh is right

> > and it is worth trying the SCD. Howver, at 165cm and weighing just 45k

> > (and with hollow legs and doing various sports up to eight times a

> > week

> > - and that's apart from PE!), I can't imagine how I will fill him

> > up and

> > he not lsoe weight! My husband (a similar build to my son) is an

> > insulin-dependent diabetic who runs so needs LARGE amounts of complex

> > carbs, so a family change to all SCD is out of the question - my

> > husband

> > would quickly end up on the floor with hypoglycaemia and

> > life-threatening fits - so I am, understandably, anxious about how

> > to do

> > this.

> >

> > I am also not an experienced baker (having been with a type 1 diabetic

> > for 20 years), so I really need the easiest/tastiest recipes for bread

> > and muffins and any advice people have, please, such as breadmachines,

> > do I need a yoghurt maker, should he still be casein free (he's been

> > doing very well on goat's milk so far)! I am up in Yorkshire and don't

> > know anyone here who is doing SCD but if there is a specific support

> > group, preferably in the UK, I'd love to know! Thanks for reading

> > this!

> >

> > Yours, hopefully, Margaret

> >

> >

> >

> >

> > No virus found in this message.

> > Checked by AVG - www.avg.com <http://www.avg.com>

> > Version: 2012.0.1913 / Virus Database: 2114/4828 - Release Date: 02/23/12

> >

>

[Guest guest]

>Hi Margaret,

Very happy for you to email me offlist to discuss SCD if you want?

Best wishes,

Lorna

x

>

>

>

> Hi and thanks for the information I've been given so far - think I need some

feedback from Dr Yeoh to a few questions I've sent her and perhaps to talk to

those listers with some experience of SCD off list: would that be OK (Sophie,

Lorna and anyone else!)? Especially concerned about number of eggs in many of

the recipes ...

>

> Re Yorkshire members: I know a few people doing biomed to varying degrees,

mainly through my position as link worker at AWARE - Airedale and Wharfedale

Autism Resource http:/www.awareuk.org Please feel free to get in touch - we're

a parent support group in Airedale and Wharfedale and a pretty friendly lot!

BTW, my son was also on a very successful ABA programme for several years with

Autism Partnership, Leeds, in case anyone is interested in going down that

route, too.

>

> Thanks again, Margaret

>

>

[Guest guest]

>Hi Margaret,

Very happy for you to email me offlist to discuss SCD if you want?

Best wishes,

Lorna

x

>

>

>

> Hi and thanks for the information I've been given so far - think I need some

feedback from Dr Yeoh to a few questions I've sent her and perhaps to talk to

those listers with some experience of SCD off list: would that be OK (Sophie,

Lorna and anyone else!)? Especially concerned about number of eggs in many of

the recipes ...

>

> Re Yorkshire members: I know a few people doing biomed to varying degrees,

mainly through my position as link worker at AWARE - Airedale and Wharfedale

Autism Resource http:/www.awareuk.org Please feel free to get in touch - we're

a parent support group in Airedale and Wharfedale and a pretty friendly lot!

BTW, my son was also on a very successful ABA programme for several years with

Autism Partnership, Leeds, in case anyone is interested in going down that

route, too.

>

> Thanks again, Margaret

>

>

[Guest guest]

Hi Margaret,Feel free to contact me re. SCD. We’re also with Breakspear as well as in the North of England (Cumbria).Just wondering if you know about the yahoo groups Pecanbread and SCD UK.Adrienne From: Autism-Biomedical-Europe [mailto:Autism-Biomedical-Europe ] On Behalf Of lornapapeSent: 25 February 2012 20:14To: Autism-Biomedical-Europe Subject: Re: Yorkshire and Help and advice for starting SCD, please! >Hi Margaret,Very happy for you to email me offlist to discuss SCD if you want?Best wishes,Lornax> > > > Hi and thanks for the information I've been given so far - think I need some feedback from Dr Yeoh to a few questions I've sent her and perhaps to talk to those listers with some experience of SCD off list: would that be OK (Sophie, Lorna and anyone else!)? Especially concerned about number of eggs in many of the recipes ...> > Re Yorkshire members: I know a few people doing biomed to varying degrees, mainly through my position as link worker at AWARE - Airedale and Wharfedale Autism Resource http:/www.awareuk.org Please feel free to get in touch - we're a parent support group in Airedale and Wharfedale and a pretty friendly lot! BTW, my son was also on a very successful ABA programme for several years with Autism Partnership, Leeds, in case anyone is interested in going down that route, too. > > Thanks again, Margaret > >