Guest guest Posted November 24, 2000 Report Share Posted November 24, 2000 hi everyone...happy thanksgiving.just wanted to share with you my concerns for olivia. she is 15 months old today and finished helmet therapy in july after 5 months. i made an appointment for a followup with her neurosurgeon for next week because i'm afraid she has regressed. her head never really rounded out but she did get beautiful facial symetry. the ears are off and one of her eyes looks funny to me. maybe i'm staring at her too much...maybe she's going through a growth spurt...maybe too much craniosacral massage...too little???many many questions here on my part. my mother mention to me in the car on the way to relatives houses today for dinner that she thought livie looked different lately. i've noticed it too and didn't want to mention to anyone what i thought. does that happen? do they regress like that? i'd say the bump is back on the left side in the back. she did have some bossing in the forehead but that seems to have disappeared. i spoke to the oral surgeon i work with who is also on staff at children's hospital in boston and he said sometimes children who have moderate to severe plagio like livie do regress. he also said that i would probably be referred for additional xrays and referrals to the opthomology,ent, and oral maxillofacial clinics at childrens hospital for evals. i'm so sad. with everything we've been through the past 11 months i really don't know if i can take it. helmet therapy will be harder this time i think because she flips out if i even put a winter hat on her and try to tie it under her neck. any thoughts on older children/second helmets/regression would be greatly appreciated it. thanks, lynne and livie. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2001 Report Share Posted April 28, 2001 Thanx for the update, . You must be so relieved that a decision has been made! ) Kendra in CanadaFor more plagio info, go towww.plagiocephaly.org/support ----- Original Message ----- From: lisabnc@... Plagiocephaly Sent: Friday, April 27, 2001 8:35 AM Subject: Second Band Hello Friends,Thought I'd give you an update on my daughter, . received her DOC band on February 12th at 6.5 months old. She is very close to growing out of the first band, I'd say a couple more days. As some of you know, we visited the neurosurgeon last week to see if would need a second band. The doctor left it up to us. (I hate that, it should not be allowed) The doctor's issue was the fuller cheek. One cheek is slightly fuller than the other. Everything else looks pretty good. My husband and I went back and forth on the issue of rebanding and I turned to several of you for advice. We have decided to go with a second band. We go in for the casting on Tuesday morning. I'm sooo glad that we have made the decision. Hopefully we will continue to get fast results and she will not have to wear it very long. Any suggestions for casting day? I wonder since she is a little older if it will be harder on her. What has been your experiences? has her 9 month check up on Monday and I'm going to ask for a referral for PT. She has not been diagnosed with tort but has a slight tilt (some days). I'm afraid that tight neck is going to cause developmental delays. I will keep you posted.Thanks for your continued support. B., Charlotte For more plagio info Quote Link to comment Share on other sites More sharing options...
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