Guest guest Posted March 21, 2008 Report Share Posted March 21, 2008 Dear Shanel,On behalf of all our members, welcome to our Erythema Nodosum Group! Thanks for sending in your Questionnaire. I have added your information to our "Member Medical History" Files on the Group site and posted it below.You now have Full EN Group privileges.You are receiving ALL EN Group emails, and you may also visit the Erythema Nodosum Group Site:http://health.groups.yahoo.com/group/erythema_nodosum_Group/ whenever you like by logging on with your Yahoo ID and secret password.You do not have to have the group emails delivered to be a member here. Let me know if you want the emails to stop.I hope you will remain a member here to support others even after you go into remission. Since EN IS NOT BEING ACTIVELY RESEARCHED, please take this opportunity to make a generous donation to our "EN Research Fund" to find a cure for this painful disorder.http://www.geocities.com/erythema_nodosum/donate/index.htm Also, please visit our new Erythema Nodosum Websitehttp://www.geocities.com/erythema_nodosum/ We intend to make it the best EN website on the net.You are lucky that we now have a place to donate money for the EN research we all need. I have had Chronic EN for nearly 40 yrs. and until recently no research fund existed [which is partly why so little EN medical research as been done]. Welcome to our Friendly Erythema Nodosum Group!Love,Chronic Idiopathic EN since 1968********Shanel Fahlenkamp's Case History3/21/081. Shanel Fahlenkamp 382. Montezuma, Iowa3. wsfkamp@... 4. sfahlenkamp 5. I was diagnosed 4 years ago and currently have active lumps. I sometimes will go 3-4 months without any, then have a flare up. Right now I have 3 very painful ones. They seem to be associated with exercising and diet with me. I really need to hear other people's stories, what has worked for them and just to have someone who understands what it is like to help me through it.6. I used to have long, painful periods, but that has gotten better with age.7. I am currently not on any meds or treatments for en8. I was first diagnosed in June '049. Have had it since June '0410. I agree to treat all EN members with respect.11. I agree not to post ads12. I heard about this group while searching on WedMD. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2008 Report Share Posted March 25, 2008 I'm curious about your comments re: diet and exercise. Is the EN worse with certain diet? Better with exercise? I have lobular panniculitis. My arms and back are covered right now and very painful. My joints and muscles are sore and I tire very easily. Curious about your symptoms. Thanks. Castello Strecker wrote: Dear Shanel,On behalf of all our members, welcome to our Erythema Nodosum Group! Thanks for sending in your Questionnaire. I have added your information to our "Member Medical History" Files on the Group site and posted it below.You now have Full EN Group privileges.You are receiving ALL EN Group emails, and you may also visit the Erythema Nodosum Group Site:http://health.groups.yahoo.com/group/erythema_nodosum_Group/ whenever you like by logging on with your Yahoo ID and secret password.You do not have to have the group emails delivered to be a member here. Let me know if you want the emails to stop.I hope you will remain a member here to support others even after you go into remission. Since EN IS NOT BEING ACTIVELY RESEARCHED, please take this opportunity to make a generous donation to our "EN Research Fund" to find a cure for this painful disorder.http://www.geocities.com/erythema_nodosum/donate/index.htm Also, please visit our new Erythema Nodosum Websitehttp://www.geocities.com/erythema_nodosum/ We intend to make it the best EN website on the net.You are lucky that we now have a place to donate money for the EN research we all need. I have had Chronic EN for nearly 40 yrs. and until recently no research fund existed [which is partly why so little EN medical research as been done]. Welcome to our Friendly Erythema Nodosum Group!Love,Chronic Idiopathic EN since 1968********Shanel Fahlenkamp's Case History3/21/081. Shanel Fahlenkamp 382. Montezuma, Iowa3. wsfkampzumatel (DOT) net 4. sfahlenkamp 5. I was diagnosed 4 years ago and currently have active lumps. I sometimes will go 3-4 months without any, then have a flare up. Right now I have 3 very painful ones. They seem to be associated with exercising and diet with me. I really need to hear other people's stories, what has worked for them and just to have someone who understands what it is like to help me through it.6. I used to have long, painful periods, but that has gotten better with age.7. I am currently not on any meds or treatments for en8. I was first diagnosed in June '049. Have had it since June '0410. I agree to treat all EN members with respect.11. I agree not to post ads12. I heard about this group while searching on WedMD. Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.