Welcome New Member Marie/ Case History/Chronic EN

[Guest guest]

Dear Marie,On behalf of all our members, welcome to our Erythema Nodosum Group! Thanks for sending in your Questionnaire. I have added your information to our "Member Medical History" Files on the Group site and posted it below.You now have Full EN Group privileges.You are receiving Daily Digest EN Group emails, and you may also visit the Erythema Nodosum Group Site:http://health.groups.yahoo.com/group/erythema_nodosum_Group/ whenever you like by logging on with your Yahoo ID and secret password.You do not have to have the group emails delivered to be a member here.I hope you will remain a member here to support others even after you go into remission. Since EN IS NOT BEING ACTIVELY RESEARCHED, please take this opportunity to make a generous donation to our "EN Research Fund" to find a cure for this painful disorder. Instructions have been sent to you.Also, please visit our New Erythema Nodosum Websitehttp://www.geocities.com/erythema_nodosum/ We intend to make it the best EN website on the net.Welcome to our Friendly Erythema Nodosum Group!Love,Chronic Idiopathic EN since 1968*********Marie's Case History1/8/081. Your name and age: Declined to divulge 2. Your location: Leicester, UK 3. Your email address: hail1989@...4. Your Yahoo ID: Marie Marie5. Describe your erythema nodosum/PG symptoms or, if you do not have EN or PG, please explain why you wish to join this group. My legs swells and have spots that become very painful. I was diagnosed with EN in 2005 when my joints became painful and subsequently i had severe pain in my legs. I had numerous blood tests and was told I had Sarcodias that caused the EN. I was discharged fromt he Rheumatology clinic end of 2007 because the consultants said my EN had gone even though my ankles still swell. Recently I have experienced the same pain as if i am experiencing an outbreak. I am a 42 year old Africa woman. My legs have changed colour since then. I wish to join this group in order to share experiences about EN and i never knew such a group existed. I would like to know more about research going and about how other people manage - any alternative therapy that other people know. I am interested in virtually learning all about EN. I am also prepared to take part in any research like the one that I read on the website, answering to questionnaires about my condition etc etc. And to learn about any breaking news in the treatment of EN. 6. List any other health conditions. I have mild anti thrombycineI have had laser treatment on my right eye because my eye bled internally 7. State what medications or treatments you take for EN, and their effectiveness: I have only taken paracetamol when i started experiencing joint pains. After being diagnosed with EN i did not take any other medicine, now and again i would take paracetamol when i had intense pain. Right now it has started and have not taken any pain killers as it is not very painful unless i touch the part of leg where it is. 8. When did you first get erythema nodosum or PG?2005 May 9. How long have you had erythema nodosum or PG?2 and half years10. Do you agree to treat all EN members with respect?Definitely YES11.Do you agree to post NO advertisements for any products or services? I would not do that12. How did you find this Group? (Google, Yahoo, Ask Jeeves Search, referral from another group or person etc.) I googling information on Health that led me to EN and was quite surprised cause i never thought such a group existed and was quite shocked with the statistics and data about EN. I realised i was not alone.