Guest guest Posted January 14, 2008 Report Share Posted January 14, 2008 Hi , I also a spouse of someone with AS. It is a very loney relationship most of the time. My husband has been daignosed with AS but is in denial and thinks he has a type four personality which has been reading up on. He doesn't want the stigmatism that something is "wrong" with him. Although he struggles such much socially,emotionally and has extremely poor self esteem he thinks its just his personality. I have been married almost ten years and I honestly don't know how its lasted this long. There have been numerous times I wanted to leave but since his diagnosis I am trying to have patience and change my behaviors towards his behaviors. I feel as though I am changing my self and personality to make my marriage work which makes me extremely sad. I was happy with myself but I feel I owe it to myself and my kids to help him. How do you know if your kids are AS or ADD/ADHD. My oldest son does exhibit some of the same personality traits as my husband his frustration with things his lack of wanting to talk about situations etc....I do love my husband and would love to saty married but I also feel like I need another relationship where I can get the emotional support I need. My vows are very important to me and I would never be unfaithful but the thought has crossed my mind. Its hard to share situations with friends and family members because my family at least thinks he is rude, obnoxious and unfeeling which he is alot of the time but I now know he can't help it. I'm suring having AS is not what my husband would wish for and finds daily life very difficult. But being the spouse of someone with AS is definitely lonely and stressful I think. I know longer make my husband accompany me to any family functions because it is to stressful for me. If your not an strong independant person before than I think AS makes you that way or makes your life very very stressful....I share you lonliness and just know that there are others going through the same so if you need to vent ....Please don't hestitate to get in touch. Sometimes its comforting to know someone else is struggling also. Where are you located. I'm in the Philadelphia area. Talk to you soon hopefully wrote: I'm responding as the wife of someone with Asperger's, and I don't know if I have distrust with my spouse, but then he has been able to verbalize that he has no interest in changing himself to improve our marriage. We will have been married for 25 years this week. I would say that we have more of a "business arrangement" than a marriage, everything has always been geared to what he is comfortable with, and he is not very affectioanate, or romantic, and has been very verbal about not wanting to be, "too much pressure". We have a son who has been medically recognized as being AS, and that enabled him to receive services at the school. I don't believe that my husband believes he has AS, he has not been medically recognized, but he is exactly like our son, and we got to observe part of the testing, with our son, and my husband had a hard time relating what was going on and what the signifance of the testing ment. We have three boys total, all have add/adhd, one has AS and one has ODD (oppositional defiant disorder). Since my husband has been very vocal about what works for him, (of course he wasn't at first!) I have always made a point of taking the time to do something special for occaisions that are important to me. It was hard in the beginning of our marriage, and I used to wonder what had I done, or didn't do? But once we got our son's diagnosis, and I started researching materials on spouses of AS, it was like a light bulb went on. I don't take it personally, intelluctually, but since this is a milestone year (25th) and the plans I made, had to be cancelled, emotionally it is really hard. I have a lot of interests, and my plate is usually full, with the kids, and now I am a major care provider for my mother. But there really isn't anyone who can understand the loneliness, that comes with an AS relationship.On a side note, if anyone knows of a group of people that are married to or have family relationships with AS, I would like to know, as I feel very isolated most of the time, and I have just thought to reach out on the web, and came across this group. Angie >> I sent this note to see if anyone has been able to deal with the distrust > NT partners tend to have of their AS spouses when they say they are trying > to change.> > I have found one of the most negative responses we can make to an > individual iis withdrawal and sulking which is what I have done habitually > throughout our married life. Strange that what you should value becomes > more valuable when you have lost it.> > Perhaps I have had an epiphany but if that is so I will need a lot of > courage to take the necessary steps to make the most of it. I think the > penny dropped when the counsellor helped me understand the consequences > words and lack of action have, and how damaging it can be to a > relationship. One of the things that helped me understand this was the > following:> > We may think that we have to do things or say things rather than realising > that we can choose to do so or not to do so. I told my wife that I had > chosen to behave in the way I did and that realising that is a choice I > made means that I am really responsible for it. So the counsellor helped > me understand that I can choose to withdraw or I can choose to engage with > my wife. That in itself is a very powerful message. So when I do not "get > it" or do or say something that upsets or hurts her, I have to choose how > I respond not fall back on old negative habits. > > I have just now set a goal of trying hard to make a difference within 3 > months. I got home on Friday night and told my wife that I am going to > really try hard to fit in more and listen to her point of view and try not > to make it about me all the time. I have read a book called the seven > principles of making marriage work by Gottman. This has helped me > realise that there are tools I can use to make a better efforf. She > wanted to know when the lightning struck or who hit me on the head. To > quote the words she used > > "So after 30 years of not wanting me in your life you now decide you want > a relationship! What about when I wanted a relationship and you were > physically or emotionally unavailable to be involved in my life and the > kids lives? What ulteriror motive do you have that you find that this is > now necessary? What can you offer me other than what you have so far? Why > should I take a risk of being let down again? Just because you want it > now it HAS to happen! What are you going to base a relationship on that > you have destroyed? You still have Aspergers so how can you change?> > So I kept telling her that I need to try and I asked for her help. I have > said this several times over the weekend. I even tried to initiate > conversations about what we can do to develop some shared experiences. I > want to see if we can be happy together rather than trying to be happy > alone. I even sat in the family room with her tonight to watch a movie > rather than do my own thing. Tried making suggestions about the garden > and what she may like to do with it. The response so far has been > ridicule and put downs with accusations about how I expect her to roll > over and cause more pain. > > Now I understand the reaction may be her way of expressing her fears etc. > but basically she does not trust my motives. And to be fair to her the > questions are quite valid. I have lost count of the number of times I > have said sorry this weekend. I have also told her that I intend to spend > more time at home and not be so obsessive about work. The real challenge > for me I think will be being in the moment with her when I am home and not > problem solving something from work or at home. Also I need to connect > with my two daughters who both feel very protective of their mother and > are not inclined to make it easy for me. > > Needless to say I have felt quite discouraged. But I am going to clean up > my act, get fit and make sure that I do more to help if I can and if she > agrees. I have asked her also to tell me when anytthing I say hurts her > so that I can understand what or how I say things causes hurt. She > believes I say things to deliberately hurt or twist the knife so to speak. > Explaining that I am often unaware when she feels hurt is the major > problem. It seems I have to be so careful about what I say and have to > second guess how she might take it. > > Oh well. Lets see if I can stick to my goal and see what comes of it. I > do feel that 2008 will be a better year where my wife and I will finally > either make it together or make it apart. Even gaining her respect back > may be enough. It would definitely be progress. > > BTW the psychologist advised me that I have emotional dyspraxia. This > translates I think to lack of awareness of feelings or emotions and thus > inhibiting normal responses to emotional behaviour from > others. Do all AS on the list suffer this?> > Greg> dx AS at 53> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2008 Report Share Posted January 14, 2008 Hi , Wow! It's incredible for me to comunicate with someone who understands what is going on in my world! Thank you for responding. My son was reviewed at the Autism Spectrum Center, at Kaiser, in Santa Clara, California. It is a multi dimensional testing center and it took months. You start by filling out all kinds of family history, and the teachers all fill something out based on the relationship they have with your child, and then you schedule a date where you bring your child to the clinic and they have different types of tests. Then, because they have so many different people doing the testing, they have a round table and get back to you as to the findings. It was pretty exact. I actually had figured it out when he was about 6-7 years old, but we didn't get a diagnosis until he was in 4th grade. We did confirm he was add/adhd when he was in 2nd grade, and his brother was in kindergarten. That was done through the regular Kaiser Hospital, having the family history and the teacher info, since they just had one teacher then. I went and got tested for adhd and they said I was "mildly" adhd. I am sure I am not, but as an adult I have acquired life skills to adapt to my surroundings. We struggled in our relationship for the first eleven years, it was really hard. I have a hard time getting past the fact that I love him. I almost wonder if I would be able to be in a "normal" relationship, whatever that is. My Mother also has ODD, and she tends to be very emotionally unavailable. I often wonder if that is why I was so attracted to my husband, you marry what you've come to know. I know that based on the circumstances in our home it would be very disruptive to the boys, I'm sure you know how change can be so threatening, if I were to leave. They are actually doing very well, in school, and getting better socially, trying things. So I certainly don't want to upset the apple cart. My Mother fell 12/10, while I was taking her out to lunch. She severed her tendon from her left knee, and had emergency surgery to re-attach it. She had 34 staples from the middle of her left thigh down below her knee. She is 75 years old, and was six days away from being retired. I am her only daughter, and live closest to her. I moved in with her after she came home from the hospital, for a short time, and then have been going over, pretty much daily to help take care of her. It has been hard, as she was very active, and working and now she can't go anywhere. She really doesn't have any close friends, so I am the whole of her universe now. I haven't been able to work, and am just juggling alot. I am slipping into depression, and just trying not to beat myself up too much about life right now. Because she fell, over a carpet, at a public place this is also going into litigation. It's just become a mess all around. I am trying to focus on just primary things that are important, eat, drink lots of water, breath deep and sleep. I keep thinking, she will walk again, and hopefully it won't last forever. Thank you, again, for responding. I am trying to see what others are doing, in a relationship such as mine, who want to stay in said relationship. Maybe I would be able to learn and grow from some of their experiences. Angie Re: Re: Epiphany of sorts - Making a difference in AS/NT relationships Hi , I also a spouse of someone with AS. It is a very loney relationship most of the time. My husband has been daignosed with AS but is in denial and thinks he has a type four personality which has been reading up on. He doesn't want the stigmatism that something is "wrong" with him. Although he struggles such much socially,emotionally and has extremely poor self esteem he thinks its just his personality. I have been married almost ten years and I honestly don't know how its lasted this long. There have been numerous times I wanted to leave but since his diagnosis I am trying to have patience and change my behaviors towards his behaviors. I feel as though I am changing my self and personality to make my marriage work which makes me extremely sad. I was happy with myself but I feel I owe it to myself and my kids to help him. How do you know if your kids are AS or ADD/ADHD. My oldest son does ! exhibit some of the same personality traits as my husband his frustration with things his lack of wanting to talk about situations etc....I do love my husband and would love to saty married but I also feel like I need another relationship where I can get the emotional support I need. My vows are very important to me and I would never be unfaithful but the thought has crossed my mind. Its hard to share situations with friends and family members because my family at least thinks he is rude, obnoxious and unfeeling which he is alot of the time but I now know he can't help it. I'm suring having AS is not what my husband would wish for and finds daily life very difficult. But being the spouse of someone with AS is definitely lonely and stressful I think. I know longer make my husband accompany me to any family functions because it is to stressful for me. If your not an strong independant person before than I think AS makes you that way or makes your life very very stressful....I share you lonliness and just know that there are others going through the same so if you need to vent ....Please don't hestitate to get in touch. Sometimes its comforting to know someone else is struggling also. Where are you located. I'm in the Philadelphia area. Talk to you soon hopefully <amwill2pacbell (DOT) net> wrote: I'm responding as the wife of someone with Asperger's, and I don't know if I have distrust with my spouse, but then he has been able to verbalize that he has no interest in changing himself to improve our marriage. We will have been married for 25 years this week. I would say that we have more of a "business arrangement" than a marriage, everything has always been geared to what he is comfortable with, and he is not very affectioanate, or romantic, and has been very verbal about not wanting to be, "too much pressure". We have a son who has been medically recognized as being AS, and that enabled him to receive services at the school. I don't believe that my husband believes he has AS, he has not been medically recognized, but he is exactly like our son, and we got to observe part of the testing, with our son, and my husband had a hard time relating what was going on and what the signifance of the testing ment. We have three boys total, all have add/adhd, one has AS and one has ODD (oppositional defiant disorder). Since my husband has been very vocal about what works for him, (of course he wasn't at first!) I have always made a point of taking the time to do something special for occaisions that are important to me. It was hard in the beginning of our marriage, and I used to wonder what had I done, or didn't do? But once we got our son's diagnosis, and I started researching materials on spouses of AS, it was like a light bulb went on. I don't take it personally, intelluctually, but since this is a milestone year (25th) and the plans I made, had to be cancelled, emotionally it is really hard. I have a lot of interests, and my plate is usually full, with the kids, and now I am a major care provider for my mother. But there really isn't anyone who can understand the loneliness, that comes with an AS relationship.On a side note, if anyone knows of a group of people that are married to or have family relationships with AS, I would like to know, as I feel very isolated most of the time, and I have just thought to reach out on the web, and came across this group. Angie >> I sent this note to see if anyone has been able to deal with the distrust > NT partners tend to have of their AS spouses when they say they are trying > to change.> > I have found one of the most negative responses we can make to an > individual iis withdrawal and sulking which is what I have done habitually > throughout our married life. Strange that what you should value becomes > more valuable when you have lost it.> > Perhaps I have had an epiphany but if that is so I will need a lot of > courage to take the necessary steps to make the most of it. I think the > penny dropped when the counsellor helped me understand the consequences > words and lack of action have, and how damaging it can be to a > relationship. One of the things that helped me understand this was the > following:> > We may think that we have to do things or say things rather than realising > that we can choose to do so or not to do so. I told my wife that I had > chosen to behave in the way I did and that realising that is a choice I > made means that I am really responsible for it. So the counsellor helped > me understand that I can choose to withdraw or I can choose to engage with > my wife. That in itself is a very powerful message. So when I do not "get > it" or do or say something that upsets or hurts her, I have to choose how > I respond not fall back on old negative habits. > > I have just now set a goal of trying hard to make a difference within 3 > months. I got home on Friday night and told my wife that I am going to > really try hard to fit in more and listen to her point of view and try not > to make it about me all the time. I have read a book called the seven > principles of making marriage work by Gottman. This has helped me > realise that there are tools I can use to make a better efforf. She > wanted to know when the lightning struck or who hit me on the head. To > quote the words she used > > "So after 30 years of not wanting me in your life you now decide you want > a relationship! What about when I wanted a relationship and you were > physically or emotionally unavailable to be involved in my life and the > kids lives? What ulteriror motive do you have that you find that this is > now necessary? What can you offer me other than what you have so far? Why > should I take a risk of being let down again? Just because you want it > now it HAS to happen! What are you going to base a relationship on that > you have destroyed? You still have Aspergers so how can you change?> > So I kept telling her that I need to try and I asked for her help. I have > said this several times over the weekend. I even tried to initiate > conversations about what we can do to develop some shared experiences. I > want to see if we can be happy together rather than trying to be happy > alone. I even sat in the family room with her tonight to watch a movie > rather than do my own thing. Tried making suggestions about the garden > and what she may like to do with it. The response so far has been > ridicule and put downs with accusations about how I expect her to roll > over and cause more pain. > > Now I understand the reaction may be her way of expressing her fears etc. > but basically she does not trust my motives. And to be fair to her the > questions are quite valid. I have lost count of the number of times I > have said sorry this weekend. I have also told her that I intend to spend > more time at home and not be so obsessive about work. The real challenge > for me I think will be being in the moment with her when I am home and not > problem solving something from work or at home. Also I need to connect > with my two daughters who both feel very protective of their mother and > are not inclined to make it easy for me. > > Needless to say I have felt quite discouraged. But I am going to clean up > my act, get fit and make sure that I do more to help if I can and if she > agrees. I have asked her also to tell me when anytthing I say hurts her > so that I can understand what or how I say things causes hurt. She > believes I say things to deliberately hurt or twist the knife so to speak. > Explaining that I am often unaware when she feels hurt is the major > problem. It seems I have to be so careful about what I say and have to > second guess how she might take it. > > Oh well. Lets see if I can stick to my goal and see what comes of it. I > do feel that 2008 will be a better year where my wife and I will finally > either make it together or make it apart. Even gaining her respect back > may be enough. It would definitely be progress. > > BTW the psychologist advised me that I have emotional dyspraxia. This > translates I think to lack of awareness of feelings or emotions and thus > inhibiting normal responses to emotional behaviour from > others. Do all AS on the list suffer this?> > Greg> dx AS at 53> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2008 Report Share Posted January 14, 2008 Welcome to the club , . You will see you are no longer alone in your struggles!  Janet zEEI'm responding as the wife of someone with Asperger's, and I don't know if I have distrust with my spouse, but then he has been able to verbalize that he has no interest in changing himself to improve our marriage. We will have been married for 25 years this week. I would say that we have more of a "business arrangement" than a marriage, everything has always been geared to what he is comfortable with, and he is not very affectioanate, or romantic, and has been very verbal about not wanting to be, "too much pressure". We have a son who has been medically recognized as being AS, and that enabled him to receive services at the school. I don't believe that my husband believes he has AS, he has not been medically recognized, but he is exactly like our son, and we got to observe part of the testing, with our son, and my husband had a hard time relating what was going on and what the signifance of the testing ment. We have three boys total, all have add/adhd, one has AS and one has ODD (oppositional defiant disorder). Since my husband has been very vocal about what works for him, (of course he wasn't at first!) I have always made a point of taking the time to do something special for occaisions that are important to me. It was hard in the beginning of our marriage, and I used to wonder what had I done, or didn't do? But once we got our son's diagnosis, and I started researching materials on spouses of AS, it was like a light bulb went on. I don't take it personally, intelluctually, but since this is a milestone year (25th) and the plans I made, had to be cancelled, emotionally it is really hard. I have a lot of interests, and my plate is usually full, with the kids, and now I am a major care provider for my mother. But there really isn't anyone who can understand the loneliness, that comes with an AS relationship.On a side note, if anyone knows of a group of people that are married to or have family relationships with AS, I would like to know, as I feel very isolated most of the time, and I have just thought to reach out on the web, and came across this group. Angie >> I sent this note to see if anyone has been able to deal with the distrust > NT partners tend to have of their AS spouses when they say they are trying > to change.> > I have found one of the most negative responses we can make to an > individual iis withdrawal and sulking which is what I have done habitually > throughout our married life. Strange that what you should value becomes > more valuable when you have lost it.> > Perhaps I have had an epiphany but if that is so I will need a lot of > courage to take the necessary steps to make the most of it. I think the > penny dropped when the counsellor helped me understand the consequences > words and lack of action have, and how damaging it can be to a > relationship. One of the things that helped me understand this was the > following:> > We may think that we have to do things or say things rather than realising > that we can choose to do so or not to do so. I told my wife that I had > chosen to behave in the way I did and that realising that is a choice I > made means that I am really responsible for it. So the counsellor helped > me understand that I can choose to withdraw or I can choose to engage with > my wife. That in itself is a very powerful message. So when I do not "get > it" or do or say something that upsets or hurts her, I have to choose how > I respond not fall back on old negative habits. > > I have just now set a goal of trying hard to make a difference within 3 > months. I got home on Friday night and told my wife that I am going to > really try hard to fit in more and listen to her point of view and try not > to make it about me all the time. I have read a book called the seven > principles of making marriage work by Gottman. This has helped me > realise that there are tools I can use to make a better efforf. She > wanted to know when the lightning struck or who hit me on the head. To > quote the words she used > > "So after 30 years of not wanting me in your life you now decide you want > a relationship! What about when I wanted a relationship and you were > physically or emotionally unavailable to be involved in my life and the > kids lives? What ulteriror motive do you have that you find that this is > now necessary? What can you offer me other than what you have so far? Why > should I take a risk of being let down again? Just because you want it > now it HAS to happen! What are you going to base a relationship on that > you have destroyed? You still have Aspergers so how can you change?> > So I kept telling her that I need to try and I asked for her help. I have > said this several times over the weekend. I even tried to initiate > conversations about what we can do to develop some shared experiences. I > want to see if we can be happy together rather than trying to be happy > alone. I even sat in the family room with her tonight to watch a movie > rather than do my own thing. Tried making suggestions about the garden > and what she may like to do with it. The response so far has been > ridicule and put downs with accusations about how I expect her to roll > over and cause more pain. > > Now I understand the reaction may be her way of expressing her fears etc. > but basically she does not trust my motives. And to be fair to her the > questions are quite valid. I have lost count of the number of times I > have said sorry this weekend. I have also told her that I intend to spend > more time at home and not be so obsessive about work. The real challenge > for me I think will be being in the moment with her when I am home and not > problem solving something from work or at home. Also I need to connect > with my two daughters who both feel very protective of their mother and > are not inclined to make it easy for me. > > Needless to say I have felt quite discouraged. But I am going to clean up > my act, get fit and make sure that I do more to help if I can and if she > agrees. I have asked her also to tell me when anytthing I say hurts her > so that I can understand what or how I say things causes hurt. She > believes I say things to deliberately hurt or twist the knife so to speak. > Explaining that I am often unaware when she feels hurt is the major > problem. It seems I have to be so careful about what I say and have to > second guess how she might take it. > > Oh well. Lets see if I can stick to my goal and see what comes of it. I > do feel that 2008 will be a better year where my wife and I will finally > either make it together or make it apart. Even gaining her respect back > may be enough. It would definitely be progress. > > BTW the psychologist advised me that I have emotional dyspraxia. This > translates I think to lack of awareness of feelings or emotions and thus > inhibiting normal responses to emotional behaviour from > others. Do all AS on the list suffer this?> > Greg> dx AS at 53> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 , It has been stated a few times by NT spouses that the AS spouse can often say they are going to change but they see no difference in behaviour. I am in this category when my spouse demands that I have to change and I always say yes with every intention of doing so but then it can go one of two ways: a) nothing happens and she gets more disenchanted feeling that I have lied to her I try to do something without consulting her which leads to more aggravation or I go over the top in doing something that has consequences I did not consider for her and the family. Either way it seems to make things worse. There seems to be a gap in common sense or executive function perhaps. From an AS perspective the family members often can get together and talk and enjoy each others company but we feel like the lampshade in the corner. We by habit have not been involved in their lives so can often get ignored. But then we do that to our spouses when we withdraw. Another frequent statement my spouse makes is that I seem to be controlling and manipulative always wanting things done my way. My view on this is that our inflexibility is what convinces them that this is so. Maybe other NTs on the list could consider if this is their experience too. Greg dx AS at 53 " " Sent by: aspires-relationships 14/01/2008 07:16 PM Please respond to aspires-relationships To aspires-relationships cc Subject Re: Epiphany of sorts - Making a difference in AS/NT relationships I'm responding as the wife of someone with Asperger's, and I don't know if I have distrust with my spouse, but then he has been able to verbalize that he has no interest in changing himself to improve our marriage. We will have been married for 25 years this week. I would say that we have more of a " business arrangement " than a marriage, everything has always been geared to what he is comfortable with, and he is not very affectioanate, or romantic, and has been very verbal about not wanting to be, " too much pressure " . We have a son who has been medically recognized as being AS, and that enabled him to receive services at the school. I don't believe that my husband believes he has AS, he has not been medically recognized, but he is exactly like our son, and we got to observe part of the testing, with our son, and my husband had a hard time relating what was going on and what the signifance of the testing ment. We have three boys total, all have add/adhd, one has AS and one has ODD (oppositional defiant disorder). Since my husband has been very vocal about what works for him, (of course he wasn't at first!) I have always made a point of taking the time to do something special for occaisions that are important to me. It was hard in the beginning of our marriage, and I used to wonder what had I done, or didn't do? But once we got our son's diagnosis, and I started researching materials on spouses of AS, it was like a light bulb went on. I don't take it personally, intelluctually, but since this is a milestone year (25th) and the plans I made, had to be cancelled, emotionally it is really hard. I have a lot of interests, and my plate is usually full, with the kids, and now I am a major care provider for my mother. But there really isn't anyone who can understand the loneliness, that comes with an AS relationship. On a side note, if anyone knows of a group of people that are married to or have family relationships with AS, I would like to know, as I feel very isolated most of the time, and I have just thought to reach out on the web, and came across this group. Angie > > I sent this note to see if anyone has been able to deal with the distrust > NT partners tend to have of their AS spouses when they say they are trying > to change. > > I have found one of the most negative responses we can make to an > individual iis withdrawal and sulking which is what I have done habitually > throughout our married life. Strange that what you should value becomes > more valuable when you have lost it. > > Perhaps I have had an epiphany but if that is so I will need a lot of > courage to take the necessary steps to make the most of it. I think the > penny dropped when the counsellor helped me understand the consequences > words and lack of action have, and how damaging it can be to a > relationship. One of the things that helped me understand this was the > following: > > We may think that we have to do things or say things rather than realising > that we can choose to do so or not to do so. I told my wife that I had > chosen to behave in the way I did and that realising that is a choice I > made means that I am really responsible for it. So the counsellor helped > me understand that I can choose to withdraw or I can choose to engage with > my wife. That in itself is a very powerful message. So when I do not " get > it " or do or say something that upsets or hurts her, I have to choose how > I respond not fall back on old negative habits. > > I have just now set a goal of trying hard to make a difference within 3 > months. I got home on Friday night and told my wife that I am going to > really try hard to fit in more and listen to her point of view and try not > to make it about me all the time. I have read a book called the seven > principles of making marriage work by Gottman. This has helped me > realise that there are tools I can use to make a better efforf. She > wanted to know when the lightning struck or who hit me on the head. To > quote the words she used > > " So after 30 years of not wanting me in your life you now decide you want > a relationship! What about when I wanted a relationship and you were > physically or emotionally unavailable to be involved in my life and the > kids lives? What ulteriror motive do you have that you find that this is > now necessary? What can you offer me other than what you have so far? Why > should I take a risk of being let down again? Just because you want it > now it HAS to happen! What are you going to base a relationship on that > you have destroyed? You still have Aspergers so how can you change? > > So I kept telling her that I need to try and I asked for her help. I have > said this several times over the weekend. I even tried to initiate > conversations about what we can do to develop some shared experiences. I > want to see if we can be happy together rather than trying to be happy > alone. I even sat in the family room with her tonight to watch a movie > rather than do my own thing. Tried making suggestions about the garden > and what she may like to do with it. The response so far has been > ridicule and put downs with accusations about how I expect her to roll > over and cause more pain. > > Now I understand the reaction may be her way of expressing her fears etc. > but basically she does not trust my motives. And to be fair to her the > questions are quite valid. I have lost count of the number of times I > have said sorry this weekend. I have also told her that I intend to spend > more time at home and not be so obsessive about work. The real challenge > for me I think will be being in the moment with her when I am home and not > problem solving something from work or at home. Also I need to connect > with my two daughters who both feel very protective of their mother and > are not inclined to make it easy for me. > > Needless to say I have felt quite discouraged. But I am going to clean up > my act, get fit and make sure that I do more to help if I can and if she > agrees. I have asked her also to tell me when anytthing I say hurts her > so that I can understand what or how I say things causes hurt. She > believes I say things to deliberately hurt or twist the knife so to speak. > Explaining that I am often unaware when she feels hurt is the major > problem. It seems I have to be so careful about what I say and have to > second guess how she might take it. > > Oh well. Lets see if I can stick to my goal and see what comes of it. I > do feel that 2008 will be a better year where my wife and I will finally > either make it together or make it apart. Even gaining her respect back > may be enough. It would definitely be progress. > > BTW the psychologist advised me that I have emotional dyspraxia. This > translates I think to lack of awareness of feelings or emotions and thus > inhibiting normal responses to emotional behaviour from > others. Do all AS on the list suffer this? > > Greg > dx AS at 53 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 Greg, I appreciate your comments and your viewpoint. My husband is an engineer. I have observed over the years that he does seem to be lacking in basic commom sense, he has made the same observation, himself. He is a project manager, and is very controlling and subtly manipulative in his work environment (which I attributed to his being an engineer), which he sometimes brings home. I feel I am also a controlling person, first child, type A, very detail oriented, and organized. I actually find this a strength, having to deal with the family we have. As much as I know intellectually from reading and surfing the web, and just through my personal observations on living with my husband and my son, I still have periods of mourning, what I am missing in having an intepersonal relationship with them, such as I have with a friend. My son gets social skills classes at school, he sees a counselor, and I do have hope for him, as he asks questions and queries his behaviour in situations, sometimes. When my husband and I were both in counseling, he never really seemed to connect that someone else might have a different view on something. Everything is either black or white, and I consider myself to live in a 'gray' environment. If he thought something was black, then I better think that way too. Some of the decisions he has made during our marriage, reflect his lack of being able to comprehend how, whatever the decision or circumstance might be, affects the family as a 'whole'. He sees how it will affect him, and just seems to be oblivious to how the same decision is going to affect anyone else. I didn't continue with him in counseling, because it was just so non-progressive and I felt like I was talking to a brick wall. The counselor was fascinated by his observations, and genuflections and he continues to see her to this day, which is working for him. One of the coping mechanisms I have is to "find what works, and do that" knowing that it is subject to change based on the situation, the person or persons involved in the situations, etc. I just feel that I am the one consistently having to change, or compromise. At what point do I devalue myself, and not voice my opinions, just because it is easier to go along with what works for him? Can I continue to do this? Sometimes I feel like I am in a prison, as weird as that sounds. The overwhelming effort it takes , to make a connection with him is just more energy than I have most of the time. His status quo, is all I can muster most days. If I am responding to him the way he wants me to, he appears genuinely happy, or maybe content would be a better phrase. For as much drama as we have in our lives, there is a basic framework, of a structured regimen, that if he isn't getting that, things don't go well. I'm sure he loves me, I would just like to feel more like his spouse and not his mother. Pryor to joining this group and not being able to connect with a group in my area, I have focused on the person I have control over changing, me. But it is very difficult, as other friends really can't relate to what it's like, and it's hard for me to explain. I am thankful for coming across this forum to be able to grow and learn, being able to build up my strength to continue to change, and compromise in love. I feel I am a 'work in progress', and that we were meant to be together, it is sometimes I feel that maybe I am not getting whatever the message is that I am supposed to get from the experience. Blessings, Angie Re: Re: Epiphany of sorts - Making a difference in AS/NT relationships , It has been stated a few times by NT spouses that the AS spouse can often say they are going to change but they see no difference in behaviour. I am in this category when my spouse demands that I have to change and I always say yes with every intention of doing so but then it can go one of two ways: a) nothing happens and she gets more disenchanted feeling that I have lied to her I try to do something without consulting her which leads to more aggravation or I go over the top in doing something that has consequences I did not consider for her and the family. Either way it seems to make things worse. There seems to be a gap in common sense or executive function perhaps. From an AS perspective the family members often can get together and talk and enjoy each others company but we feel like the lampshade in the corner. We by habit have not been involved in their lives so can often get ignored. But then we do that to our spouses when we withdraw. Another frequent statement my spouse makes is that I seem to be controlling and manipulative always wanting things done my way. My view on this is that our inflexibility is what convinces them that this is so. Maybe other NTs on the list could consider if this is their experience too. Greg dx AS at 53 " " <amwill2pacbell (DOT) net> Sent by: aspires-relationships 14/01/2008 07:16 PM Please respond toaspires-relationships To aspires-relationships cc Subject Re: Epiphany of sorts - Making a difference in AS/NT relationships I'm responding as the wife of someone with Asperger's, and I don't know if I have distrust with my spouse, but then he has been able to verbalize that he has no interest in changing himself to improve our marriage. We will have been married for 25 years this week. I would say that we have more of a "business arrangement" than a marriage, everything has always been geared to what he is comfortable with, and he is not very affectioanate, or romantic, and has been very verbal about not wanting to be, "too much pressure". We have a son who has been medically recognized as being AS, and that enabled him to receive services at the school. I don't believe that my husband believes he has AS, he has not been medically recognized, but he is exactly like our son, and we got to observe part of the testing, with our son, and my husband had a hard time relating what was going on and what the signifance of the testing ment. We have three boys total, all have add/adhd, one has AS and one has ODD (oppositional defiant disorder). Since my husband has been very vocal about what works for him, (of course he wasn't at first!) I have always made a point of taking the time to do something special for occaisions that are important to me. It was hard in the beginning of our marriage, and I used to wonder what had I done, or didn't do? But once we got our son's diagnosis, and I started researching materials on spouses of AS, it was like a light bulb went on. I don't take it personally, intelluctually, but since this is a milestone year (25th) and the plans I made, had to be cancelled, emotionally it is really hard. I have a lot of interests, and my plate is usually full, with the kids, and now I am a major care provider for my mother. But there really isn't anyone who can understand the loneliness, that comes with an AS relationship.On a side note, if anyone knows of a group of people that are married to or have family relationships with AS, I would like to know, as I feel very isolated most of the time, and I have just thought to reach out on the web, and came across this group. Angie >> I sent this note to see if anyone has been able to deal with the distrust > NT partners tend to have of their AS spouses when they say they are trying > to change.> > I have found one of the most negative responses we can make to an > individual iis withdrawal and sulking which is what I have done habitually > throughout our married life. Strange that what you should value becomes > more valuable when you have lost it.> > Perhaps I have had an epiphany but if that is so I will need a lot of > courage to take the necessary steps to make the most of it. I think the > penny dropped when the counsellor helped me understand the consequences > words and lack of action have, and how damaging it can be to a > relationship. One of the things that helped me understand this was the > following:> > We may think that we have to do things or say things rather than realising > that we can choose to do so or not to do so. I told my wife that I had > chosen to behave in the way I did and that realising that is a choice I > made means that I am really responsible for it. So the counsellor helped > me understand that I can choose to withdraw or I can choose to engage with > my wife. That in itself is a very powerful message. So when I do not "get > it" or do or say something that upsets or hurts her, I have to choose how > I respond not fall back on old negative habits. > > I have just now set a goal of trying hard to make a difference within 3 > months. I got home on Friday night and told my wife that I am going to > really try hard to fit in more and listen to her point of view and try not > to make it about me all the time. I have read a book called the seven > principles of making marriage work by Gottman. This has helped me > realise that there are tools I can use to make a better efforf. She > wanted to know when the lightning struck or who hit me on the head. To > quote the words she used > > "So after 30 years of not wanting me in your life you now decide you want > a relationship! What about when I wanted a relationship and you were > physically or emotionally unavailable to be involved in my life and the > kids lives? What ulteriror motive do you have that you find that this is > now necessary? What can you offer me other than what you have so far? Why > should I take a risk of being let down again? Just because you want it > now it HAS to happen! What are you going to base a relationship on that > you have destroyed? You still have Aspergers so how can you change?> > So I kept telling her that I need to try and I asked for her help. I have > said this several times over the weekend. I even tried to initiate > conversations about what we can do to develop some shared experiences. I > want to see if we can be happy together rather than trying to be happy > alone. I even sat in the family room with her tonight to watch a movie > rather than do my own thing. Tried making suggestions about the garden > and what she may like to do with it. The response so far has been > ridicule and put downs with accusations about how I expect her to roll > over and cause more pain. > > Now I understand the reaction may be her way of expressing her fears etc. > but basically she does not trust my motives. And to be fair to her the > questions are quite valid. I have lost count of the number of times I > have said sorry this weekend. I have also told her that I intend to spend > more time at home and not be so obsessive about work. The real challenge > for me I think will be being in the moment with her when I am home and not > problem solving something from work or at home. Also I need to connect > with my two daughters who both feel very protective of their mother and > are not inclined to make it easy for me. > > Needless to say I have felt quite discouraged. But I am going to clean up > my act, get fit and make sure that I do more to help if I can and if she > agrees. I have asked her also to tell me when anytthing I say hurts her > so that I can understand what or how I say things causes hurt. She > believes I say things to deliberately hurt or twist the knife so to speak. > Explaining that I am often unaware when she feels hurt is the major > problem. It seems I have to be so careful about what I say and have to > second guess how she might take it. > > Oh well. Lets see if I can stick to my goal and see what comes of it. I > do feel that 2008 will be a better year where my wife and I will finally > either make it together or make it apart. Even gaining her respect back > may be enough. It would definitely be progress. > > BTW the psychologist advised me that I have emotional dyspraxia. This > translates I think to lack of awareness of feelings or emotions and thus > inhibiting normal responses to emotional behaviour from > others. Do all AS on the list suffer this?> > Greg> dx AS at 53> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 I agree. I do see a change in my husband when HE feels good about himself. That changes almost daily though. The statement about controlling and manipulative is pretty acuarate for me also. He thinks his way is the right way and he has had problems at work because of this he's a commercial plumber. Greg Greer wrote: , It has been stated a few times by NT spouses that the AS spouse can often say they are going to change but they see no difference in behaviour. I am in this category when my spouse demands that I have to change and I always say yes with every intention of doing so but then it can go one of two ways: a) nothing happens and she gets more disenchanted feeling that I have lied to her I try to do something without consulting her which leads to more aggravation or I go over the top in doing something that has consequences I did not consider for her and the family. Either way it seems to make things worse. There seems to be a gap in common sense or executive function perhaps. From an AS perspective the family members often can get together and talk and enjoy each others company but we feel like the lampshade in the corner. We by habit have not been involved in their lives so can often get ignored. But then we do that to our spouses when we withdraw. Another frequent statement my spouse makes is that I seem to be controlling and manipulative always wanting things done my way. My view on this is that our inflexibility is what convinces them that this is so. Maybe other NTs on the list could consider if this is their experience too. Greg dx AS at 53 " " <amwill2pacbell (DOT) net> Sent by: aspires-relationships 14/01/2008 07:16 PM Please respond toaspires-relationships To aspires-relationships cc Subject Re: Epiphany of sorts - Making a difference in AS/NT relationships I'm responding as the wife of someone with Asperger's, and I don't know if I have distrust with my spouse, but then he has been able to verbalize that he has no interest in changing himself to improve our marriage. We will have been married for 25 years this week. I would say that we have more of a "business arrangement" than a marriage, everything has always been geared to what he is comfortable with, and he is not very affectioanate, or romantic, and has been very verbal about not wanting to be, "too much pressure". We have a son who has been medically recognized as being AS, and that enabled him to receive services at the school. I don't believe that my husband believes he has AS, he has not been medically recognized, but he is exactly like our son, and we got to observe part of the testing, with our son, and my husband had a hard time relating what was going on and what the signifance of the testing ment. We have three boys total, all have add/adhd, one has AS and one has ODD (oppositional defiant disorder). Since my husband has been very vocal about what works for him, (of course he wasn't at first!) I have always made a point of taking the time to do something special for occaisions that are important to me. It was hard in the beginning of our marriage, and I used to wonder what had I done, or didn't do? But once we got our son's diagnosis, and I started researching materials on spouses of AS, it was like a light bulb went on. I don't take it personally, intelluctually, but since this is a milestone year (25th) and the plans I made, had to be cancelled, emotionally it is really hard. I have a lot of interests, and my plate is usually full, with the kids, and now I am a major care provider for my mother. But there really isn't anyone who can understand the loneliness, that comes with an AS relationship.On a side note, if anyone knows of a group of people that are married to or have family relationships with AS, I would like to know, as I feel very isolated most of the time, and I have just thought to reach out on the web, and came across this group. Angie >> I sent this note to see if anyone has been able to deal with the distrust > NT partners tend to have of their AS spouses when they say they are trying > to change.> > I have found one of the most negative responses we can make to an > individual iis withdrawal and sulking which is what I have done habitually > throughout our married life. Strange that what you should value becomes > more valuable when you have lost it.> > Perhaps I have had an epiphany but if that is so I will need a lot of > courage to take the necessary steps to make the most of it. I think the > penny dropped when the counsellor helped me understand the consequences > words and lack of action have, and how damaging it can be to a > relationship. One of the things that helped me understand this was the > following:> > We may think that we have to do things or say things rather than realising > that we can choose to do so or not to do so. I told my wife that I had > chosen to behave in the way I did and that realising that is a choice I > made means that I am really responsible for it. So the counsellor helped > me understand that I can choose to withdraw or I can choose to engage with > my wife. That in itself is a very powerful message. So when I do not "get > it" or do or say something that upsets or hurts her, I have to choose how > I respond not fall back on old negative habits. > > I have just now set a goal of trying hard to make a difference within 3 > months. I got home on Friday night and told my wife that I am going to > really try hard to fit in more and listen to her point of view and try not > to make it about me all the time. I have read a book called the seven > principles of making marriage work by Gottman. This has helped me > realise that there are tools I can use to make a better efforf. She > wanted to know when the lightning struck or who hit me on the head. To > quote the words she used > > "So after 30 years of not wanting me in your life you now decide you want > a relationship! What about when I wanted a relationship and you were > physically or emotionally unavailable to be involved in my life and the > kids lives? What ulteriror motive do you have that you find that this is > now necessary? What can you offer me other than what you have so far? Why > should I take a risk of being let down again? Just because you want it > now it HAS to happen! What are you going to base a relationship on that > you have destroyed? You still have Aspergers so how can you change?> > So I kept telling her that I need to try and I asked for her help. I have > said this several times over the weekend. I even tried to initiate > conversations about what we can do to develop some shared experiences. I > want to see if we can be happy together rather than trying to be happy > alone. I even sat in the family room with her tonight to watch a movie > rather than do my own thing. Tried making suggestions about the garden > and what she may like to do with it. The response so far has been > ridicule and put downs with accusations about how I expect her to roll > over and cause more pain. > > Now I understand the reaction may be her way of expressing her fears etc. > but basically she does not trust my motives. And to be fair to her the > questions are quite valid. I have lost count of the number of times I > have said sorry this weekend. I have also told her that I intend to spend > more time at home and not be so obsessive about work. The real challenge > for me I think will be being in the moment with her when I am home and not > problem solving something from work or at home. Also I need to connect > with my two daughters who both feel very protective of their mother and > are not inclined to make it easy for me. > > Needless to say I have felt quite discouraged. But I am going to clean up > my act, get fit and make sure that I do more to help if I can and if she > agrees. I have asked her also to tell me when anytthing I say hurts her > so that I can understand what or how I say things causes hurt. She > believes I say things to deliberately hurt or twist the knife so to speak. > Explaining that I am often unaware when she feels hurt is the major > problem. It seems I have to be so careful about what I say and have to > second guess how she might take it. > > Oh well. Lets see if I can stick to my goal and see what comes of it. I > do feel that 2008 will be a better year where my wife and I will finally > either make it together or make it apart. Even gaining her respect back > may be enough. It would definitely be progress. > > BTW the psychologist advised me that I have emotional dyspraxia. This > translates I think to lack of awareness of feelings or emotions and thus > inhibiting normal responses to emotional behaviour from > others. Do all AS on the list suffer this?> > Greg> dx AS at 53> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 Angie, I connected with your story so much. I too am Type A, first child and I too feel I need to change to make life easier. A friend told me that I should not change who I am. But I believe understanding what others go through and how they deal will help me in my relationship with my husband. I am eternally gtateful... 's Family wrote: Greg, I appreciate your comments and your viewpoint. My husband is an engineer. I have observed over the years that he does seem to be lacking in basic commom sense, he has made the same observation, himself. He is a project manager, and is very controlling and subtly manipulative in his work environment (which I attributed to his being an engineer), which he sometimes brings home. I feel I am also a controlling person, first child, type A, very detail oriented, and organized. I actually find this a strength, having to deal with the family we have. As much as I know intellectually from reading and surfing the web, and just through my personal observations on living with my husband and my son, I still have periods of mourning, what I am missing in having an intepersonal relationship with them, such as I have with a friend. My son gets social skills classes at school, he sees a counselor, and I do have hope for him, as he asks questions and queries his behaviour in situations, sometimes. When my husband and I were both in counseling, he never really seemed to connect that someone else might have a different view on something. Everything is either black or white, and I consider myself to live in a 'gray' environment. If he thought something was black, then I better think that way too. Some of the decisions he has made during our marriage, reflect his lack of being able to comprehend how, whatever the decision or circumstance might be, affects the family as a 'whole'. He sees how it will affect him, and just seems to be oblivious to how the same decision is going to affect anyone else. I didn't continue with him in counseling, because it was just so non-progressive and I felt like I was talking to a brick wall. The counselor was fascinated by his observations, and genuflections and he continues to see her to this day, which is working for him. One of the coping mechanisms I have is to "find what works, and do that" knowing that it is subject to change based on the situation, the person or persons involved in the situations, etc. I just feel that I am the one consistently having to change, or compromise. At what point do I devalue myself, and not voice my opinions, just because it is easier to go along with what works for him? Can I continue to do this? Sometimes I feel like I am in a prison, as weird as that sounds. The overwhelming effort it takes , to make a connection with him is just more energy than I have most of the time. His status quo, is all I can muster most days. If I am responding to him the way he wants me to, he appears genuinely happy, or maybe content would be a better phrase. For as much drama as we have in our lives, there is a basic framework, of a structured regimen, that if he isn't getting that, things don't go well. I'm sure he loves me, I would just like to feel more like his spouse and not his mother. Pryor to joining this group and not being able to connect with a group in my area, I have focused on the person I have control over changing, me. But it is very difficult, as other friends really can't relate to what it's like, and it's hard for me to explain. I am thankful for coming across this forum to be able to grow and learn, being able to build up my strength to continue to change, and compromise in love. I feel I am a 'work in progress', and that we were meant to be together, it is sometimes I feel that maybe I am not getting whatever the message is that I am supposed to get from the experience. Blessings, Angie Re: Re: Epiphany of sorts - Making a difference in AS/NT relationships , It has been stated a few times by NT spouses that the AS spouse can often say they are going to change but they see no difference in behaviour. I am in this category when my spouse demands that I have to change and I always say yes with every intention of doing so but then it can go one of two ways: a) nothing happens and she gets more disenchanted feeling that I have lied to her I try to do something without consulting her which leads to more aggravation or I go over the top in doing something that has consequences I did not consider for her and the family. Either way it seems to make things worse. There seems to be a gap in common sense or executive function perhaps. From an AS perspective the family members often can get together and talk and enjoy each others company but we feel like the lampshade in the corner. We by habit have not been involved in their lives so can often get ignored. But then we do that to our spouses when we withdraw. Another frequent statement my spouse makes is that I seem to be controlling and manipulative always wanting things done my way. My view on this is that our inflexibility is what convinces them that this is so. Maybe other NTs on the list could consider if this is their experience too. Greg dx AS at 53 " " <amwill2pacbell (DOT) net> Sent by: aspires-relationships 14/01/2008 07:16 PM Please respond toaspires-relationships To aspires-relationships cc Subject Re: Epiphany of sorts - Making a difference in AS/NT relationships I'm responding as the wife of someone with Asperger's, and I don't know if I have distrust with my spouse, but then he has been able to verbalize that he has no interest in changing himself to improve our marriage. We will have been married for 25 years this week. I would say that we have more of a "business arrangement" than a marriage, everything has always been geared to what he is comfortable with, and he is not very affectioanate, or romantic, and has been very verbal about not wanting to be, "too much pressure". We have a son who has been medically recognized as being AS, and that enabled him to receive services at the school. I don't believe that my husband believes he has AS, he has not been medically recognized, but he is exactly like our son, and we got to observe part of the testing, with our son, and my husband had a hard time relating what was going on and what the signifance of the testing ment. We have three boys total, all have add/adhd, one has AS and one has ODD (oppositional defiant disorder). Since my husband has been very vocal about what works for him, (of course he wasn't at first!) I have always made a point of taking the time to do something special for occaisions that are important to me. It was hard in the beginning of our marriage, and I used to wonder what had I done, or didn't do? But once we got our son's diagnosis, and I started researching materials on spouses of AS, it was like a light bulb went on. I don't take it personally, intelluctually, but since this is a milestone year (25th) and the plans I made, had to be cancelled, emotionally it is really hard. I have a lot of interests, and my plate is usually full, with the kids, and now I am a major care provider for my mother. But there really isn't anyone who can understand the loneliness, that comes with an AS relationship.On a side note, if anyone knows of a group of people that are married to or have family relationships with AS, I would like to know, as I feel very isolated most of the time, and I have just thought to reach out on the web, and came across this group. Angie >> I sent this note to see if anyone has been able to deal with the distrust > NT partners tend to have of their AS spouses when they say they are trying > to change.> > I have found one of the most negative responses we can make to an > individual iis withdrawal and sulking which is what I have done habitually > throughout our married life. Strange that what you should value becomes > more valuable when you have lost it.> > Perhaps I have had an epiphany but if that is so I will need a lot of > courage to take the necessary steps to make the most of it. I think the > penny dropped when the counsellor helped me understand the consequences > words and lack of action have, and how damaging it can be to a > relationship. One of the things that helped me understand this was the > following:> > We may think that we have to do things or say things rather than realising > that we can choose to do so or not to do so. I told my wife that I had > chosen to behave in the way I did and that realising that is a choice I > made means that I am really responsible for it. So the counsellor helped > me understand that I can choose to withdraw or I can choose to engage with > my wife. That in itself is a very powerful message. So when I do not "get > it" or do or say something that upsets or hurts her, I have to choose how > I respond not fall back on old negative habits. > > I have just now set a goal of trying hard to make a difference within 3 > months. I got home on Friday night and told my wife that I am going to > really try hard to fit in more and listen to her point of view and try not > to make it about me all the time. I have read a book called the seven > principles of making marriage work by Gottman. This has helped me > realise that there are tools I can use to make a better efforf. She > wanted to know when the lightning struck or who hit me on the head. To > quote the words she used > > "So after 30 years of not wanting me in your life you now decide you want > a relationship! What about when I wanted a relationship and you were > physically or emotionally unavailable to be involved in my life and the > kids lives? What ulteriror motive do you have that you find that this is > now necessary? What can you offer me other than what you have so far? Why > should I take a risk of being let down again? Just because you want it > now it HAS to happen! What are you going to base a relationship on that > you have destroyed? You still have Aspergers so how can you change?> > So I kept telling her that I need to try and I asked for her help. I have > said this several times over the weekend. I even tried to initiate > conversations about what we can do to develop some shared experiences. I > want to see if we can be happy together rather than trying to be happy > alone. I even sat in the family room with her tonight to watch a movie > rather than do my own thing. Tried making suggestions about the garden > and what she may like to do with it. The response so far has been > ridicule and put downs with accusations about how I expect her to roll > over and cause more pain. > > Now I understand the reaction may be her way of expressing her fears etc. > but basically she does not trust my motives. And to be fair to her the > questions are quite valid. I have lost count of the number of times I > have said sorry this weekend. I have also told her that I intend to spend > more time at home and not be so obsessive about work. The real challenge > for me I think will be being in the moment with her when I am home and not > problem solving something from work or at home. Also I need to connect > with my two daughters who both feel very protective of their mother and > are not inclined to make it easy for me. > > Needless to say I have felt quite discouraged. But I am going to clean up > my act, get fit and make sure that I do more to help if I can and if she > agrees. I have asked her also to tell me when anytthing I say hurts her > so that I can understand what or how I say things causes hurt. She > believes I say things to deliberately hurt or twist the knife so to speak. > Explaining that I am often unaware when she feels hurt is the major > problem. It seems I have to be so careful about what I say and have to > second guess how she might take it. > > Oh well. Lets see if I can stick to my goal and see what comes of it. I > do feel that 2008 will be a better year where my wife and I will finally > either make it together or make it apart. Even gaining her respect back > may be enough. It would definitely be progress. > > BTW the psychologist advised me that I have emotional dyspraxia. This > translates I think to lack of awareness of feelings or emotions and thus > inhibiting normal responses to emotional behaviour from > others. Do all AS on the list suffer this?> > Greg> dx AS at 53> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 Angie, From my own AS perspective there is no doubt that I love my wife but the communication styles being so different and mine being so inflexible has created many problems. I keep thinking that if I did not love my family then why would I still be here providing for them? The answer is that it is comfortable but the relationship is not. My wife needs to feel that she is the number one thing in my life. Let me try to describe what love is for me as a diagnosed AS. It means that when your partner wants help then they should ask for it. If they want to go to the movies then they should say so. If I want to have time to myself then I should be able to without recriminations. Love is having the strength to declare what boundaries you need. Love is having the capacity to say that is alright to have your own space in a relationship. Love is not having to be expected to think of someone else all the time. But that is egocentric. I may never get to understand love from an NT perspective. It seems like fuzzy logic. Here is what I have learned love is not. Love is not withdrawing because you are oversensitive and sulking. That I have learned form counselling. Love is not being secretive and refusing to take responsibility. That I have learned from my wife. Love is not having to have continual reassurance of your partners affection. That is dependence. I have become aware of how my wife and I have morphed over the years. I was the strong one and slowly became dependent on her. She was the dependent one who has had to become strong for the kids and to keep a marriage afloat. To all you NT women out there. What you are doing is heroic. Even more so when you need a hero and he is not there. It took me a long time to see that. In some ways AS people learn how to make themselves feel good by doing their own thing. This can lead to maladaptive behaviour. It also builds walls. I am trying to dismantle the wall brick by brick. Each brick has a word on it. My wife cannot do it. She did not build it. I have to do it. Greg dx AS at 53 " 's Family " Sent by: aspires-relationships 15/01/2008 06:01 PM Please respond to aspires-relationships To <aspires-relationships > cc Subject Re: Re: Epiphany of sorts - Making a difference in AS/NT relationships Greg, I appreciate your comments and your viewpoint. My husband is an engineer. I have observed over the years that he does seem to be lacking in basic commom sense, he has made the same observation, himself. He is a project manager, and is very controlling and subtly manipulative in his work environment (which I attributed to his being an engineer), which he sometimes brings home. I feel I am also a controlling person, first child, type A, very detail oriented, and organized. I actually find this a strength, having to deal with the family we have. As much as I know intellectually from reading and surfing the web, and just through my personal observations on living with my husband and my son, I still have periods of mourning, what I am missing in having an intepersonal relationship with them, such as I have with a friend. My son gets social skills classes at school, he sees a counselor, and I do have hope for him, as he asks questions and queries his behaviour in situations, sometimes. When my husband and I were both in counseling, he never really seemed to connect that someone else might have a different view on something. Everything is either black or white, and I consider myself to live in a 'gray' environment. If he thought something was black, then I better think that way too. Some of the decisions he has made during our marriage, reflect his lack of being able to comprehend how, whatever the decision or circumstance might be, affects the family as a 'whole'. He sees how it will affect him, and just seems to be oblivious to how the same decision is going to affect anyone else. I didn't continue with him in counseling, because it was just so non-progressive and I felt like I was talking to a brick wall. The counselor was fascinated by his observations, and genuflections and he continues to see her to this day, which is working for him. One of the coping mechanisms I have is to " find what works, and do that " knowing that it is subject to change based on the situation, the person or persons involved in the situations, etc. I just feel that I am the one consistently having to change, or compromise. At what point do I devalue myself, and not voice my opinions, just because it is easier to go along with what works for him? Can I continue to do this? Sometimes I feel like I am in a prison, as weird as that sounds. The overwhelming effort it takes , to make a connection with him is just more energy than I have most of the time. His status quo, is all I can muster most days. If I am responding to him the way he wants me to, he appears genuinely happy, or maybe content would be a better phrase. For as much drama as we have in our lives, there is a basic framework, of a structured regimen, that if he isn't getting that, things don't go well. I'm sure he loves me, I would just like to feel more like his spouse and not his mother. Pryor to joining this group and not being able to connect with a group in my area, I have focused on the person I have control over changing, me. But it is very difficult, as other friends really can't relate to what it's like, and it's hard for me to explain. I am thankful for coming across this forum to be able to grow and learn, being able to build up my strength to continue to change, and compromise in love. I feel I am a 'work in progress', and that we were meant to be together, it is sometimes I feel that maybe I am not getting whatever the message is that I am supposed to get from the experience. Blessings, Angie Re: Re: Epiphany of sorts - Making a difference in AS/NT relationships , It has been stated a few times by NT spouses that the AS spouse can often say they are going to change but they see no difference in behaviour. I am in this category when my spouse demands that I have to change and I always say yes with every intention of doing so but then it can go one of two ways: a) nothing happens and she gets more disenchanted feeling that I have lied to her I try to do something without consulting her which leads to more aggravation or I go over the top in doing something that has consequences I did not consider for her and the family. Either way it seems to make things worse. There seems to be a gap in common sense or executive function perhaps. From an AS perspective the family members often can get together and talk and enjoy each others company but we feel like the lampshade in the corner. We by habit have not been involved in their lives so can often get ignored. But then we do that to our spouses when we withdraw. Another frequent statement my spouse makes is that I seem to be controlling and manipulative always wanting things done my way. My view on this is that our inflexibility is what convinces them that this is so. Maybe other NTs on the list could consider if this is their experience too. Greg dx AS at 53 " " Sent by: aspires-relationships 14/01/2008 07:16 PM Please respond to aspires-relationships To aspires-relationships cc Subject Re: Epiphany of sorts - Making a difference in AS/NT relationships I'm responding as the wife of someone with Asperger's, and I don't know if I have distrust with my spouse, but then he has been able to verbalize that he has no interest in changing himself to improve our marriage. We will have been married for 25 years this week. I would say that we have more of a " business arrangement " than a marriage, everything has always been geared to what he is comfortable with, and he is not very affectioanate, or romantic, and has been very verbal about not wanting to be, " too much pressure " . We have a son who has been medically recognized as being AS, and that enabled him to receive services at the school. I don't believe that my husband believes he has AS, he has not been medically recognized, but he is exactly like our son, and we got to observe part of the testing, with our son, and my husband had a hard time relating what was going on and what the signifance of the testing ment. We have three boys total, all have add/adhd, one has AS and one has ODD (oppositional defiant disorder). Since my husband has been very vocal about what works for him, (of course he wasn't at first!) I have always made a point of taking the time to do something special for occaisions that are important to me. It was hard in the beginning of our marriage, and I used to wonder what had I done, or didn't do? But once we got our son's diagnosis, and I started researching materials on spouses of AS, it was like a light bulb went on. I don't take it personally, intelluctually, but since this is a milestone year (25th) and the plans I made, had to be cancelled, emotionally it is really hard. I have a lot of interests, and my plate is usually full, with the kids, and now I am a major care provider for my mother. But there really isn't anyone who can understand the loneliness, that comes with an AS relationship. On a side note, if anyone knows of a group of people that are married to or have family relationships with AS, I would like to know, as I feel very isolated most of the time, and I have just thought to reach out on the web, and came across this group. Angie > > I sent this note to see if anyone has been able to deal with the distrust > NT partners tend to have of their AS spouses when they say they are trying > to change. > > I have found one of the most negative responses we can make to an > individual iis withdrawal and sulking which is what I have done habitually > throughout our married life. Strange that what you should value becomes > more valuable when you have lost it. > > Perhaps I have had an epiphany but if that is so I will need a lot of > courage to take the necessary steps to make the most of it. I think the > penny dropped when the counsellor helped me understand the consequences > words and lack of action have, and how damaging it can be to a > relationship. One of the things that helped me understand this was the > following: > > We may think that we have to do things or say things rather than realising > that we can choose to do so or not to do so. I told my wife that I had > chosen to behave in the way I did and that realising that is a choice I > made means that I am really responsible for it. So the counsellor helped > me understand that I can choose to withdraw or I can choose to engage with > my wife. That in itself is a very powerful message. So when I do not " get > it " or do or say something that upsets or hurts her, I have to choose how > I respond not fall back on old negative habits. > > I have just now set a goal of trying hard to make a difference within 3 > months. I got home on Friday night and told my wife that I am going to > really try hard to fit in more and listen to her point of view and try not > to make it about me all the time. I have read a book called the seven > principles of making marriage work by Gottman. This has helped me > realise that there are tools I can use to make a better efforf. She > wanted to know when the lightning struck or who hit me on the head. To > quote the words she used > > " So after 30 years of not wanting me in your life you now decide you want > a relationship! What about when I wanted a relationship and you were > physically or emotionally unavailable to be involved in my life and the > kids lives? What ulteriror motive do you have that you find that this is > now necessary? What can you offer me other than what you have so far? Why > should I take a risk of being let down again? Just because you want it > now it HAS to happen! What are you going to base a relationship on that > you have destroyed? You still have Aspergers so how can you change? > > So I kept telling her that I need to try and I asked for her help. I have > said this several times over the weekend. I even tried to initiate > conversations about what we can do to develop some shared experiences. I > want to see if we can be happy together rather than trying to be happy > alone. I even sat in the family room with her tonight to watch a movie > rather than do my own thing. Tried making suggestions about the garden > and what she may like to do with it. The response so far has been > ridicule and put downs with accusations about how I expect her to roll > over and cause more pain. > > Now I understand the reaction may be her way of expressing her fears etc. > but basically she does not trust my motives. And to be fair to her the > questions are quite valid. I have lost count of the number of times I > have said sorry this weekend. I have also told her that I intend to spend > more time at home and not be so obsessive about work. The real challenge > for me I think will be being in the moment with her when I am home and not > problem solving something from work or at home. Also I need to connect > with my two daughters who both feel very protective of their mother and > are not inclined to make it easy for me. > > Needless to say I have felt quite discouraged. But I am going to clean up > my act, get fit and make sure that I do more to help if I can and if she > agrees. I have asked her also to tell me when anytthing I say hurts her > so that I can understand what or how I say things causes hurt. She > believes I say things to deliberately hurt or twist the knife so to speak. > Explaining that I am often unaware when she feels hurt is the major > problem. It seems I have to be so careful about what I say and have to > second guess how she might take it. > > Oh well. Lets see if I can stick to my goal and see what comes of it. I > do feel that 2008 will be a better year where my wife and I will finally > either make it together or make it apart. Even gaining her respect back > may be enough. It would definitely be progress. > > BTW the psychologist advised me that I have emotional dyspraxia. This > translates I think to lack of awareness of feelings or emotions and thus > inhibiting normal responses to emotional behaviour from > others. Do all AS on the list suffer this? > > Greg > dx AS at 53 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 Greg, very well said. I think you will succeed. It takes a lot of courage to step out of your comfort zone for your wife and your family. However, as an NT wife, I do not consider myself a hero at all. I have my own problems. They are just different from my AS husband's. I agree the difference in communication styles are a big problem. In fact, it drives me nuts some times. It will be very helpful to me if I understood how my husband thinks and analyzes what he hears. Let me run this by you. If I ask my husband to do something outside his comfort zone, I run it past him ahead of time and then let him digest it without further discussion, AKA argument. Usually he will later discuss it and agree to help me with whatever it was. Is this a good approach? However, I haven't been too successful with his giving up any of the stuff he has hoarded. He isn't as bad as his father. After his father died, we had to clean out his home. He used only 3 rooms of a big home. When we went through the other rooms, there were many large boxes with just twistee ties in them. Other boxes had rubber bands in them. Other boxes were filled with empty prescription bottles. Other boxes with neatly folded, used tin foil. Well you get the picture. His father never allowed anyone on his property. 's sister's husband of 30+ yrs was never allowed in the home. For some reason, his father liked me and always asked Rich to bring me on a visit. But I digress.....what would be a good approach in getting to throw out some of his junk? Like little scraps of wood from some project. A broken down cooker that he hasn't used in the 14 yrs we have been married. Like broken pieces of panes of glass. Would it be deceitful for me to secretly remove the stuff and throw it away in some dumpster? I don't believe he would miss it ever. He just can't bring himself to get rid of it or me if he knows about it. He searches the garbage can for things I might have thrown away. Verleen Greg Greer wrote: Angie, From my own AS perspective there is no doubt that I love my wife but the communication styles being so different and mine being so inflexible has created many problems. I keep thinking that if I did not love my family then why would I still be here providing for them? The answer is that it is comfortable but the relationship is not. My wife needs to feel that she is the number one thing in my life. Let me try to describe what love is for me as a diagnosed AS. It means that when your partner wants help then they should ask for it. If they want to go to the movies then they should say so. If I want to have time to myself then I should be able to without recriminations. Love is having the strength to declare what boundaries you need. Love is having the capacity to say that is alright to have your own space in a relationship. Love is not having to be expected to think of someone else all the time. But that is egocentric. I may never get to understand love from an NT perspective. It seems like fuzzy logic. Here is what I have learned love is not. Love is not withdrawing because you are oversensitive and sulking. That I have learned form counselling. Love is not being secretive and refusing to take responsibility. That I have learned from my wife. Love is not having to have continual reassurance of your partners affection. That is dependence. I have become aware of how my wife and I have morphed over the years. I was the strong one and slowly became dependent on her. She was the dependent one who has had to become strong for the kids and to keep a marriage afloat. To all you NT women out there. What you are doing is heroic. Even more so when you need a hero and he is not there. It took me a long time to see that. In some ways AS people learn how to make themselves feel good by doing their own thing. This can lead to maladaptive behaviour. It also builds walls. I am trying to dismantle the wall brick by brick. Each brick has a word on it. My wife cannot do it. She did not build it. I have to do it. Greg dx AS at 53 "'s Family" <amwill2pacbell (DOT) net> Sent by: aspires-relationshi psyahoogroups (DOT) com 15/01/2008 06:01 PM Please respond to aspires-relationshi psyahoogroups (DOT) com To <aspires-relationshi psyahoogroups (DOT) com> cc Subject Re: [aspires-relationsh ips] Re: Epiphany of sorts - Making a difference in AS/NT relationships Greg, I appreciate your comments and your viewpoint. My husband is an engineer. I have observed over the years that he does seem to be lacking in basic commom sense, he has made the same observation, himself. He is a project manager, and is very controlling and subtly manipulative in his work environment (which I attributed to his being an engineer), which he sometimes brings home. I feel I am also a controlling person, first child, type A, very detail oriented, and organized. I actually find this a strength, having to deal with the family we have. As much as I know intellectually from reading and surfing the web, and just through my personal observations on living with my husband and my son, I still have periods of mourning, what I am missing in having an intepersonal relationship with them, such as I have with a friend. My son gets social skills classes at school, he sees a counselor, and I do have hope for him, as he asks questions and queries his behaviour in situations, sometimes. When my husband and I were both in counseling, he never really seemed to connect that someone else might have a different view on something. Everything is either black or white, and I consider myself to live in a 'gray' environment. If he thought something was black, then I better think that way too. Some of the decisions he has made during our marriage, reflect his lack of being able to comprehend how, whatever the decision or circumstance might be, affects the family as a 'whole'. He sees how it will affect him, and just seems to be oblivious to how the same decision is going to affect anyone else. I didn't continue with him in counseling, because it was just so non-progressive and I felt like I was talking to a brick wall. The counselor was fascinated by his observations, and genuflections and he continues to see her to this day, which is working for him. One of the coping mechanisms I have is to "find what works, and do that" knowing that it is subject to change based on the situation, the person or persons involved in the situations, etc. I just feel that I am the one consistently having to change, or compromise. At what point do I devalue myself, and not voice my opinions, just because it is easier to go along with what works for him? Can I continue to do this? Sometimes I feel like I am in a prison, as weird as that sounds. The overwhelming effort it takes , to make a connection with him is just more energy than I have most of the time. His status quo, is all I can muster most days. If I am responding to him the way he wants me to, he appears genuinely happy, or maybe content would be a better phrase. For as much drama as we have in our lives, there is a basic framework, of a structured regimen, that if he isn't getting that, things don't go well. I'm sure he loves me, I would just like to feel more like his spouse and not his mother. Pryor to joining this group and not being able to connect with a group in my area, I have focused on the person I have control over changing, me. But it is very difficult, as other friends really can't relate to what it's like, and it's hard for me to explain. I am thankful for coming across this forum to be able to grow and learn, being able to build up my strength to continue to change, and compromise in love. I feel I am a 'work in progress', and that we were meant to be together, it is sometimes I feel that maybe I am not getting whatever the message is that I am supposed to get from the experience. Blessings, Angie Re: [aspires-relationsh ips] Re: Epiphany of sorts - Making a difference in AS/NT relationships , It has been stated a few times by NT spouses that the AS spouse can often say they are going to change but they see no difference in behaviour. I am in this category when my spouse demands that I have to change and I always say yes with every intention of doing so but then it can go one of two ways: a) nothing happens and she gets more disenchanted feeling that I have lied to her I try to do something without consulting her which leads to more aggravation or I go over the top in doing something that has consequences I did not consider for her and the family. Either way it seems to make things worse. There seems to be a gap in common sense or executive function perhaps. >From an AS perspective the family members often can get together and talk and enjoy each others company but we feel like the lampshade in the corner. We by habit have not been involved in their lives so can often get ignored. But then we do that to our spouses when we withdraw. Another frequent statement my spouse makes is that I seem to be controlling and manipulative always wanting things done my way. My view on this is that our inflexibility is what convinces them that this is so. Maybe other NTs on the list could consider if this is their experience too. Greg dx AS at 53 " " <amwill2pacbell (DOT) net> Sent by: aspires-relationshi psyahoogroups (DOT) com 14/01/2008 07:16 PM Please respond to aspires-relationshi psyahoogroups (DOT) com To aspires-relationshi psyahoogroups (DOT) com cc Subject [aspires-relationsh ips] Re: Epiphany of sorts - Making a difference in AS/NT relationships I'm responding as the wife of someone with Asperger's, and I don't know if I have distrust with my spouse, but then he has been able to verbalize that he has no interest in changing himself to improve our marriage. We will have been married for 25 years this week. I would say that we have more of a "business arrangement" than a marriage, everything has always been geared to what he is comfortable with, and he is not very affectioanate, or romantic, and has been very verbal about not wanting to be, "too much pressure". We have a son who has been medically recognized as being AS, and that enabled him to receive services at the school. I don't believe that my husband believes he has AS, he has not been medically recognized, but he is exactly like our son, and we got to observe part of the testing, with our son, and my husband had a hard time relating what was going on and what the signifance of the testing ment. We have three boys total, all have add/adhd, one has AS and one has ODD (oppositional defiant disorder). Since my husband has been very vocal about what works for him, (of course he wasn't at first!) I have always made a point of taking the time to do something special for occaisions that are important to me. It was hard in the beginning of our marriage, and I used to wonder what had I done, or didn't do? But once we got our son's diagnosis, and I started researching materials on spouses of AS, it was like a light bulb went on. I don't take it personally, intelluctually, but since this is a milestone year (25th) and the plans I made, had to be cancelled, emotionally it is really hard. I have a lot of interests, and my plate is usually full, with the kids, and now I am a major care provider for my mother. But there really isn't anyone who can understand the loneliness, that comes with an AS relationship. On a side note, if anyone knows of a group of people that are married to or have family relationships with AS, I would like to know, as I feel very isolated most of the time, and I have just thought to reach out on the web, and came across this group. Angie > > I sent this note to see if anyone has been able to deal with the distrust > NT partners tend to have of their AS spouses when they say they are trying > to change. > > I have found one of the most negative responses we can make to an > individual iis withdrawal and sulking which is what I have done habitually > throughout our married life. Strange that what you should value becomes > more valuable when you have lost it. > > Perhaps I have had an epiphany but if that is so I will need a lot of > courage to take the necessary steps to make the most of it. I think the > penny dropped when the counsellor helped me understand the consequences > words and lack of action have, and how damaging it can be to a > relationship. One of the things that helped me understand this was the > following: > > We may think that we have to do things or say things rather than realising > that we can choose to do so or not to do so. I told my wife that I had > chosen to behave in the way I did and that realising that is a choice I > made means that I am really responsible for it. So the counsellor helped > me understand that I can choose to withdraw or I can choose to engage with > my wife. That in itself is a very powerful message. So when I do not "get > it" or do or say something that upsets or hurts her, I have to choose how > I respond not fall back on old negative habits. > > I have just now set a goal of trying hard to make a difference within 3 > months. I got home on Friday night and told my wife that I am going to > really try hard to fit in more and listen to her point of view and try not > to make it about me all the time. I have read a book called the seven > principles of making marriage work by Gottman. This has helped me > realise that there are tools I can use to make a better efforf. She > wanted to know when the lightning struck or who hit me on the head. To > quote the words she used > > "So after 30 years of not wanting me in your life you now decide you want > a relationship! What about when I wanted a relationship and you were > physically or emotionally unavailable to be involved in my life and the > kids lives? What ulteriror motive do you have that you find that this is > now necessary? What can you offer me other than what you have so far? Why > should I take a risk of being let down again? Just because you want it > now it HAS to happen! What are you going to base a relationship on that > you have destroyed? You still have Aspergers so how can you change? > > So I kept telling her that I need to try and I asked for her help. I have > said this several times over the weekend. I even tried to initiate > conversations about what we can do to develop some shared experiences. I > want to see if we can be happy together rather than trying to be happy > alone. I even sat in the family room with her tonight to watch a movie > rather than do my own thing. Tried making suggestions about the garden > and what she may like to do with it. The response so far has been > ridicule and put downs with accusations about how I expect her to roll > over and cause more pain. > > Now I understand the reaction may be her way of expressing her fears etc. > but basically she does not trust my motives. And to be fair to her the > questions are quite valid. I have lost count of the number of times I > have said sorry this weekend. I have also told her that I intend to spend > more time at home and not be so obsessive about work. The real challenge > for me I think will be being in the moment with her when I am home and not > problem solving something from work or at home. Also I need to connect > with my two daughters who both feel very protective of their mother and > are not inclined to make it easy for me. > > Needless to say I have felt quite discouraged. But I am going to clean up > my act, get fit and make sure that I do more to help if I can and if she > agrees. I have asked her also to tell me when anytthing I say hurts her > so that I can understand what or how I say things causes hurt. She > believes I say things to deliberately hurt or twist the knife so to speak. > Explaining that I am often unaware when she feels hurt is the major > problem. It seems I have to be so careful about what I say and have to > second guess how she might take it. > > Oh well. Lets see if I can stick to my goal and see what comes of it. I > do feel that 2008 will be a better year where my wife and I will finally > either make it together or make it apart. Even gaining her respect back > may be enough. It would definitely be progress. > > BTW the psychologist advised me that I have emotional dyspraxia. This > translates I think to lack of awareness of feelings or emotions and thus > inhibiting normal responses to emotional behaviour from > others. Do all AS on the list suffer this? > > Greg > dx AS at 53 > __________ NOD32 2794 (20080115) Information __________ This message was checked by NOD32 antivirus system. http://www.eset.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 Verleen, This is where the dichotomy of the NT/AS relationship gets really bogged down. The way I get it is to understand the logic behind an argument and a position people take. This works well at work. That's not to say that my wife uses this approach. I have to work at understanding why she has made a request. Your husband appears to have an obsessive compulsive disorder about throwing things away. Accept you cannot change that. He needs help from a professional for that. The next thing you may try is to abitrarily declare a certain space for him to keep his collections in. Maybe just one room. You may want to set aside a space for you as well. He will then have to get rid of anything that will not fit. This will be traumatic for him because he will need to make a decision so be prepared for fallout, but you will need to stand your ground. You both have to live in the house. I have one room (the study) that is my space and I do not encroach on any other rooms. I also have " the shed " which is my space and I keep tools and other bric a brac in there, but I am not a compulsive hoarder. If he really likes order then suggest having a shelving/storage system installed in the space so that he can easily label and keep track of what he collects. It would give him a project to do. You will need to explain the consequences to you and anyone else to him if he refuses to follow this and how it affects you. There should also be consequences for him as well. Work out what they should be. Remember, it has to affect him if he is to change. He will fight it but you need to calmly stand your ground. He needs to have reinforced that it is not acceptable. Maybe that is a start. Others on the list may also have suggestions. Greg dx AS at 53 Verleen Standish Sent by: aspires-relationships 16/01/2008 11:19 AM Please respond to aspires-relationships To aspires-relationships cc Subject Re: Re: Epiphany of sorts - Making a difference in AS/NT relationships Greg, very well said. I think you will succeed. It takes a lot of courage to step out of your comfort zone for your wife and your family. However, as an NT wife, I do not consider myself a hero at all. I have my own problems. They are just different from my AS husband's. I agree the difference in communication styles are a big problem. In fact, it drives me nuts some times. It will be very helpful to me if I understood how my husband thinks and analyzes what he hears. Let me run this by you. If I ask my husband to do something outside his comfort zone, I run it past him ahead of time and then let him digest it without further discussion, AKA argument. Usually he will later discuss it and agree to help me with whatever it was. Is this a good approach? However, I haven't been too successful with his giving up any of the stuff he has hoarded. He isn't as bad as his father. After his father died, we had to clean out his home. He used only 3 rooms of a big home. When we went through the other rooms, there were many large boxes with just twistee ties in them. Other boxes had rubber bands in them. Other boxes were filled with empty prescription bottles. Other boxes with neatly folded, used tin foil. Well you get the picture. His father never allowed anyone on his property. 's sister's husband of 30+ yrs was never allowed in the home. For some reason, his father liked me and always asked Rich to bring me on a visit. But I digress.....what would be a good approach in getting to throw out some of his junk? Like little scraps of wood from some project. A broken down cooker that he hasn't used in the 14 yrs we have been married. Like broken pieces of panes of glass. Would it be deceitful for me to secretly remove the stuff and throw it away in some dumpster? I don't believe he would miss it ever. He just can't bring himself to get rid of it or me if he knows about it. He searches the garbage can for things I might have thrown away. Verleen Greg Greer wrote: Angie, From my own AS perspective there is no doubt that I love my wife but the communication styles being so different and mine being so inflexible has created many problems. I keep thinking that if I did not love my family then why would I still be here providing for them? The answer is that it is comfortable but the relationship is not. My wife needs to feel that she is the number one thing in my life. Let me try to describe what love is for me as a diagnosed AS. It means that when your partner wants help then they should ask for it. If they want to go to the movies then they should say so. If I want to have time to myself then I should be able to without recriminations. Love is having the strength to declare what boundaries you need. Love is having the capacity to say that is alright to have your own space in a relationship. Love is not having to be expected to think of someone else all the time. But that is egocentric. I may never get to understand love from an NT perspective. It seems like fuzzy logic. Here is what I have learned love is not. Love is not withdrawing because you are oversensitive and sulking. That I have learned form counselling. Love is not being secretive and refusing to take responsibility. That I have learned from my wife. Love is not having to have continual reassurance of your partners affection. That is dependence. I have become aware of how my wife and I have morphed over the years. I was the strong one and slowly became dependent on her. She was the dependent one who has had to become strong for the kids and to keep a marriage afloat. To all you NT women out there. What you are doing is heroic. Even more so when you need a hero and he is not there. It took me a long time to see that. In some ways AS people learn how to make themselves feel good by doing their own thing. This can lead to maladaptive behaviour. It also builds walls. I am trying to dismantle the wall brick by brick. Each brick has a word on it. My wife cannot do it. She did not build it. I have to do it. Greg dx AS at 53 " 's Family " <amwill2pacbell (DOT) net> Sent by: aspires-relationshi psyahoogroups (DOT) com 15/01/2008 06:01 PM Please respond to aspires-relationshi psyahoogroups (DOT) com To <aspires-relationshi psyahoogroups (DOT) com> cc Subject Re: [aspires-relationsh ips] Re: Epiphany of sorts - Making a difference in AS/NT relationships Greg, I appreciate your comments and your viewpoint. My husband is an engineer. I have observed over the years that he does seem to be lacking in basic commom sense, he has made the same observation, himself. He is a project manager, and is very controlling and subtly manipulative in his work environment (which I attributed to his being an engineer), which he sometimes brings home. I feel I am also a controlling person, first child, type A, very detail oriented, and organized. I actually find this a strength, having to deal with the family we have. As much as I know intellectually from reading and surfing the web, and just through my personal observations on living with my husband and my son, I still have periods of mourning, what I am missing in having an intepersonal relationship with them, such as I have with a friend. My son gets social skills classes at school, he sees a counselor, and I do have hope for him, as he asks questions and queries his behaviour in situations, sometimes. When my husband and I were both in counseling, he never really seemed to connect that someone else might have a different view on something. Everything is either black or white, and I consider myself to live in a 'gray' environment. If he thought something was black, then I better think that way too. Some of the decisions he has made during our marriage, reflect his lack of being able to comprehend how, whatever the decision or circumstance might be, affects the family as a 'whole'. He sees how it will affect him, and just seems to be oblivious to how the same decision is going to affect anyone else. I didn't continue with him in counseling, because it was just so non-progressive and I felt like I was talking to a brick wall. The counselor was fascinated by his observations, and genuflections and he continues to see her to this day, which is working for him. One of the coping mechanisms I have is to " find what works, and do that " knowing that it is subject to change based on the situation, the person or persons involved in the situations, etc. I just feel that I am the one consistently having to change, or compromise. At what point do I devalue myself, and not voice my opinions, just because it is easier to go along with what works for him? Can I continue to do this? Sometimes I feel like I am in a prison, as weird as that sounds. The overwhelming effort it takes , to make a connection with him is just more energy than I have most of the time. His status quo, is all I can muster most days. If I am responding to him the way he wants me to, he appears genuinely happy, or maybe content would be a better phrase. For as much drama as we have in our lives, there is a basic framework, of a structured regimen, that if he isn't getting that, things don't go well. I'm sure he loves me, I would just like to feel more like his spouse and not his mother. Pryor to joining this group and not being able to connect with a group in my area, I have focused on the person I have control over changing, me. But it is very difficult, as other friends really can't relate to what it's like, and it's hard for me to explain. I am thankful for coming across this forum to be able to grow and learn, being able to build up my strength to continue to change, and compromise in love. I feel I am a 'work in progress', and that we were meant to be together, it is sometimes I feel that maybe I am not getting whatever the message is that I am supposed to get from the experience. Blessings, Angie Re: [aspires-relationsh ips] Re: Epiphany of sorts - Making a difference in AS/NT relationships , It has been stated a few times by NT spouses that the AS spouse can often say they are going to change but they see no difference in behaviour. I am in this category when my spouse demands that I have to change and I always say yes with every intention of doing so but then it can go one of two ways: a) nothing happens and she gets more disenchanted feeling that I have lied to her I try to do something without consulting her which leads to more aggravation or I go over the top in doing something that has consequences I did not consider for her and the family. Either way it seems to make things worse. There seems to be a gap in common sense or executive function perhaps. >From an AS perspective the family members often can get together and talk and enjoy each others company but we feel like the lampshade in the corner. We by habit have not been involved in their lives so can often get ignored. But then we do that to our spouses when we withdraw. Another frequent statement my spouse makes is that I seem to be controlling and manipulative always wanting things done my way. My view on this is that our inflexibility is what convinces them that this is so. Maybe other NTs on the list could consider if this is their experience too. Greg dx AS at 53 " " <amwill2pacbell (DOT) net> Sent by: aspires-relationshi psyahoogroups (DOT) com 14/01/2008 07:16 PM Please respond to aspires-relationshi psyahoogroups (DOT) com To aspires-relationshi psyahoogroups (DOT) com cc Subject [aspires-relationsh ips] Re: Epiphany of sorts - Making a difference in AS/NT relationships I'm responding as the wife of someone with Asperger's, and I don't know if I have distrust with my spouse, but then he has been able to verbalize that he has no interest in changing himself to improve our marriage. We will have been married for 25 years this week. I would say that we have more of a " business arrangement " than a marriage, everything has always been geared to what he is comfortable with, and he is not very affectioanate, or romantic, and has been very verbal about not wanting to be, " too much pressure " . We have a son who has been medically recognized as being AS, and that enabled him to receive services at the school. I don't believe that my husband believes he has AS, he has not been medically recognized, but he is exactly like our son, and we got to observe part of the testing, with our son, and my husband had a hard time relating what was going on and what the signifance of the testing ment. We have three boys total, all have add/adhd, one has AS and one has ODD (oppositional defiant disorder). Since my husband has been very vocal about what works for him, (of course he wasn't at first!) I have always made a point of taking the time to do something special for occaisions that are important to me. It was hard in the beginning of our marriage, and I used to wonder what had I done, or didn't do? But once we got our son's diagnosis, and I started researching materials on spouses of AS, it was like a light bulb went on. I don't take it personally, intelluctually, but since this is a milestone year (25th) and the plans I made, had to be cancelled, emotionally it is really hard. I have a lot of interests, and my plate is usually full, with the kids, and now I am a major care provider for my mother. But there really isn't anyone who can understand the loneliness, that comes with an AS relationship. On a side note, if anyone knows of a group of people that are married to or have family relationships with AS, I would like to know, as I feel very isolated most of the time, and I have just thought to reach out on the web, and came across this group. Angie > > I sent this note to see if anyone has been able to deal with the distrust > NT partners tend to have of their AS spouses when they say they are trying > to change. > > I have found one of the most negative responses we can make to an > individual iis withdrawal and sulking which is what I have done habitually > throughout our married life. Strange that what you should value becomes > more valuable when you have lost it. > > Perhaps I have had an epiphany but if that is so I will need a lot of > courage to take the necessary steps to make the most of it. I think the > penny dropped when the counsellor helped me understand the consequences > words and lack of action have, and how damaging it can be to a > relationship. One of the things that helped me understand this was the > following: > > We may think that we have to do things or say things rather than realising > that we can choose to do so or not to do so. I told my wife that I had > chosen to behave in the way I did and that realising that is a choice I > made means that I am really responsible for it. So the counsellor helped > me understand that I can choose to withdraw or I can choose to engage with > my wife. That in itself is a very powerful message. So when I do not " get > it " or do or say something that upsets or hurts her, I have to choose how > I respond not fall back on old negative habits. > > I have just now set a goal of trying hard to make a difference within 3 > months. I got home on Friday night and told my wife that I am going to > really try hard to fit in more and listen to her point of view and try not > to make it about me all the time. I have read a book called the seven > principles of making marriage work by Gottman. This has helped me > realise that there are tools I can use to make a better efforf. She > wanted to know when the lightning struck or who hit me on the head. To > quote the words she used > > " So after 30 years of not wanting me in your life you now decide you want > a relationship! What about when I wanted a relationship and you were > physically or emotionally unavailable to be involved in my life and the > kids lives? What ulteriror motive do you have that you find that this is > now necessary? What can you offer me other than what you have so far? Why > should I take a risk of being let down again? Just because you want it > now it HAS to happen! What are you going to base a relationship on that > you have destroyed? You still have Aspergers so how can you change? > > So I kept telling her that I need to try and I asked for her help. I have > said this several times over the weekend. I even tried to initiate > conversations about what we can do to develop some shared experiences. I > want to see if we can be happy together rather than trying to be happy > alone. I even sat in the family room with her tonight to watch a movie > rather than do my own thing. Tried making suggestions about the garden > and what she may like to do with it. The response so far has been > ridicule and put downs with accusations about how I expect her to roll > over and cause more pain. > > Now I understand the reaction may be her way of expressing her fears etc. > but basically she does not trust my motives. And to be fair to her the > questions are quite valid. I have lost count of the number of times I > have said sorry this weekend. I have also told her that I intend to spend > more time at home and not be so obsessive about work. The real challenge > for me I think will be being in the moment with her when I am home and not > problem solving something from work or at home. Also I need to connect > with my two daughters who both feel very protective of their mother and > are not inclined to make it easy for me. > > Needless to say I have felt quite discouraged. But I am going to clean up > my act, get fit and make sure that I do more to help if I can and if she > agrees. I have asked her also to tell me when anytthing I say hurts her > so that I can understand what or how I say things causes hurt. She > believes I say things to deliberately hurt or twist the knife so to speak. > Explaining that I am often unaware when she feels hurt is the major > problem. It seems I have to be so careful about what I say and have to > second guess how she might take it. > > Oh well. Lets see if I can stick to my goal and see what comes of it. I > do feel that 2008 will be a better year where my wife and I will finally > either make it together or make it apart. Even gaining her respect back > may be enough. It would definitely be progress. > > BTW the psychologist advised me that I have emotional dyspraxia. This > translates I think to lack of awareness of feelings or emotions and thus > inhibiting normal responses to emotional behaviour from > others. Do all AS on the list suffer this? > > Greg > dx AS at 53 > __________ NOD32 2794 (20080115) Information __________ This message was checked by NOD32 antivirus system. http://www.eset.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 Angie, I think many NT spouses ask their AS spouses why they got married. Because they are socially challenged it happens when they find someone who loves them. Due to the counselling I was able to come to this conclusion. So that was what was in it for me. What was in it for my wife? She had the opportunity to look after someone and always be there. My life and routine did not change with marriage. I no longer had to cook and wash all the time. Rather chauvinistic. But I did not see it that way. I still made decisions on what was best fo rme not for my wife and family. I did things with the best intentions but did not think through the consequences for others when I made those decisions. So 25 years went by before my wife felt strong enough to make a stand. And I did not understand why she wanted to change the status quo. Anyway fast forward to now and I have a different perspective, but that took 5 years to fully sink in after counselling and diagnosis which was only 15 months ago. As Bill says it is a journey. Good luck to you Angie Greg dx AS at 53 " 's Family " Sent by: aspires-relationships 15/01/2008 06:01 PM Please respond to aspires-relationships To <aspires-relationships > cc Subject Re: Re: Epiphany of sorts - Making a difference in AS/NT relationships Greg, I appreciate your comments and your viewpoint. My husband is an engineer. I have observed over the years that he does seem to be lacking in basic commom sense, he has made the same observation, himself. He is a project manager, and is very controlling and subtly manipulative in his work environment (which I attributed to his being an engineer), which he sometimes brings home. I feel I am also a controlling person, first child, type A, very detail oriented, and organized. I actually find this a strength, having to deal with the family we have. As much as I know intellectually from reading and surfing the web, and just through my personal observations on living with my husband and my son, I still have periods of mourning, what I am missing in having an intepersonal relationship with them, such as I have with a friend. My son gets social skills classes at school, he sees a counselor, and I do have hope for him, as he asks questions and queries his behaviour in situations, sometimes. When my husband and I were both in counseling, he never really seemed to connect that someone else might have a different view on something. Everything is either black or white, and I consider myself to live in a 'gray' environment. If he thought something was black, then I better think that way too. Some of the decisions he has made during our marriage, reflect his lack of being able to comprehend how, whatever the decision or circumstance might be, affects the family as a 'whole'. He sees how it will affect him, and just seems to be oblivious to how the same decision is going to affect anyone else. I didn't continue with him in counseling, because it was just so non-progressive and I felt like I was talking to a brick wall. The counselor was fascinated by his observations, and genuflections and he continues to see her to this day, which is working for him. One of the coping mechanisms I have is to " find what works, and do that " knowing that it is subject to change based on the situation, the person or persons involved in the situations, etc. I just feel that I am the one consistently having to change, or compromise. At what point do I devalue myself, and not voice my opinions, just because it is easier to go along with what works for him? Can I continue to do this? Sometimes I feel like I am in a prison, as weird as that sounds. The overwhelming effort it takes , to make a connection with him is just more energy than I have most of the time. His status quo, is all I can muster most days. If I am responding to him the way he wants me to, he appears genuinely happy, or maybe content would be a better phrase. For as much drama as we have in our lives, there is a basic framework, of a structured regimen, that if he isn't getting that, things don't go well. I'm sure he loves me, I would just like to feel more like his spouse and not his mother. Pryor to joining this group and not being able to connect with a group in my area, I have focused on the person I have control over changing, me. But it is very difficult, as other friends really can't relate to what it's like, and it's hard for me to explain. I am thankful for coming across this forum to be able to grow and learn, being able to build up my strength to continue to change, and compromise in love. I feel I am a 'work in progress', and that we were meant to be together, it is sometimes I feel that maybe I am not getting whatever the message is that I am supposed to get from the experience. Blessings, Angie Re: Re: Epiphany of sorts - Making a difference in AS/NT relationships , It has been stated a few times by NT spouses that the AS spouse can often say they are going to change but they see no difference in behaviour. I am in this category when my spouse demands that I have to change and I always say yes with every intention of doing so but then it can go one of two ways: a) nothing happens and she gets more disenchanted feeling that I have lied to her I try to do something without consulting her which leads to more aggravation or I go over the top in doing something that has consequences I did not consider for her and the family. Either way it seems to make things worse. There seems to be a gap in common sense or executive function perhaps. From an AS perspective the family members often can get together and talk and enjoy each others company but we feel like the lampshade in the corner. We by habit have not been involved in their lives so can often get ignored. But then we do that to our spouses when we withdraw. Another frequent statement my spouse makes is that I seem to be controlling and manipulative always wanting things done my way. My view on this is that our inflexibility is what convinces them that this is so. Maybe other NTs on the list could consider if this is their experience too. Greg dx AS at 53 " " Sent by: aspires-relationships 14/01/2008 07:16 PM Please respond to aspires-relationships To aspires-relationships cc Subject Re: Epiphany of sorts - Making a difference in AS/NT relationships I'm responding as the wife of someone with Asperger's, and I don't know if I have distrust with my spouse, but then he has been able to verbalize that he has no interest in changing himself to improve our marriage. We will have been married for 25 years this week. I would say that we have more of a " business arrangement " than a marriage, everything has always been geared to what he is comfortable with, and he is not very affectioanate, or romantic, and has been very verbal about not wanting to be, " too much pressure " . We have a son who has been medically recognized as being AS, and that enabled him to receive services at the school. I don't believe that my husband believes he has AS, he has not been medically recognized, but he is exactly like our son, and we got to observe part of the testing, with our son, and my husband had a hard time relating what was going on and what the signifance of the testing ment. We have three boys total, all have add/adhd, one has AS and one has ODD (oppositional defiant disorder). Since my husband has been very vocal about what works for him, (of course he wasn't at first!) I have always made a point of taking the time to do something special for occaisions that are important to me. It was hard in the beginning of our marriage, and I used to wonder what had I done, or didn't do? But once we got our son's diagnosis, and I started researching materials on spouses of AS, it was like a light bulb went on. I don't take it personally, intelluctually, but since this is a milestone year (25th) and the plans I made, had to be cancelled, emotionally it is really hard. I have a lot of interests, and my plate is usually full, with the kids, and now I am a major care provider for my mother. But there really isn't anyone who can understand the loneliness, that comes with an AS relationship. On a side note, if anyone knows of a group of people that are married to or have family relationships with AS, I would like to know, as I feel very isolated most of the time, and I have just thought to reach out on the web, and came across this group. Angie > > I sent this note to see if anyone has been able to deal with the distrust > NT partners tend to have of their AS spouses when they say they are trying > to change. > > I have found one of the most negative responses we can make to an > individual iis withdrawal and sulking which is what I have done habitually > throughout our married life. Strange that what you should value becomes > more valuable when you have lost it. > > Perhaps I have had an epiphany but if that is so I will need a lot of > courage to take the necessary steps to make the most of it. I think the > penny dropped when the counsellor helped me understand the consequences > words and lack of action have, and how damaging it can be to a > relationship. One of the things that helped me understand this was the > following: > > We may think that we have to do things or say things rather than realising > that we can choose to do so or not to do so. I told my wife that I had > chosen to behave in the way I did and that realising that is a choice I > made means that I am really responsible for it. So the counsellor helped > me understand that I can choose to withdraw or I can choose to engage with > my wife. That in itself is a very powerful message. So when I do not " get > it " or do or say something that upsets or hurts her, I have to choose how > I respond not fall back on old negative habits. > > I have just now set a goal of trying hard to make a difference within 3 > months. I got home on Friday night and told my wife that I am going to > really try hard to fit in more and listen to her point of view and try not > to make it about me all the time. I have read a book called the seven > principles of making marriage work by Gottman. This has helped me > realise that there are tools I can use to make a better efforf. She > wanted to know when the lightning struck or who hit me on the head. To > quote the words she used > > " So after 30 years of not wanting me in your life you now decide you want > a relationship! What about when I wanted a relationship and you were > physically or emotionally unavailable to be involved in my life and the > kids lives? What ulteriror motive do you have that you find that this is > now necessary? What can you offer me other than what you have so far? Why > should I take a risk of being let down again? Just because you want it > now it HAS to happen! What are you going to base a relationship on that > you have destroyed? You still have Aspergers so how can you change? > > So I kept telling her that I need to try and I asked for her help. I have > said this several times over the weekend. I even tried to initiate > conversations about what we can do to develop some shared experiences. I > want to see if we can be happy together rather than trying to be happy > alone. I even sat in the family room with her tonight to watch a movie > rather than do my own thing. Tried making suggestions about the garden > and what she may like to do with it. The response so far has been > ridicule and put downs with accusations about how I expect her to roll > over and cause more pain. > > Now I understand the reaction may be her way of expressing her fears etc. > but basically she does not trust my motives. And to be fair to her the > questions are quite valid. I have lost count of the number of times I > have said sorry this weekend. I have also told her that I intend to spend > more time at home and not be so obsessive about work. The real challenge > for me I think will be being in the moment with her when I am home and not > problem solving something from work or at home. Also I need to connect > with my two daughters who both feel very protective of their mother and > are not inclined to make it easy for me. > > Needless to say I have felt quite discouraged. But I am going to clean up > my act, get fit and make sure that I do more to help if I can and if she > agrees. I have asked her also to tell me when anytthing I say hurts her > so that I can understand what or how I say things causes hurt. She > believes I say things to deliberately hurt or twist the knife so to speak. > Explaining that I am often unaware when she feels hurt is the major > problem. It seems I have to be so careful about what I say and have to > second guess how she might take it. > > Oh well. Lets see if I can stick to my goal and see what comes of it. I > do feel that 2008 will be a better year where my wife and I will finally > either make it together or make it apart. Even gaining her respect back > may be enough. It would definitely be progress. > > BTW the psychologist advised me that I have emotional dyspraxia. This > translates I think to lack of awareness of feelings or emotions and thus > inhibiting normal responses to emotional behaviour from > others. Do all AS on the list suffer this? > > Greg > dx AS at 53 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 I have the same problem... I throw stuff out that I think he will never miss and he never does.. but don't worry, we (he) still has a lot of stuff, stuff spread out in his shop so that it is dangerous for more than one person(him ) to be in there.  If I make some space by throwing something away, he fills it.  So now I don't make any space.  we are talking about a 24x 50 space he moved into about 8 years ago.  I always worry about fire etc. Lots of harsh chemicals and flammables.  If he goes before me, it will be hell to deal with.  but in a way, I will LOVE  to get rid of his mess!   Verleen, throw some stuff away... you have my permission.  Janet ZEEGreg, very well said.   I think you will succeed.   It takes a lot of courage to step out of your comfort zone for your wife and your family.   However, as an NT wife, I do not consider myself a hero at all.  I have my own problems.  They are just different from my AS husband's.   I agree the difference in communication styles are a big problem.  In fact, it drives me nuts some times. It will be very helpful to me if I understood how my husband thinks and analyzes what he hears.Let me run this by you. If I ask my husband to do something outside his comfort zone, I run it past him ahead of time and then let him digest it without further discussion, AKA argument.  Usually he will later discuss it and agree to help me with whatever it was.  Is this a good approach? However, I haven't been too successful with his giving up any of the stuff he has hoarded.  He isn't as bad as his father. After his father died, we had to clean out his home.  He used only 3 rooms of a big home.  When we went through the other rooms, there were many large boxes with just twistee ties in them.  Other boxes had rubber bands in them.  Other boxes were filled with empty prescription bottles.  Other boxes with neatly folded, used tin foil.  Well you get the picture.  His father never allowed anyone on his property.  's sister's husband of 30+ yrs was never allowed in the home.  For some reason, his father liked me and always asked Rich to bring me on a visit.   But I digress.....what would be a good approach in getting to throw out some of his junk?  Like little scraps of wood from some project. A broken down cooker that he hasn't used in the 14 yrs we have been married.    Like broken pieces of panes of glass.  Would it be deceitful for me to secretly remove the stuff and throw it away in some dumpster? I don't believe he would miss it ever.  He just can't bring himself to get rid of it or me if he knows about it.  He searches the garbage can for things I might have thrown away. VerleenGreg Greer wrote:Angie, >From my own AS perspective there is no doubt that I love my wife but the communication styles being so different and mine being so inflexible has created many problems.  I keep thinking that if I did not love my family then why would I still be here providing for them?  The answer is that it is comfortable but the relationship is not. My wife needs to feel that she is the number one thing in my life. Let me try to describe what love is for me as a diagnosed AS. It means that when your partner wants help then they should ask for it.  If they want to go to the movies then they should say so.   If I want to have time to myself then I should be able to without recriminations. Love is having the strength to declare what boundaries you need. Love is having the capacity to say that is alright to have your own space in a relationship. Love is not having to be expected to think of someone else all the time. But that is egocentric.  I may never get to understand love from an NT perspective.  It seems like fuzzy logic.  Here is what I have learned love is not. Love is not withdrawing because you are oversensitive and sulking.  That I have learned form counselling. Love is not being secretive and refusing to take responsibility.  That I have learned from my wife. Love is not having to have continual reassurance of your partners affection.  That is dependence. I have become aware of how my wife and I have morphed over the years.  I was the strong one and slowly became dependent on her.  She was the dependent one who has had to become strong for the kids and to keep a marriage afloat. To all you NT women out there.  What you are doing is heroic.  Even more so when you need a hero and he is not there.  It took me a long time to see that. In some ways AS people learn how to make themselves feel good by doing their own thing.  This can lead to maladaptive behaviour.  It also builds walls. I am trying to dismantle the wall brick by brick.  Each brick has a word on it.  My wife cannot do it.  She did not build it.  I have to do it. Gregdx AS at 53  "'s Family"<amwill2pacbell (DOT) net> Sent by: aspires-relationshi psyahoogroups (DOT) com15/01/2008 06:01 PMPlease respond toaspires-relationshi psyahoogroups (DOT) comTo<aspires-relationshi psyahoogroups (DOT) com>ccSubjectRe: [aspires-relationsh ips] Re: Epiphany of sorts - Making a difference in AS/NT relationshipsGreg,     I appreciate your comments and your viewpoint. My husband is an engineer. I have observed over the years that he does seem to be lacking in basic commom sense, he has made the same observation, himself. He is a project manager, and is very controlling and subtly manipulative in his work environment (which I attributed to his being an engineer), which he sometimes brings home.  I feel I am also a controlling person, first child, type A, very detail oriented, and organized. I actually find this a strength, having to deal with the family we have.      As much as I know intellectually from reading and surfing the web, and just through my personal observations on living with my husband and my son, I still have periods of mourning, what I am missing in having an intepersonal relationship with them, such as I have with a friend.  My son gets social skills classes at school, he sees a counselor, and I do have hope for him, as he asks questions and queries his behaviour in situations, sometimes. When my husband and I were both in counseling, he never really seemed to connect that someone else might have a different view on something. Everything  is either black or white, and I consider myself to live in a 'gray' environment. If he thought something was black, then I better think that way too. Some of the decisions he has made during our marriage, reflect his lack of being able to comprehend how, whatever the decision or circumstance might be, affects the family as a 'whole'. He sees how it will affect him, and just seems to be oblivious to how the same decision is going to affect anyone else. I didn't continue with him in counseling, because it was just so non-progressive and I felt like I was talking to a brick wall. The counselor was fascinated by his observations, and genuflections and he continues to see her to this day, which is working for him.      One of the coping mechanisms I have is to "find what works, and do that" knowing that it is subject to change based on the situation, the person or persons involved in the situations, etc. I just feel that I am the one consistently having to change, or compromise.  At what point do I devalue myself, and not voice my opinions, just because it is easier to go along with what works for him? Can I continue to do this? Sometimes I feel like I am in a prison, as weird as that sounds. The overwhelming effort it takes , to make a connection with him is just more energy than I have most of the time. His status quo, is all I can muster most days. If I am responding to him the way he wants me to, he appears genuinely happy, or maybe content would be a better phrase. For as much drama as we have in our lives, there is a basic framework, of a structured regimen, that if he isn't getting that, things don't go well.      I'm sure he loves me, I would just like to feel more like his spouse and not his mother. Pryor to joining this group and not being able to connect with a group in my area, I have focused on the person I have control over changing, me. But it is very difficult, as other friends really can't relate to what it's like, and it's hard for me to explain. I am thankful for coming across this forum to be able to grow and learn, being able to build up my strength to continue to change, and compromise in love. I feel I am a 'work in progress', and that we were meant to be together, it is sometimes I feel that maybe I am not getting whatever the message is that I am supposed to get from the experience.     Blessings, Angie                  Re: [aspires-relationsh ips] Re: Epiphany of sorts - Making a difference in AS/NT relationships , It has been stated a few times by NT spouses that the AS spouse can often say they are going to change but they see no difference in behaviour.  I am in this category when my spouse demands that I have to change and I always say yes with every intention of doing so but then it can go one of two ways: a) nothing happens and she gets more disenchanted feeling that I have lied to her I try to do something without consulting her which leads to more aggravation or I go over the top in doing something that has consequences I did not consider for her and the family. Either way it seems to make things worse.  There seems to be a gap in common sense or executive function perhaps. >From an AS perspective the family members often can get together and talk and enjoy each others company but we feel like the lampshade in the corner.  We by habit have not been involved in their lives so can often get ignored.  But then we do that to our spouses when we withdraw. Another frequent statement my spouse makes is that I seem to be controlling and manipulative always wanting things done my way. My view on this is that our inflexibility is what convinces them that this is so. Maybe other NTs on the list could consider if this is their experience too. Greg dx AS at 53" "<amwill2pacbell (DOT) net> Sent by: aspires-relationshi psyahoogroups (DOT) com14/01/2008 07:16 PM Please respond toaspires-relationshi psyahoogroups (DOT) comToaspires-relationshi psyahoogroups (DOT) comccSubject[aspires-relationsh ips] Re: Epiphany of sorts - Making a difference in AS/NT relationshipsI'm responding as the wife of someone with Asperger's, and I don't know if I have distrust with my spouse, but then he has been able to verbalize that he has no interest in changing himself to improve our marriage. We will have been married for 25 years this week. I would say that we have more of a "business arrangement" than a marriage, everything has always been geared to what he is comfortable with, and he is not very affectioanate, or romantic, and has been very verbal about not wanting to be, "too much pressure". We have a son who has been medically recognized as being AS, and that enabled him to receive services at the school. I don't believe that my husband believes he has AS, he has not been medically recognized, but he is exactly like our son, and we got to observe part of the testing, with our son, and my husband had a hard time relating what was going on and what the signifance of the testing ment. We have three boys total, all have add/adhd, one has AS and one has ODD (oppositional defiant disorder). Since my husband has been very vocal about what works for him, (of course he wasn't at first!) I have always made a point of taking the time to do something special for occaisions that are important to me. It was hard in the beginning of our marriage, and I used to wonder what had I done, or didn't do? But once we got our son's diagnosis, and I started researching materials on spouses of AS, it was like a light bulb went on. I don't take it personally, intelluctually, but since this is a milestone year (25th) and the plans I made, had to be cancelled, emotionally it is really hard. I have a lot of interests, and my plate is usually full, with the kids, and now I am a major care provider for my mother. But there really isn't anyone who can understand the loneliness, that comes with an AS relationship.On a side note, if anyone knows of a group of people that are married to or have family relationships with AS, I would like to know, as I feel very isolated most of the time, and I have just thought to reach out on the web, and came across this group. Angie >> I sent this note to see if anyone has been able to deal with the distrust > NT partners tend to have of their AS spouses when they say they are trying > to change.> > I have found one of the most negative responses we can make to an > individual iis withdrawal and sulking which is what I have done habitually > throughout our married life. Strange that what you should value becomes > more valuable when you have lost it.> > Perhaps I have had an epiphany but if that is so I will need a lot of > courage to take the necessary steps to make the most of it. I think the > penny dropped when the counsellor helped me understand the consequences > words and lack of action have, and how damaging it can be to a > relationship. One of the things that helped me understand this was the > following:> > We may think that we have to do things or say things rather than realising > that we can choose to do so or not to do so. I told my wife that I had > chosen to behave in the way I did and that realising that is a choice I > made means that I am really responsible for it. So the counsellor helped > me understand that I can choose to withdraw or I can choose to engage with > my wife. That in itself is a very powerful message. So when I do not "get > it" or do or say something that upsets or hurts her, I have to choose how > I respond not fall back on old negative habits. > > I have just now set a goal of trying hard to make a difference within 3 > months. I got home on Friday night and told my wife that I am going to > really try hard to fit in more and listen to her point of view and try not > to make it about me all the time. I have read a book called the seven > principles of making marriage work by Gottman. This has helped me > realise that there are tools I can use to make a better efforf. She > wanted to know when the lightning struck or who hit me on the head. To > quote the words she used > > "So after 30 years of not wanting me in your life you now decide you want > a relationship! What about when I wanted a relationship and you were > physically or emotionally unavailable to be involved in my life and the > kids lives? What ulteriror motive do you have that you find that this is > now necessary? What can you offer me other than what you have so far? Why > should I take a risk of being let down again? Just because you want it > now it HAS to happen! What are you going to base a relationship on that > you have destroyed? You still have Aspergers so how can you change?> > So I kept telling her that I need to try and I asked for her help. I have > said this several times over the weekend. I even tried to initiate > conversations about what we can do to develop some shared experiences. I > want to see if we can be happy together rather than trying to be happy > alone. I even sat in the family room with her tonight to watch a movie > rather than do my own thing. Tried making suggestions about the garden > and what she may like to do with it. The response so far has been > ridicule and put downs with accusations about how I expect her to roll > over and cause more pain. > > Now I understand the reaction may be her way of expressing her fears etc. > but basically she does not trust my motives. And to be fair to her the > questions are quite valid. I have lost count of the number of times I > have said sorry this weekend. I have also told her that I intend to spend > more time at home and not be so obsessive about work. The real challenge > for me I think will be being in the moment with her when I am home and not > problem solving something from work or at home. Also I need to connect > with my two daughters who both feel very protective of their mother and > are not inclined to make it easy for me. > > Needless to say I have felt quite discouraged. But I am going to clean up > my act, get fit and make sure that I do more to help if I can and if she > agrees. I have asked her also to tell me when anytthing I say hurts her > so that I can understand what or how I say things causes hurt. She > believes I say things to deliberately hurt or twist the knife so to speak. > Explaining that I am often unaware when she feels hurt is the major > problem. It seems I have to be so careful about what I say and have to > second guess how she might take it. > > Oh well. Lets see if I can stick to my goal and see what comes of it. I > do feel that 2008 will be a better year where my wife and I will finally > either make it together or make it apart. Even gaining her respect back > may be enough. It would definitely be progress. > > BTW the psychologist advised me that I have emotional dyspraxia. This > translates I think to lack of awareness of feelings or emotions and thus > inhibiting normal responses to emotional behaviour from > others. Do all AS on the list suffer this?> > Greg> dx AS at 53>__________ NOD32 2794 (20080115) Information __________This message was checked by NOD32 antivirus system.http://www.eset.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 Good advice greg, better than mine.  Let's see, what can I throw away today?  jkzVerleen, This is where the dichotomy of the NT/AS relationship gets really bogged down. The way I get it is to understand the logic behind an argument and a position people take.  This works well at work.  That's not to say that my wife uses this approach.  I have to work at understanding why she has made a request. Your husband appears to have an obsessive compulsive disorder about throwing things away.  Accept you cannot change that.  He needs help from a professional for that. The next thing you may try is to abitrarily declare a certain space for him to keep his collections in.  Maybe just one room. You may want to set aside a space for you as well.  He will then have to get rid of anything that will not fit.  This will be traumatic for him because he will need to make a decision so be prepared for fallout, but you will need to stand your ground.  You both have to live in the house.  I have one room (the study) that is my space and I do not encroach on any other rooms.  I also have "the shed" which is my space and I keep tools and other bric a brac in there, but I am not a compulsive hoarder. If he really likes order then suggest having a shelving/storage system installed in the space so that he can easily label and keep track of what he collects.  It would give him a project to do. You will need to explain the consequences to you and anyone else to him if he refuses to follow this and how it affects you.  There should also be consequences for him as well.  Work out what they should be.  Remember, it has to affect him if he is to change.  He will fight it but you need to calmly  stand your ground.  He needs to have reinforced that it is not acceptable. Maybe that is a start.  Others on the list may also have suggestions.  Greg dx AS at 53  Verleen Standish <rstandisnycap (DOT) rr.com> Sent by: aspires-relationships 16/01/2008 11:19 AMPlease respond toaspires-relationships Toaspires-relationships ccSubjectRe: Re: Epiphany of sorts - Making a difference in AS/NT relationshipsGreg, very well said.   I think you will succeed.   It takes a lot of courage to step out of your comfort zone for your wife and your family.   However, as an NT wife, I do not consider myself a hero at all.  I have my own problems.  They are just different from my AS husband's.   I agree the difference in communication styles are a big problem.  In fact, it drives me nuts some times.  It will be very helpful to me if I understood how my husband thinks and analyzes what he hears.Let me run this by you.  If I ask my husband to do something outside his comfort zone, I run it past him ahead of time and then let him digest it without further discussion, AKA argument.  Usually he will later discuss it and agree to help me with whatever it was.  Is this a good approach?  However, I haven't been too successful with his giving up any of the stuff he has hoarded.  He isn't as bad as his father.  After his father died, we had to clean out his home.  He used only 3 rooms of a big home.  When we went through the other rooms, there were many large boxes with just twistee ties in them.  Other boxes had rubber bands in them.  Other boxes were filled with empty prescription bottles.  Other boxes with neatly folded, used tin foil.  Well you get the picture.  His father never allowed anyone on his property.  's sister's husband of 30+ yrs was never allowed in the home.  For some reason, his father liked me and always asked Rich to bring me on a visit.   But I digress.....what would be a good approach in getting to throw out some of his junk?  Like little scraps of wood from some project.  A broken down cooker that he hasn't used in the 14 yrs we have been married.   Like broken pieces of panes of glass.  Would it be deceitful for me to secretly remove the stuff and throw it away in some dumpster?  I don't believe he would miss it ever.  He just can't bring himself to get rid of it or me if he knows about it.  He searches the garbage can for things I might have thrown away.  VerleenGreg Greer wrote:Angie, >From my own AS perspective there is no doubt that I love my wife but the communication styles being so different and mine being so inflexible has created many problems.  I keep thinking that if I did not love my family then why would I still be here providing for them?  The answer is that it is comfortable but the relationship is not. My wife needs to feel that she is the number one thing in my life. Let me try to describe what love is for me as a diagnosed AS. It means that when your partner wants help then they should ask for it.  If they want to go to the movies then they should say so.   If I want to have time to myself then I should be able to without recriminations. Love is having the strength to declare what boundaries you need. Love is having the capacity to say that is alright to have your own space in a relationship. Love is not having to be expected to think of someone else all the time. But that is egocentric.  I may never get to understand love from an NT perspective.  It seems like fuzzy logic.  Here is what I have learned love is not. Love is not withdrawing because you are oversensitive and sulking.  That I have learned form counselling. Love is not being secretive and refusing to take responsibility.  That I have learned from my wife. Love is not having to have continual reassurance of your partners affection.  That is dependence. I have become aware of how my wife and I have morphed over the years.  I was the strong one and slowly became dependent on her.  She was the dependent one who has had to become strong for the kids and to keep a marriage afloat. To all you NT women out there.  What you are doing is heroic.  Even more so when you need a hero and he is not there.  It took me a long time to see that. In some ways AS people learn how to make themselves feel good by doing their own thing.  This can lead to maladaptive behaviour.  It also builds walls. I am trying to dismantle the wall brick by brick.  Each brick has a word on it.  My wife cannot do it.  She did not build it.  I have to do it. Gregdx AS at 53  "'s Family"<amwill2pacbell (DOT) net> Sent by: aspires-relationshi psyahoogroups (DOT) com15/01/2008 06:01 PMPlease respond toaspires-relationshi psyahoogroups (DOT) comTo<aspires-relationshi psyahoogroups (DOT) com>ccSubjectRe: [aspires-relationsh ips] Re: Epiphany of sorts - Making a difference in AS/NT relationshipsGreg,    I appreciate your comments and your viewpoint. My husband is an engineer. I have observed over the years that he does seem to be lacking in basic commom sense, he has made the same observation, himself. He is a project manager, and is very controlling and subtly manipulative in his work environment (which I attributed to his being an engineer), which he sometimes brings home. I feel I am also a controlling person, first child, type A, very detail oriented, and organized. I actually find this a strength, having to deal with the family we have.    As much as I know intellectually from reading and surfing the web, and just through my personal observations on living with my husband and my son, I still have periods of mourning, what I am missing in having an intepersonal relationship with them, such as I have with a friend.  My son gets social skills classes at school, he sees a counselor, and I do have hope for him, as he asks questions and queries his behaviour in situations, sometimes. When my husband and I were both in counseling, he never really seemed to connect that someone else might have a different view on something. Everything is either black or white, and I consider myself to live in a 'gray' environment. If he thought something was black, then I better think that way too. Some of the decisions he has made during our marriage, reflect his lack of being able to comprehend how, whatever the decision or circumstance might be, affects the family as a 'whole'. He sees how it will affect him, and just seems to be oblivious to how the same decision is going to affect anyone else. I didn't continue with him in counseling, because it was just so non-progressive and I felt like I was talking to a brick wall. The counselor was fascinated by his observations, and genuflections and he continues to see her to this day, which is working for him.    One of the coping mechanisms I have is to "find what works, and do that" knowing that it is subject to change based on the situation, the person or persons involved in the situations, etc. I just feel that I am the one consistently having to change, or compromise.  At what point do I devalue myself, and not voice my opinions, just because it is easier to go along with what works for him? Can I continue to do this? Sometimes I feel like I am in a prison, as weird as that sounds. The overwhelming effort it takes , to make a connection with him is just more energy than I have most of the time. His status quo, is all I can muster most days. If I am responding to him the way he wants me to, he appears genuinely happy, or maybe content would be a better phrase. For as much drama as we have in our lives, there is a basic framework, of a structured regimen, that if he isn't getting that, things don't go well.    I'm sure he loves me, I would just like to feel more like his spouse and not his mother. Pryor to joining this group and not being able to connect with a group in my area, I have focused on the person I have control over changing, me. But it is very difficult, as other friends really can't relate to what it's like, and it's hard for me to explain. I am thankful for coming across this forum to be able to grow and learn, being able to build up my strength to continue to change, and compromise in love. I feel I am a 'work in progress', and that we were meant to be together, it is sometimes I feel that maybe I am not getting whatever the message is that I am supposed to get from the experience.    Blessings, Angie                  Re: [aspires-relationsh ips] Re: Epiphany of sorts - Making a difference in AS/NT relationships, It has been stated a few times by NT spouses that the AS spouse can often say they are going to change but they see no difference in behaviour.  I am in this category when my spouse demands that I have to change and I always say yes with every intention of doing so but then it can go one of two ways: a) nothing happens and she gets more disenchanted feeling that I have lied to her I try to do something without consulting her which leads to more aggravation or I go over the top in doing something that has consequences I did not consider for her and the family. Either way it seems to make things worse.  There seems to be a gap in common sense or executive function perhaps. >From an AS perspective the family members often can get together and talk and enjoy each others company but we feel like the lampshade in the corner.  We by habit have not been involved in their lives so can often get ignored.  But then we do that to our spouses when we withdraw. Another frequent statement my spouse makes is that I seem to be controlling and manipulative always wanting things done my way. My view on this is that our inflexibility is what convinces them that this is so. Maybe other NTs on the list could consider if this is their experience too. Greg dx AS at 53" "<amwill2pacbell (DOT) net> Sent by: aspires-relationshi psyahoogroups (DOT) com14/01/2008 07:16 PMPlease respond toaspires-relationshi psyahoogroups (DOT) comToaspires-relationshi psyahoogroups (DOT) comccSubject[aspires-relationsh ips] Re: Epiphany of sorts - Making a difference in AS/NT relationshipsI'm responding as the wife of someone with Asperger's, and I don'tknow if I have distrust with my spouse, but then he has been able to verbalize that he has no interest in changing himself to improve our marriage. We will have been married for 25 years this week. I would say that we have more of a "business arrangement" than a marriage, everything has always been geared to what he is comfortable with,and he is not very affectioanate, or romantic, and has been very verbal about not wanting to be, "too much pressure". We have a son who has been medically recognized as being AS, and that enabled him to receive services at the school. I don't believe that my husband believes he has AS, he has not been medically recognized, but he is exactly like our son, and we got to observe part of the testing, with our son, and my husband had a hard time relating what was going on and what the signifance of the testing ment. We have three boys total, all have add/adhd, one has AS and one has ODD (oppositional defiant disorder). Since my husband has been very vocal about what works for him, (of course he wasn't at first!) I have always made a point of taking the time to do something special for occaisions that are important to me. It was hard in the beginning of our marriage,and I used to wonder what had I done, or didn't do? But once we got our son's diagnosis, and I started researching materials on spouses of AS, it was like a light bulb went on. I don't take it personally, intelluctually, but since this is a milestone year (25th) and the plans I made, had to be cancelled, emotionally it is really hard. I have a lot of interests, and my plate is usually full, with the kids, and now I am a major care provider for my mother. But there really isn't anyone who can understand the loneliness, that comes with an AS relationship.On a side note, if anyone knows of a group of people that are married to or have family relationships with AS, I would like to know, as I feel very isolated most of the time, and I have just thought to reach out on the web, and came across this group. Angie >> I sent this note to see if anyone has been able to deal with the distrust > NT partners tend to have of their AS spouses when they say they are trying > to change.> > I have found one of the most negative responses we can make to an > individual iis withdrawal and sulking which is what I have done habitually > throughout our married life. Strange that what you should valuebecomes > more valuable when you have lost it.> > Perhaps I have had an epiphany but if that is so I will need a lot of > courage to take the necessary steps to make the most of it. I think the > penny dropped when the counsellor helped me understand the consequences > words and lack of action have, and how damaging it can be to a > relationship. One of the things that helped me understand this was the > following:> > We may think that we have to do things or say things rather than realising > that we can choose to do so or not to do so. I told my wife that I had > chosen to behave in the way I did and that realising that is a choice I > made means that I am really responsible for it. So the counsellor helped > me understand that I can choose to withdraw or I can choose to engage with > my wife. That in itself is a very powerful message. So when I do not "get > it" or do or say something that upsets or hurts her, I have to choose how > I respond not fall back on old negative habits. > > I have just now set a goal of trying hard to make a difference within 3 > months. I got home on Friday night and told my wife that I am going to > really try hard to fit in more and listen to her point of view and try not > to make it about me all the time. I have read a book called the seven > principles of making marriage work by Gottman. This has helped me > realise that there are tools I can use to make a better efforf. She > wanted to know when the lightning struck or who hit me on the head. To > quote the words she used > > "So after 30 years of not wanting me in your life you now decideyou want > a relationship! What about when I wanted a relationship and you were > physically or emotionally unavailable to be involved in my life and the > kids lives? What ulteriror motive do you have that you find thatthis is > now necessary? What can you offer me other than what you have so far? Why > should I take a risk of being let down again? Just because you want it > now it HAS to happen! What are you going to base a relationship on that > you have destroyed? You still have Aspergers so how can you change?> > So I kept telling her that I need to try and I asked for her help. I have > said this several times over the weekend. I even tried to initiate > conversations about what we can do to develop some shared experiences. I > want to see if we can be happy together rather than trying to be happy > alone. I even sat in the family room with her tonight to watch a movie > rather than do my own thing. Tried making suggestions about the garden > and what she may like to do with it. The response so far has been > ridicule and put downs with accusations about how I expect her to roll > over and cause more pain. > > Now I understand the reaction may be her way of expressing her fears etc. > but basically she does not trust my motives. And to be fair to her the > questions are quite valid. I have lost count of the number of times I > have said sorry this weekend. I have also told her that I intend to spend > more time at home and not be so obsessive about work. The real challenge > for me I think will be being in the moment with her when I am home and not > problem solving something from work or at home. Also I need to connect > with my two daughters who both feel very protective of their mother and > are not inclined to make it easy for me. > > Needless to say I have felt quite discouraged. But I am going to clean up > my act, get fit and make sure that I do more to help if I can and if she > agrees. I have asked her also to tell me when anytthing I say hurts her > so that I can understand what or how I say things causes hurt. She > believes I say things to deliberately hurt or twist the knife so to speak. > Explaining that I am often unaware when she feels hurt is the major > problem. It seems I have to be so careful about what I say and have to > second guess how she might take it. > > Oh well. Lets see if I can stick to my goal and see what comes of it. I > do feel that 2008 will be a better year where my wife and I will finally > either make it together or make it apart. Even gaining her respect back > may be enough. It would definitely be progress. > > BTW the psychologist advised me that I have emotional dyspraxia. This > translates I think to lack of awareness of feelings or emotions and thus > inhibiting normal responses to emotional behaviour from > others. Do all AS on the list suffer this?> > Greg> dx AS at 53>__________ NOD32 2794 (20080115) Information __________This message was checked by NOD32 antivirus system.http://www.eset.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 realtionships are everywhere .. not just man/woman.  jkzI'm glad to see that people who are in relationships or were in relationships are getting help. I have been divorced officially since September 2002 and haven't been in a relationship for four months, so I feel none that particular conversation applies to me. However, I support everyone in here who is going through the challenges of dealing with relationship issues.My life continues to get better and better, nonetheless.> >> > I sent this note to see if anyone has been able to deal with the > distrust > > NT partners tend to have of their AS spouses when they say they > are trying > > to change.> > > > I have found one of the most negative responses we can make to an > > individual iis withdrawal and sulking which is what I have done > habitually > > throughout our married life. Strange that what you should value > becomes > > more valuable when you have lost it.> > > > Perhaps I have had an epiphany but if that is so I will need a lot > of > > courage to take the necessary steps to make the most of it. I > think the > > penny dropped when the counsellor helped me understand the > consequences > > words and lack of action have, and how damaging it can be to a > > relationship. One of the things that helped me understand this > was the > > following:> > > > We may think that we have to do things or say things rather than > realising > > that we can choose to do so or not to do so. I told my wife that I > had > > chosen to behave in the way I did and that realising that is a > choice I > > made means that I am really responsible for it. So the counsellor > helped > > me understand that I can choose to withdraw or I can choose to > engage with > > my wife. That in itself is a very powerful message. So when I do > not "get > > it" or do or say something that upsets or hurts her, I have to > choose how > > I respond not fall back on old negative habits. > > > > I have just now set a goal of trying hard to make a difference > within 3 > > months. I got home on Friday night and told my wife that I am > going to > > really try hard to fit in more and listen to her point of view and > try not > > to make it about me all the time. I have read a book called the > seven > > principles of making marriage work by Gottman. This has > helped me > > realise that there are tools I can use to make a better efforf. > She > > wanted to know when the lightning struck or who hit me on the > head. To > > quote the words she used > > > > "So after 30 years of not wanting me in your life you now decide > you want > > a relationship! What about when I wanted a relationship and you > were > > physically or emotionally unavailable to be involved in my life > and the > > kids lives? What ulteriror motive do you have that you find that > this is > > now necessary? What can you offer me other than what you have so > far? Why > > should I take a risk of being let down again? Just because you > want it > > now it HAS to happen! What are you going to base a relationship > on that > > you have destroyed? You still have Aspergers so how can you > change?> > > > So I kept telling her that I need to try and I asked for her > help. I have > > said this several times over the weekend. I even tried to > initiate > > conversations about what we can do to develop some shared > experiences. I > > want to see if we can be happy together rather than trying to be > happy > > alone. I even sat in the family room with her tonight to watch a > movie > > rather than do my own thing. Tried making suggestions about the > garden > > and what she may like to do with it. The response so far has been > > ridicule and put downs with accusations about how I expect her to > roll > > over and cause more pain. > > > > Now I understand the reaction may be her way of expressing her > fears etc. > > but basically she does not trust my motives. And to be fair to > her the > > questions are quite valid. I have lost count of the number of > times I > > have said sorry this weekend. I have also told her that I intend > to spend > > more time at home and not be so obsessive about work. The real > challenge > > for me I think will be being in the moment with her when I am home > and not > > problem solving something from work or at home. Also I need to > connect > > with my two daughters who both feel very protective of their > mother and > > are not inclined to make it easy for me. > > > > Needless to say I have felt quite discouraged. But I am going to > clean up > > my act, get fit and make sure that I do more to help if I can and > if she > > agrees. I have asked her also to tell me when anytthing I say > hurts her > > so that I can understand what or how I say things causes hurt. > She > > believes I say things to deliberately hurt or twist the knife so > to speak. > > Explaining that I am often unaware when she feels hurt is the > major > > problem. It seems I have to be so careful about what I say and > have to > > second guess how she might take it. > > > > Oh well. Lets see if I can stick to my goal and see what comes of > it. I > > do feel that 2008 will be a better year where my wife and I will > finally > > either make it together or make it apart. Even gaining her > respect back > > may be enough. It would definitely be progress. > > > > BTW the psychologist advised me that I have emotional dyspraxia. > This > > translates I think to lack of awareness of feelings or emotions > and thus > > inhibiting normal responses to emotional behaviour from > > others. Do all AS on the list suffer this?> > > > Greg> > dx AS at 53> >> > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 Verleen, what keeps you in this relationship?  what are you getting...??? jkzGreg, thank you for your insight. It will be impossible to get to go to a professional. He has a phobia about them and isafraid to get a DX attached to him. From his reaction to my lookinginto AS, its obvious to me that he has researched this on his own. He knows he is not like most other people. So, yes, I know I cannotchange him. I am hoping to control some of his behaviors that causeus problems, just as I worked with him to control his behaviors atwork that were causing him big problems.When we were planning to marry, he said he wanted me to help himorganize his home and life. I didn't think much about it at the timebecause I was unaware of AS. is very disorganized. Hisefforts to organize himself turn into obsessive compulsive actions,such as keeping logs in spiral binders. But he misplaces the binders,along with everything else. So his solution just added more clutter,rather than really organize himself. In the beginning, he wasconstantly losing his car keys, his ID tag for work, his wallet, etc.What I did was create a PLACE for all these everyday things on hisdesk. When he comes home, he puts them in this container on his deskand he has been very good about that and rarely loses these items. Because his tools are so disorganized, we have many versions of thesame tool with the hopes of finding one of them. To control this, Icreated my own toolbox and put my name on each one. He is notallowed to use my tools unless he asks and then he must put it back. This works most of the time. When I find a tool missing, I make himstop whatever he is doing, find it and put it back into my tool box.These are just examples of how I try to control certain things to helphim and me. doesn't really collect things, with the exception of animalsand certain plants. He just saves junk - pure simple junk and trashthat other people would throw away. Boxes of bits of electrical wirefor example. I did give him the basement for his own. However, thestuff gravitates to the upstairs too. And I'm constantly battling toget it back downstairs. Of course, some of the pets have to beupstairs, such as the dog and parrots. I have put my foot downconcerning not getting any more pets. Since then, he has snuck 5 ratsand 2 guinea pigs into the basement. I love animals. I just don'twant to own them all. Occasionally I have been able to celebratesome success. I got him to part with his 40 yr old collegetextbooks, for example. In the beginning, I got rid of a lot of hisclothes. They had patches on the patches - I kid you not. I boughtclothes for him, but have generally given up trying to make him more'stylish'. I'm settling on clean. I would like to find a way totalk to him. I think there is some interesting things in his brain,but I can't get him to have real conversations. Because mostconversation gets contentious because of how he interprets things, Ihave been avoiding talking with him. That is not a solution though.He only talks about certain things: work, his pets and hisplants......ad nauseum, because he repeats and repeats the samesentences over and over. It puzzles me what he interprets things theway he does. For example, I may tell him that next week he needs todo something. He starts yelling that he doesn't have time TODAY todo it. Why doesn't he hear the 'next week'? He almost always takeseverything as meaning its 'right now, stop what you are doing', unlessI specifically preface my statement that its not to be done right now.The biggest behavior problems that I haven't been able to control are:1. Animal collecting, and hoarding of trash and junk2. Antisocial behavior to the point that I can't have people on ourproperty (not just in the house) or they will be verbally abused by.3. Messy, dirty behavior that makes our home nearly unlivable.I apologize for my lengthy posts. As always, any suggestions aremost welcomed. Verleen>> Verleen,> > This is where the dichotomy of the NT/AS relationship gets reallybogged > down.> > The way I get it is to understand the logic behind an argument and a > position people take. This works well at work. That's not to saythat my > wife uses this approach. I have to work at understanding why shehas made > a request.> > Your husband appears to have an obsessive compulsive disorder about > throwing things away. Accept you cannot change that. He needs helpfrom > a professional for that.> > The next thing you may try is to abitrarily declare a certain space for > him to keep his collections in. Maybe just one room. You may wantto set > aside a space for you as well. He will then have to get rid ofanything > that will not fit. This will be traumatic for him because he willneed to > make a decision so be prepared for fallout, but you will need to stand > your ground. You both have to live in the house. I have one room (the > study) that is my space and I do not encroach on any other rooms. Ialso > have "the shed" which is my space and I keep tools and other bric abrac > in there, but I am not a compulsive hoarder.> > If he really likes order then suggest having a shelving/storage system > installed in the space so that he can easily label and keep track ofwhat > he collects. It would give him a project to do.> > You will need to explain the consequences to you and anyone else tohim if > he refuses to follow this and how it affects you. There should also be > consequences for him as well. Work out what they should be. Remember, it > has to affect him if he is to change. He will fight it but you need to > calmly stand your ground. He needs to have reinforced that it is not > acceptable.> > Maybe that is a start. Others on the list may also have suggestions. > > Greg> dx AS at 53> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 Verleen, I can only go on my own experience. My journey started when my wife 5 years ago said enough. She took a stand and started telling me how my behaviour was affecting her and the family. I reacted rather badly by withdrawing even more and it took a while for me to understand that there was something wrong with me. I blamed her and had been for a long time. You can influence his behaviour but you have to be very consistent in the message and actions you take. One thing my wife did was place anything of mine back inside my room if it encroached on others space. She did this a number of times and I got the message. Whenever you find his things outside that room put them back in or better still tell him that they will be thrown away. He will get the message. You can choose to do what is best for you as I assume he has very little executive function to consider consequences for others from his actions. Emotionally he seems to be a teenager and you are the responsible partner. Leverage his AS need for predictability and by behaving predictably you will get him into a new groove that fits in more with how you need things to be. It is hard and it will take time. Post here often to get whatever support you need from others on this list. What I have said above has only come about due to my wife taking the initiative and taking control of her life and that has helped me in getting it but only after a lot of struggle. Our relationship is still starined and she needs to learn to trust me again. But we are still talking and I am trying to learn new behaviours. Greg dx AS at 53 " Verleen " Sent by: aspires-relationships 17/01/2008 02:33 AM Please respond to aspires-relationships To aspires-relationships cc Subject Re: Epiphany of sorts - Making a difference in AS/NT relationships Greg, thank you for your insight. It will be impossible to get to go to a professional. He has a phobia about them and is afraid to get a DX attached to him. From his reaction to my looking into AS, its obvious to me that he has researched this on his own. He knows he is not like most other people. So, yes, I know I cannot change him. I am hoping to control some of his behaviors that cause us problems, just as I worked with him to control his behaviors at work that were causing him big problems. When we were planning to marry, he said he wanted me to help him organize his home and life. I didn't think much about it at the time because I was unaware of AS. is very disorganized. His efforts to organize himself turn into obsessive compulsive actions, such as keeping logs in spiral binders. But he misplaces the binders, along with everything else. So his solution just added more clutter, rather than really organize himself. In the beginning, he was constantly losing his car keys, his ID tag for work, his wallet, etc. What I did was create a PLACE for all these everyday things on his desk. When he comes home, he puts them in this container on his desk and he has been very good about that and rarely loses these items. Because his tools are so disorganized, we have many versions of the same tool with the hopes of finding one of them. To control this, I created my own toolbox and put my name on each one. He is not allowed to use my tools unless he asks and then he must put it back. This works most of the time. When I find a tool missing, I make him stop whatever he is doing, find it and put it back into my tool box. These are just examples of how I try to control certain things to help him and me. doesn't really collect things, with the exception of animals and certain plants. He just saves junk - pure simple junk and trash that other people would throw away. Boxes of bits of electrical wire for example. I did give him the basement for his own. However, the stuff gravitates to the upstairs too. And I'm constantly battling to get it back downstairs. Of course, some of the pets have to be upstairs, such as the dog and parrots. I have put my foot down concerning not getting any more pets. Since then, he has snuck 5 rats and 2 guinea pigs into the basement. I love animals. I just don't want to own them all. Occasionally I have been able to celebrate some success. I got him to part with his 40 yr old college textbooks, for example. In the beginning, I got rid of a lot of his clothes. They had patches on the patches - I kid you not. I bought clothes for him, but have generally given up trying to make him more 'stylish'. I'm settling on clean. I would like to find a way to talk to him. I think there is some interesting things in his brain, but I can't get him to have real conversations. Because most conversation gets contentious because of how he interprets things, I have been avoiding talking with him. That is not a solution though. He only talks about certain things: work, his pets and his plants......ad nauseum, because he repeats and repeats the same sentences over and over. It puzzles me what he interprets things the way he does. For example, I may tell him that next week he needs to do something. He starts yelling that he doesn't have time TODAY to do it. Why doesn't he hear the 'next week'? He almost always takes everything as meaning its 'right now, stop what you are doing', unless I specifically preface my statement that its not to be done right now. The biggest behavior problems that I haven't been able to control are: 1. Animal collecting, and hoarding of trash and junk 2. Antisocial behavior to the point that I can't have people on our property (not just in the house) or they will be verbally abused by . 3. Messy, dirty behavior that makes our home nearly unlivable. I apologize for my lengthy posts. As always, any suggestions are most welcomed. Verleen > > Verleen, > > This is where the dichotomy of the NT/AS relationship gets really bogged > down. > > The way I get it is to understand the logic behind an argument and a > position people take. This works well at work. That's not to say that my > wife uses this approach. I have to work at understanding why she has made > a request. > > Your husband appears to have an obsessive compulsive disorder about > throwing things away. Accept you cannot change that. He needs help from > a professional for that. > > The next thing you may try is to abitrarily declare a certain space for > him to keep his collections in. Maybe just one room. You may want to set > aside a space for you as well. He will then have to get rid of anything > that will not fit. This will be traumatic for him because he will need to > make a decision so be prepared for fallout, but you will need to stand > your ground. You both have to live in the house. I have one room (the > study) that is my space and I do not encroach on any other rooms. I also > have " the shed " which is my space and I keep tools and other bric a brac > in there, but I am not a compulsive hoarder. > > If he really likes order then suggest having a shelving/storage system > installed in the space so that he can easily label and keep track of what > he collects. It would give him a project to do. > > You will need to explain the consequences to you and anyone else to him if > he refuses to follow this and how it affects you. There should also be > consequences for him as well. Work out what they should be. Remember, it > has to affect him if he is to change. He will fight it but you need to > calmly stand your ground. He needs to have reinforced that it is not > acceptable. > > Maybe that is a start. Others on the list may also have suggestions. > > Greg > dx AS at 53 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2008 Report Share Posted January 18, 2008 Sharon,Happy birthday! What about telling your children that Dad is the adult, so the rules do not apply to him? As an AS child this was a hard rule to understand, but I was told that as a child. I know that at leat your two NT children will get that.Also, could you make part of your house separate, so that he could go there to be alone? Then, you would not need to live apart. I know that this is hard, because my (presumed AS) mother would suddenly decide that she needed to be alone, in the middle of the day, and shoo all the kids away, and say that we could not talk to her at all. This was tough, because we also could go do many things without asking her first, and during those times, she would no even let us ask. Eventually, she got the message that we had to interrupt for a second to ask if we could go to a friend's house, and that if we did, we woul d be out of her way! I do not have issues like these- facts overrode any I ever had, long ago. I love people- though there are areas where I need structure, too. It does not matter what structure-- i can re-do it and I am flexible- facts themselves provide a structure, and I believe that my faith itself gives me something here. I like hearing about your frustrations, because I can relate, having seen it in others, and it helps me see how others might perceive me. Thanks! I also feel for you, because my ex used to undermine my discipline all the time, and our three kids are non-spectrum. When I told him, he would just think it was funny. that was one of the things we fought about the most. He has a special interest in computing, so employment was not an issue (except that he did get fired/ layed off for poor people skills a few times). AS, ex presumed ASenkerem77 wrote: > On a side note, if anyone knows of a group of people that are > married to or have family relationships with AS, I would like to > know, as I feel very isolated most of the > time, and I have just thought to reach out on the web, and came > across this group. Hi Angie and welcome, I have been away for several weeks since the holidays...I am fairly new to this group (since November). I am the wife of an AS individual, and I really understand the profound loneliness that we can experience. Greg has meaningfully shared some insights through his effort to make a difference in his marriage and I truly respect his commitment. As for me with my husband, we are currently looking at living seperately in the hopes that my husband will be able to better focus his energy on helping to support our family (he has not worked since 2000), and use some time away to be able to give more to our relationship and his parenting skills by having brief, specific times to come to our home and to have relationship with us. We love each other, but do not seem able to coexist so that the stress does not make me physically ill, and make him completely shut-down. Our four sons (two who are AS also) disrespect him because he undermines every structure (disciplinary, scheduling, social) that I have tried to establish for our kids' sake. He does not mean to undermine these things in his present consciousness, but I can see that he has made choices (repeated ones) that reinforce his rigid, unchanging behaviors. He has yet to experience any lasting awareness that he does make choices--I think that this is because he does not understand his emotions (as Greg pointed out) or even his body feelings. He experiences everything as anxiety or as an interruption to his focus on maintaining a quiet place in his mind to exist without too much stimulus. I am scared...because my doctor has warned me about my stress load, because my mom died of cancer, because I know that I am 50 in a few days, and I have no interest in leaving my marriage in the hopes of having another relationship. I worry about our boys...they all have school, social and discipline problems that come from the lack of male role-modeling and mentoring they have experienced. Selfishly, the prospect of living the rest of my life alone (whether in the same dwelling with my husband, or living seperately while still married) is not something I have been able to make peace with. But, I truly know now that I am not the only one going through this--reading, learning and sharing with this group has been an absolute lifeline to me. I will be glad to be a friend to you as you continue walking through this journey that we are all sharing in our own ways. Sharon NT(?) wife and mom of AS family Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2008 Report Share Posted January 18, 2008 Sharon,Happy birthday! What about telling your children that Dad is the adult, so the rules do not apply to him? As an AS child this was a hard rule to understand, but I was told that as a child. I know that at leat your two NT children will get that.Also, could you make part of your house separate, so that he could go there to be alone? Then, you would not need to live apart. I know that this is hard, because my (presumed AS) mother would suddenly decide that she needed to be alone, in the middle of the day, and shoo all the kids away, and say that we could not talk to her at all. This was tough, because we also could go do many things without asking her first, and during those times, she would no even let us ask. Eventually, she got the message that we had to interrupt for a second to ask if we could go to a friend's house, and that if we did, we woul d be out of her way! I do not have issues like these- facts overrode any I ever had, long ago. I love people- though there are areas where I need structure, too. It does not matter what structure-- i can re-do it and I am flexible- facts themselves provide a structure, and I believe that my faith itself gives me something here. I like hearing about your frustrations, because I can relate, having seen it in others, and it helps me see how others might perceive me. Thanks! I also feel for you, because my ex used to undermine my discipline all the time, and our three kids are non-spectrum. When I told him, he would just think it was funny. that was one of the things we fought about the most. He has a special interest in computing, so employment was not an issue (except that he did get fired/ layed off for poor people skills a few times). AS, ex presumed ASenkerem77 wrote: > On a side note, if anyone knows of a group of people that are > married to or have family relationships with AS, I would like to > know, as I feel very isolated most of the > time, and I have just thought to reach out on the web, and came > across this group. Hi Angie and welcome, I have been away for several weeks since the holidays...I am fairly new to this group (since November). I am the wife of an AS individual, and I really understand the profound loneliness that we can experience. Greg has meaningfully shared some insights through his effort to make a difference in his marriage and I truly respect his commitment. As for me with my husband, we are currently looking at living seperately in the hopes that my husband will be able to better focus his energy on helping to support our family (he has not worked since 2000), and use some time away to be able to give more to our relationship and his parenting skills by having brief, specific times to come to our home and to have relationship with us. We love each other, but do not seem able to coexist so that the stress does not make me physically ill, and make him completely shut-down. Our four sons (two who are AS also) disrespect him because he undermines every structure (disciplinary, scheduling, social) that I have tried to establish for our kids' sake. He does not mean to undermine these things in his present consciousness, but I can see that he has made choices (repeated ones) that reinforce his rigid, unchanging behaviors. He has yet to experience any lasting awareness that he does make choices--I think that this is because he does not understand his emotions (as Greg pointed out) or even his body feelings. He experiences everything as anxiety or as an interruption to his focus on maintaining a quiet place in his mind to exist without too much stimulus. I am scared...because my doctor has warned me about my stress load, because my mom died of cancer, because I know that I am 50 in a few days, and I have no interest in leaving my marriage in the hopes of having another relationship. I worry about our boys...they all have school, social and discipline problems that come from the lack of male role-modeling and mentoring they have experienced. Selfishly, the prospect of living the rest of my life alone (whether in the same dwelling with my husband, or living seperately while still married) is not something I have been able to make peace with. But, I truly know now that I am not the only one going through this--reading, learning and sharing with this group has been an absolute lifeline to me. I will be glad to be a friend to you as you continue walking through this journey that we are all sharing in our own ways. Sharon NT(?) wife and mom of AS family Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2008 Report Share Posted January 18, 2008 thanks Verleen... I too often share only the things that vex me here.  I think most of us understand that... I was truly wondering about your situation and now I know.!  I think we are all making progress here and I appreciate the opportunity so share it.  You should see my c aat right now... she thinks she should sit on my keyboard so I push her off to the side, not without a great deal of effort .... now she sits beside the keyboard on the desk rubbing me really hard with her head and briskly whisking her tail across the keyboard.  I appreciate the company, but his is too much. the other alternative for her is to position her rear right in my face and swish her tail vigorously.  argh.  Have a great day, Janet ZEEHi Janet.....lol....lol....I can see how it must seem so one sidedbecause of the nature of the topic/help requests that I post on are focused on the negatives. cares deeply about me and shows itin many ways, even if he can't express it. We love each other. When he does say something bad to me, he will later come andapologize. I value that greatly. He often does things to help mewith the problems with my neuro-muscular disability. He is honest,painfully so sometimes. I value honesty. He has a gentle heart. You can see it in how he handles animals and me. Others don't see itbecause he doesn't give a hoot about them or doesn't know how toexpress himself. After 14 yrs of coaching, he now "sees" an elderlylady with crutches and holds the door open for her, rather than let itslam in her face. He truly doesn't see things that don't directlyrelate to him. Being an independent person my whole life, it wasdifficult for me to ask for help. could see that I washaving great difficulty going upstairs to bed and put an electricchair lift in for me without even discussing it with me. I couldgive you many examples. He had a year round greenhouse built for mewith a cart on wheels to go down the aisle that is attached to ourhome --- because I love plants and couldn't garden outside anymore. He is a lot of fun to travel with when I get him away from hisobsessive routine at home.The downside is loneliness/isolation and a cluttered, dirty home thatis falling apart for lack of maintenance and repairs. These arethings that I am working on with him. Little steps at a time. Developing better communication and understanding is the key towardsimproving things. And very hard to do with . Sure there aredays that I wish I had a different life, but then, don't most people?Verleen> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2008 Report Share Posted January 18, 2008 thanks Verleen... I too often share only the things that vex me here.  I think most of us understand that... I was truly wondering about your situation and now I know.!  I think we are all making progress here and I appreciate the opportunity so share it.  You should see my c aat right now... she thinks she should sit on my keyboard so I push her off to the side, not without a great deal of effort .... now she sits beside the keyboard on the desk rubbing me really hard with her head and briskly whisking her tail across the keyboard.  I appreciate the company, but his is too much. the other alternative for her is to position her rear right in my face and swish her tail vigorously.  argh.  Have a great day, Janet ZEEHi Janet.....lol....lol....I can see how it must seem so one sidedbecause of the nature of the topic/help requests that I post on are focused on the negatives. cares deeply about me and shows itin many ways, even if he can't express it. We love each other. When he does say something bad to me, he will later come andapologize. I value that greatly. He often does things to help mewith the problems with my neuro-muscular disability. He is honest,painfully so sometimes. I value honesty. He has a gentle heart. You can see it in how he handles animals and me. Others don't see itbecause he doesn't give a hoot about them or doesn't know how toexpress himself. After 14 yrs of coaching, he now "sees" an elderlylady with crutches and holds the door open for her, rather than let itslam in her face. He truly doesn't see things that don't directlyrelate to him. Being an independent person my whole life, it wasdifficult for me to ask for help. could see that I washaving great difficulty going upstairs to bed and put an electricchair lift in for me without even discussing it with me. I couldgive you many examples. He had a year round greenhouse built for mewith a cart on wheels to go down the aisle that is attached to ourhome --- because I love plants and couldn't garden outside anymore. He is a lot of fun to travel with when I get him away from hisobsessive routine at home.The downside is loneliness/isolation and a cluttered, dirty home thatis falling apart for lack of maintenance and repairs. These arethings that I am working on with him. Little steps at a time. Developing better communication and understanding is the key towardsimproving things. And very hard to do with . Sure there aredays that I wish I had a different life, but then, don't most people?Verleen> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2008 Report Share Posted January 19, 2008 enkerem77 wrote: > Bill, > > Your candid post has meant the world to me today. My husband has read it > and he *sees* what you are talking about. Let us hope he *continues* to " see " . You, he, and me. It's an easy thing to do, ...falling off the wagon (so to speak). I'm gratified others can benefit from my/our experience. > > Like Greg said about your words being what his wife had said, I was > stunned to read literally what I have been telling my husband for 17 > years (both before and after diagnosis). > > I hope you won't mind that I print this post to keep among my treasured > thoughts to consider when I get discouraged...the fact that you changed > your behavior for your wife and your relationship is both inspiration > and hope for me. > > Sharon I don't mind at all. Thank you for the kind words. <blush!> - Bill (still 75, still AS) > >> >>>I sent this note to see if anyone has been able to deal with the >>>distrust NT partners tend to have of their AS spouses when they say >>>they are trying to change. >>> >>>I have found one of the most negative responses we can make to an >>>individual iis withdrawal and sulking which is what I have done >>>habitually throughout our married life. >> >>Yes. I believe that's the single most damaging behavior engaged in by >>adult AS. And it's _lethal_ to relationships of *all* kinds. >> >>[ snip ] >> >>>We may think that we have to do things or say things rather than >>>realising that we can choose to do so or not to do so. I told my >>>wife that I had chosen to behave in the way I did and that realising >>that is a choice I made means that I am really responsible for it. >> >>Not the best thing to say. Wrong in fact. " I choose to be an asshole " >>is not a good way to start on the path to mending. >> >>--> WARNING: From here on I'm going to be _very_ blunt. >> >>...One AS to another, trying to " make you " *see*. [ snip, for brevity ] Bill, 75, AS -- WD " Bill " Loughman - Berkeley, California USA http://home.earthlink.net/~wdloughman/wdl.htm Quote Link to comment Share on other sites More sharing options...
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