Welcome New Member Dimeo/ Case History/Probable PG HELP!

[Guest guest]

Dear ,On behalf of all our members, welcome to our Erythema Nodosum Group! Thanks for sending in your Questionnaire. I have added your information to our "Member Medical History" Files on the Group site and posted it below.You now have Full EN Group privileges.You are receiving ALL EN Group emails, and you may also visit the Erythema Nodosum Group Site:http://health.groups.yahoo.com/group/erythema_nodosum_Group/ whenever you like by logging on with your Yahoo ID and secret password.You do not have to have the group emails delivered to be a member here. Let me know if you want the emails to stop.I hope you will remain a member here to support others even after you go into remission. Since EN IS NOT BEING ACTIVELY RESEARCHED, please take this opportunity to make a generous donation to our "EN Research Fund" to find a cure for this painful disorder.http://www.geocities.com/erythema_nodosum/donate/index.htm Also, please visit our new Erythema Nodosum Websitehttp://www.geocities.com/erythema_nodosum/ We intend to make it the best EN website on the net.Jeff, our PG Expert and Resource Person will have some suggestions for you.Welcome to our Friendly Erythema Nodosum Group!Love,Chronic Idiopathic EN since 1968********** Dimeo's Case History1/9/08 wrote: Dear Ms. Strecker: My request to join your EN Support Group is most sincere. I have been suffering for over a year and the multiple ulcerations on my legs are getting worse. I have Ulcerative Colitis also - under control. I am unable to complete your application as I do not know how to cut and paste. (please don't laugh) The problem is that the dermatologists I have seen disagree with my Gastro. They are saying this is "neurodermatitis". My first biopsy was consistent with Pyoderma Gangrenosum. My Gastro is quite confident with his diagnosis of EN. Why are derms unable to treat or recognize this illness? I'm not asking for a miracle cure -- I just want the appropriate treatment. Thank you. Dimeo

[Guest guest]

I strongly echo 's question: Why do Derms have so much trouble

diagnosing PG (and even more scary, since they do, why do all the

other docs refer me to derms for a treatment plan when the derms

can't even get the diagnosis right)? All the different specialists I

went to recognized the PG before a derm FINALLY did. What's the deal?

Aren't they supposed to be the specialists most trained and mose

suitable to help us?

Tina

>

> **********

> Dimeo's Case History

> 1/9/08

> wrote:

>

> Dear Ms. Strecker:

> My request to join your EN Support Group is most sincere.

> I have been suffering for over a year and the multiple

ulcerations

> on my legs

> are getting worse. I have Ulcerative Colitis also - under

control.

> I am unable to complete your application as I do not know how

to

> cut and paste. (please don't laugh)

> The problem is that the dermatologists I have seen disagree

with

> my Gastro. They are saying this is " neurodermatitis " .

> My first biopsy was consistent with Pyoderma Gangrenosum.

> My Gastro is quite confident with his diagnosis of EN.

> Why are derms unable to treat or recognize this illness?

> I'm not asking for a miracle cure -- I just want the

appropriate

> treatment.

> Thank you.

> Dimeo

>