Tina's PG Wound Care-Part two

[Guest guest]

Once the St. ph's Advanced Wound Care Center was assured that my

treatment would be covered by charity, they started treating me with

an experiment that Dr. Cavorci had in mind. Since Oct 16, 2007, I

have been getting, 250mg Solumedrol soaked into Excel and applied

over the lesions, then covered with adaptic. Then this is covered

with two to four 4X4 gauze pads, then wrapped with rolled gauze.

Once this started, I only get dressing changes twice a week. The

gauze pad top dressing and rolled bandage can be changed as often as

needed when they get wet with bloody secretions. Before this, I

changed my dressings every day. So a new problem arose which was very

unpleasant to me. My Excel dressings had a very unpleasant odor after

a day or two and the smell made me gag sometimes. I felt very self

conscious around other people because it was very noticeable. So I

started getting Hillister Charcoal Odor Controller 4X4s on top of the

gauze 4X4s and this works wonderfully.

For three or four weeks, I have been getting large healed areas in my

lesions (by early December) and I was able to stop using a

wheelchair. For the past two weeks, one of the lesions is healed and

the original portions of the other two are healed. But they are

getting active on some of the edges. I told Dr C a couple of days ago

that the pain now comes from the dried blood on the dried Excel

pulling the open, fragile tissue when I move; and from removing the

dressings. (I didn't tell him, but when the itching gets to me, I

wiggle a lot on purpose to pull it and relieve the itching. ) Dr C

explained that the pain is the least of my worries. He says that any

disturbance of tissue is a major concern with PG because it will

trigger more lesions (which explains why new areas are spreading

around the edges. I always wondered what makes the lesions " have

babies " .

So the new plan is to switch from Excel to Xeroform this coming week.

I'll keep you posted. Please hold me in the light. If these lesions

from the beginning of September heal this fast it will be a first.

Others this large and this distal have always taken at least five

months to heal (and often with extreme and highly contraindicated

measures of debreeding).

Tina