1 year anniversary

[Guest guest]

Hello Everyone!

I have added a new link to the support group page - " Vasculitis

Survivors Network " . This site has a lot of info that is relevant to

EN patients.

I have also refreshed the 'words of inspiration' database.

This will marks the 1 year anniversary for the 'new and improved' EN

resource website.

In the last year, stats shows that the site has had between 350 -

600 hits each month and the visitors are from all over the world.

Thank for visiting the website, one day, I hope I can add a new

page " Cure for EN " .

With love,

[Guest guest]

I read all the e-mails every day and it brings me great comfort to know that I am not alone.

I am 36 and have had EN for 20 years. I am in the middle of my worst ever attack, lasting , so far, 5 months. With 3 children and a working part-time, at times I am struggling to keep it together. My husband is amazing , but I don't think that unless you have lived the EN nightmare, you can truly understand what it can do to a person. So thank you to everyone out there for sharing your thoughts and ideas and lets hope that one day there is a cure for this nightmare!

Caroline x (London, UK)

Re: 1 year anniversary

ni ~ those are beautiful words, thank you. is the driving force behind the website, without her this opportunity would never have been possible. Thank you for letting me help with maintaining this resource website. (((HUGS TO ALL))) With love, >> thanks for being you and having the heart that you have. You have > helped so much of us feel connected.> > ni> Alpha One Antitrypsin Deficiency with severe Panniculitis> Atlanta, GA> > ~~~~~~~> "I thank my God every time I remember you. In all my prayers for all of > you, I always pray with joy." (Philippians 1:3,4) > >