Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 Nona.......wow sounds like you lucked out.......it was very nice of them to stay and do all of that for you......and like you I learn most of my knowledge from the computer......I am lucky as I have a lung specialist that seems to be very up on this diesese......it is funny though because at times I'll have to tell her something like.......well the people in my support group also expierence this so I think it goes with this diesese.......and she will have this look on her face like she just learned something new and is taking a mental note....hehehehe.......so sometimes I feel like we are teaching her..........glad you had such a good expierence........and I do have a flutter valve and it really is helpful....... sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 Nona sounds like a great visit does he do overseas visits? I think I would like one! love to youTina Hillier Mum to , 12 years old and possesor of an Extra Special Chromosome. Rosie 10 ( who enjoys a life enhanced by the Joys and Trial of CdLS) 5, A budding Artist and Singer, Famously ignoring the fact that his eyesight is deteriorating. And who is 4 years old and a big school girl now! http://uk.photos.yahoo.com/tdlhillier http://uk.briefcase.yahoo.com/tdlhillier mailto:tdlhillier@... www.cdlsrosie.homestead.comGet a bigger mailbox -- choose a size that fits your needs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 My flutter valve came in the mail with a how-to video. It sure would have been nice to have a real therapist to talk to and go over everything that yours did with you. The health care supply company billed my insurance company $60.00 for the flutter valve (that was three years ago). It seems like a pretty high mark-up. Barb FLUTTER VALVE << File: ATT00002.htm >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2002 Report Share Posted November 29, 2002 just going throught the emails and the flutter here to buy is $200 gosh thats a big difference isn't it and also not sure if I have tol d u all or not my lung doc has put me on gentamicin injections to put through my ventolyn machine once a day and I haven't had a infection since wow hey great news hugs Joy Re: FLUTTER VALVE Nona sounds like a great visit does he do overseas visits? I think I would like one! love to you Tina Hillier Mum to , 12 years old and possesor of an Extra Special Chromosome. Rosie 10 ( who enjoys a life enhanced by the Joys and Trial of CdLS) 5, A budding Artist and Singer, Famously ignoring the fact that his eyesight is deteriorating. And who is 4 years old and a big school girl now! http://uk.photos.yahoo.com/tdlhillier http://uk.briefcase.yahoo.com/tdlhillier mailto:tdlhillier@... www.cdlsrosie.homestead.com Get a bigger mailbox -- choose a size that fits your needs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2002 Report Share Posted November 30, 2002 Joy, $200.00 is terrible - I cannot imagine such a high price. It is such a simple item, a piece of plastic shaped right. Maybe they are imported? Nona Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2002 Report Share Posted November 30, 2002 Just a matter of correction to a mistake I made when I wrote about the delivery of my Flutter Valve. I said that the Therapist was from Incare when actually the correct name of the service is: Lincare. They are nationwide but not overseas at this time. Nona Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2002 Report Share Posted November 30, 2002 nn.........Welcome to the group........I noticed you have a hotmail address......where do you live????? I got my flutter valve from the hospital.....when they released me they sent it home with me........it really does help when you have to do the therapy alone....its hard to do the percussion therapy alone.......so it really does help to have the flutter valve...... sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2002 Report Share Posted November 30, 2002 Hi nn, Welcome to the group. The pharmacy kind of laughed at me when I tried to get my flutter valve. I had to call my insurance company and they had to authorize it through a health care supply company. I had a prescription, so I didn't have any trouble with the insurance company. Barb flutter valve << File: ATT00000.htm >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2002 Report Share Posted November 30, 2002 Hi nn, Welcome to the group :-)) I don't use a flutter, but rely on the good old percussion. You would think that the pharmacies could order one for you, but I guess a lot of them have never even heard of the flutter (lol)! I was wondering if you could call your local hospital, physiotherapy department, and ask if they can recommend a stockist. Anyway, good luck and I hope you locate one soon. Best wishes Bunny -----Original Message-----From: m_primus01 Sent: Sunday, 1 December 2002 11:56 AMTo: bronchiectasis Subject: flutter valveHi everyone! I'm new to the group and am SOOO glad I found it as I don't feel quite so alone, knowing there are many others out there dealing with similar health issues. Anyway, my question is how did any of you get a flutter valve? Did you need a prescription or can you get it through a medical supply company? I was diagnosed with B. in January '02 and still have been unable to get one. My doc gave me a prescription but I was unable to find a pharmacy that would fill it!! My husband tries to do percussion on me whenever he can but we work opposite schedules so I would rather not have to depend on someone else if I could use the flutter valve myself. After trying for several months, I got frustrated and gave up but I thought I would try again. Thanks for any sugestions! - nn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2002 Report Share Posted December 1, 2002 Hi nn, I understand where you are coming from, my husband is older and still working. The percussion was taking its toll on his wrist. I got my doctor to order for me a vibrator which I now use very well myself. Sometimes I have him do the clapping. My flutter valve was same way - doctor had nurse order from healthcare service - in my case Lincare. They are located all around the United States and what I liked about them was that when the therapist delivered the flutter valve not only did he show me how to use it properly but gave me an education as well in re: to caring for myself and about bronchiectatsis itself. Very informative and answered all my questions. He then took blood pressure, pulse, saturation and left the unit to record saturation thru the night - picking it up the next day. The results he sent to my Dr. And is sending me a small card of all my meds to carry in my wallet. Lincare has a very nice site on the internet, just search Lincare. I am sure that all healthcare groups are good. But, you do need a prescription for the flutter valve and in my case the insurance paid for it. Hope this helps some. Nona Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2003 Report Share Posted May 20, 2003 ..That would be great to travel with. Thanks for the website. The Vest comes with a little machine that is pretty heavy to haul about . Quote Link to comment Share on other sites More sharing options...
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