Welcome new Member Caroline Cohen's Case History/Chronic EN for 20 yrs.

[Guest guest]

Dear Caroline,On behalf of all our members, welcome to our Erythema Nodosum Group! Thanks for sending in your Questionnaire. I have added your information to our "Member Medical History" Files on the Group site and posted it below.You now have Full EN Group privileges.You are receiving ALL EN Group emails, and you may also visit the Erythema Nodosum Group Site:http://health.groups.yahoo.com/group/erythema_nodosum_Group/ whenever you like by logging on with your Yahoo ID and secret password.You do not have to have the group emails delivered to be a member here. Let me know if you want the emails to stop.I hope you will remain a member here to support others even after you go into remission. Since EN IS NOT BEING ACTIVELY RESEARCHED, please take this opportunity to make a generous donation to our "EN Research Fund" to find a cure for this painful disorder.http://www.geocities.com/erythema_nodosum/donate/index.htm Also, please visit our new Erythema Nodosum Websitehttp://www.geocities.com/erythema_nodosum/ We intend to make it the best EN website on the net.Your EN history sounds a lot like mine. I have EN in my left lower leg with large, yet few lumps. I have had Chronic Idiopathic EN for 40 yrs. [this month]. I have never used prescription meds. I do use bed rest, leg elevation and currently compression bandages while I am on my feet. My EN too comes more often now, possibly due to the damaged tissue with each new outbreak.I belong to the Cohen Family originally from Russia. Maybe we are distant relatives.Welcome to our Friendly Erythema Nodosum Group!Love,Chronic Idiopathic EN since 1968**********Caroline Cohen's Case History7/1/081. Your name and age: Caroline Cohen2. Your location: London, UK3. Your email address: caroline@...4. Your Yahoo ID carolinecohen@...5. Describe your erythema nodosum/PG symptoms or, if you do not have EN or PG, please explain why you wish to join this group. I have had EN for 20 years and have had tests done again recently but all come back clear. They think it is associated with Strep bacteria that I got from Glandular Fever at 16. I used to have it all over my legs, but attacks now consist of one or two very painful lumps on each leg. For the past 10 yrs I have probably only had one or two attacks a year and have treated with steroids. For the past two months however I have been unable to git rid of my attack even with steroids. Hence the new round of tests. All clear and leaving me very frustrated and in pain. I get very tired and it hurts to stand/walk, and when I get knocked my children I am in agony. I am looking for advice, support and a way forward. Does anyone know anyone good to see in London so I can get a second opinion???? 6. List any other health conditions. None 7. State what medications or treatments you take for EN, and their effectiveness: Steroids - up until recently 30 mg/day for 5 days used to clear it up. 8. When did you first get erythema nodosum or PG? 16 years old9. How long have you had erythema nodosum or PG? Nearly 20 years10. Do you agree to treat all EN members with respect? yes11.Do you agree to post NO advertisements for any products or services? yes12. How did you find this Group? (Google, Yahoo, Ask Jeeves Search, referral from another group or person etc.) Google