Guest guest Posted July 19, 2003 Report Share Posted July 19, 2003 Bobbie, I would use anything with scrubbies (even oatmeal) because the body could be very tender as a side effect of the chemo depending on the drug(s) of choice. If it were my friend and I wanted to make a soothing bar for her (on that replenishes as much as possible) i would use there oils: Emu, castor, avocado and shea butter in coconut and palm kernel. Wheat germ and Safflower/sunflowre is also very good on the skin of most people. Use up to 8 oz each of Emu and (skin oils) and 4-6 shea butter in a 3-4 lb recipe of soap. It may be softer than the r ecipes you are used to but will harden pretty well in a weeks time if you are doing HP. The more conditioning the bar, the softer it begins. If she is having radiation at all you might want to have some straight Emu at hand for that area...or make up a light lotion with Emu, Shea and maybe Aloe? Not gonna comment on the EO's for this. Perhaps Marge will comment on what she feels is appropriate in this case since she is the expert in house on them. Dee ~ ><}}}*>~~><}}}*>~~ ><}}}*>~ ----- Original Message ----- From: Bobbi Guerra There is so little we can do but offer up our prayers. thought perhaps I could send her some of my products for the nurses to use on her while she is undergoing the month long chemo treatment for killing off her white blood Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2003 Report Share Posted July 19, 2003 Bobbi, I would offer her your items with no color or scent (no EO's or FO's). Since she will be going through chemo you don't want to introduce anything that could possibly upset the balance of what they're trying to achieve. If you're unsure, check with her medical team. I'm sorry to hear of your sad news, Bobbi. Lezlee Simple Soothings There is so little we can do but offer up our prayers. thought perhaps I could send her some of my products for the nurses to use on her while she is undergoing the month long chemo treatment for killing off her white blood cells and immune system. --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.497 / Virus Database: 296 - Release Date: 7/4/2003 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2003 Report Share Posted July 19, 2003 Bobbi, I'm so sorry about this! Due to the extreme sensitivity my MIL (who was also a nurse) had during her many rounds with chemo, I agree with Dee that NO botanicals at all should be used - not only for potential scratchiness but also for any potential sensitization. Likewise, as lovely as colorants (natural or otherwise), fragrances, or essential oils may be for most, this is not a time you'd want to feel " responsible " for her becoming sensitized. I'd even omit milks, honeys, extra salts from a soap, and sub all the water with aloe juice. Emu is an undisputed best choice, and perhaps something to help hold it ... Meadowfoam is the oil that claims to hold moisture the longest, Jojoba is most like our sebum, something her skin may seriously require, & unrefined Shea is not only an excellent occlusive, but is a little can make this mix feel really wonderful to her. I'm sure you'll get all kinds of various support. Let us know what you come up with. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2003 Report Share Posted July 19, 2003 In a message dated 7/19/2003 5:56:43 PM Central Daylight Time, tigermtngear@... writes: > Studies show that people have a higher survival rate if they have a > specific, tangible > goal to work toward. Something in the future that she has to be a part > of..to see herself as a critical link in the chain of humanity SO true, ... and don't forget to joke around a bit when she's up to it - just like before this happened ... ask her when she's planning to hostess an at-home-spa party for you LOL - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2003 Report Share Posted July 20, 2003 Thanks so much for sharing. I really appreciate it. Best, Bobbi Guerra The Purple Sage Fine Hand Made Bath & Body Products www.thepurplesage.com - Now Open Re: Please Help > Bobbi, I'm so sorry about this! > > Due to the extreme sensitivity my MIL (who was also a nurse) had during her > many rounds with chemo, I agree with Dee that NO botanicals at all should be > used - not only for potential scratchiness but also for any potential > sensitization. Likewise, as lovely as colorants (natural or otherwise), fragrances, or > essential oils may be for most, this is not a time you'd want to feel > " responsible " for her becoming sensitized. I'd even omit milks, honeys, extra salts > from a soap, and sub all the water with aloe juice. > > Emu is an undisputed best choice, and perhaps something to help hold it .... > Meadowfoam is the oil that claims to hold moisture the longest, > Jojoba is most like our sebum, something her skin may seriously require, > & unrefined Shea is not only an excellent occlusive, but is a little can make > this mix feel really wonderful to her. > > I'm sure you'll get all kinds of various support. Let us know what you come > up with. > > - > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2008 Report Share Posted February 9, 2008 Please don't be scared to death. I felt the same way. Wasted a lot of time not living. But you do have to rest!!! As I am sure the list owner, (a wealth of help and information, as with the rest of this great group), and the others will attest. Are you going to a dermatologist? I had one that made me feel like that too! The Internet is a wonderful place for support, and you found the best!!! There are others on here that can give you more info then I can, but we are all in the same place, just took different roads to get here. So please, don't worry, its not the EN that is scary, it is whatever caused it, the not knowing factor that gets us, at least me. has had it for almost 40 years with no known cause. She is working hard to get funding so we can get to the bottom of this. I am sure she will bring you up to date on that. There are many ways to help in this funding. That is the sad part, that she and others have been fighting for answers for years. Please know you are not alone, Take care and stay with us! Be informed, be healthy! Debbie en 5-7Who's never won? Biggest Grammy Award surprises of all time on AOL Music. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2008 Report Share Posted February 9, 2008 Hi Debbie and Group,It is true that I have had chronic EN for 39 yrs. now, and I go into spontaneous remission without meds rather quickly--the last bout lasted only a week from start to end. I have no idea why I get it, and I only have it in my lower left leg. I am starting to think I may not have EN at all--maybe a cutaneous form of vasculitis. But so far, except for this, I am pretty healthy. I'm glad you brought up the research that is needed, Debbie. Basically I have read everything on EN that is available online and in medical text books. It is not hard to get up to speed as virtually NO original research has been done in the past 100 years. I am not being funny. This is true. There is some research that simply rehashes what has been figured out a century ago--but nothing new. With all the wonderful new research tools, EN has been totally overlooked. They think we are a symptom of one of over 100 different triggers or diseases. Yet in about half of us no trigger is ever discovered. This makes us more difficult to treat, and we often become chronic. So few doctors know much about EN, and it not their fault. I'm going to attach a file for members to help fund the research. And it will only take $35,000 to get it started. In the world of medical research, where you read about millions dollars to research, everything from a hangnail to heart disease, I think we should get busy and send in the money to make the research happen. $35,000 is a bargain!!! We can't expect to get big corporate funding if we don't get the research off the ground. So it has to start with us, the ones who are suffering.My recommendation is to elevate the legs and get some rest. Make sure you have had all the blood tests to rule out any illnesses that can trigger EN and review the list of Triggers on our EN Webiste. In my opinion, and I have no medical training, it is too early in the game to be resorting to steriods, although there are some members who I know disagree based on their own experience. Try not to be afraid, but at the same time be aware that EN is not a silly little rash that so many doctors make it out to be.Wishing Everyone a Happy and Pain-Free weekend!Love,idio. EN ;68Please enter Erythema Nodosum.........Thanks!Donation Information Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2008 Report Share Posted February 10, 2008 hi, first of all en is not a condition that will cause death, in most cases it has no connection to anything like cancer or lukemia. there often times are " triggers " or underlying causes, but then again, sometimes not. medrol...basically corticosteriod....like prednosone. first line defense to get the en under control. as long as you are not on it long term (i bet you have a dose pack), it should not be an issue and you most likely will find it will shorten the duration. leg rest is important also. jeff, pg, cd > > Hi, i am new to this group, and i am so glad i found it, because im so > scared and cannot find any answers. I was diagnosed with erythema > nodosum...they did a chest x-ray, all came out ok...now they put me on > medrol, which i am refusing to take, does that really help? because i > have alot of weird reactions to medicines and im scared to take it. > Will it really make a difference?? Its obviously not gonna heal me. > Anyway, i just wondered, is this a sign of lukemia or cancer or > something..im gonna have to ask the doctor next time, but he makes me > feel stupid. Do you all have this as a result of another health > problem? Please let me know...im only 27 and i have 2 little kids and > im freaking out that i'm gonna die lol...please help thanks > Quote Link to comment Share on other sites More sharing options...
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