Welcome New Member Jaques' Case History/Chronic EN for 26 yrs.

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Dear ,On behalf of all our members, welcome to our Erythema Nodosum Group! Thanks for sending in your Questionnaire. I have added your information to our "Member Medical History" Files on the Group site and posted it below.You now have Full EN Group privileges.You are receiving Special Notices ONLY EN Group emails, and you may also visit the Erythema Nodosum Group Site:http://health.groups.yahoo.com/group/erythema_nodosum_Group/ whenever you like by logging on with your Yahoo ID and secret password.I hope you will remain a member here to support others even after you go into remission. Since EN IS NOT BEING ACTIVELY RESEARCHED, please take this opportunity to make a generous donation to our "EN Research Fund" to find a cure for this painful disorder.http://www.geocities.com/erythema_nodosum/donate/index.htm Also, please visit our new Erythema Nodosum Websitehttp://www.geocities.com/erythema_nodosum/ We intend to make it the best EN website on the net.Sounds like you have left no stone unturned with regards to treatment options. We desperately need research to find more effective and safer options. I've had EN since I was 21 and am 60 yrs old now. I'm in a bad flare at the moment. I wish I had a cure for you and all our members, but you can be part of the solution and join me in telling younger members what they have to look forward to if the research is not funded. In the meantime we can at least offer support and compare notes. I'm glad you found us! We know what you are dealing with. Welcome to our Friendly Erythema Nodosum Group!Love,Chronic Idiopathic EN since 1968*********** Jaques' Case History1/31/08 1. Name: Age: 41 2. Location: Massachusetts 3. Email: prefer toady-66@... 4.Yahoo ID: kikikitty66 5. EN Symptoms: Below the knee (always) Always have 1-2 small non-discolored or slight red bumps. 2-3 times a year, I get a major flare-up. Within 1 day, a bump will get very red, hard, tender and swollen. At first,years ago, my EN had a deliberate cycle: 1 bump - flare - go away. But for the past 18 years, after children, the cycle is: A few bumps- 1 bump flares- starts to go down- then gets stuck in this stage. The worst was after my 1st child was born. It was the whole back of my calf. At night , I would have to get out of bed very slowly. If not, the blood would rush to my leg and I would just drop to the ground in pain. . 6. Other Health Conditions: None 7.Former Medications: Naproxin-SSKI-Colchicine-Indomethacin *** Current Medications: Methotrexate/Colchicine (The only med that works for me is Prednisone. Had been taking this 2x a year since I was 15. New Drs. thought future side effects(glaucoma/brittle bones)weren't worth taking anymore. Now I've been on a long list of meds which do not work!) 8.First got EN at age 15 - Diagnosed at age 18 9.I have had EN for 26 years 10.I agree to treat all members with respect 11.I agree to post no ads for any products or services 12.I found this group through a link in Yahoo Answers