Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 I'm recovering from my 3rd and worst flare-up of EN. I've had it now for about 5 weeks, and am beginning to feel much better as the EN lesions are peeling away and the pain and inflammation is subsiding. However, I've noticed that as the lesions are healing, they seem to form pimples that scab over. There are only a few of these pimples, and they form in a hair follicle, so I thought maybe it was folliculitis caused by the local inflammation. Throughout the flare- up, I had canker sores (lasted about a month), painful pimples in my scalp, and occasional pimples on my arms and chest. These pimples heal by peeling, which seems odd to me. Has anyone else had any of these symptoms during a flare-up? Am I really dealing with EN or something else? My dermatologist has no clue what's going on other than that it's all probably related to the EN, and I can't even talk to my rheumatologist at this point because she says it's just another reason why I need to get on methotrexate. This recent flare-up occurred when I got too low on my prednisone dose-- 2.5 mg. I've been on 2.5 to 20 mg of prednisone for 6 months, and I've been trying to wean off it as my symptoms subside. I was tapering very slowly-- 1 mg per 1 to 2 weeks, depending on how I felt. Once I got to 2.5 mg I started developing the lesions again, which led to my current flare- up. Thanks, April Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 I did notice that I had painful pimples on my scalp as well. However, I just assumed that they were the same flareups that I had on my legs and not pimples. But now that I think of it, they were pimples or atleast "pimple like".April Giangerelli wrote: I'm recovering from my 3rd and worst flare-up of EN. I've had it now for about 5 weeks, and am beginning to feel much better as the EN lesions are peeling away and the pain and inflammation is subsiding. However, I've noticed that as the lesions are healing, they seem to form pimples that scab over. There are only a few of these pimples, and they form in a hair follicle, so I thought maybe it was folliculitis caused by the local inflammation. Throughout the flare-up, I had canker sores (lasted about a month), painful pimples in my scalp, and occasional pimples on my arms and chest. These pimples heal by peeling, which seems odd to me. Has anyone else had any of these symptoms during a flare-up? Am I really dealing with EN or something else? My dermatologist has no clue what's going on other than that it's all probably related to the EN, and I can't even talk to my rheumatologist at this point because she says it's just another reason why I need to get on methotrexate. This recent flare-up occurred when I got too low on my prednisone dose-- 2.5 mg. I've been on 2.5 to 20 mg of prednisone for 6 months, and I've been trying to wean off it as my symptoms subside. I was tapering very slowly-- 1 mg per 1 to 2 weeks, depending on how I felt. Once I got to 2.5 mg I started developing the lesions again, which led to my current flare-up.Thanks,April Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 Hello and April, I also had pimples on my scalp previously. They have been gone for awhile, but I still have a scaly scab(?) where one was that does not want to go away. I have had a continuous flare since March. The beginning was the worst and it is usually tolerable with Naproxen now. That is until I started on Amoxicillin 5 days ago. This is a know trigger and it is irritating my lumps. Thanks, Vicki --- Vargas wrote: > I did notice that I had painful pimples on my scalp > as well. However, I just assumed that they were the > same flareups that I had on my legs and not pimples. > But now that I think of it, they were pimples or > atleast " pimple like " . > > April Giangerelli > wrote: I'm recovering from my 3rd and worst > flare-up of EN. I've had it now > for about 5 weeks, and am beginning to feel much > better as the EN > lesions are peeling away and the pain and > inflammation is subsiding. > However, I've noticed that as the lesions are > healing, they seem to > form pimples that scab over. There are only a few of > these pimples, > and they form in a hair follicle, so I thought maybe > it was > folliculitis caused by the local inflammation. > Throughout the flare- > up, I had canker sores (lasted about a month), > painful pimples in my > scalp, and occasional pimples on my arms and chest. > These pimples > heal by peeling, which seems odd to me. Has anyone > else had any of > these symptoms during a flare-up? Am I really > dealing with EN or > something else? My dermatologist has no clue what's > going on other > than that it's all probably related to the EN, and I > can't even talk > to my rheumatologist at this point because she says > it's just another > reason why I need to get on methotrexate. This > recent flare-up > occurred when I got too low on my prednisone dose-- > 2.5 mg. I've > been on 2.5 to 20 mg of prednisone for 6 months, and > I've been trying > to wean off it as my symptoms subside. I was > tapering very slowly-- > 1 mg per 1 to 2 weeks, depending on how I felt. Once > I got to 2.5 mg > I started developing the lesions again, which led to > my current flare- > up. > > Thanks, > > April > > > > > > > --------------------------------- > Looking for last minute shopping deals? Find them > fast with Yahoo! Search. ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2008 Report Share Posted January 6, 2008 Hi April Was interesting reading your message, as I sometimes wonder if I am also dealing with something other than EN. Again like yourself, I dont think my Doctor or Dermatologist has a clue. When I get a flare up of my EN, it is normally only 1 very painful lump. I recently had a flare where this 1 lump(on the inner side of my shin/lower leg) was painful for weeks, as usual it was hot to touch in the area. Normally, i do nothing but take either paracetamol or ibuprofen for the pain. I then went on holiday for a week, as soon as i arrived at my destination my lump decided to become open and everything went downhill from there. I dont know if it was the plane ride that triggered it! What then happens when my lump opens, is the entire surrounding area just erupts into several open wounds/sores/abscesses? I was bedridden for the next 3 weeks, I literally couldn't walk, as the leg didn't like being down. My leg looked a mess, the 1 lump had now become a huge area half way up my leg of open sores. The strange thing is the swabs they took always showed that there wasnt an infection there!! However I was put on various antibiotics. I have now noticed that the healing process now seems to have cause several raised lumps clustered together, dont know what that is and I am worried that they look as though they could open at any moment! It never ends. I see my Dermatologist this Tues (havent seen them in over a yr)so maybe I can get some answers. Am curious, you mention you see a Rheumatologist can I ask what for? I am also under one for my rare form of arthritis! Methotrexate? I need to go and read about that, its amazing what I have learned on here in only a day. Take care Regards Clare xx PS: I loved it when I was on Prednisone which was prescribed for a bad flare of my HS(another skin condition) as it helped enormously with my arthritis, it was as if my life was just beginning. But my doctors refused to keep me on it because of the potential side effects of it. I was gutted because as soon as i stopped it, back came my half a living lifestyle of constant daily pain! > However, I've noticed that as the lesions are healing, they seem to > form pimples that scab over. There are only a few of these pimples, > and they form in a hair follicle, so I thought maybe it was > folliculitis caused by the local inflammation. Am I really dealing with EN or > something else? My dermatologist has no clue what's going on other > than that it's all probably related to the EN, and I can't even talk > to my rheumatologist at this point because she says it's just another > reason why I need to get on methotrexate. > > Thanks, > > April > Quote Link to comment Share on other sites More sharing options...
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