Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 Hi , Boy you have a wonderful way with words. I think you are dead on target for your assessment of the Dr situation alot of us come up against. Pretty frustrating but like you said best, Keep the Faith! Thanks, Vicki --- imapisawork wrote: > Hi All! > Thank you for allowing me in your Group. > Your comments and shared experiences are > very helpful. > I hope I am following rules of posting correctly, > I never belonged to a Group before. > That being said, the one thing I have found > within myself in this " Circle of Hell " which > Dante excluded from his Divine Comedy is to > keep my chin up and KNOW that my symptoms > are REAL even when doctors disagree amongst > themselves. Let's face it, no one wants to > be sick...but we do want and deserve proper medical > treatment. From what I assess thus far in > the postings, EN is so rare that Derms > rarely see it...but that is still not a viable > excuse for a toss-off! > As I've gone from derm to derm, my symptoms > and " story " never waivered. How can it? > The truth is easy to remember. > I would have to be Rodin to sculp these ulcerations > and an artist I am not! > I am just non-plussed as to why there is such > a reluctance to even opt for a suggestion on > treatment! > Are Insurance Companies trapping our Doctors? > Who is really at fault here? > It's as if " diagnosis " has become a four letter word > with doctors. > Why are they so afraid? Or, am I mistaking this for > general apathy? > Just some thoughts from a person facing a challenge, > as we all are. > I hope everyone in Group has a happy day tomorrow... > remember - " what a difference a day makes. " Like > love, > panaceas may come from the most unexpected places. > I firmly believe that there will be a cure. > The fact that there are more members clearly > indicates > that this may not be all that uncommon...but I do > agree > with Tina - I would not wish this on any living > creature. > It's awful. > Sending love & hope your way, > I remain, > Yours sincerely, > with love, > > > ________________________________________________________________________________\ ____ Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 Dear , Please join and me at our EN Fundraisers Group: http://health.groups.yahoo.com/group/enfundraisers/ where we can discuss fundraising.I like your ideas, and I have some ideas I want to run past you privately, The site will keep all our conversations in one neat location for future reference. Other members who want to join Fundraisers, please consider this an invitation as well. Cheerleaders are great, but we need to have people willing to do the work necessary to get the funding. Love, > > > > Hi All! > > Thank you for allowing me in your Group. > > Your comments and shared experiences are > > very helpful. > > I hope I am following rules of posting correctly, > > I never belonged to a Group before. > > That being said, the one thing I have found > > within myself in this " Circle of Hell " which > > Dante excluded from his Divine Comedy is to > > keep my chin up and KNOW that my symptoms > > are REAL even when doctors disagree amongst > > themselves. Let's face it, no one wants to > > be sick...but we do want and deserve proper medical > > treatment. From what I assess thus far in > > the postings, EN is so rare that Derms > > rarely see it...but that is still not a viable > > excuse for a toss-off! > > As I've gone from derm to derm, my symptoms > > and " story " never waivered. How can it? > > The truth is easy to remember. > > I would have to be Rodin to sculp these ulcerations > > and an artist I am not! > > I am just non-plussed as to why there is such > > a reluctance to even opt for a suggestion on treatment! > > Are Insurance Companies trapping our Doctors? > > Who is really at fault here? > > It's as if " diagnosis " has become a four letter word > > with doctors. > > Why are they so afraid? Or, am I mistaking this for > > general apathy? > > Just some thoughts from a person facing a challenge, > > as we all are. > > I hope everyone in Group has a happy day tomorrow... > > remember - " what a difference a day makes. " Like love, > > panaceas may come from the most unexpected places. > > I firmly believe that there will be a cure. > > The fact that there are more members clearly indicates > > that this may not be all that uncommon...but I do agree > > with Tina - I would not wish this on any living creature. > > It's awful. > > Sending love & hope your way, > > I remain, > > Yours sincerely, > > with love, > > > > > > > > > > > --------------------------------- > Never miss a thing. Make Yahoo your homepage. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 , I had just read somewhere about telling about the fund raising efforts and they can put it out there in the media. I think it was the goodsearch.com fundraising site. I hate to place more on you, but have you mentioned it to them? I will have to back track to find out where I had seen it. Right now I am home, sick and a very bad case of Pinkeye in both eyes no doubt. After reading up on it, it coincides with a few of the causes of EN, what a small world. Has anyone here had a case of Pinkeye after being told you have EN? 3 days off work so far, so I put in for an emergency vacation so I can at least be paid. I have the cough, congestion, fever, etc that I had before the EN diagnosis last year. I will be looking for new bumps, but I have one sore as heck elbow, which I thought was EN raising it most ugly head up again. If you have a medical doctor on your radio station, or TV station, why not write, call or email in with questions about EN/PG? Our doctor left-retired. Looking for a new one. Good luck! DebbieStart the year off right. Easy ways to stay in shape in the new year. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 Hi Debbie,Sorry you are dealing with pinkeye. I read about GoodSearch wanting Success Stories that could be put on the media. But our EN Research Fund has not yet proven to be a success. http://www.goodsearch.com/Estimate.aspxAmount Raised Please use this site honestly. Fraudulent searches will result in a charity being de-listed. Erythema Nodosum Research Fund - NORD (Danbury, CT) ID: 802849 Year: 2006 2007 2008 10/31/06. We are currently working on speeding up the Amount Raised report and hope to have it available again tomorrow. All searches and revenue earned during earned this period continue to be counted. Thank you for your patience. MonthSearchesAmount Raised from Searches (est.)New! Amount Raised from Shopping – Updated WeeklyTotal (Estimated) January235$3.15$0.00$3.15 February219$2.93$0.00$2.93 March255$3.42$0.00$3.42 April141$1.89$0.00$1.89 May246$3.30$0.00$3.30 June480$6.43$0.00$6.43 July616$8.25$0.00$8.25 August703$9.42$0.00$9.42 September640$8.58$0.00$8.58 October658$6.58$0.00$6.58 November390$3.90$0.00$3.90 December406$4.06$0.00$4.06 Total: Year-to-Date4989$61.91$0.00$61.91 Total: Since Inception11586$147.85$0.00$147.85 For GoodSearch to succeed, it will take a major grassroots effort. Please spread the word to your friends and family and ask your favorite charity or school to include GoodSearch in its next newsletter and on its website. We estimate that each search will raise $0.01 for your designated charity or school (image and video searches are not included). For the fiscal years 10/05 to 9/06 and 10/06 to 9/07, each search actually earned 1.3 cents. The more people use GoodSearch, the more money will be directed towards your cause. The sky is the limit! While the searches and estimated search revenue is calculated in real time, the GoodShop shopping data is posted weekly. There may be a delay in the donation appearing in the results as our retailers can take up to eight weeks to report their sales back to us from the time of your purchase. Also, you may notice a change in the totals due to returned merchandise or cancelled orders. **********Last year [2007] we earned a Grand Total of $61.91 and at the cost of research I don' think it will buy much. If our membership would use GoodSearch we could be a success story. Since it cost nothing to do it, I can't figure out why anyone wouldn't.Love,Idio. EN ;68 You can help Erythema Nodosum Research. Just go to www.goodsearch.com and under the I'm Supporting section enter Erythema Nodosum Research Fund. Every time you use Goodsearch to search, a penny will be donated to EN Research. So sign up today, and be sure to tell your friends, family and co-workers. Let's find a cure for Erythema Nodosum! Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
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