Comments from a new Member

[Guest guest]

I am so relieved to find this support group. I just joined, and have

been trying to catch up. I have only read the newest members

questionnaires, which I can relate to. I would like to read others -

can someone let me know how I can do this?

My experience with EN in summary: When I went to my Dermatologist for

the red flare-ups on my shin he diagnosed it immediately, which was

confirmed with a biopsy. I told him I had taken 1 session of Chlomid

the month before and he confirmed that EN could be a side-effect from

Chlomid. We assumed it was, I took prednisone, we thought it would

be gone but every time I went off prednisone the EN would come back

strong. His course of action was to try very strong and somewhat

dangerous medications (I'll have to look up the names and report

back), which meant that I could not pursue pregnancy for 2 years.

I have my blood tested every 3 months to make sure the prednisone is

not affecting my organs. I have several doctors because I live in

Alaska and have a home in Washington, and each doctor has indicated

that EN is a result of something else happening in my system. This

has been going on for 3 years now. When I last saw my Dermatologist

I asked " what next? " He said that short of checking myself into

a " teaching hospital " I may have to just live with it. He also said

that there is such a thing as Erythema Nodosum For No Cause. My step

is to see a Rheumatologist.

Sorry for the lengthy message, but I wanted to let other members know

in more detail, why I joined this group. No one I know has ever even

heard of EN, so I look forward to hearing from members who can relate.

Thanks,

Marilee