Guest guest Posted May 17, 2000 Report Share Posted May 17, 2000 We have twins currently in the DOC band. We live in eastern Canada and the closest Cranial Tech clinic is in Charlotte, North Carolina. We travelled approx. weekly for over a month before taking leave from work and temporarily relocating in Charlotte until treatment is over. We are interested in other Canadian parents' experiences with getting plagiocephaly acknowledged and treated in Canada, travelling for treatment, or obtaining Medicare support for treatment costs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2000 Report Share Posted May 17, 2000 I live in Winnipeg and we have travelled to the Alberta Children's Hospital,in Calgary to visit Dr.Hamilton. They are affiliated with Cranial Tech. Our 7 month old daughter was casted for the DOC band 2 weeks ago and we return next week for fitting. Manitoba Health has agreed to fund the travel and clinic costs but has not yet committed to the band cost. We were quite impressed with the clinic in Calgary. Please let me know if you need anything further. Stuart Blake Stuart J. Blake Fillmore Riley Barristers and Solicitors 1700 - 360 Main Street Winnipeg, Manitoba, Canada R3C 3Z3 * E-mail: stuartblake@... *Tel (204) 957-8347 * Fax (204) 957-0516 THE INFORMATION CONTAINED IN THIS E-MAIL MESSAGE IS INTENDED ONLY FOR THE PERSONAL AND CONFIDENTIAL USE OF THE DESIGNATED RECIPIENTS NAMED ABOVE. IF THE READER OF THIS MESSAGE IS NOT THE INTENDED RECIPIENT OR AN AGENT RESPONSIBLE FOR DELIVERING IT TO THE INTENDED RECIPIENT, YOU ARE HEREBY NOTIFIED THAT YOU HAVE RECEIVED THIS DOCUMENT IN ERROR, AND THAT ANY REVIEW, DISSEMINATION, DISTRIBUTION, OR COPYING OF THIS MESSAGE IS STRICTLY PROHIBITED. IF YOU HAVE RECEIVED THIS COMMUNICATION IN ERROR, PLEASE NOTIFY US IMMEDIATELY BY TELEPHONE AT THE NUMBER SET OUT ABOVE AND DELETE THE ORIGINAL MESSAGE. -----Original Message----- From: tem@... [mailto:tem@...] Sent: Wednesday, May 17, 2000 3:25 PM Plagiocephalyegroups Subject: Anyone from Canada? We have twins currently in the DOC band. We live in eastern Canada and the closest Cranial Tech clinic is in Charlotte, North Carolina. We travelled approx. weekly for over a month before taking leave from work and temporarily relocating in Charlotte until treatment is over. We are interested in other Canadian parents' experiences with getting plagiocephaly acknowledged and treated in Canada, travelling for treatment, or obtaining Medicare support for treatment costs. ------------------------------------------------------------------------ Remember four years of good friends, bad clothes, explosive chemistry experiments. 1/4051/4/_/689409/_/958595120/ ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2000 Report Share Posted May 18, 2000 Hi "tem", I'm in Calgary, and very fortunately for us, I am a 15-20 minute WALK from the Alberta Children's Hospital where our daughter is treated. I count my lucky stars every single day!! I know there are many parents bringing their babies here from out of province, but I think the farthest has been Winnipeg. The only 2 places in Canada where you can get the band are Calgary & Edmonton. Silly that they put them 3 hours apart. I know that the people from our clinic travel to other hospitals to inform medical staff, but I don't think they leave the province. Perhaps it is time to start writing letters to various hospitals around the country?? How long are you in the states for? Kendra tem@... wrote: We have twins currently in the DOC band. We live in eastern Canada and the closest Cranial Tech clinic is in Charlotte, North Carolina. We travelled approx. weekly for over a month before taking leave from work and temporarily relocating in Charlotte until treatment is over. We are interested in other Canadian parents' experiences with getting plagiocephaly acknowledged and treated in Canada, travelling for treatment, or obtaining Medicare support for treatment costs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2000 Report Share Posted May 18, 2000 Stuart: I was just thinking of you! How did everything go? What day are you back in Calgary? kendra "Blake, Stuart" wrote: I live in Winnipeg and we have travelled to the Alberta Children's Hospital,in Calgary to visit Dr.Hamilton. They are affiliated with Cranial Tech. Our 7 month old daughter was casted for the DOC band 2 weeks ago and we return next week for fitting. Manitoba Health has agreed to fund the travel and clinic costs but has not yet committed to the band cost. We were quite impressed with the clinic in Calgary. Please let me know if you need anything further. Stuart Blake Stuart J. Blake Fillmore Riley Barristers and Solicitors 1700 - 360 Main Street Winnipeg, Manitoba, Canada R3C 3Z3 * E-mail: stuartblake@... *Tel (204) 957-8347 * Fax (204) 957-0516 THE INFORMATION CONTAINED IN THIS E-MAIL MESSAGE IS INTENDED ONLY FOR THE PERSONAL AND CONFIDENTIAL USE OF THE DESIGNATED RECIPIENTS NAMED ABOVE. IF THE READER OF THIS MESSAGE IS NOT THE INTENDED RECIPIENT OR AN AGENT RESPONSIBLE FOR DELIVERING IT TO THE INTENDED RECIPIENT, YOU ARE HEREBY NOTIFIED THAT YOU HAVE RECEIVED THIS DOCUMENT IN ERROR, AND THAT ANY REVIEW, DISSEMINATION, DISTRIBUTION, OR COPYING OF THIS MESSAGE IS STRICTLY PROHIBITED. IF YOU HAVE RECEIVED THIS COMMUNICATION IN ERROR, PLEASE NOTIFY US IMMEDIATELY BY TELEPHONE AT THE NUMBER SET OUT ABOVE AND DELETE THE ORIGINAL MESSAGE. -----Original Message----- From: tem@... [mailto:tem@...] Sent: Wednesday, May 17, 2000 3:25 PM Plagiocephalyegroups Subject: Anyone from Canada? We have twins currently in the DOC band. We live in eastern Canada and the closest Cranial Tech clinic is in Charlotte, North Carolina. We travelled approx. weekly for over a month before taking leave from work and temporarily relocating in Charlotte until treatment is over. We are interested in other Canadian parents' experiences with getting plagiocephaly acknowledged and treated in Canada, travelling for treatment, or obtaining Medicare support for treatment costs. ------------------------------------------------------------------------ Remember four years of good friends, bad clothes, explosive chemistry experiments. 1/4051/4/_/689409/_/958595120/ ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2000 Report Share Posted May 18, 2000 We can stay here in the US until the end of June when we have to go back to work in New Brunswick. Cranial Tech feels we should be done treatment on both boys by then. They have been in the band since March 8 and April 8 respectively. They are now 8 months old and we are really pleased with progress. Unfortunately Calgary was further away for us than North Carolina, and more expensive plane tickets. We were able to get seat sales, use Aeroplan points to a point. Then the merger of Air Canada & Canadian hit, and we could barely even get flights to Toronto to make connections to Charlotte. So we made a few trips flying from Bangor, Maine which was a 4 hour drive from us. After a couple of months of that travel we decided to relocate. We wished we lived in Alberta, beleive me. This has to be more widespread, though -- what does everyone in Toronto do? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2000 Report Share Posted May 18, 2000 Kendra, We return to Calgary on the 23rd of May. The cast has been done and the band will be fitted next week. The casting process was extremely upsetting but it is now behind us. We are not looking forward to putting the band on our daughter. She is so cute and happy and we are afraid that the band will affect her adversely. We are also not looking forward to the stares etc... I'm sure we'll cope, I just hope the band works, quickly. Did you keep the band on for 23 hours / day ? Thanks for your concern. Stuart Blake -----Original Message----- From: & Kendra [mailto:kbgarv@...] Sent: Wednesday, May 17, 2000 7:34 PM Plagiocephalyegroups Subject: Re: Anyone from Canada? Stuart: I was just thinking of you! How did everything go? What day are you back in Calgary? kendra " Blake, Stuart " wrote: > > > I live in Winnipeg and we have travelled to the Alberta Children's > Hospital,in Calgary to visit Dr.Hamilton. They are affiliated with > Cranial Tech. Our 7 month old daughter was casted for the DOC band 2 > weeks ago and we return next week for fitting. Manitoba Health has > agreed to fund the travel and clinic costs but has not yet committed > to the band cost. We were quite impressed with the clinic in Calgary. > Please let me know if you need anything further. Stuart Blake > > Stuart J. Blake > Fillmore Riley > Barristers and Solicitors > 1700 - 360 Main Street Winnipeg, Manitoba, Canada R3C 3Z3 > > * E-mail: stuartblake@... > *Tel (204) 957-8347 > * Fax (204) 957-0516 > > THE INFORMATION CONTAINED IN THIS E-MAIL MESSAGE IS INTENDED ONLY FOR > THE PERSONAL AND CONFIDENTIAL USE OF THE DESIGNATED RECIPIENTS NAMED > ABOVE. IF THE READER OF THIS MESSAGE IS NOT THE INTENDED RECIPIENT OR > > AN AGENT RESPONSIBLE FOR DELIVERING IT TO THE INTENDED RECIPIENT, YOU > ARE HEREBY NOTIFIED THAT YOU HAVE RECEIVED THIS DOCUMENT IN ERROR, AND > > THAT ANY REVIEW, DISSEMINATION, DISTRIBUTION, OR COPYING OF THIS > MESSAGE > IS STRICTLY PROHIBITED. IF YOU HAVE RECEIVED THIS COMMUNICATION IN > ERROR, PLEASE NOTIFY US IMMEDIATELY BY TELEPHONE AT THE NUMBER SET OUT > > ABOVE AND DELETE THE ORIGINAL MESSAGE. > > -----Original Message----- > From: tem@... [mailto:tem@...] > Sent: Wednesday, May 17, 2000 3:25 PM > Plagiocephalyegroups > Subject: Anyone from Canada? > > We have twins currently in the DOC band. We live in eastern Canada > and the closest Cranial Tech clinic is in Charlotte, North Carolina. > We travelled approx. weekly for over a month before taking leave from > work and temporarily relocating in Charlotte until treatment is over. > We are interested in other Canadian parents' experiences with getting > plagiocephaly acknowledged and treated in Canada, travelling for > treatment, or obtaining Medicare support for treatment costs. > > > ----------------------------------------------------------------------- > > Remember four years of good friends, bad clothes, explosive chemistry > experiments. > 1/4051/4/_/689409/_/958595120/ > > ----------------------------------------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2000 Report Share Posted May 18, 2000 Hi Stuart: Yes, Hanna has been wearing her band 23/7 since we picked it up. She was a little fussy at the fitting (we dragged her out of bed too early!), but has never complained about the band itself. It has now been almost 3 weeks and I'm REALLY starting to see improvement now! She was a non-stop eater last week, so I'm assuming there was a growth spurt involved. At the adjustment before last, I saw next to no improvement. It's amazing how much difference a week can make! Don't worry about your daughter not looking cute anymore. We find Hanna looks very cute! (feel free to check out her pictures in the "files"!). Are you planning on doing some decorating? I think it makes all the difference in the world. Most people don't ask about the band, but still feel comfortable enough to coochie-coo Hanna as much as before. Make sure you keep a positive attitude! How long do you stay in Calgary for? Just in and out? We are at the clinic on Wed. @ 11:30am. Who did your cast? Barb did ours and it was pretty much a perfect fit. She did a really good job. I'm sure we'll probably run into each other one of these days. How old is your daughter now? Would you mind sharing her name? Kendra "Blake, Stuart" wrote: Kendra, We return to Calgary on the 23rd of May. The cast has been done and the band will be fitted next week. The casting process was extremely upsetting but it is now behind us. We are not looking forward to putting the band on our daughter. She is so cute and happy and we are afraid that the band will affect her adversely. We are also not looking forward to the stares etc... I'm sure we'll cope, I just hope the band works, quickly. Did you keep the band on for 23 hours / day ? Thanks for your concern. Stuart Blake -----Original Message----- From: & Kendra [mailto:kbgarv@...] Sent: Wednesday, May 17, 2000 7:34 PM Plagiocephalyegroups Subject: Re: Anyone from Canada? Stuart: I was just thinking of you! How did everything go? What day are you back in Calgary? kendra "Blake, Stuart" wrote: > > > I live in Winnipeg and we have travelled to the Alberta Children's > Hospital,in Calgary to visit Dr.Hamilton. They are affiliated with > Cranial Tech. Our 7 month old daughter was casted for the DOC band 2 > weeks ago and we return next week for fitting. Manitoba Health has > agreed to fund the travel and clinic costs but has not yet committed > to the band cost. We were quite impressed with the clinic in Calgary. > Please let me know if you need anything further. Stuart Blake > > Stuart J. Blake > Fillmore Riley > Barristers and Solicitors > 1700 - 360 Main Street Winnipeg, Manitoba, Canada R3C 3Z3 > > * E-mail: stuartblake@... > *Tel (204) 957-8347 > * Fax (204) 957-0516 > > THE INFORMATION CONTAINED IN THIS E-MAIL MESSAGE IS INTENDED ONLY FOR > THE PERSONAL AND CONFIDENTIAL USE OF THE DESIGNATED RECIPIENTS NAMED > ABOVE. IF THE READER OF THIS MESSAGE IS NOT THE INTENDED RECIPIENT OR > > AN AGENT RESPONSIBLE FOR DELIVERING IT TO THE INTENDED RECIPIENT, YOU > ARE HEREBY NOTIFIED THAT YOU HAVE RECEIVED THIS DOCUMENT IN ERROR, AND > > THAT ANY REVIEW, DISSEMINATION, DISTRIBUTION, OR COPYING OF THIS > MESSAGE > IS STRICTLY PROHIBITED. IF YOU HAVE RECEIVED THIS COMMUNICATION IN > ERROR, PLEASE NOTIFY US IMMEDIATELY BY TELEPHONE AT THE NUMBER SET OUT > > ABOVE AND DELETE THE ORIGINAL MESSAGE. > > -----Original Message----- > From: tem@... [mailto:tem@...] > Sent: Wednesday, May 17, 2000 3:25 PM > Plagiocephalyegroups > Subject: Anyone from Canada? > > We have twins currently in the DOC band. We live in eastern Canada > and the closest Cranial Tech clinic is in Charlotte, North Carolina. > We travelled approx. weekly for over a month before taking leave from > work and temporarily relocating in Charlotte until treatment is over. > We are interested in other Canadian parents' experiences with getting > plagiocephaly acknowledged and treated in Canada, travelling for > treatment, or obtaining Medicare support for treatment costs. > > > ----------------------------------------------------------------------- > > Remember four years of good friends, bad clothes, explosive chemistry > experiments. > 1/4051/4/_/689409/_/958595120/ > > ----------------------------------------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2000 Report Share Posted May 19, 2000 <<We are not looking forward to putting the band on our daughter. She is socute and happy and we are afraid that the band will affect her adversely. >> Stuart, please don't worry about the band affecting your daughter's happiness or disposition. I can only speak for my own child, but he is still a very happy and smiley boy with the helmet on 23 hours a day (he's been in it for 3 weeks now), and people have commented that he looks so cute in it! It doesn't seem to bother him at all and that's what almost all parents say about the band as well. We haven't had a big problem with staring either.... people are curious, but no rude comments (yet). Good luck! -Pam _________________________Pam & Doug's websitehttp://hambug.homestead.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2000 Report Share Posted May 19, 2000 Don't worry about the loss of cuteness -- our boys are still as cute as ever. The bands are really not that obtrusive, and they don't mind them either. We had three sleepless nights with Craig, the first of our boys to be banded, but Lucas slept as well as ever when he received his band a month ago. Lucas is very observant though, and he did " notice " it on his head. He touched it a lot at first. Now when I take it off to do neck streching excercises he will scratch at is head and pull his hair a bit. He also sweats more in his than Craig. It is hot down here in Charlotte, so we have to be carefull about keeping them out in the heat too much. You normally lose a lot of heat through your head, so with the band on they can get overheated. People are generally very polite if they do ask what the bands are for. Children are often more apt to ask, and it is harder to explain to them. We found sometimes a quick, one line answer is often best to give people at first. We usually say, " It's reshaping their heads as they grow. The backs of their heads were very flat from sleeping on them. " Most people think it is something to protect their heads or that something " happened " to them. We have found it easier, emotionally, after receiving the band. It has helped to ease the guilty feelings and the anxiety over the decision to band or not. We are now sure we are doing the right thing for our boys, and it will soon be behind us. The progress is amazing, you will be pleased. Eleanor & Trevor Marshall Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2000 Report Share Posted December 11, 2000 > We have twins currently in the DOC band. We live in eastern Canada > and the closest Cranial Tech clinic is in Charlotte, North Carolina. > We travelled approx. weekly for over a month before taking leave from > work and temporarily relocating in Charlotte until treatment is over. > We are interested in other Canadian parents' experiences with getting > plagiocephaly acknowledged and treated in Canada, travelling for > treatment, or obtaining Medicare support for treatment costs. Hi Eleanor and Trevor, I have been looking at past postings trying to find info that might help my son out. Since your treatment finished last June maybe you haven't been on the board lately, so briefly we are Cdns living in Dubai UAE, and have been told that we need to go to NA to get our son treated. Our homebase is Halifax NS, and I know that we will not be able to get the help we need there. Adam is now 12 and a half months old so we need to move on this. We are trying to decide where to go? and I am curious about your experience living in Charlotte, how did you do it and how was it all paid for? Did you try to get it done in Canada? Was the waiting period to see a specialist too long? How long did you have to wait before you could see someone in NC? Any help/advice you could give me would be greatly appreciated. Thank you, and Adam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2000 Report Share Posted December 11, 2000 I live in Charlotte and my daughter had the DOC band from Cranial Tech (and she is getting casted this Friday for her second band). The people here are really nice to deal with. However, there are quite a few other Cranial Tech facilities that have opened on the east coast lately. Go to www.cranialtech.com and look at clinic locations. Maybe you could find one closer to Canada, such as one in NJ or Connecticut. Amy Kropka Charlotte, NC -----Original Message----- From: burkey@... [mailto:burkey@...] Sent: Monday, December 11, 2000 12:55 AM Plagiocephalyegroups Subject: Re: Anyone from Canada? > We have twins currently in the DOC band. We live in eastern Canada > and the closest Cranial Tech clinic is in Charlotte, North Carolina. > We travelled approx. weekly for over a month before taking leave from > work and temporarily relocating in Charlotte until treatment is over. > We are interested in other Canadian parents' experiences with getting > plagiocephaly acknowledged and treated in Canada, travelling for > treatment, or obtaining Medicare support for treatment costs. Hi Eleanor and Trevor, I have been looking at past postings trying to find info that might help my son out. Since your treatment finished last June maybe you haven't been on the board lately, so briefly we are Cdns living in Dubai UAE, and have been told that we need to go to NA to get our son treated. Our homebase is Halifax NS, and I know that we will not be able to get the help we need there. Adam is now 12 and a half months old so we need to move on this. We are trying to decide where to go? and I am curious about your experience living in Charlotte, how did you do it and how was it all paid for? Did you try to get it done in Canada? Was the waiting period to see a specialist too long? How long did you have to wait before you could see someone in NC? Any help/advice you could give me would be greatly appreciated. Thank you, and Adam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2000 Report Share Posted December 11, 2000 There is a cranial tech in Paramus, NJ. We had treatment at St. ph's Children's Hospital in Northern NJ. If you need any info, I'd be happy to help. Amy M. New Jersey --- " Kropka, Amy " <AKROPKA@...> wrote: > I live in Charlotte and my daughter had the DOC band > from Cranial Tech (and > she is getting casted this Friday for her second > band). The people here are > really nice to deal with. However, there are quite > a few other Cranial Tech > facilities that have opened on the east coast > lately. Go to > www.cranialtech.com and look at clinic locations. > Maybe you could find one > closer to Canada, such as one in NJ or Connecticut. > > Amy Kropka > Charlotte, NC > > -----Original Message----- > From: burkey@... > [mailto:burkey@...] > Sent: Monday, December 11, 2000 12:55 AM > Plagiocephalyegroups > Subject: Re: Anyone from Canada? > > > > > We have twins currently in the DOC band. We live > in eastern Canada > > and the closest Cranial Tech clinic is in > Charlotte, North Carolina. > > We travelled approx. weekly for over a month > before taking leave > from > > work and temporarily relocating in Charlotte until > treatment is > over. > > We are interested in other Canadian parents' > experiences with > getting > > plagiocephaly acknowledged and treated in Canada, > travelling for > > treatment, or obtaining Medicare support for > treatment costs. > > Hi Eleanor and Trevor, I have been looking at past > postings trying to > find info that might help my son out. Since your > treatment finished > last June maybe you haven't been on the board > lately, so briefly we > are Cdns living in Dubai UAE, and have been told > that we need to go to > NA to get our son treated. Our homebase is Halifax > NS, and I know > that we will not be able to get the help we need > there. Adam is now > 12 and a half months old so we need to move on this. > We are trying to > decide where to go? and I am curious about your > experience living in > Charlotte, how did you do it and how was it all paid > for? Did you try > to get it done in Canada? Was the waiting period to > see a specialist > too long? How long did you have to wait before you > could see someone > in NC? Any help/advice you could give me would be > greatly appreciated. > Thank you, and Adam > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2000 Report Share Posted December 11, 2000 : We haven't heard from Elenor & Trevor for some time now. You might want to contact them at their direct email. Have you contacted Orthomerica about the STARband? Maybe they know of an orthotist on the E Coast who can help! Kendra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2000 Report Share Posted December 11, 2000 >Amy, We have an appointment with Dr. Craig Hall in Hackensack -- he's affiliated with St. Joe's. Was he part of the team you went to, or have you heard of him? Re-fresh my memory please, is your child still wearing his/her helmet? How long was it on? Where in Jersey are you? We live in Wayne. Debby and Zack 8/2/00 NJ >There is a cranial tech in Paramus, NJ. We had >treatment at St. ph's Children's Hospital in >Northern NJ. If you need any info, I'd be happy to >help. >Amy M. >New Jersey > >--- " Kropka, Amy " <AKROPKA@...> >wrote: >> I live in Charlotte and my daughter had the DOC band >> from Cranial Tech (and >> she is getting casted this Friday for her second >> band). The people here are >> really nice to deal with. However, there are quite >> a few other Cranial Tech >> facilities that have opened on the east coast >> lately. Go to >> www.cranialtech.com and look at clinic locations. >> Maybe you could find one >> closer to Canada, such as one in NJ or Connecticut. >> >> Amy Kropka >> Charlotte, NC >> >> -----Original Message----- >> From: burkey@... >> [mailto:burkey@...] >> Sent: Monday, December 11, 2000 12:55 AM >> Plagiocephalyegroups >> Subject: Re: Anyone from Canada? >> >> >> >> > We have twins currently in the DOC band. We live >> in eastern Canada >> > and the closest Cranial Tech clinic is in >> Charlotte, North Carolina. >> > We travelled approx. weekly for over a month >> before taking leave >> from >> > work and temporarily relocating in Charlotte until >> treatment is >> over. >> > We are interested in other Canadian parents' >> experiences with >> getting >> > plagiocephaly acknowledged and treated in Canada, >> travelling for >> > treatment, or obtaining Medicare support for >> treatment costs. >> >> Hi Eleanor and Trevor, I have been looking at past >> postings trying to >> find info that might help my son out. Since your >> treatment finished >> last June maybe you haven't been on the board >> lately, so briefly we >> are Cdns living in Dubai UAE, and have been told >> that we need to go to >> NA to get our son treated. Our homebase is Halifax >> NS, and I know >> that we will not be able to get the help we need >> there. Adam is now >> 12 and a half months old so we need to move on this. >> We are trying to >> decide where to go? and I am curious about your >> experience living in >> Charlotte, how did you do it and how was it all paid >> for? Did you try >> to get it done in Canada? Was the waiting period to >> see a specialist >> too long? How long did you have to wait before you >> could see someone >> in NC? Any help/advice you could give me would be >> greatly appreciated. >> Thank you, and Adam >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2000 Report Share Posted December 11, 2000 Debby, Yes, Dr. Hall is part of the team at St. Joe's. wore her helmet for 7 weeks and ended in July, earlier than we would have liked but she had other issues that forced us to remove it. (I just sent a post to another Amy - the subject is Caroline's mom - you can get all the scoop there). Here it is five months later and I have noticed another flat spot - in a different area than the last spot. BTW we are practically neighbors, we live in Totowa! Why are you seeing Dr. Hall in Hackensack and not at St. Joes? Be prepared, his office furniture is not child friendly - he has lucious blue suede couches! No food or drink allowed! LOL! Amy --- Debby Wolf <DebbyW@...> wrote: > > > > > > > >Amy, > > We have an appointment with Dr. Craig Hall in > Hackensack -- he's > affiliated with St. Joe's. Was he part of the team > you went to, or > have you heard of him? Re-fresh my memory please, > is your child > still wearing his/her helmet? How long was it on? > Where in Jersey > are you? We live in Wayne. > Debby and Zack 8/2/00 NJ > > > >There is a cranial tech in Paramus, NJ. We had > >treatment at St. ph's Children's Hospital in > >Northern NJ. If you need any info, I'd be happy to > >help. > >Amy M. > >New Jersey > > > >--- " Kropka, Amy " <AKROPKA@...> > >wrote: > >> I live in Charlotte and my daughter had the DOC > band > >> from Cranial Tech (and > >> she is getting casted this Friday for her second > >> band). The people here are > >> really nice to deal with. However, there are > quite > >> a few other Cranial Tech > >> facilities that have opened on the east coast > >> lately. Go to > >> www.cranialtech.com and look at clinic > locations. > >> Maybe you could find one > >> closer to Canada, such as one in NJ or > Connecticut. > >> > >> Amy Kropka > >> Charlotte, NC > >> > >> -----Original Message----- > >> From: burkey@... > >> [mailto:burkey@...] > >> Sent: Monday, December 11, 2000 12:55 AM > >> Plagiocephalyegroups > >> Subject: Re: Anyone from Canada? > >> > >> > >> > >> > We have twins currently in the DOC band. We > live > >> in eastern Canada > >> > and the closest Cranial Tech clinic is in > >> Charlotte, North Carolina. > >> > We travelled approx. weekly for over a month > >> before taking leave > >> from > >> > work and temporarily relocating in Charlotte > until > >> treatment is > >> over. > >> > We are interested in other Canadian parents' > >> experiences with > >> getting > >> > plagiocephaly acknowledged and treated in > Canada, > >> travelling for > >> > treatment, or obtaining Medicare support for > >> treatment costs. > >> > >> Hi Eleanor and Trevor, I have been looking at > past > >> postings trying to > >> find info that might help my son out. Since > your > >> treatment finished > >> last June maybe you haven't been on the board > >> lately, so briefly we > >> are Cdns living in Dubai UAE, and have been told > >> that we need to go to > >> NA to get our son treated. Our homebase is > Halifax > >> NS, and I know > >> that we will not be able to get the help we need > >> there. Adam is now > >> 12 and a half months old so we need to move on > this. > >> We are trying to > >> decide where to go? and I am curious about your > >> experience living in > >> Charlotte, how did you do it and how was it all > paid > >> for? Did you try > >> to get it done in Canada? Was the waiting period > to > >> see a specialist > >> too long? How long did you have to wait before > you > >> could see someone > >> in NC? Any help/advice you could give me would > be > >> greatly appreciated. > >> Thank you, and Adam > >> > >> > >> > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2000 Report Share Posted December 11, 2000 Amy -- I read your other e-mail and feel caught up with your situation -- good luck with everything! Out PT recommended Dr. Hall to us, and just gave us his office number in Hackensack -- does he also see patients in the hospital? We're not even sure we are going to proceed with a helmet for Zack. He's only 4 1/2 months old, but has a pretty significant flat spot. His PT wants us to concentrate on getting the tort completely under control before we go to a helmet, but I've heard with the helmets - the earlier you do it - the better! So, our PT is sending us to Dr. Hall for a consult. We might have to make a hard decision - wait on the helmet or proceed now! Zack isn't even sitting yet, so, of course, he spends all his time on his back, we try to re-position his head, and give him tummy time, but he always falls back in to that same tilt and turn, which caused his flat spot to begin with. My thinking is, if it's going to be two more months or so until he sits, why not put the helmet on NOW, instead of just watching the plagio get worse in that time period!! Of course, all this might change after our visit next Wed. Thanks for your help! Maybe we can meet at the Park West Diner after the holidays -- they have the best sweet potato fries!!! Debby and Zack 8-2-00 NJ >Debby, >Yes, Dr. Hall is part of the team at St. Joe's. > wore her helmet for 7 weeks and ended in July, >earlier than we would have liked but she had other >issues that forced us to remove it. (I just sent a >post to another Amy - the subject is Caroline's mom - >you can get all the scoop there). Here it is five >months later and I have noticed another flat spot - in >a different area than the last spot. >BTW we are practically neighbors, we live in Totowa! >Why are you seeing Dr. Hall in Hackensack and not at >St. Joes? Be prepared, his office furniture is not >child friendly - he has lucious blue suede couches! >No food or drink allowed! LOL! >Amy > >--- Debby Wolf <DebbyW@...> wrote: >> >> >> >> >> >> >> >Amy, >> >> We have an appointment with Dr. Craig Hall in >> Hackensack -- he's >> affiliated with St. Joe's. Was he part of the team >> you went to, or >> have you heard of him? Re-fresh my memory please, >> is your child >> still wearing his/her helmet? How long was it on? >> Where in Jersey >> are you? We live in Wayne. >> Debby and Zack 8/2/00 NJ >> >> >> >There is a cranial tech in Paramus, NJ. We had >> >treatment at St. ph's Children's Hospital in >> >Northern NJ. If you need any info, I'd be happy to >> >help. >> >Amy M. >> >New Jersey >> > >> >--- " Kropka, Amy " <AKROPKA@...> >> >wrote: >> >> I live in Charlotte and my daughter had the DOC >> band >> >> from Cranial Tech (and >> >> she is getting casted this Friday for her second >> >> band). The people here are >> >> really nice to deal with. However, there are >> quite >> >> a few other Cranial Tech >> >> facilities that have opened on the east coast >> >> lately. Go to >> >> www.cranialtech.com and look at clinic >> locations. >> >> Maybe you could find one >> >> closer to Canada, such as one in NJ or >> Connecticut. >> >> >> >> Amy Kropka >> >> Charlotte, NC >> >> >> >> -----Original Message----- >> >> From: burkey@... >> >> [mailto:burkey@...] >> >> Sent: Monday, December 11, 2000 12:55 AM >> >> Plagiocephalyegroups >> >> Subject: Re: Anyone from Canada? >> >> >> >> >> >> >> >> > We have twins currently in the DOC band. We >> live >> >> in eastern Canada >> >> > and the closest Cranial Tech clinic is in >> >> Charlotte, North Carolina. >> >> > We travelled approx. weekly for over a month >> >> before taking leave >> >> from >> >> > work and temporarily relocating in Charlotte >> until >> >> treatment is >> >> over. >> >> > We are interested in other Canadian parents' >> >> experiences with >> >> getting >> >> > plagiocephaly acknowledged and treated in > > Canada, >> >> travelling for >> >> > treatment, or obtaining Medicare support for >> >> treatment costs. >> >> >> >> Hi Eleanor and Trevor, I have been looking at >> past >> >> postings trying to >> >> find info that might help my son out. Since >> your >> >> treatment finished >> >> last June maybe you haven't been on the board >> >> lately, so briefly we >> >> are Cdns living in Dubai UAE, and have been told >> >> that we need to go to >> >> NA to get our son treated. Our homebase is >> Halifax >> >> NS, and I know >> >> that we will not be able to get the help we need >> >> there. Adam is now >> >> 12 and a half months old so we need to move on >> this. >> >> We are trying to >> >> decide where to go? and I am curious about your >> >> experience living in >> >> Charlotte, how did you do it and how was it all >> paid >> >> for? Did you try >> >> to get it done in Canada? Was the waiting period >> to >> >> see a specialist >> >> too long? How long did you have to wait before >> you >> >> could see someone >> >> in NC? Any help/advice you could give me would >> be >> >> greatly appreciated. >> >> Thank you, and Adam >> >> >> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2000 Report Share Posted December 11, 2000 Debby, Where are you taking Zack for PT? We go to St. Joe's for that also. BTW who is Zack's Ped? We see Dr. Scofield in Wayne, near Willowbrook. Dr. Hall is part of a team of drs. at St. Joe's that make up the Cranio-facial team. I was under the impression that the team makes the decision as a whole. I am wondering if you will need to go down there as well. I know however, that it is much easier to get an appt at Dr Hall's office. The team meets only twice per month at St. Joe's. Is the Park West Diner the one by Kohl's I can never remember? I noticed Zack's birthday near 's but a year later. 's is August 11, 1999. (she wasn't due until Sept. 8). Amy --- Debby Wolf <DebbyW@...> wrote: > Amy -- > I read your other e-mail and feel caught up with > your situation -- > good luck with everything! Out PT recommended Dr. > Hall to us, and > just gave us his office number in Hackensack -- does > he also see > patients in the hospital? > > We're not even sure we are going to proceed with a > helmet for Zack. He's only > 4 1/2 months old, but has a pretty significant > flat spot. His PT > wants us to concentrate on getting the tort > completely under control > before we go to a helmet, but I've heard with the > helmets - the > earlier you do it - the better! > So, our PT is sending us to Dr. Hall for a consult. > We might have to > make a hard decision - wait on the helmet or proceed > now! > Zack isn't even sitting yet, so, of course, he > spends all his time on > his back, we try to re-position his head, and give > him tummy time, > but he always falls back in to that same tilt and > turn, which caused > his flat spot to begin with. > My thinking is, if it's going to be two more months > or so until he > sits, why not put the helmet on NOW, instead of just > watching the > plagio get worse in that time period!! > Of course, all this might change after our visit > next Wed. > Thanks for your help! > > Maybe we can meet at the Park West Diner after the > holidays -- they > have the best sweet potato fries!!! > Debby and Zack 8-2-00 NJ > > > > > > > > > > >Debby, > >Yes, Dr. Hall is part of the team at St. Joe's. > > wore her helmet for 7 weeks and ended in > July, > >earlier than we would have liked but she had other > >issues that forced us to remove it. (I just sent a > >post to another Amy - the subject is Caroline's mom > - > >you can get all the scoop there). Here it is five > >months later and I have noticed another flat spot - > in > >a different area than the last spot. > >BTW we are practically neighbors, we live in > Totowa! > >Why are you seeing Dr. Hall in Hackensack and not > at > >St. Joes? Be prepared, his office furniture is not > >child friendly - he has lucious blue suede couches! > >No food or drink allowed! LOL! > >Amy > > > >--- Debby Wolf <DebbyW@...> wrote: > >> > >> > >> > >> > >> > >> > >> >Amy, > >> > >> We have an appointment with Dr. Craig Hall in > >> Hackensack -- he's > >> affiliated with St. Joe's. Was he part of the > team > >> you went to, or > >> have you heard of him? Re-fresh my memory > please, > >> is your child > >> still wearing his/her helmet? How long was it > on? > >> Where in Jersey > >> are you? We live in Wayne. > >> Debby and Zack 8/2/00 NJ > >> > >> > >> >There is a cranial tech in Paramus, NJ. We had > >> >treatment at St. ph's Children's Hospital > in > >> >Northern NJ. If you need any info, I'd be > happy to > >> >help. > >> >Amy M. > >> >New Jersey > >> > > >> >--- " Kropka, Amy " > <AKROPKA@...> > >> >wrote: > >> >> I live in Charlotte and my daughter had the > DOC > >> band > >> >> from Cranial Tech (and > >> >> she is getting casted this Friday for her > second > >> >> band). The people here are > >> >> really nice to deal with. However, there > are > >> quite > >> >> a few other Cranial Tech > >> >> facilities that have opened on the east > coast > >> >> lately. Go to > >> >> www.cranialtech.com and look at clinic > >> locations. > >> >> Maybe you could find one > >> >> closer to Canada, such as one in NJ or > >> Connecticut. > >> >> > >> >> Amy Kropka > >> >> Charlotte, NC > >> >> > >> >> -----Original Message----- > >> >> From: burkey@... > >> >> [mailto:burkey@...] > >> >> Sent: Monday, December 11, 2000 12:55 AM > >> >> Plagiocephalyegroups > >> >> Subject: Re: Anyone from Canada? > >> >> > >> >> > >> >> > >> >> > We have twins currently in the DOC band. > We > >> live > >> >> in eastern Canada > >> >> > and the closest Cranial Tech clinic is in > >> >> Charlotte, North Carolina. > >> >> > We travelled approx. weekly for over a > month > >> >> before taking leave > >> >> from > >> >> > work and temporarily relocating in > Charlotte > >> until > >> >> treatment is > >> >> over. > >> >> > We are interested in other Canadian > parents' > >> >> experiences with > >> >> getting > >> >> > plagiocephaly acknowledged and treated in > > > Canada, > >> >> travelling for > >> >> > treatment, or obtaining Medicare support > for > >> >> treatment costs. > >> >> > >> >> Hi Eleanor and Trevor, I have been looking > at > >> past > >> >> postings trying to > >> >> find info that might help my son out. Since > >> your > >> >> treatment finished > >> >> last June maybe you haven't been on the > board > >> >> lately, so briefly we > >> >> are Cdns living in Dubai UAE, and have been > told > >> >> that we need to go to > >> >> NA to get our son treated. Our homebase is > >> Halifax > >> >> NS, and I know > >> >> that we will not be able to get the help we > need > >> >> there. Adam is now > >> >> 12 and a half months old so we need to move > on > >> this. > >> >> We are trying to > >> >> decide where to go? and I am curious about > your > >> >> experience living in > >> >> Charlotte, how did you do it and how was it > all > >> paid > >> >> for? Did you try > >> >> to get it done in Canada? Was the waiting > period > >> to > >> >> see a specialist > === message truncated === ===== *Amy* Mom to Princess Alyssa and Princess " WHAT DOESN'T KILL YOU WILL MAKE YOU STRONGER! " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2000 Report Share Posted December 13, 2000 Amy, We are going to a place called Pediatric Rehabilitation of North Jersey for Zack's PT and seeing Marissa Muccio there. I love her, she's wonderful with him and very patient with us, answering all my questions. How often are you going for PT? We're going once a week for now. Zack's pediatrician is Dr. Mahon on 330 Ratzer Road in Wayne. He's great too. He's part of a practice that has about 7 docs but we always try to see him. They diagnosed Zack's tort early, so I'll always be thankful for that! I assume that after we meet with Dr. Hall, if we decide to proceed with the helmet, we'll have to meet the whole team. We'll see! Yes, the Park West is by Kohl's, it's really the best diner around!! That's cool that and Zack have almost the same b-day -- he was due Aug. 26. Talk to you soon, DEBBY >Debby, >Where are you taking Zack for PT? We go to St. Joe's >for that also. BTW who is Zack's Ped? We see Dr. >Scofield in Wayne, near Willowbrook. >Dr. Hall is part of a team of drs. at St. Joe's that >make up the Cranio-facial team. I was under the >impression that the team makes the decision as a >whole. I am wondering if you will need to go down >there as well. I know however, that it is much easier >to get an appt at Dr Hall's office. The team meets >only twice per month at St. Joe's. >Is the Park West Diner the one by Kohl's I can never >remember? >I noticed Zack's birthday near 's but a year >later. 's is August 11, 1999. (she wasn't due >until Sept. 8). >Amy >--- Debby Wolf <DebbyW@...> wrote: >> Amy -- >> I read your other e-mail and feel caught up with >> your situation -- >> good luck with everything! Out PT recommended Dr. >> Hall to us, and >> just gave us his office number in Hackensack -- does >> he also see >> patients in the hospital? >> >> We're not even sure we are going to proceed with a >> helmet for Zack. He's only >> 4 1/2 months old, but has a pretty significant >> flat spot. His PT >> wants us to concentrate on getting the tort >> completely under control >> before we go to a helmet, but I've heard with the >> helmets - the >> earlier you do it - the better! >> So, our PT is sending us to Dr. Hall for a consult. >> We might have to >> make a hard decision - wait on the helmet or proceed >> now! >> Zack isn't even sitting yet, so, of course, he >> spends all his time on >> his back, we try to re-position his head, and give >> him tummy time, >> but he always falls back in to that same tilt and >> turn, which caused >> his flat spot to begin with. >> My thinking is, if it's going to be two more months >> or so until he >> sits, why not put the helmet on NOW, instead of just >> watching the >> plagio get worse in that time period!! >> Of course, all this might change after our visit >> next Wed. >> Thanks for your help! >> >> Maybe we can meet at the Park West Diner after the >> holidays -- they >> have the best sweet potato fries!!! >> Debby and Zack 8-2-00 NJ >> >> >> >> >> >> >> >> >> >> >Debby, >> >Yes, Dr. Hall is part of the team at St. Joe's. >> > wore her helmet for 7 weeks and ended in >> July, >> >earlier than we would have liked but she had other >> >issues that forced us to remove it. (I just sent a >> >post to another Amy - the subject is Caroline's mom >> - >> >you can get all the scoop there). Here it is five >> >months later and I have noticed another flat spot - >> in >> >a different area than the last spot. >> >BTW we are practically neighbors, we live in >> Totowa! >> >Why are you seeing Dr. Hall in Hackensack and not >> at >> >St. Joes? Be prepared, his office furniture is not >> >child friendly - he has lucious blue suede couches! >> >No food or drink allowed! LOL! >> >Amy >> > >> >--- Debby Wolf <DebbyW@...> wrote: >> >> >> >> >> >> >> >> >> >> >> >> >> >> >Amy, >> >> >> >> We have an appointment with Dr. Craig Hall in >> >> Hackensack -- he's >> >> affiliated with St. Joe's. Was he part of the >> team >> >> you went to, or >> >> have you heard of him? Re-fresh my memory > > please, >> >> is your child >> >> still wearing his/her helmet? How long was it >> on? >> >> Where in Jersey >> >> are you? We live in Wayne. >> >> Debby and Zack 8/2/00 NJ >> >> >> >> >> >> >There is a cranial tech in Paramus, NJ. We had >> >> >treatment at St. ph's Children's Hospital >> in >> >> >Northern NJ. If you need any info, I'd be >> happy to >> >> >help. >> >> >Amy M. >> >> >New Jersey >> >> > >> >> >--- " Kropka, Amy " >> <AKROPKA@...> >> >> >wrote: >> >> >> I live in Charlotte and my daughter had the >> DOC >> >> band >> >> >> from Cranial Tech (and >> >> >> she is getting casted this Friday for her >> second >> >> >> band). The people here are >> >> >> really nice to deal with. However, there >> are >> >> quite >> >> >> a few other Cranial Tech >> >> >> facilities that have opened on the east >> coast >> >> >> lately. Go to >> >> >> www.cranialtech.com and look at clinic >> >> locations. >> >> >> Maybe you could find one >> >> >> closer to Canada, such as one in NJ or >> >> Connecticut. >> >> >> >> >> >> Amy Kropka >> >> >> Charlotte, NC >> >> >> >> >> >> -----Original Message----- >> >> >> From: burkey@... >> >> >> [mailto:burkey@...] >> >> >> Sent: Monday, December 11, 2000 12:55 AM >> >> >> Plagiocephalyegroups >> >> >> Subject: Re: Anyone from Canada? >> >> >> >> >> >> >> >> >> >> >> >> > We have twins currently in the DOC band. >> We >> >> live >> >> >> in eastern Canada >> >> >> > and the closest Cranial Tech clinic is in >> >> >> Charlotte, North Carolina. >> >> >> > We travelled approx. weekly for over a >> month >> >> >> before taking leave >> >> >> from >> >> >> > work and temporarily relocating in >> Charlotte >> >> until >> >> >> treatment is >> >> >> over. >> >> >> > We are interested in other Canadian >> parents' >> >> >> experiences with >> >> >> getting >> >> >> > plagiocephaly acknowledged and treated in >> > > Canada, >> >> >> travelling for >> >> >> > treatment, or obtaining Medicare support >> for >> >> >> treatment costs. >> >> >> >> >> >> Hi Eleanor and Trevor, I have been looking >> at >> >> past >> >> >> postings trying to >> >> >> find info that might help my son out. Since >> >> your >> >> >> treatment finished >> >> >> last June maybe you haven't been on the >> board >> >> >> lately, so briefly we >> >> >> are Cdns living in Dubai UAE, and have been >> told >> >> >> that we need to go to >> >> >> NA to get our son treated. Our homebase is >> >> Halifax >> >> >> NS, and I know >> >> >> that we will not be able to get the help we >> need >> >> >> there. Adam is now >> >> >> 12 and a half months old so we need to move >> on >> >> this. >> >> >> We are trying to >> >> >> decide where to go? and I am curious about >> your >> >> >> experience living in >> >> >> Charlotte, how did you do it and how was it >> all >> >> paid >> >> >> for? Did you try >> >> >> to get it done in Canada? Was the waiting >> period >> >> to >> >> >> see a specialist >> >=== message truncated === > > >===== >*Amy* >Mom to Princess Alyssa and Princess > " WHAT DOESN'T KILL YOU WILL MAKE YOU STRONGER! " > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2000 Report Share Posted December 13, 2000 Debby, I know Marissa. She works out of St. Joe's also. She hasn't been in for a couple of weeks though. We are going once per week to St. Joe's for and hour and EI comes twice per week for 30 min each visit. I would like to get together after the holidays. When is Zack's visit to Dr. Hall? Keep me posted. We go to cranial-facial this Friday. Talk to you soon. Amy --- Debby Wolf <DebbyW@...> wrote: > Amy, > > We are going to a place called Pediatric > Rehabilitation of North > Jersey for Zack's PT and seeing Marissa Muccio > there. I love her, > she's wonderful with him and very patient with us, > answering all my > questions. > How often are you going for PT? We're going once a > week for now. > Zack's pediatrician is Dr. Mahon on 330 Ratzer Road > in Wayne. He's > great too. He's part of a practice that has about 7 > docs but we > always try to see him. They diagnosed Zack's tort > early, so I'll > always be thankful for that! > I assume that after we meet with Dr. Hall, if we > decide to proceed > with the helmet, we'll have to meet the whole team. > We'll see! > Yes, the Park West is by Kohl's, it's really the > best diner around!! > That's cool that and Zack have almost the > same b-day -- he > was due Aug. 26. Talk to you soon, > DEBBY > > > > > > >Debby, > >Where are you taking Zack for PT? We go to St. > Joe's > >for that also. BTW who is Zack's Ped? We see Dr. > >Scofield in Wayne, near Willowbrook. > >Dr. Hall is part of a team of drs. at St. Joe's > that > >make up the Cranio-facial team. I was under the > >impression that the team makes the decision as a > >whole. I am wondering if you will need to go down > >there as well. I know however, that it is much > easier > >to get an appt at Dr Hall's office. The team meets > >only twice per month at St. Joe's. > >Is the Park West Diner the one by Kohl's I can > never > >remember? > >I noticed Zack's birthday near 's but a year > >later. 's is August 11, 1999. (she wasn't > due > >until Sept. 8). > >Amy > >--- Debby Wolf <DebbyW@...> wrote: > >> Amy -- > >> I read your other e-mail and feel caught up with > >> your situation -- > >> good luck with everything! Out PT recommended > Dr. > >> Hall to us, and > >> just gave us his office number in Hackensack -- > does > >> he also see > >> patients in the hospital? > >> > >> We're not even sure we are going to proceed with > a > >> helmet for Zack. He's only > >> 4 1/2 months old, but has a pretty significant > >> flat spot. His PT > >> wants us to concentrate on getting the tort > >> completely under control > >> before we go to a helmet, but I've heard with > the > >> helmets - the > >> earlier you do it - the better! > >> So, our PT is sending us to Dr. Hall for a > consult. > >> We might have to > >> make a hard decision - wait on the helmet or > proceed > >> now! > >> Zack isn't even sitting yet, so, of course, he > >> spends all his time on > >> his back, we try to re-position his head, and > give > >> him tummy time, > >> but he always falls back in to that same tilt > and > >> turn, which caused > >> his flat spot to begin with. > >> My thinking is, if it's going to be two more > months > >> or so until he > >> sits, why not put the helmet on NOW, instead of > just > >> watching the > >> plagio get worse in that time period!! > >> Of course, all this might change after our visit > >> next Wed. > >> Thanks for your help! > >> > >> Maybe we can meet at the Park West Diner after > the > >> holidays -- they > >> have the best sweet potato fries!!! > >> Debby and Zack 8-2-00 NJ > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> >Debby, > >> >Yes, Dr. Hall is part of the team at St. Joe's. > >> > wore her helmet for 7 weeks and ended in > >> July, > >> >earlier than we would have liked but she had > other > >> >issues that forced us to remove it. (I just > sent a > >> >post to another Amy - the subject is Caroline's > mom > >> - > >> >you can get all the scoop there). Here it is > five > >> >months later and I have noticed another flat > spot - > >> in > >> >a different area than the last spot. > >> >BTW we are practically neighbors, we live in > >> Totowa! > >> >Why are you seeing Dr. Hall in Hackensack and > not > >> at > >> >St. Joes? Be prepared, his office furniture is > not > >> >child friendly - he has lucious blue suede > couches! > >> >No food or drink allowed! LOL! > >> >Amy > >> > > >> >--- Debby Wolf <DebbyW@...> > wrote: > >> >> > >> >> > >> >> > >> >> > >> >> > >> >> > >> >> >Amy, > >> >> > >> >> We have an appointment with Dr. Craig Hall > in > >> >> Hackensack -- he's > >> >> affiliated with St. Joe's. Was he part of > the > >> team > >> >> you went to, or > >> >> have you heard of him? Re-fresh my memory > > > please, > >> >> is your child > >> >> still wearing his/her helmet? How long was > it > >> on? > >> >> Where in Jersey > >> >> are you? We live in Wayne. > >> >> Debby and Zack 8/2/00 NJ > >> >> > >> >> > >> >> >There is a cranial tech in Paramus, NJ. We > had > >> >> >treatment at St. ph's Children's > Hospital > >> in > >> >> >Northern NJ. If you need any info, I'd be > >> happy to > >> >> >help. > >> >> >Amy M. > >> >> >New Jersey > >> >> > > >> >> >--- " Kropka, Amy " > >> <AKROPKA@...> > >> >> >wrote: > >> >> >> I live in Charlotte and my daughter had > the > >> DOC > >> >> band > >> >> >> from Cranial Tech (and > >> >> >> she is getting casted this Friday for > her > >> second > >> >> >> band). The people here are > >> >> >> really nice to deal with. However, > there > >> are > === message truncated === ===== *Amy* Mom to Princess Alyssa and Princess " WHAT DOESN'T KILL YOU WILL MAKE YOU STRONGER! " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2000 Report Share Posted December 13, 2000 >Amy, Unfortunately Marissa just had a miscarriage, that's why she hasn't been around. I feel bad, she was 4 or 5 months along. She told us Saturday, she's been doing her private PT, but she wasn't going back to St. Joe's for a few more days. I heard from the EI people today, my case manager is Himenetz ?Spelling? we're trying to set up a meeting to keep things moving along. Your EI is only 30 minutes? Why was I under the impression it was supposed to be for an hour? Our meeting with Dr. Hall is next Wednesday - 12/20. How often do you go for cranial-facial appointments? We'll have to pick a date for January. I met another mom with a baby with tort from - maybe she'd meet with us too! Good Luck Friday! DEBBY >Debby, >I know Marissa. She works out of St. Joe's also. She >hasn't been in for a couple of weeks though. >We are going once per week to St. Joe's for and hour >and EI comes twice per week for 30 min each visit. >I would like to get together after the holidays. When >is Zack's visit to Dr. Hall? Keep me posted. We go >to cranial-facial this Friday. >Talk to you soon. >Amy >--- Debby Wolf <DebbyW@...> wrote: >> Amy, >> >> We are going to a place called Pediatric >> Rehabilitation of North >> Jersey for Zack's PT and seeing Marissa Muccio >> there. I love her, >> she's wonderful with him and very patient with us, >> answering all my >> questions. >> How often are you going for PT? We're going once a >> week for now. >> Zack's pediatrician is Dr. Mahon on 330 Ratzer Road >> in Wayne. He's >> great too. He's part of a practice that has about 7 >> docs but we >> always try to see him. They diagnosed Zack's tort >> early, so I'll >> always be thankful for that! >> I assume that after we meet with Dr. Hall, if we >> decide to proceed >> with the helmet, we'll have to meet the whole team. >> We'll see! >> Yes, the Park West is by Kohl's, it's really the >> best diner around!! >> That's cool that and Zack have almost the >> same b-day -- he >> was due Aug. 26. Talk to you soon, >> DEBBY >> >> >> >> >> >> >Debby, >> >Where are you taking Zack for PT? We go to St. >> Joe's >> >for that also. BTW who is Zack's Ped? We see Dr. >> >Scofield in Wayne, near Willowbrook. >> >Dr. Hall is part of a team of drs. at St. Joe's >> that >> >make up the Cranio-facial team. I was under the >> >impression that the team makes the decision as a >> >whole. I am wondering if you will need to go down >> >there as well. I know however, that it is much >> easier >> >to get an appt at Dr Hall's office. The team meets >> >only twice per month at St. Joe's. >> >Is the Park West Diner the one by Kohl's I can >> never >> >remember? >> >I noticed Zack's birthday near 's but a year >> >later. 's is August 11, 1999. (she wasn't >> due >> >until Sept. 8). >> >Amy >> >--- Debby Wolf <DebbyW@...> wrote: >> >> Amy -- >> >> I read your other e-mail and feel caught up with >> >> your situation -- >> >> good luck with everything! Out PT recommended >> Dr. >> >> Hall to us, and >> >> just gave us his office number in Hackensack -- >> does >> >> he also see >> >> patients in the hospital? >> >> >> >> We're not even sure we are going to proceed with >> a >> >> helmet for Zack. He's only >> >> 4 1/2 months old, but has a pretty significant >> >> flat spot. His PT >> >> wants us to concentrate on getting the tort >> >> completely under control >> >> before we go to a helmet, but I've heard with >> the >> >> helmets - the >> >> earlier you do it - the better! >> >> So, our PT is sending us to Dr. Hall for a >> consult. >> >> We might have to >> >> make a hard decision - wait on the helmet or >> proceed >> >> now! >> >> Zack isn't even sitting yet, so, of course, he >> >> spends all his time on >> >> his back, we try to re-position his head, and >> give >> >> him tummy time, >> >> but he always falls back in to that same tilt >> and >> >> turn, which caused >> >> his flat spot to begin with. > > >> My thinking is, if it's going to be two more >> months >> >> or so until he >> >> sits, why not put the helmet on NOW, instead of >> just >> >> watching the >> >> plagio get worse in that time period!! >> >> Of course, all this might change after our visit >> >> next Wed. >> >> Thanks for your help! >> >> >> >> Maybe we can meet at the Park West Diner after >> the >> >> holidays -- they >> >> have the best sweet potato fries!!! >> >> Debby and Zack 8-2-00 NJ >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >Debby, >> >> >Yes, Dr. Hall is part of the team at St. Joe's. >> >> > wore her helmet for 7 weeks and ended in >> >> July, >> >> >earlier than we would have liked but she had >> other >> >> >issues that forced us to remove it. (I just >> sent a >> >> >post to another Amy - the subject is Caroline's >> mom >> >> - >> >> >you can get all the scoop there). Here it is >> five >> >> >months later and I have noticed another flat >> spot - >> >> in >> >> >a different area than the last spot. >> >> >BTW we are practically neighbors, we live in >> >> Totowa! >> >> >Why are you seeing Dr. Hall in Hackensack and >> not >> >> at >> >> >St. Joes? Be prepared, his office furniture is >> not >> >> >child friendly - he has lucious blue suede >> couches! >> >> >No food or drink allowed! LOL! >> >> >Amy >> >> > >> >> >--- Debby Wolf <DebbyW@...> >> wrote: >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >Amy, >> >> >> >> >> >> We have an appointment with Dr. Craig Hall >> in >> >> >> Hackensack -- he's >> >> >> affiliated with St. Joe's. Was he part of >> the >> >> team >> >> >> you went to, or >> >> >> have you heard of him? Re-fresh my memory >> > > please, >> >> >> is your child >> >> >> still wearing his/her helmet? How long was >> it >> >> on? >> >> >> Where in Jersey >> >> >> are you? We live in Wayne. >> >> >> Debby and Zack 8/2/00 NJ >> >> >> >> >> >> >> >> >> >There is a cranial tech in Paramus, NJ. We >> had >> >> >> >treatment at St. ph's Children's >> Hospital >> >> in >> >> >> >Northern NJ. If you need any info, I'd be >> >> happy to >> >> >> >help. >> >> >> >Amy M. >> >> >> >New Jersey >> >> >> > >> >> >> >--- " Kropka, Amy " >> >> <AKROPKA@...> >> >> >> >wrote: >> >> >> >> I live in Charlotte and my daughter had >> the >> >> DOC >> >> >> band >> >> >> >> from Cranial Tech (and >> >> >> >> she is getting casted this Friday for >> her >> >> second >> >> >> >> band). The people here are >> >> >> >> really nice to deal with. However, >> there >> >> are >> >=== message truncated === > > >===== >*Amy* >Mom to Princess Alyssa and Princess > " WHAT DOESN'T KILL YOU WILL MAKE YOU STRONGER! 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Guest guest Posted December 13, 2000 Report Share Posted December 13, 2000 Debby, I did hear about Marissa's miscarriage. I didn't know if you knew. I didn't want to upset you. EI is for an hour per week, however we split it to 2 sessions of 30 minutes each. is having a tough time handling it. She is extremely stubborn! Good luck next week. I will let you know what happens on Friday. Amy --- Debby Wolf <DebbyW@...> wrote: > > > > > > >Amy, > > Unfortunately Marissa just had a miscarriage, that's > why she hasn't > been around. > I feel bad, she was 4 or 5 months along. She told > us Saturday, she's > been doing her private PT, but she wasn't going back > to St. Joe's for > a few more days. > > I heard from the EI people today, my case manager is > Himenetz ?Spelling? > we're trying to set up a meeting to keep things > moving along. Your > EI is only 30 minutes? Why was I under the > impression it was > supposed to be for an hour? > > Our meeting with Dr. Hall is next Wednesday - 12/20. > How often do > you go for cranial-facial appointments? > > We'll have to pick a date for January. I met > another mom with a > baby with tort from - maybe she'd meet with > us too! > > Good Luck Friday! > > DEBBY > > > > > > > > > > > > > >Debby, > >I know Marissa. She works out of St. Joe's also. > She > >hasn't been in for a couple of weeks though. > >We are going once per week to St. Joe's for and > hour > >and EI comes twice per week for 30 min each visit. > >I would like to get together after the holidays. > When > >is Zack's visit to Dr. Hall? Keep me posted. We > go > >to cranial-facial this Friday. > >Talk to you soon. > >Amy > >--- Debby Wolf <DebbyW@...> wrote: > >> Amy, > >> > >> We are going to a place called Pediatric > >> Rehabilitation of North > >> Jersey for Zack's PT and seeing Marissa Muccio > >> there. I love her, > >> she's wonderful with him and very patient with > us, > >> answering all my > >> questions. > >> How often are you going for PT? We're going > once a > >> week for now. > >> Zack's pediatrician is Dr. Mahon on 330 Ratzer > Road > >> in Wayne. He's > >> great too. He's part of a practice that has > about 7 > >> docs but we > >> always try to see him. They diagnosed Zack's > tort > >> early, so I'll > >> always be thankful for that! > >> I assume that after we meet with Dr. Hall, if we > >> decide to proceed > >> with the helmet, we'll have to meet the whole > team. > >> We'll see! > >> Yes, the Park West is by Kohl's, it's really the > >> best diner around!! > >> That's cool that and Zack have almost > the > >> same b-day -- he > >> was due Aug. 26. Talk to you soon, > >> DEBBY > >> > >> > >> > >> > >> > >> >Debby, > >> >Where are you taking Zack for PT? We go to St. > >> Joe's > >> >for that also. BTW who is Zack's Ped? We see > Dr. > >> >Scofield in Wayne, near Willowbrook. > >> >Dr. Hall is part of a team of drs. at St. Joe's > >> that > >> >make up the Cranio-facial team. I was under > the > >> >impression that the team makes the decision as > a > >> >whole. I am wondering if you will need to go > down > >> >there as well. I know however, that it is much > >> easier > >> >to get an appt at Dr Hall's office. The team > meets > >> >only twice per month at St. Joe's. > >> >Is the Park West Diner the one by Kohl's I can > >> never > >> >remember? > >> >I noticed Zack's birthday near 's but a > year > >> >later. 's is August 11, 1999. (she > wasn't > >> due > >> >until Sept. 8). > >> >Amy > >> >--- Debby Wolf <DebbyW@...> > wrote: > >> >> Amy -- > >> >> I read your other e-mail and feel caught up > with > >> >> your situation -- > >> >> good luck with everything! Out PT > recommended > >> Dr. > >> >> Hall to us, and > >> >> just gave us his office number in Hackensack > -- > >> does > >> >> he also see > >> >> patients in the hospital? > >> >> > >> >> We're not even sure we are going to proceed > with > >> a > >> >> helmet for Zack. He's only > >> >> 4 1/2 months old, but has a pretty > significant > >> >> flat spot. His PT > >> >> wants us to concentrate on getting the tort > >> >> completely under control > >> >> before we go to a helmet, but I've heard > with > >> the > >> >> helmets - the > >> >> earlier you do it - the better! > >> >> So, our PT is sending us to Dr. Hall for a > >> consult. > >> >> We might have to > >> >> make a hard decision - wait on the helmet or > >> proceed > >> >> now! > >> >> Zack isn't even sitting yet, so, of course, > he > >> >> spends all his time on > >> >> his back, we try to re-position his head, > and > >> give > >> >> him tummy time, > >> >> but he always falls back in to that same > tilt > >> and > >> >> turn, which caused > >> >> his flat spot to begin with. > > > >> My thinking is, if it's going to be two > more > >> months > >> >> or so until he > >> >> sits, why not put the helmet on NOW, instead > of > >> just > >> >> watching the > >> >> plagio get worse in that time period!! > >> >> Of course, all this might change after our > visit > >> >> next Wed. > >> >> Thanks for your help! > >> >> > >> >> Maybe we can meet at the Park West Diner > after > >> the > >> >> holidays -- they > >> >> have the best sweet potato fries!!! > >> >> Debby and Zack 8-2-00 NJ > >> >> > === message truncated === ===== *Amy* Mom to Princess Alyssa and Princess " WHAT DOESN'T KILL YOU WILL MAKE YOU STRONGER! 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Guest guest Posted December 4, 2005 Report Share Posted December 4, 2005 >Hi, I'm from Calgary and have been trying to get help for my daughter so I know what you're up against. I don't know where in East you're at but if you go to CranialTech.com theywill tell you where their locations are. They make the DOC band which I am gathering from the postings on this website by moms may be a more reliable product. I know there is a location at Toronto Sick Kids but I think there are other locations. I know that I had to get a referral from my doc to send into the cranial specialists at Alta Childeren's Hospital. You will probably have to do the same. DO NOT listen to your doc if they tell you not to worry. Have someone who specializes in this tell you that. Worst case they tell you , you are a neurotic mommy. Trust me I'd love for them to tell me that because it would mean no band therapy. If you have to , go to a walk-in clinic and get the referral. By law, they have to send you if you request it. Also, check out the Files section of this website for techniques on repo etc. It is a great resource. Also, check out the Photos section to see other babies and maybe you can compare your child to them. Good luck! > Hi, I was just wondering if there is anyone out there from Canada > who has gone through plagiocephaly? I am from Eastern Canada and this > topic is quite new in my area that I get the run around from my > doctor. My daughter is 6 months old and the right side of her head is > flat. Everyone says that there's nothing you can do and that she'll > have to live with it. Thats not good enough for me. Please if there is > anyone from Canada, your advice would be heplful. Thanks. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2005 Report Share Posted December 4, 2005 >Hi, I'm from Calgary and have been trying to get help for my daughter so I know what you're up against. I don't know where in East you're at but if you go to CranialTech.com theywill tell you where their locations are. They make the DOC band which I am gathering from the postings on this website by moms may be a more reliable product. I know there is a location at Toronto Sick Kids but I think there are other locations. I know that I had to get a referral from my doc to send into the cranial specialists at Alta Childeren's Hospital. You will probably have to do the same. DO NOT listen to your doc if they tell you not to worry. Have someone who specializes in this tell you that. Worst case they tell you , you are a neurotic mommy. Trust me I'd love for them to tell me that because it would mean no band therapy. If you have to , go to a walk-in clinic and get the referral. By law, they have to send you if you request it. Also, check out the Files section of this website for techniques on repo etc. It is a great resource. Also, check out the Photos section to see other babies and maybe you can compare your child to them. Good luck! > Hi, I was just wondering if there is anyone out there from Canada > who has gone through plagiocephaly? I am from Eastern Canada and this > topic is quite new in my area that I get the run around from my > doctor. My daughter is 6 months old and the right side of her head is > flat. Everyone says that there's nothing you can do and that she'll > have to live with it. Thats not good enough for me. Please if there is > anyone from Canada, your advice would be heplful. Thanks. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2005 Report Share Posted December 4, 2005 >Whoops I told you there was a Cranial Tech location at Toronto Sick Kids. On their website it doesn't show it. I know I have read a posting though where someone was getting their child treated at Sick Kids. Call the hospital and ask to speak to someone re Helmet Therapy for Plagiocephaly. That should get you started. > Hi, I was just wondering if there is anyone out there from Canada > who has gone through plagiocephaly? I am from Eastern Canada and this > topic is quite new in my area that I get the run around from my > doctor. My daughter is 6 months old and the right side of her head is > flat. Everyone says that there's nothing you can do and that she'll > have to live with it. Thats not good enough for me. Please if there is > anyone from Canada, your advice would be heplful. Thanks. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2005 Report Share Posted December 4, 2005 >Whoops I told you there was a Cranial Tech location at Toronto Sick Kids. On their website it doesn't show it. I know I have read a posting though where someone was getting their child treated at Sick Kids. Call the hospital and ask to speak to someone re Helmet Therapy for Plagiocephaly. That should get you started. > Hi, I was just wondering if there is anyone out there from Canada > who has gone through plagiocephaly? I am from Eastern Canada and this > topic is quite new in my area that I get the run around from my > doctor. My daughter is 6 months old and the right side of her head is > flat. Everyone says that there's nothing you can do and that she'll > have to live with it. Thats not good enough for me. Please if there is > anyone from Canada, your advice would be heplful. Thanks. > Quote Link to comment Share on other sites More sharing options...
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