Guest guest Posted March 24, 2008 Report Share Posted March 24, 2008 Dear Marilee,On behalf of all our members, welcome to our Erythema Nodosum Group! Thanks for sending in your Questionnaire. I have added your information to our "Member Medical History" Files on the Group site and posted it below.You now have Full EN Group privileges.You are receiving ALL EN Group emails, and you may also visit the Erythema Nodosum Group Site:http://health.groups.yahoo.com/group/erythema_nodosum_Group/ whenever you like by logging on with your Yahoo ID and secret password.You do not have to have the group emails delivered to be a member here. Let me know if you want the emails to stop.I hope you will remain a member here to support others even after you go into remission. Since EN IS NOT BEING ACTIVELY RESEARCHED, please take this opportunity to make a generous donation to our "EN Research Fund" to find a cure for this painful disorder.http://www.geocities.com/erythema_nodosum/donate/index.htm Also, please visit our new Erythema Nodosum Websitehttp://www.geocities.com/erythema_nodosum/ We intend to make it the best EN website on the net.Until we pay for our own research I fear we will not get the medications that can work for us--only meds like prednisone that typically quit as soon as we taper or stop them. Yes, Clomid is on our list of EN triggers. How cruel to use it to try to get pregnant and then be left with chronic EN. The group can share our coping strategies.Welcome to our Friendly Erythema Nodosum Group!Love,Chronic Idiopathic EN since 1968*********Marilee T. Murdock's Case History3/24/08 1. Your name and age: Marilee - 432. Your location Alaska3. Your email address: murdockema@... 4. Your Yahoo ID murdockema5. Describe your erythema nodosum/PG symptoms or, if you do not have EN or PG, please explain why you wish to join this group. I was diagnosed with EN three years ago, by my Dermatologist. He believed at that time, it was the result of taking Chlomid (I took one round 2 months prior). He prescribed a schedule of prednisone, which relieved the discomfort, but as soon as I stopped taking it, it was full-blown again. Over the years he prescribed several medications that did nothing to alleviate the EN, but those medications had a list of severe possible side-effects that I decided not to try any more. I am still taking prednisone and now after talking to several other doctors, I am being referred to a Rheumatologist. Not many people have even heard of EN, let alone have had to deal with it. I was excited to see there is a support group with people that may have had a similar experience. medications6. List any other health conditions. I otherwise enjoy good health, with the exception of Rosecea and I had my gallbladder removed last year. 7. State what medications or treatments you take for EN, and their effectiveness: Prednisone, but if I miss a day, it flares up. I also take antibiotics for my rosecea.8. When did you first get erythema nodosum or PG? April 20059. How long have you had erythema nodosum or PG? Three years10. Do you agree to treat all EN members with respect? Yes, of course.11.Do you agree to post NO advertisements for any products or services? Yes12. How did you find this Group? (Google, Yahoo, Ask Jeeves Search, referral from another group or person etc.) Googled. Quote Link to comment Share on other sites More sharing options...
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