New Member

[Guest guest]

I can share magnet info. I have general info--history, med studies,

etc. if you want to know more. Sincerely & PASSIONATELY

SEXTON

wrote:

>

> Part 1.1 Type: Plain Text (text/plain)

> Encoding: quoted-printable

[Guest guest]

> Hi everyone I just joined the group the other day-can some of you

tell

> me the benefits and drawbacks of magnetic therapy? We're interested

in

> the mattress pad-know of the Nikken Co. and the Purity Co. - Alos

does

> anyone know of any info for people who use a patch med.-I hear then

you

> can't use magnetic therapy. Thanks donna

HI, Donna,

I use the magnets and have had nothing but fabulous results. In fact,

they have totally changed my life and I can do so many things today

that I had had to give up about 5 years ago. I honestly can say that

I hardly ever hurt anymore, whereas before the magnets I was hurting

24/7 and was pretty immobile.

I know of people who also use the magnets and have a patch for meds.

What must happen though is that the person must keep in touch with

the doctor to make sure that the med amount is maintained

accurately. What seems to happen is that there becomes a need to

reduce the meds, but only a physician should be in charge of making

the changes. This exact question has been asked several times, and

no, the magnets do not make the med patch to " empty out " as some

might think...it is more that one's system becomes healthier and the

need for the meds change. Once again, if using the patch with meds,

be sure a doctor is monitoring this.

It is necessary to get the doctor's or manufacturer's

approval,however, if one has an implanted

device run by battery(like a pacemaker, defibrillator, etc.) Many of

them have built-in shields now, but to be safe the doctor or

manufacturer of the device must be contacted first.

Good luck,

Jacque

[Guest guest]

Thanks Jacque for the information-can you tell me what company you use? We

have info for Nikken(but I dont quite understand their sleep system-and for

Purity Products-and don't know which is better. donna

ShadyNapa@... wrote:

>

> > Hi everyone I just joined the group the other day-can some of you

> tell

> > me the benefits and drawbacks of magnetic therapy? We're interested

> in

> > the mattress pad-know of the Nikken Co. and the Purity Co. - Alos

> does

> > anyone know of any info for people who use a patch med.-I hear then

> you

> > can't use magnetic therapy. Thanks donna

>

> HI, Donna,

>

> I use the magnets and have had nothing but fabulous results. In fact,

> they have totally changed my life and I can do so many things today

> that I had had to give up about 5 years ago. I honestly can say that

> I hardly ever hurt anymore, whereas before the magnets I was hurting

> 24/7 and was pretty immobile.

>

> I know of people who also use the magnets and have a patch for meds.

> What must happen though is that the person must keep in touch with

> the doctor to make sure that the med amount is maintained

> accurately. What seems to happen is that there becomes a need to

> reduce the meds, but only a physician should be in charge of making

> the changes. This exact question has been asked several times, and

> no, the magnets do not make the med patch to " empty out " as some

> might think...it is more that one's system becomes healthier and the

> need for the meds change. Once again, if using the patch with meds,

> be sure a doctor is monitoring this.

>

> It is necessary to get the doctor's or manufacturer's

> approval,however, if one has an implanted

> device run by battery(like a pacemaker, defibrillator, etc.) Many of

> them have built-in shields now, but to be safe the doctor or

> manufacturer of the device must be contacted first.

>

> Good luck,

>

> Jacque

>

> ------------------------------------------------------------------------

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>

[Guest guest]

Hi Edie,

Yes, I would like very much to know what natural products you are taking and

how it's helped you. I'm an FM sufferer for 20 years! I think I've tried it

all....and still it's there.

[Guest guest]

Hi Edie,

You can send the info to me by e-mail. I may have already tried it too. I

have been on a lot of nutritional products and also mlm nutritional products

but I interested in knowing what it is,thanks...Tonya

[Guest guest]

Edie -

congratulations on your health - I am also into alternative treatments and would love to hear about what lifestyle changes you have made - and what has worked for you. . .

thanks,

GW

New member

Hi everyone,I too, am a new member. I was told I had fibro in1994. I tried all the traditional treatments for thisdisorder, but found that none of it was veryeffective. So I stopped all meds. Recently, I havefound tons and tons of info all pointing to nutritionand allergens. So, I have made a lifestyle change. Ihave been virtually pain free for 1 yr. There is hopefor all of you. If you would like to hear more aboutmy experiences let me know. I did not want to boreeveryone on my first post. LOL :-). Wishing you a pain free day!!EdieWant to earn $500-$800 p/t at home. No inventory orselling. Ask me how. eesp90@...__________________________________________________

[Guest guest]

Hi everyone,

I got involved with a catalog company called

Melaleuca. However the reason I got involved with

them started out as financial. Becasue of my Fibro

and my son's ADHD I really need to give up my job.

But, I still needed to a job to maintain our standard

of living. As a car sales person the easiest thing

for me was to sell something. Hubby works nights

making all the demo parties impossible. This I could

do from home. So it began.

At first I did not believe the claims they made. Then

as my son's health became problematic aside from just

the ADHD he had symtoms of Tourette's and a rash for 3

years that would not quit, asthma and all kinds of

other stuff. Then for laughs I decided that I would

try the exact products I was touting. For him I took

him off all his meds and changed his soaps, shampoo,

bubble baths, laundry detergent. Lo and behold the

rash went away in 1 week. Then I started him on

vitamins, once again his teacher called and said " hey

who is the new kid " . I was in shock.

Now the true test was could it take away my pain. I

now have had a car accident because the meds I take

leave me too disconected. I started on thier vitamins

and also cleared out all the chemical cleaners from my

home. I take my vitamins everyday and try to

excercise 3 times a week (this is easy w/a 10 year

old) and I feel better than I ever have in my whole

life. No more wake up in the morning w/a med

hangover, or feeling disconected.

Hope this will restore some faith for all of you. If

I can help let me know. I have tons of info to share.

This is just my experience.

Edie

__________________________________________________

[Guest guest]

Could you give some more information about these

Maleleuca products?

Thank you,

Gloria

Re: new member

>

> Hi everyone,

>

> I got involved with a catalog company called

> Melaleuca. However the reason I got involved with

> them started out as financial. Becasue of my Fibro

> and my son's ADHD I really need to give up my job.

> But, I still needed to a job to maintain our standard

> of living. As a car sales person the easiest thing

> for me was to sell something. Hubby works nights

> making all the demo parties impossible. This I could

> do from home. So it began.

>

> At first I did not believe the claims they made. Then

> as my son's health became problematic aside from just

> the ADHD he had symtoms of Tourette's and a rash for 3

> years that would not quit, asthma and all kinds of

> other stuff. Then for laughs I decided that I would

> try the exact products I was touting. For him I took

> him off all his meds and changed his soaps, shampoo,

> bubble baths, laundry detergent. Lo and behold the

> rash went away in 1 week. Then I started him on

> vitamins, once again his teacher called and said " hey

> who is the new kid " . I was in shock.

>

> Now the true test was could it take away my pain. I

> now have had a car accident because the meds I take

> leave me too disconected. I started on thier vitamins

> and also cleared out all the chemical cleaners from my

> home. I take my vitamins everyday and try to

> excercise 3 times a week (this is easy w/a 10 year

> old) and I feel better than I ever have in my whole

> life. No more wake up in the morning w/a med

> hangover, or feeling disconected.

>

> Hope this will restore some faith for all of you. If

> I can help let me know. I have tons of info to share.

> This is just my experience.

>

> Edie

>

>

> __________________________________________________

>

[Guest guest]

Edie,

What specific products are you taking? I'm all ears!!!!

[Guest guest]

isnt there a moderator for this list?? We're supposed to be discussing FMS

treatments; not getting seduced by scammers. I did email the person by the

way and of course before I make the mega bucks " working from home " I have to

pay a $30 start up fee. What a joke.

[Guest guest]

Hi . Thank you. I love doing the rescue. It keeps my mind off of my

troubles, and helps me to focus my energy on others that need help and

encouragement. My husband and two children are so supportive as well....I

think that somehow or someway this disease has to be hereditary or

environmental because I know far too many people who have the " coincidence "

of having family members that have it as well... What do you think? What

kind of diet do you do? Tell me more please!

Shay, Max, Samson, and all of the rescue crew...

(Samson I, Walter, Ralph, Jake, Tina Marie, Sebastian, Bogie, Curly, and Bear)

[Guest guest]

Hi Shay,

I love the email address! Pugs are such cute, snorting little dogs and rescue

work is a very honorable thing to be proud of:) I have a chihuahua and a doxie

that would agree *grin*

Ive had FMS symptoms for the last 13 years or so but only have been Dx'ed since

march. My mother has it so I had no real need to get a Dx.

Ive given up on the medical community and have started treating my FM with

diet

and herbs. Its much cheaper and for me it seems to work much better than the

standard meds with no side effects to my body or my bank account:)

Ive got more support from my husband and daughter than any person has a right

to have, lol. Both are wonderful and help me out at the times when i need it

PugHugs72@... wrote:

> Hello all...please excuse my screen name. I primarily use this email address

> for my rescue of pug dogs, but I wanted to check and see if there were any

> groups for sufferers of FMS....Wow were there. My name is Shay. I am a 28

> yr. old female who was diagnosed with FMS about eight years ago. I am

> anxious to hear how your are all dealing with your disease and how your

> family's support you in this ever present struggle. Have a Merry Christmas!

> Shay, Max, Samson, and all of the rescue crew...

> (SamsonI, Walter, Ralph, Jake, Tina Marie, Sebastian, Bogie, Curly, and Bear)

>

>

>

[Guest guest]

Thanks so much . I really appreciate it...I did not know that it did

run in families...so strange the way these things work huh?

Shay, Max, Samson, and all of the rescue crew...

(Samson I, Walter, Ralph, Jake, Tina Marie, Sebastian, Bogie, Curly, and Bear)

[Guest guest]

Shay,

I have been told that FMS does tend to run in families, lol, that could be why

i

have several aunts that have it and my 17 yr old daughter as well. The diet

follow

is actually for " candida " yeast over growth. the symptoms are alot like FMS and

im

not really certain that two aren't connected. I started the diet and within 2 or

3

days the intensity of my symptoms decreased so much that i went from hardly

being

able to get out of bed to now pulling muscles because i do too much. I still get

alot of the achy and soreness but it most of the time i can just work through it

and im fine the next day. I eat mainly whole foods. No white flour, white rice

or

refined sugars and alot of vegetables and meat. I dont eat alot of

carbohydrates

but i do eat some. Also i dont eat processed foods. If I eat it then i try and

cook it for myself to avoid all the chemicals and such. I can sure tell the

difference now with the holidays im eating alot of the foods i usually stay away

from so ive been alot more sore and tired than usual

PugHugs72@... wrote:

> Hi . Thank you. I love doing the rescue. It keeps my mind off of my

> troubles, and helps me to focus my energy on others that need help and

> encouragement. My husband and two children are so supportive as well....I

> think that somehow or someway this disease has to be hereditary or

> environmental because I know far too many people who have the " coincidence "

> of having family members that have it as well... What do you think? What

> kind of diet do you do? Tell me more please!

>

> Shay, Max, Samson, and all of the rescue crew...

> (Samson I, Walter, Ralph, Jake, Tina Marie, Sebastian, Bogie, Curly, and Bear)

>

>

>

[Guest guest]

Hi Shay, I applaud you for trying to help the dogs. I have found lots of

others with fibro on the internet but only an 11 year old child in real life.

Right now I have a cold and am trying to explain how it makes me so tired to

those I live with who dimply cannot understand. It really gets frustrating

sometimes. Take care and remember there are lots of us out there who

understand what you are going through.

Cathie

[Guest guest]

I have a large family and no one else has this thing except me so far. I was

told my childhood trauma was a contributing factor.

Cathie

[Guest guest]

Robinul is a substitute for guai, which made me sick to my stomach after

about 2 years on it. I mix the whey (www.needs.com) with the powdered

inositol and take it in the morning. I am purging like crazy, and my skin

is clearing along with the fatigue and brain fog.

If you want to do the guai you need to get the book (www.guaidoc.com), start

slowly, and eliminate salycilates, both oral and topical. This is all

covered in the book.

Hugs, Roseanna in NoCal; FMS/CFS/Hg toxic; hypothyroid; food allergies;

amalgam free; guai/robinul 8/99, 1/2 T undenatured whey, 6 liver flushes,

1/2 tsp inositol powder; 80% better

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

[Guest guest]

8/99 was when I started the guai.

Hugs, Roseanna in NoCal; FMS/CFS/Hg toxic; hypothyroid; food allergies;

amalgam free; guai/robinul 8/99, 1/2 T undenatured whey, 6 liver flushes,

1/2 tsp inositol powder; 80% better

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

[Guest guest]

I started reading " Freedom from Fibromyalgia " the 5 wee program proven to

conquer pain " by Selfridge, M.D. and lynn , a writer,

both who had FM. It's quite an eye opener. They work a program based on Dr.

Sarno's work with back pain. It's available from Three Rivers

Press/Random House. Thanks for all your help. I hope you find something in

this book for you. Jean

>

>Reply-To: fibromyalgiacured

>To: fibromyalgiacured

>Subject: Re: New Member

>Date: Mon, 04 Mar 2002 16:12:57 -0800

>

>Robinul is a substitute for guai, which made me sick to my stomach after

>about 2 years on it. I mix the whey (www.needs.com) with the powdered

>inositol and take it in the morning. I am purging like crazy, and my skin

>is clearing along with the fatigue and brain fog.

>

>If you want to do the guai you need to get the book (www.guaidoc.com),

>start

>slowly, and eliminate salycilates, both oral and topical. This is all

>covered in the book.

>

>

>Hugs, Roseanna in NoCal; FMS/CFS/Hg toxic; hypothyroid; food allergies;

>amalgam free; guai/robinul 8/99, 1/2 T undenatured whey, 6 liver flushes,

>1/2 tsp inositol powder; 80% better

>

>

>_________________________________________________________________

>Chat with friends online, try MSN Messenger: http://messenger.msn.com

>

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

[Guest guest]

Dear Lynn,

You said:

<<Thank you for your response. What I am being told, and do not have the

documentation in my hands to give you exact number is that my liver enzymes

are high. ( I do have preliminary bloodwork results at home).>>

** It's difficult to comment on this without seeing some of the data. For

instance, which tests are elevated, how high, and how significantly they are

elevated gives clues to the problems. Elevations could be the result of

medications. Some of the most common are nonsteroidal anti-inflammatory

drugs (NSAIDS), antibiotics, HMG-CoA reductase inhibitors (the statin drugs

given for high cholesterol), antiepileptic drugs, and antituberculous drugs.

Diseases (diabetes included) or infections, overuse of alcohol, primary

liver or gall bladder problems can also be some of the causes of elevated

liver enzymes. I'm assuming you've been tested for hepatitis...?

You said:

<<I had an EDG, and a colonoscopy because I am having tremendous stabbing

pain at the sternum. They check the gallbladder and did sonograms. only to

find my pancreas was " bulky " and they could not see the liver....so I react

to CT dye, so we did an MRI, with results of " within normal

limits " ---whatever that means!!!>>

** Were the blood pancreas enzymes checked? Is there ever any fever or

vomiting associated with the stabbing pain in the sternum?

" Normal limits " , <grumble, mumble>. Why do they do this (a rhetorical

question)? Do you think you can get the actual numbers?

You said:

<<In the last year, I have been diagnosed as diabetic...although I have had

gestational diabetes....it became an issue for me recently... I also have

been diagnosed with chronic fatigue/fibromyalgia--I know a catch all

diagnosis....since they have not found anything significant...they are going

to do a stress test (Thalliium) and echocardiagram on Monday..... in the

meantime....the new meds are not something I am comfortable with

either....nexium, glucophage.....

I have been doing cleansing/healing for about a year...the most recent with

herbs cats claw tea/royal camu/royal macca.....with no real results, some

minor....pms symptoms are not as significant....but then that whole thing is

not working well either (cycles).... so at the risk of sounding like a

hypercondriac......thats the story. >>

** More than cleansing, Chinese medicine would suggest organ support

here (more on this later after more facts emerge).

How's your body temp regulation? Do you tend to feel too hot or too cold

ever?

As far as the CFS/FM, I'm not surprised. This is a common occurrence for

people who have taken these drugs. People who successfully treat these

syndromes mostly agree that restoring damaged enzymes is the goal here.

Without this, numerous food and drug sensitivities will exist and the body

will assimilate very littel of what you eat/take.

In another post, you mentioned difficulty taking supplements because of

stomach problems. You said:

<<I do have acid reflux, and my stomach hurts and does not digest

supplements..>>

** This is a lack of digestive enzymes. This is one of the first places

to start. My favorite, after evaluating many, is CapraZyme

http://www.primaldefense.net/caprazyme.htm

By restoring digestion one's body is better able to break down and

assimilate foods and supplements. I agree with you. I don't like the Nexium

either. It further inhibits digestive enzymes.

How is your bowel function (don't say " shitty " ;-)).

I hope you don't mind all the questions; they are quite necessary. Hang

in there; we'll explore the possibilities with you given your unique

situation right now.

Regards,

[Guest guest]

Welcome. I am very fond of the Efiert/Forsyth book, because it was

where I first learned about ACT. Let us know how you get on.

>

> Dear All,

>

> I am Ewetian who just joined your forum. I am working my way through

Acceptance & Commitment Therapy for Anxiety Disorders of Georg Eifert

and Forsyth here in Africa. I thought it will be helpfull to be

part of a community around ACT for me to learn and to contribute,

rather than to learn in isolation.

>

> I am excited about this opportunity. Thank you for allowing me into

your community.

>

> Kind regards

> Ewetian

>

[Guest guest]

Ewetian, Welcome. I am here to learn with others, also. GoldieArie Bouwer wrote: Dear All, I am Ewetian who just joined your forum. I am working my way through Acceptance & Commitment Therapy for Anxiety Disorders of Georg Eifert and Forsyth here in Africa. I thought it will be helpfull to be part of a community around ACT for me to learn and

to contribute, rather than to learn in isolation. I am excited about this opportunity. Thank you for allowing me into your community. Kind regards Ewetian __________________________________________________

[Guest guest]

Hi " Tillergirl " ,

You have never experienced a remission in 19 yrs? How horrible!!!

Have you ever afforded yourself the luxury of bedrest for an extended

period of time? As I told the extensive tissue damage may be

done, but I'd give rest and support stockings a try.

Potassium Iodide usually works very quickly if it is going to work at

all, so after a few weeks you'd know.

My heart goes out to you because as bad as I am, I have always managed

to get back into remission. I have never used medication for EN, just

rest and support hose.

Before the group was founded, I too didn't know of a living soul who

shared my disorder.

Love,

idio. EN since '68

[Guest guest]

, your story sounds very familiar. My EN started in my shins after running. Mayo started me at 60 mgs. of Pred. I'm tapering and currently at 17 mgs. I have no nodules this week. I also take 400 mgs.hydroxichlorquine. You mentioned that your immune system was down. I was just curious if your white count is in the normal range. My is not and in fact has been very low. Good luck and good health...Lou New member Hi, I'm (UK member). Unfortunately I accidently deleted the questionnaire I was asked to complete so I will try and detail my experience as best as I can. I was diagnosed with EN 5 weeks ago. Mine started with the hot, red painful lumps on both lower legs. I eventually ended up with 32 nodules at it's worst (limited to lower legs except for one on my arm). My GP diagnosed very quickly and started me on 40 mgs Prednisilone. My main problem however has been the joint pain experienced in both hip joints.

My mobility has been pretty bad (couldn't get up/down stairs, drive etc). After a failed attempt at getting off the steroids I am now looking like i'm succeeding this time. The nodules have begun to regress and the joint pain is getting a little better each day - I have managed a gentle return to work this week. The cause of my EN is questionnable. I am normally fit and well, I had some jaw surgery in January which appears to have left my immune system down as since then I seemed to catch every bug going inc sinusitis and a throat infection. I am not on the contraceptive pill but did have an attempt at IVF in February which meant I was on high doses of oestrogen and progesterone - so my GP is unsure of a specific cause (it could be all of the above)! I am very glad to have found this group as information has been sketchy at best from my doctor. I will always respect the

members of this group. I guess what I'm looking for is expanding my knowledge of living with EN (as I'm unsure of whether my apparent recuperation will last, whether I will experience any new flares or if I will have to live with this for an indeterminate period of time). I hope aswell to help educate my GP a little more ;-) Thank you for listening, and thanks already for what I am learning from here already!

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

, your story sounds very familiar. My EN started in my shins after running. Mayo started me at 60 mgs. of Pred. I'm tapering and currently at 17 mgs. I have no nodules this week. I also take 400 mgs.hydroxichlorquine. You mentioned that your immune system was down. I was just curious if your white count is in the normal range. My is not and in fact has been very low. Good luck and good health...Lou New member Hi, I'm (UK member). Unfortunately I accidently deleted the questionnaire I was asked to complete so I will try and detail my experience as best as I can. I was diagnosed with EN 5 weeks ago. Mine started with the hot, red painful lumps on both lower legs. I eventually ended up with 32 nodules at it's worst (limited to lower legs except for one on my arm). My GP diagnosed very quickly and started me on 40 mgs Prednisilone. My main problem however has been the joint pain experienced in both hip joints.

My mobility has been pretty bad (couldn't get up/down stairs, drive etc). After a failed attempt at getting off the steroids I am now looking like i'm succeeding this time. The nodules have begun to regress and the joint pain is getting a little better each day - I have managed a gentle return to work this week. The cause of my EN is questionnable. I am normally fit and well, I had some jaw surgery in January which appears to have left my immune system down as since then I seemed to catch every bug going inc sinusitis and a throat infection. I am not on the contraceptive pill but did have an attempt at IVF in February which meant I was on high doses of oestrogen and progesterone - so my GP is unsure of a specific cause (it could be all of the above)! I am very glad to have found this group as information has been sketchy at best from my doctor. I will always respect the

members of this group. I guess what I'm looking for is expanding my knowledge of living with EN (as I'm unsure of whether my apparent recuperation will last, whether I will experience any new flares or if I will have to live with this for an indeterminate period of time). I hope aswell to help educate my GP a little more ;-) Thank you for listening, and thanks already for what I am learning from here already!

Looking for last minute shopping deals? Find them fast with Yahoo! Search.