Re: Re: Valtrex - should we carry on?

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Hi there, no we have not tried ox therapy …NatasaReply-To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Date: Fri, 09 Mar 2012 16:41:16 -0000To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Subject: Re: Valtrex - should we carry on?

Hi Natasa,

Many thanks on your ideas and support.

My son takes 2X Perque B-12 2000 mcg sublingual lozenges. Folic Acid (from Calcium Folinate) is in liquid form from Metabolics,2X 3 drops (each drop 86.5 mcg.) I have not noticed any positive or other changes since started B-12 at the beg. of Jan.

I have a phone consultatin with Dr G last week of March and hope that will bring some clarity and make us both less anxious:)

Will take Fluconazole out for a week and see if that brings some positive changes.

Have you tried oxygen therapy and to what effect?

Vesna

>

> Is b12 given as shots or another form? Imo b12 should bring obvious gains

> quickly, so if it hasn't worked in 3 months it probably won't. Same with

> folic ¡© How much is he on? Especially if it is plain folic type it can

> accumulate in body with prolonged use, better not do it or give it on and

> off.

>

> Re valtrex, it can sometimes take longer to kick it, I've heard of 6-9 month

> window as a minimum to try, not sure if true. Maybe worth posting enquiring

> on nids list http://health.groups.yahoo.com/group/NIDS/

>

> Re fluconazole, for us it was antifungal (nystatin) that had negative

> effects, not valtrex itself. Maybe try removing it for a while see what

> happens? Also worth discussing with doc to have it rotated with another

> antifungal, or even no antifungal at all --- it is always said that

> antivirals kick up yeast and should be given with antifungals on board but

> for us it wasn't the case and antifungals were not needed.

>

> Btw we were given fluconazole and flagyl last year to address bacteria and

> candida, and all they did was cause massive constipation and painful bowel

> movements. Well at least one of those two did! Could it be that fluconazole

> is doing something to the gut that makes your son more obsessive and

> controlling?

>

>

> Hth

> Natasa

>

>

>

>

> Reply-To: "Autism-Biomedical-Europe "

> <Autism-Biomedical-Europe >

> Date: Thu, 08 Mar 2012 12:28:25 -0000

> To: "Autism-Biomedical-Europe "

> <Autism-Biomedical-Europe >

> Subject: Valtrex - should we carry on?>

>

>

>

>

>

> Hi all,

> I would be grateful if you could offer advice or explanation.

>

> My son is 11 and we did range of tests with Dr G in Dec. The results showed

> very raised Cytomegalovirus antibodies, lymphocytoses etc, so i was adviced

> to start treatment with Valtrex (3x500mg), Fluconazole (1x50 mg), as well as

> B 12, Folic acid in addition to Vits, oils and probiotics already in place.

>

> To start with my son developed very puffy red eyes and dark shadows, which

> mainly cleared after 2 weeks, except for slight shadows under his eyes

> remaining. He also gets very tired in the evenings and wakes up with his

> eyes tired looking and no usual brightness.

>

> After about 8 weeks we did repeated autonomic response testing which Dr G

> interpreted as markedly improved and adviced we carry on with antivirals

> introducing oxygen concentrator treatment and vascular endothelial support.

> He thought that my son's behaviour seemed improved compared to last time (my

> son usually behaves better when all more familiar..) I did say that i could

> not see gains in his functioning or behaviour. If anything his obsessiveness

> and controlling language, as well as being more OCD increased (but negative

> strep titre test). At the same time i did want to believe him that my son

> will get better with prolonged treatment, so decided to carry on.

>

> Introducing oxygen concentrator for 3 hours every day after school was not

> possible and was causing too much grief, but we are doing vascular support.

>

> Still, after over 3 months no gains. My son's OCD behaviours and

> obsessiveness are not getting any worse or better.

>

> Wondering if with prolonging the treatment things could still get better for

> us, or is it just a wishful thinking. Also, why do you think the

> improvements shown on repeated autonomic test are not translating into real

> gains in functioning?

> If antivirals are not helping, what to do next?

> Many thanks,

> Vesna

>