Guest guest Posted July 13, 2000 Report Share Posted July 13, 2000 At the very bottom of messages is a link to the archives to this list. You will get a lot from that. Peace and Joy, Gloria Help save the Rainforest by just clicking here at no cost to you. http://rainforest.care2.com/gen-frame.html?xp=958340904 Up to today I have helped save 671 sq ft. I get nothing from this except satisfaction. Introduction > Hi > > By way of introduction, I don't suffer from FMS, but my girlfriend does, and > has done for about ten years. She is currently attending a herbalist, and > taking - at my suggestion - colloidal mineral supplements and maritime pine > bark, grapeseed and curcuminoid antioxidants. Over the last 4-5 months she > has had a noticeable decrease in flare-ups, but still has a degree of > chronic pain in the joints, and broken sleep patterns. The next step is to > get her job changed (she currently works shifts as both a registered nurse > and as a residential social worker in a home for elderly dementia clients) > to one where she isn't working nights. Any additional suggestions or tips > would be gratefully received, as it is my firm intention to try and get her > back to full health if at all possible. > > Best wishes > > Robin > > > ---------------------------------------------------------- -------------- > Get a NextCard Visa, in 30 seconds! > 1. Fill in the brief application > 2. Receive approval decision within 30 seconds > 3. Get rates as low as 2.9% Intro or 9.9% Fixed APR > http://click./1/6628/14/_/452863/_/963525339/ > ---------------------------------------------------------- -------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2001 Report Share Posted March 25, 2001 Hello all, I'm hoping to gain some insight into what is going on with my body. I've begun to suspect strongly that I have FM. In 1997 I was diagnosed with Type I latex allergy. This is a life-threatening allergy to all rubber products. I was a nurse-midwife and overnight I was unable to work following an anaphylaxis after delivering babies all week at two area hospitals. I was very sick with severe occupational asthma, lung damage from the glove dust, and my immune system was a mess. I really thought I would be dead within the year. However, with lots of deep relaxation, strict avoidance from latex, and lots of prayer, the asthma is now 99% gone. I'm feeling stronger and even doing yoga and gardening. I still cannot tolerate aerobic activity other than a very slow walk. I am considered disabled and am on social security for it. I've always had some migraines, but in the last year my pain has increased to the point that I'm having constant headaches. In addition, over the last few months, I've begun to suffer from restless legs at night, cold intolerance, and body aches and pains (shoulders, hips, trapezius area, deep cervical area). It's worsened by weather changes and on some days I'm pain free and able to do most anything. A recent cold front almost put me to bed for two days. I felt like I was 100 (I'm 49). I've made an appointment with my family practice doctor at the Air Force Base (my hubby is retired military) and I'm going to ask for a referral to a rheumatologist. After talking to a girlfriend, it was like a light bulb came on. I realized that I WAS having an extraordinary amount of pain. When I looked up FM I was shocked. IT WAS ME!! So, I guess I"m here to get some advice in how to guide my doctor in making an accurate diagnosis and if there are other conditions that may appear to be FM. I do know that many of the other latex allergic sufferers have FM. Any advice or suggestions are welcomed. One thing I have learned: on the days I do yoga I have less pain and fewer headaches. Has anyone had any success on the Hallelujah Diet (vegan/80% raw/lots of fresh carrot juice/no refined sugar or flour)? Thanks for listening. Ray Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2003 Report Share Posted September 20, 2003 pseudomonas Maggie..........you said that you know when you have pseudomonas because you can taste it........this caught my eye because I am fighting a fungal diesease right now and at times I get a wierd taste in my mouth that kinda tastes like I've been sucking on a wet sponge (don't anyone even ask me how I know what a wet sponge taste like.....lol ) but its like a watery taste and I've often wondered what could be causing it...do you think that's what I'm tasting??????? sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2003 Report Share Posted September 22, 2003 Sondra, I can't describe the taste. It just tastes wrong. If you have a wet sponge taste in your mouth than something is definitely wrong. All I can say is that the pseudomonas snot tastes like it must smell really, really bad. Kinda like a wet sponge I suppose. I'm going to Chicago on Wednesday to see my sister, but I feel an infection coming on. So I called my doctor this morning to explain everything and to inform him that anything he prescribes, I will have to pay full price. I have a drug cap on my insurance plan, which I have already reached. He said to come by and get samples. Yay! This is why I have a love/hate relationship with him. He's so understanding about money woes. I've been down lately because several medical insurance companies have declined me. Bronchiectasis is an immediate disqualifier in most companies. Our rates are so high right now, so we're trying to change. I'll probably have to stay on and the rest of the fam will move on to another company. One of us needs to get a real job with a group plan because I cannot go uninsured. My husband is self-employed, so we have an individual plan. Does any of this make sense? I feel like my fingers are moving faster than my brain. " I'm sorry ma'am, but that condition is an immediate disqualifier. " That really hurts my feelings. I'm too sensitive, but I'm human. It's just one more irritating thing about this disease. Seeing my sister will cheer me up. Just pray I don't catch anything on the plane. Keep well, Maggie On Saturday, September 20, 2003, at 10:07 AM, BLUEEYES1982345@... wrote: > Maggie..........you said that you know when you have pseudomonas > because you can taste it........this caught my eye because I am > fighting a fungal diesease right now and at times I get a wierd taste > in my mouth that kinda tastes like I've been sucking on a wet sponge > (don't anyone even ask me how I know what a wet sponge taste > like.....lol ) > but its like a watery taste and I've often wondered what could be > causing it...do you think that's what I'm tasting??????? sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2003 Report Share Posted September 22, 2003 Sondra, I can't describe the taste. It just tastes wrong. If you have a wet sponge taste in your mouth than something is definitely wrong. All I can say is that the pseudomonas snot tastes like it must smell really, really bad. Kinda like a wet sponge I suppose. I'm going to Chicago on Wednesday to see my sister, but I feel an infection coming on. So I called my doctor this morning to explain everything and to inform him that anything he prescribes, I will have to pay full price. I have a drug cap on my insurance plan, which I have already reached. He said to come by and get samples. Yay! This is why I have a love/hate relationship with him. He's so understanding about money woes. I've been down lately because several medical insurance companies have declined me. Bronchiectasis is an immediate disqualifier in most companies. Our rates are so high right now, so we're trying to change. I'll probably have to stay on and the rest of the fam will move on to another company. One of us needs to get a real job with a group plan because I cannot go uninsured. My husband is self-employed, so we have an individual plan. Does any of this make sense? I feel like my fingers are moving faster than my brain. " I'm sorry ma'am, but that condition is an immediate disqualifier. " That really hurts my feelings. I'm too sensitive, but I'm human. It's just one more irritating thing about this disease. Seeing my sister will cheer me up. Just pray I don't catch anything on the plane. Keep well, Maggie On Saturday, September 20, 2003, at 10:07 AM, BLUEEYES1982345@... wrote: > Maggie..........you said that you know when you have pseudomonas > because you can taste it........this caught my eye because I am > fighting a fungal diesease right now and at times I get a wierd taste > in my mouth that kinda tastes like I've been sucking on a wet sponge > (don't anyone even ask me how I know what a wet sponge taste > like.....lol ) > but its like a watery taste and I've often wondered what could be > causing it...do you think that's what I'm tasting??????? sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2003 Report Share Posted September 23, 2003 Maggie, You’ll only be an hour and a half away from me when you’re visiting your sister in Chicago. I’ll be thinking of you on Wednesday. Maybe just being in close proximity to one another will create positive vibes and we’ll both benefit. I know the taste you and Sondra are talking about. Yuk. Barb Re: Introduction Sondra, I can't describe the taste. It just tastes wrong. If you have a wet sponge taste in your mouth than something is definitely wrong. All I can say is that the pseudomonas snot tastes like it must smell really, really bad. Kinda like a wet sponge I suppose. I'm going to Chicago on Wednesday to see my sister, but I feel an infection coming on. So I called my doctor this morning to explain everything and to inform him that anything he prescribes, I will have to pay full price. I have a drug cap on my insurance plan, which I have already reached. He said to come by and get samples. Yay! This is why I have a love/hate relationship with him. He's so understanding about money woes. I've been down lately because several medical insurance companies have declined me. Bronchiectasis is an immediate disqualifier in most companies. Our rates are so high right now, so we're trying to change. I'll probably have to stay on and the rest of the fam will move on to another company. One of us needs to get a real job with a group plan because I cannot go uninsured. My husband is self-employed, so we have an individual plan. Does any of this make sense? I feel like my fingers are moving faster than my brain. " I'm sorry ma'am, but that condition is an immediate disqualifier. " That really hurts my feelings. I'm too sensitive, but I'm human. It's just one more irritating thing about this disease. Seeing my sister will cheer me up. Just pray I don't catch anything on the plane. Keep well, Maggie On Saturday, September 20, 2003, at 10:07 AM, BLUEEYES1982345@... wrote: Maggie..........you said that you know when you have pseudomonas because you can taste it........this caught my eye because I am fighting a fungal diesease right now and at times I get a wierd taste in my mouth that kinda tastes like I've been sucking on a wet sponge (don't anyone even ask me how I know what a wet sponge taste like.....lol ) but its like a watery taste and I've often wondered what could be causing it...do you think that's what I'm tasting??????? sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2003 Report Share Posted September 23, 2003 Maggie, You’ll only be an hour and a half away from me when you’re visiting your sister in Chicago. I’ll be thinking of you on Wednesday. Maybe just being in close proximity to one another will create positive vibes and we’ll both benefit. I know the taste you and Sondra are talking about. Yuk. Barb Re: Introduction Sondra, I can't describe the taste. It just tastes wrong. If you have a wet sponge taste in your mouth than something is definitely wrong. All I can say is that the pseudomonas snot tastes like it must smell really, really bad. Kinda like a wet sponge I suppose. I'm going to Chicago on Wednesday to see my sister, but I feel an infection coming on. So I called my doctor this morning to explain everything and to inform him that anything he prescribes, I will have to pay full price. I have a drug cap on my insurance plan, which I have already reached. He said to come by and get samples. Yay! This is why I have a love/hate relationship with him. He's so understanding about money woes. I've been down lately because several medical insurance companies have declined me. Bronchiectasis is an immediate disqualifier in most companies. Our rates are so high right now, so we're trying to change. I'll probably have to stay on and the rest of the fam will move on to another company. One of us needs to get a real job with a group plan because I cannot go uninsured. My husband is self-employed, so we have an individual plan. Does any of this make sense? I feel like my fingers are moving faster than my brain. " I'm sorry ma'am, but that condition is an immediate disqualifier. " That really hurts my feelings. I'm too sensitive, but I'm human. It's just one more irritating thing about this disease. Seeing my sister will cheer me up. Just pray I don't catch anything on the plane. Keep well, Maggie On Saturday, September 20, 2003, at 10:07 AM, BLUEEYES1982345@... wrote: Maggie..........you said that you know when you have pseudomonas because you can taste it........this caught my eye because I am fighting a fungal diesease right now and at times I get a wierd taste in my mouth that kinda tastes like I've been sucking on a wet sponge (don't anyone even ask me how I know what a wet sponge taste like.....lol ) but its like a watery taste and I've often wondered what could be causing it...do you think that's what I'm tasting??????? sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2003 Report Share Posted September 23, 2003 Maggie and Barb, My husband and I returned a few weeks ago from visiting my son and daughter in Chicago. I am originally from Southern Illinois, and my brother lived there for a while. While we were there, my husband was afraid that I would get sick. I was on inhaled Tobramycin for the pseudomonas in my lungs and Tobramycin/Clindamycin for my sinuses. We stayed at a hotel across the street from Medical City. I wore a TB mask on the plane and did not pick up any new germs. I am exhausted with my inhaled medications the last two weeks of each month. Acetylesteine 10% with Xopenex first with The Vest, then postural drainage and then inhaled Tobramycin. I also have about 20 other medications that I take each day. I think that I need a machine to remind me to take each medication. Sometimes the days just do not seem long enough to get everything taken. I had a prescription plan with the state health department, but since I could not work for the 10 years required to stay on the plan, I have to get my prescriptions from Sam's, Canada and some I get free since I am on Medicare. I have an appointment with the ENT next week to culture for a fungal infection. According to the Mayo Clinic a large percentage of sinusitis are fungal rather than bacterial. I do know that I had pseudomonas colonization on my first sinus surgery and pseudomonas infection after the second surgery six months later several years ago. Well, here I go rambling again. I think I need a nap while I have a few minutes. Sondra I hope you enjoy your trip to Chicago. I felt better just seeing my children and a change of scenery and hopefully you will too. Norma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2003 Report Share Posted September 23, 2003 Maggie and Barb, My husband and I returned a few weeks ago from visiting my son and daughter in Chicago. I am originally from Southern Illinois, and my brother lived there for a while. While we were there, my husband was afraid that I would get sick. I was on inhaled Tobramycin for the pseudomonas in my lungs and Tobramycin/Clindamycin for my sinuses. We stayed at a hotel across the street from Medical City. I wore a TB mask on the plane and did not pick up any new germs. I am exhausted with my inhaled medications the last two weeks of each month. Acetylesteine 10% with Xopenex first with The Vest, then postural drainage and then inhaled Tobramycin. I also have about 20 other medications that I take each day. I think that I need a machine to remind me to take each medication. Sometimes the days just do not seem long enough to get everything taken. I had a prescription plan with the state health department, but since I could not work for the 10 years required to stay on the plan, I have to get my prescriptions from Sam's, Canada and some I get free since I am on Medicare. I have an appointment with the ENT next week to culture for a fungal infection. According to the Mayo Clinic a large percentage of sinusitis are fungal rather than bacterial. I do know that I had pseudomonas colonization on my first sinus surgery and pseudomonas infection after the second surgery six months later several years ago. Well, here I go rambling again. I think I need a nap while I have a few minutes. Sondra I hope you enjoy your trip to Chicago. I felt better just seeing my children and a change of scenery and hopefully you will too. Norma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2003 Report Share Posted September 23, 2003 Norma, Where in Southern Illinois were you from? My husband were both born and raised in lin County and moved to Chicago area after we married do to no work in Southern part of the state. Have lived in Louisiana last 15 years. Take care. Nona star34baby@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2003 Report Share Posted September 24, 2003 Nona, I am from Nashville, Illinois just north of Pinckneyville, Illinois and about 50 miles southeast of St. Louis, MO. I attended Southern Illinois University. I am learning that everyone comes from all over the world that is think is just wonderful. Norma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2003 Report Share Posted September 24, 2003 Well hello there past neighbor. I was from Valier & my hubby from . This is really such a small world. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2003 Report Share Posted September 24, 2003 Hi Lynn Im becki and Im 23 yo...Not sure if I intro'd myself or not...I am a tad ditzy and forget a lot...LOL I have a CF variant and get IV anti's about every 4-6 weeks. Ive cultured different bacterias off and on...I live inb NC and am try to get listed for TX. I also run a non-profit group for teens and adults with chronic lung disease. We do a camp for kids in the summer and a retreat for teens and adults in the summer. I hope you will think about coming next year ! ! ! I also have an email list... www.topica.com/lists/younglung Becki YOUR FAVORITE LilGooberGirl YOUNGLUNG EMAIL SUPPORT LIST www.topica.com/lists/younglung Pediatric Interstitial Lung Disease Society http://groups.yahoo.com/group/InterstitialLung_Kids/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2003 Report Share Posted September 28, 2003 Maggie..........I have a wonderful doctor but when I say something about this taste I get in my mouth she looks at me like I'm crazy.......lol guess it is the fungus that I'm fighting......... sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2007 Report Share Posted September 19, 2007 hi jennifer, former teacher here. now i work in the automotive industry (lucky me, eh?). one point i want to mention. prednosone. you did the right thing about asking for an alternative. some docs let their patients be on this stuff for years. it's not just the short term effects, but long term as well. since prednosone was one of the great discoveries and " miracle " drugs from about 40 years ago, docs STILL want to use it for EVERYTHING. it is a first line defense for many dx's, but in most cases it is now only considered a " quick fix " until a better long term stategy can be implemented. most docs never get to that stage. most of the dx's pred is used for won't " just get knocked out " of a person system, but it can help get certain conditions " under control " . like most drugs of this class, basically antirejection drugs, they are often described as having worse side effects than the disease itself. if you didn't know this, thought you might find this interesting. i noticed rebecca's group has been a little slow lately (clearing throat)...lol. okay people, let's get some discussion going! chop! chop! jeff, cd, pg, + ~WHAT~ever~~ > > Hi everyone! > > I have enjoyed reading your posts. I wanted to take a moment to > introduce myself and share my story to see if I can get some advice. > My name is Penny, and I'm a 29 year old female living in > Texas. My husband, Mike, and I have been married since May of 2006, > and we've just moved into our first home. I'm a teacher (7th and 8th > grade English) at a middle school. > > In April/May of last year, I noticed a large flat hard lump on my > right shin. It wasn't painful, red, or swollen, just... there. I > figured I had just bumped my leg and that it would resolve. By the > end of June, it wasn't gone, but had actually become red and > inflamed. I went to my GP thinking that I had a leg infection or > cellulitis. She put me on antibiotics and things got a bit better it > seemed. Then, they got worse. My right leg became swollen and > tender, but my left leg was fine. My GP then sent me in for xrays, > thinking that the " infection " might have spread to the bone. > Everything seemed clear, but the pain was getting worse. She sent me > to an orthopedic doctor for a second opinion, thinking I might have > osteomyelitis. The ortho doc basically told me that he couldn't help > me because I wasn't a surgical patient. After that, I was referred > to an infectious disease doctor, who was the first one to suggest > EN. To be sure, however, I got an MRI, which showed abnormal > behavior in my bone. I then had a nuclear bone scan, which again > showed abnormal bone behavior. Finally, I had a sulfur colloid scan, > which showed reactive bone marrow. At that point, the doctors were > discussing hospitalization and considering Leukemia and other bone > marrow disorders. My infectious disease doctor asked me to see a > dermatologist to be sure. Within 5 minutes of being in the > dermatologist's office, she has issued a preliminary diagnosis of > Erythema Nodosum, which was then confirmed by a biopsy. I had a TB > test, chest xray, and strep test to check for underlying infection, > but all came back clear. She believes that my case was probably due > to birth control medication. > > She immediately started me on 20 mg of Prednisone. I was on that for > about 2 weeks and things got better. Three days after finishing > them, the EN came back. I then started 40 mg of Prednisone. After > finishing the round, one week later, the EN came back last week. I > went to the doctor and asked for alternatives. The side effects of > the steroids are difficult, since it involves me being sleepless and > irritable. After reading some postings in this group and online, I > came across Potassium Iodide. The dermatologist suggested Potassium > Iodide, but she requested thyroid tests first. Currently, I'm > waiting for the results to come back from the thyroid tests before I > can take the Potassium Iodide. She did give me 9 days of Prednisone > to reduce the incredible swelling until we move on to the Potassium. > > I'm a bit concerned about the Potassium Iodide, however. I'm worried > about my thyroid becoming an issue. Has anyone had issues with > that? Does anyone have any recommendations for me on what to do > next? I don't want to be on Prednisone for a long time, because > there are some nasty side effects. I also have no idea how long it > will take for this to really " clear up " . I have been off of " the > pill " for about 2 1/2 months, but I'm still fighting the EN. Any > suggestions or words of wisdom for me? > > Thank you!!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2008 Report Share Posted January 14, 2008 I am extremely excited. Over the last 2 or 3 days I have been introduced to 3 other people in my simialr situation so hopefully we can lean on each other and learn from each other. I feel uplifted and lucky. My mom actually is a school bus driver for Special Education kids and one of her parents gave her this information for me so today I will call muy Mom and thank her for all of you.....Thanks and we'll be in touch. Since our spouses can not be there emotionally maybe we can help each other a little.edwards-jemison wrote: Good Morning.I am a 64 year old woman, married for almost 8 years now. I was widowed; he had never married. Our relationship has deteriorated over the course of our marriage rather than growing. At first, when things began to go sour, I thought he was being selfish and self-centered. It turns out he was! But not because he had come to dislike me; because he has AS.I am not going to indulge in a laundry list of complaints at this point. Mostly it won't do any good and you've heard them all or felt them all yourselves, I am sure. What I hope to get from this list is coping mechanisms; suggestions for surviving. For a variety of reasons, mostly having to do with my very poor health and our fragile finances, leaving is not an option. But staying with the way things are is getting to be less and less an option also. So I hope there are techniques we can share as we get to know each other that will help me live with this difficult but interesting man.Shoshana-- Life is what happens to you; living is how you manage it.read about our adventures at www.justjosmidden.blogspot.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2008 Report Share Posted January 14, 2008 welcome, Shoshana.  I urge you to spend time reading posts on this site.. I think you will find a lot of helpful insight, as I have.. Janet ZEEGood Morning.I am a 64 year old woman, married for almost 8 years now. I was widowed; he had never married. Our relationship has deteriorated over the course of our marriage rather than growing. At first, when things began to go sour, I thought he was being selfish and self-centered. It turns out he was! But not because he had come to dislike me; because he has AS.I am not going to indulge in a laundry list of complaints at this point. Mostly it won't do any good and you've heard them all or felt them all yourselves, I am sure. What I hope to get from this list is coping mechanisms; suggestions for surviving. For a variety of reasons, mostly having to do with my very poor health and our fragile finances, leaving is not an option. But staying with the way things are is getting to be less and less an option also. So I hope there are techniques we can share as we get to know each other that will help me live with this difficult but interesting man.Shoshana-- Life is what happens to you; living is how you manage it.read about our adventures at www.justjosmidden.blogspot.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2008 Report Share Posted January 27, 2008 Hello Everyone, I am new and wanted to introduce myself. I joined this list because I am involved in a long-distance relationship with a man who I believe has undiagnosed AS or is otherwise on the spectrum. He will be moving to come live with me in the next month or two. I've read everything on AS I can get my hands on, but of course that is no substitute for a back and forth discussion, and I don't know anyone with any experience with AS, nor are there any resources in my area. After reading the last few posts, can I ask -- are there those of you out there who feel you are in successful, happy, healthy relationships with an AS partner? Any advice to start us off on the right track? Thank you for any wisdom you have to offer! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2008 Report Share Posted January 28, 2008 Welcome .. what a grand experiment you are about to undertake. I hope you keep in touch with us... I do not want to color your perception or relationship propects with my own opinion, BUT our relationship has been very challenging.  Some would view it as quite perfect but they are not me, nor do they see 'behind the curtain'.  What is a happy healthy successful relationship?  different things to different people.  It has been a journey and not the same boat I bought the ticket for, if you get my meaning.  Thirty years.  I am wishing you lots of success! Janet ZEEHello Everyone,I am new and wanted to introduce myself. I joined this list because I am involved in a long-distance relationship with a man who I believe has undiagnosed AS or is otherwise on the spectrum. He will be moving to come live with me in the next month or two. I've read everything on AS I can get my hands on, but of course that is no substitute for a back and forth discussion, and I don't know anyone with any experience with AS, nor are there any resources in my area.After reading the last few posts, can I ask -- are there those of you out there who feel you are in successful, happy, healthy relationships with an AS partner?Any advice to start us off on the right track?Thank you for any wisdom you have to offer! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 I concur with Verleen's opinion, . As I reflect upon last year, I saw a lot of the same things with me. I like Verleen's suggestion of not molding your life around his. If you do that, you will find yourself being swallowed up to the point where you have read others in the group talking about their experiences. You need to have some " me " time with your friends, which will give your bf an opportunity to go to town or spend sometime with his new friends. As I learned last year, having some away time from each other is crucial. I can only imagine people who are married/in a " sig. relationship " with someone who might be AS or NT, and the things they experience. I feel this will help your bf greatly. It's not wrong to want " me " time. We all need " me " , AS and NT, time to recharge our batteries in whatever way or fashion. If I was in a relationship and I knew my " sig. other " was having friends over and such, I would do one of two things. First, I would leave the house and go someplace else and do what I wanted. Second - if that doesn't work, I would go to another room in the house, where there could be some peace and privacy if I had a " sig. other " . > > > > Hello Everyone, > > I am new and wanted to introduce myself. I joined this list because I > > am involved in a long-distance relationship with a man who I believe > > has undiagnosed AS or is otherwise on the spectrum. He will be moving > > to come live with me in the next month or two. I've read everything on > > AS I can get my hands on, but of course that is no substitute for a > > back and forth discussion, and I don't know anyone with any experience > > with AS, nor are there any resources in my area. > > > > After reading the last few posts, can I ask -- are there those of you > > out there who feel you are in successful, happy, healthy relationships > > with an AS partner? > > > > Any advice to start us off on the right track? > > > > Thank you for any wisdom you have to offer! > > > > > > > Quote Link to comment Share on other sites More sharing options...
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