Re: Information posted on CAPS site

[Guest guest]

When my doctor heard that we had United HealthCare he shook his head

and said " Forget about it. They are not going to pay for it. " He

said he never had success with them. Good luck to you in your

appeal. Mine was denied each and every time.

Keep me posted.

Also, I responded to your last post with my e-mail and name. Again,

anything I can do to help.

Sue (Riley's mom)

> Hello all,

>

> First I just wanted to let everyone know the information has been

> posted on the CAPS website www.caps2000.org . More information

will

> be posted and diagrams and such will be added after 's

move.

> But for now it is an informative report to explain about Plagio,

it's

> causes, what treatments are available, and how to prevent it.

>

> Then I wanted to let everyone know that we FINALLY heard back from

> our insurance company (United HealthCare) and the Pre-approval has

> been denied on the grounds that the DOC Band is a cosmetic

> procedure. Boy am I going to have a field day with this!!

>

> But the good news is that i has her casting date for this

> Thursday. I am very excited to get treatment started and fix her

> little crooked noggin!

>

> I hope everyone is well and I will start responding back to

everyone

> who has been waiting so patiently!

>

> Sincerely,

> Jaya Dong

[Guest guest]

Jaya,

I agree whole-heartedly with what Marci said. You did an outstanding

job on the CAPPS site and I wish I'd had that information when I

first noticed my daughter's head shape and was told it was nothing to

worry about. Thanks for all your efforts. Sue & (1/21/00)

> I just looked over all the information you posted on the CAPPS

sight and I

> just wanted to say what a wonderful job you did. I would love to

have seen

> something like that when I was first told that my baby had plagio!

I think

> the info you have provided will be a great help to MANY parents

down the road.

>

> Good Job!!!!

>

> Marci

[Guest guest]

Jaya and all.....

A few weeks ago when Vince had appt with neuro, I

mentioned these support groups. He sounded very interested. He just didn't

have much spare time to talk so he asked that I e-mail the info to him. He

said he had 4 new plagio patients that prior week and the ortho he recommends

was just loving it! Once he received info, he said maybe his office could put

something together for parents whose children were recently DX. I mentioned

the fact that CAPPS2000 was becoming a national group and he was pretty

impressed. He also commented on how imp it was for the AAP to change their

views on back sleeping.

This afternoon, my daughter had a dentist appt. I

took the opportunity to ask dr if he knew of any cases where plagio had Been

left untreated and eventually caused dental problems. He personally did not

have an answer but will check into it for me. It so happens that he also

works at the Univ of Chicago assisting the craniofacial surgeons in

reconstructive surgeries such as craino. He was pretty well informed on what

I was talking about and said he has seen some pretty severe cases. I think I

might have stirred some interest here. I'll wait and see what he finds.

Belinda(Indiana)