Valtrex - should we carry on?

[Guest guest]

Hi all,

I would be grateful if you could offer advice or explanation.

My son is 11 and we did range of tests with Dr G in Dec. The results showed very

raised Cytomegalovirus antibodies, lymphocytoses etc, so i was adviced to start

treatment with Valtrex (3x500mg), Fluconazole (1x50 mg), as well as B 12, Folic

acid in addition to Vits, oils and probiotics already in place.

To start with my son developed very puffy red eyes and dark shadows, which

mainly cleared after 2 weeks, except for slight shadows under his eyes

remaining. He also gets very tired in the evenings and wakes up with his eyes

tired looking and no usual brightness.

After about 8 weeks we did repeated autonomic response testing which Dr G

interpreted as markedly improved and adviced we carry on with antivirals

introducing oxygen concentrator treatment and vascular endothelial support. He

thought that my son's behaviour seemed improved compared to last time (my son

usually behaves better when all more familiar..) I did say that i could not see

gains in his functioning or behaviour. If anything his obsessiveness and

controlling language, as well as being more OCD increased (but negative strep

titre test). At the same time i did want to believe him that my son will get

better with prolonged treatment, so decided to carry on.

Introducing oxygen concentrator for 3 hours every day after school was not

possible and was causing too much grief, but we are doing vascular support.

Still, after over 3 months no gains. My son's OCD behaviours and obsessiveness

are not getting any worse or better.

Wondering if with prolonging the treatment things could still get better for us,

or is it just a wishful thinking. Also, why do you think the improvements shown

on repeated autonomic test are not translating into real gains in functioning?

If antivirals are not helping, what to do next?

Many thanks,

Vesna

[Guest guest]

Hi Vesna

We are off to see Dr G next week to hopefully follow the same path that you have taken with antivirals/MB12 shots, i have been doing alot of research in this area to prepare myself with what i should expect, found the following link to be very helpful regarding what to expect from the MB12 injections.

http://www.tacanow.org/family-resources/methyl-b12-a-treatment-for-asd-with-methylation-issues/

Its a bit of a long read but IMHO well worth it.

x

To: Autism-Biomedical-Europe From: vesnauk@...Date: Thu, 8 Mar 2012 12:28:25 +0000Subject: Valtrex - should we carry on?

Hi all,I would be grateful if you could offer advice or explanation.My son is 11 and we did range of tests with Dr G in Dec. The results showed very raised Cytomegalovirus antibodies, lymphocytoses etc, so i was adviced to start treatment with Valtrex (3x500mg), Fluconazole (1x50 mg), as well as B 12, Folic acid in addition to Vits, oils and probiotics already in place.To start with my son developed very puffy red eyes and dark shadows, which mainly cleared after 2 weeks, except for slight shadows under his eyes remaining. He also gets very tired in the evenings and wakes up with his eyes tired looking and no usual brightness. After about 8 weeks we did repeated autonomic response testing which Dr G interpreted as markedly improved and adviced we carry on with antivirals introducing oxygen concentrator treatment and vascular endothelial support. He thought that my son's behaviour seemed improved compared to last time (my son usually behaves better when all more familiar..) I did say that i could not see gains in his functioning or behaviour. If anything his obsessiveness and controlling language, as well as being more OCD increased (but negative strep titre test). At the same time i did want to believe him that my son will get better with prolonged treatment, so decided to carry on.Introducing oxygen concentrator for 3 hours every day after school was not possible and was causing too much grief, but we are doing vascular support. Still, after over 3 months no gains. My son's OCD behaviours and obsessiveness are not getting any worse or better. Wondering if with prolonging the treatment things could still get better for us, or is it just a wishful thinking. Also, why do you think the improvements shown on repeated autonomic test are not translating into real gains in functioning? If antivirals are not helping, what to do next?Many thanks,Vesna

[Guest guest]

Hi Vesna

We are off to see Dr G next week to hopefully follow the same path that you have taken with antivirals/MB12 shots, i have been doing alot of research in this area to prepare myself with what i should expect, found the following link to be very helpful regarding what to expect from the MB12 injections.

http://www.tacanow.org/family-resources/methyl-b12-a-treatment-for-asd-with-methylation-issues/

Its a bit of a long read but IMHO well worth it.

x

To: Autism-Biomedical-Europe From: vesnauk@...Date: Thu, 8 Mar 2012 12:28:25 +0000Subject: Valtrex - should we carry on?

Hi all,I would be grateful if you could offer advice or explanation.My son is 11 and we did range of tests with Dr G in Dec. The results showed very raised Cytomegalovirus antibodies, lymphocytoses etc, so i was adviced to start treatment with Valtrex (3x500mg), Fluconazole (1x50 mg), as well as B 12, Folic acid in addition to Vits, oils and probiotics already in place.To start with my son developed very puffy red eyes and dark shadows, which mainly cleared after 2 weeks, except for slight shadows under his eyes remaining. He also gets very tired in the evenings and wakes up with his eyes tired looking and no usual brightness. After about 8 weeks we did repeated autonomic response testing which Dr G interpreted as markedly improved and adviced we carry on with antivirals introducing oxygen concentrator treatment and vascular endothelial support. He thought that my son's behaviour seemed improved compared to last time (my son usually behaves better when all more familiar..) I did say that i could not see gains in his functioning or behaviour. If anything his obsessiveness and controlling language, as well as being more OCD increased (but negative strep titre test). At the same time i did want to believe him that my son will get better with prolonged treatment, so decided to carry on.Introducing oxygen concentrator for 3 hours every day after school was not possible and was causing too much grief, but we are doing vascular support. Still, after over 3 months no gains. My son's OCD behaviours and obsessiveness are not getting any worse or better. Wondering if with prolonging the treatment things could still get better for us, or is it just a wishful thinking. Also, why do you think the improvements shown on repeated autonomic test are not translating into real gains in functioning? If antivirals are not helping, what to do next?Many thanks,Vesna

[Guest guest]

Hi Vesna

We are off to see Dr G next week to hopefully follow the same path that you have taken with antivirals/MB12 shots, i have been doing alot of research in this area to prepare myself with what i should expect, found the following link to be very helpful regarding what to expect from the MB12 injections.

http://www.tacanow.org/family-resources/methyl-b12-a-treatment-for-asd-with-methylation-issues/

Its a bit of a long read but IMHO well worth it.

x

To: Autism-Biomedical-Europe From: vesnauk@...Date: Thu, 8 Mar 2012 12:28:25 +0000Subject: Valtrex - should we carry on?

Hi all,I would be grateful if you could offer advice or explanation.My son is 11 and we did range of tests with Dr G in Dec. The results showed very raised Cytomegalovirus antibodies, lymphocytoses etc, so i was adviced to start treatment with Valtrex (3x500mg), Fluconazole (1x50 mg), as well as B 12, Folic acid in addition to Vits, oils and probiotics already in place.To start with my son developed very puffy red eyes and dark shadows, which mainly cleared after 2 weeks, except for slight shadows under his eyes remaining. He also gets very tired in the evenings and wakes up with his eyes tired looking and no usual brightness. After about 8 weeks we did repeated autonomic response testing which Dr G interpreted as markedly improved and adviced we carry on with antivirals introducing oxygen concentrator treatment and vascular endothelial support. He thought that my son's behaviour seemed improved compared to last time (my son usually behaves better when all more familiar..) I did say that i could not see gains in his functioning or behaviour. If anything his obsessiveness and controlling language, as well as being more OCD increased (but negative strep titre test). At the same time i did want to believe him that my son will get better with prolonged treatment, so decided to carry on.Introducing oxygen concentrator for 3 hours every day after school was not possible and was causing too much grief, but we are doing vascular support. Still, after over 3 months no gains. My son's OCD behaviours and obsessiveness are not getting any worse or better. Wondering if with prolonging the treatment things could still get better for us, or is it just a wishful thinking. Also, why do you think the improvements shown on repeated autonomic test are not translating into real gains in functioning? If antivirals are not helping, what to do next?Many thanks,Vesna