Re: EN AND CIRCULATION IN LOWER LEGS

[Guest guest]

Hi Clare,

Your dr. is giving you good advice re the compression stockings, but

for the wrong reason. EN has nothing to do with circulation. However

the swelling gets out of control and the stockings help in that

regard. Also, and this is my own opinion, the EN lumps are composed of

immune cell clusters and the stockings help to keep them contained so

that they do not break away to form satellite nodes.

I only get EN in my lower left leg, near the ankle on the inner areas.

I typically get one or two nodes. They never ulcerate. Ulceration is

not the way EN behaves, but Pyoderma Gangerosum does ulcerate. I use

compression stockings even when in remission on my EN leg. I think it

helps to keep me in remission. I also try to limit time on my feet as

it seems to aggravate my EN. When I am flared up I elevate the legs

and get as much (bed)rest as I can.

Love,