Exercise

[Guest guest]

Hi,

I wanted to say a few words about exercise. When I first started having

pain, I was very timid about movements that seemed to hurt me and stopped

getting enough exercise. Not only did this not make me feel any better, but

I lost muscle tone and strength that I've never been able to recover. I

finally learned that exercising with great caution could make me feel better

and prevent, at least to some degree, further deterioration. Don't worry

about what so-called experts say; do only what you can do reasonably

comfortably, even if that means starting at with one repetition, one lap, no

weights, going really slowly, etc. Don't push to increase anything on any

predetermined schedule. I've found I can do more if I break things up and

do them throughout the day rather than all at once.

Ellen

[Guest guest]

Hi, Ellen, and others out there,

I have fought through the years, with my fibro,

and loosing muscle and endurance, to the point

that I finally went to a PT. But the bad part

was that my progress was so slow, that SS wouldn't

pay for more than 15 visits!!

I have read that some people do water therapy,

which, is really wonderful, but I do not live

even close to a pool, so I have been looking

for excercise machines in which I could duplicate

the motions I went through at PT.

The two best by far, are 1) a SKI type machine,

it must be sturdy, and have the long bars you

hold onto with your hands, like ski poles.

Not the rope type (such as Nordic trac)

This is very low impact, but still moves the body,

esp. if you are like me, and cannot walk much

anymore.

The other I just found the other day, and I LOVE

It!!!!!!! I hate to be a commercial, but if you

use this machine, TO YOUR ABILITY, Not to an

arobic standard, or to a tape, the results are

wonderful. It's called HEALTH RIDER, their not

easy to find used, but I did, and I am already

addicted, using it several times a day, to try

and pull the knots out of my back.

Hope this helps, P.S. I love bouncers too, but

I have troubles with balance, and not getting

out of breath.

> Date: Mon, 27 Mar 2000 19:35:15 -0500

>

> Subject: re: exercise

>

> Hi,

>

> I wanted to say a few words about exercise. When I

> first started having

> pain, I was very timid about movements that seemed

> to hurt me and stopped

> getting enough exercise. Not only did this not make

> me feel any better, but

> I lost muscle tone and strength that I've never been

> able to recover. I

> finally learned that exercising with great caution

> could make me feel better

> and prevent, at least to some degree, further

> deterioration. Don't worry

> about what so-called experts say; do only what you

> can do reasonably

> comfortably, even if that means starting at with one

> repetition, one lap, no

> weights, going really slowly, etc. Don't push to

> increase anything on any

> predetermined schedule. I've found I can do more if

> I break things up and

> do them throughout the day rather than all at once.

>

> Ellen

>

>

>

>

_______________________________________________________________________________

>

_______________________________________________________________________________

>

>

>

>

__________________________________________________

[Guest guest]

I have had EN for 2 months now. The pain in my joints is definitely

getting better, but I still need Mortin everyday. I have always been a

faithful exerciser and am anxious to get back to it now that I'm

starting to feel better. The problem is that the day after I taken a

good walk, etc, I am sorer than before. I don't want to set my healing

back. What have you long-termers found with exercise? Does it make the

EN worse? Is it better to wait until the EN is completely gone? All

advice apreciated!!!

[Guest guest]

I do pilates and yoga and I have not been hurting my healing process

while doing so... maybe try something that is low impact?

>

> I have had EN for 2 months now. The pain in my joints is definitely

> getting better, but I still need Mortin everyday. I have always been

a

> faithful exerciser and am anxious to get back to it now that I'm

> starting to feel better. The problem is that the day after I taken a

> good walk, etc, I am sorer than before. I don't want to set my

healing

> back. What have you long-termers found with exercise? Does it make

the

> EN worse? Is it better to wait until the EN is completely gone? All

> advice apreciated!!!

>

[Guest guest]

I have had EN continuously since 03/07 now. The

initial outbreak was bad but since then it has been

manageable with Naproxen as needed.

I have exercised all the way through this. I am also

just plain active. Can't just sit around kind of

person. This may be the reason I have had 3-4 nodules

since then and maybe not??

I did take a 2 month break and quit all exercising.

That made me feel worse!!! My joints Really stiffened

up, especially my hips, it hurt to walk. I started

back exercising and this went away.

I do Yoga class 2x/week and bellydance class 2x/week.

Also, practice on my own. Some days/hours I hurt and

some days I'm OK. I just go as much as is comfortable

for me.

It all boils down on whats important to you.

Take Care,

Vicki

--- wae2travel wrote:

> I have had EN for 2 months now. The pain in my

> joints is definitely

> getting better, but I still need Mortin everyday. I

> have always been a

> faithful exerciser and am anxious to get back to it

> now that I'm

> starting to feel better. The problem is that the day

> after I taken a

> good walk, etc, I am sorer than before. I don't want

> to set my healing

> back. What have you long-termers found with

> exercise? Does it make the

> EN worse? Is it better to wait until the EN is

> completely gone? All

> advice apreciated!!!

>

>

________________________________________________________________________________\

____

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[Guest guest]

,

I think I should explain that I am in the group of members who only

experiences the nodules and have no joint pain associated with

EN--just the lumps. For me standing and walking prolongs the lumps. If

you have no nodules, I'd think light exercise is fine as joint pain is

the residual effects of EN, which should go away with or without

treatment, according to what I have read.

Love,

idio. EN '68

[Guest guest]

Hi , I have found that I have to wait until my EN is completely gone as well before I can go back to my walking and my visits to curves.It is a very frustrating thing as I am an overweight person and really need to keep up with exercise.My EN usually hangs around for about 6 weeks.That is a long time to try not to over do it.I can't say that I lay around..but when the pain is the worse I do take time off work and keep my feet up..it truly is the best thing for me.It helps the swelling and the inflammation. Donna EN

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[Guest guest]

Exercise without weight bearing. Find mat workouts for Pilates and yoga. I never did weight lifting, but I suppose there is that to do lying down as well. Tina pg 2006wae2travel wrote: I have had EN for 2 months now. The pain in my joints is definitely getting better, but I still need Mortin everyday. I have always been a faithful exerciser and am anxious to get back to it now that I'm starting to feel better. The problem is that the day after I taken a good walk, etc, I

am sorer than before. I don't want to set my healing back. What have you long-termers found with exercise? Does it make the EN worse? Is it better to wait until the EN is completely gone? All advice apreciated!!!

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[Guest guest]

Here here! I did the same thing back in July or so. I try to listen much better now. I am a quicker learner these days Ü

Debbie en 5-7Start the year off right. Easy ways to stay in shape in the new year.

[Guest guest]

All I know is that if something hurts - it is hurting for a reason so

you probably shouldn't exercise. Listen to what your body is telling

you. I had really bad joint pain aswell as the bumps. I am an active

person and I really missed exercising. Before I knew waht I had I

went to a physio. She suggested that I go aqua jogging. I did that

and my swelling blew up to twice the size and my feet were throbbing

for days. It really did me some harm and I don't think I would have

got as bad as I did if I listened to my body and stopped what I was

doing because it hurt. I could exercise when I was on prednisone

though. Maybe you have to decide what you want because you can't

always have the best of both worlds I figure. Ease the pain and lie

down or exercise and pay for it!

-- In erythema_nodosum_Group , " kennel_mother "

wrote:

>

>

> Hi everyone.

>

> I seem to remember some postings a while back about exercise and

> EN. I can't remember if the thread was along the lines of

> exercising during a flare up aggravates the condition or whether it

> was that exercise can possibly cause a flare up - maybe one of you

> can put me right on that bit!

>

> I just wanted to say that after far too long being inactive my

> husband bought me a course of 10 sessions on some 'toning tables'.

> Basically you work your way around 6 different exercise tables with

> each one working a different part of the body with the overall

> effect being to tone up the flabby bits! (Not sure how that will

> work as I have a lot of flabby bits to tone! - may need a good deal

> more than the 10 sessions I think!)

>

> Each table's exercising takes 8 minutes, the first one is

a 'rowing'

> type action, another almost folds you in half and you have to

> flatten the lower section of the table by pressing down with your

> feet/legs, another has two pads - one for each bottom cheek, which,

> when switched on wobble that part of you!! You have to remember on

> each one to hold in your tummy and clench your buttocks in order

for

> it to start working effectively. In addition to these tables the

> place also has a Chi massager which you place your slightly

elevated

> ankles on and then whilst lyng flat it wobbles you from head to

toe!

> That one is very relaxing:-) The tables do take more physical work

> than I expected but having been 3 times so far I haven't noticed

any

> untoward lumps appearing (or flab disappearing either:-( )

>

> I was wondering if anyone else had tried this form of exercising

and

> if so had they got on OK with it or had it caused problems with the

> EN?

>

> I just hope that the toning up works and that the lumps stay

> dormant. It's been about a year since I had my last flare up and

> I'm keeping my fingers crossed that it stays that way.

>

> Night night for now

>

>

>

[Guest guest]

<<Ease the pain and lie down or exercise and pay for it!>>

I agree with this observation 100% and I have too often paid for it. I

had to learn the hard way.

Love,

idio. EN'68

[Guest guest]

Glad to hear someone else mention the chi massager. I'm very curious. Anyone else with experience? Tina pg 2004volvoham wrote: All I know is that if something hurts - it is hurting for a reason so you probably shouldn't exercise. Listen to what your body is telling you. I had really bad joint pain aswell as the bumps. I am an active person and I really missed exercising. Before I knew waht I had I went to a physio. She suggested that I go aqua jogging. I did that

and my swelling blew up to twice the size and my feet were throbbing for days. It really did me some harm and I don't think I would have got as bad as I did if I listened to my body and stopped what I was doing because it hurt. I could exercise when I was on prednisone though. Maybe you have to decide what you want because you can't always have the best of both worlds I figure. Ease the pain and lie down or exercise and pay for it!-- In erythema_nodosum_Group , "kennel_mother" wrote:>> > Hi everyone.> > I seem to remember some postings a while back about exercise and > EN. I can't remember if the thread was along the lines of > exercising during a flare up aggravates the condition or whether it > was that exercise can possibly cause a flare up - maybe one of

you > can put me right on that bit!> > I just wanted to say that after far too long being inactive my > husband bought me a course of 10 sessions on some 'toning tables'. > Basically you work your way around 6 different exercise tables with > each one working a different part of the body with the overall > effect being to tone up the flabby bits! (Not sure how that will > work as I have a lot of flabby bits to tone! - may need a good deal > more than the 10 sessions I think!)> > Each table's exercising takes 8 minutes, the first one is a 'rowing' > type action, another almost folds you in half and you have to > flatten the lower section of the table by pressing down with your > feet/legs, another has two pads - one for each bottom cheek, which, > when switched on wobble that part of you!! You have to remember on > each one to hold in your tummy and clench

your buttocks in order for > it to start working effectively. In addition to these tables the > place also has a Chi massager which you place your slightly elevated > ankles on and then whilst lyng flat it wobbles you from head to toe! > That one is very relaxing:-) The tables do take more physical work > than I expected but having been 3 times so far I haven't noticed any > untoward lumps appearing (or flab disappearing either:-( )> > I was wondering if anyone else had tried this form of exercising and > if so had they got on OK with it or had it caused problems with the > EN?> > I just hope that the toning up works and that the lumps stay > dormant. It's been about a year since I had my last flare up and > I'm keeping my fingers crossed that it stays that way.> > Night night for now> >

>

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[Guest guest]

Are you only referring to weight bearing exercise, or all exercise? While not in the flat out pain of erruption phase with all the swelling, I find exercising while lying down wonderful. I think I would go nuts if I had to lie around for the 5-6 months it usually takes for my lesions to heal. Tina pg 2004 <<Ease the pain and lie down or exercise and pay for it!>>I agree with this observation 100% and I have too often paid for it. Ihad to learn the hard way.Love,idio. EN'68mohtherof2@... wrote: Here here! I did the same thing back in July or so. I try to listen much better now. I am a quicker learner these days Ü Debbie en 5-7 Start the year off right. Easy ways to stay in shape in the new year.

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Hi Tina,

My EN has always been shortlived. It goes from start to finish in less

than 3 weeks if I get enough rest. And only the left leg is affected

in one area near the ankle on the inside of the leg. I wear my

compression hose all the waking hours and if I am careful I can keep

up with my in house chores, without much bed rest even when I am

flared up. When I feel better I garden and shop.

Until a few yrs ago I was a gym rat and I miss it, but found I could

not stay in remission and use the elliptical machine, so I am not

getting the cardio I need. This really disgusts me and is a catch 22.

May of us are in this pickle. I don't think I would achieve remission

if I went to the gym. Would it be better to stay flared up constantly

and work out in spite of EN? I don't think it is. Too much talk of the

dangers of chronic inflammation, in my opinion.

Love,

idio. EN '68

[Guest guest]

Hi All,

The info on the aquarobics came as a disappointment to me, as Hubby

suggested I try it and it sounded like it was a good alternative to

regular gym workouts. He thought the water made you more buoyant and

that there would be less weight and stress on the legs. Glad I did not

have to " learn this the hard way " .

Love,

EN '68

[Guest guest]

Yes. I swim every week and during my erupting phase to swim as

quietly as I could just was unbareable. Kind of odd for something

that is so stress free for your joints and really is second nature

for me. I was on prednisone for a month or so before I started again.

They did help alot. I just wanted to feel my heart pumping and to

feel alive. I ended up in the middle of the pool kind of helpless.

People must have wondered what on earth I was doing! When I tried

aqua jogging I was doing this because I was so stiff the physio

thought I need to work and stretch. This is why i kept doing it even

though it hurt. ( Thought I pulled my achiles - big lump on it) I

thought that my elbows hurt and my other foot hurt because I was

putting all my weight on them 24/7. You do these exercises with your

hands on your shoulders. I couldn't even do that! Oh the swelling!

When I was starting to come right and come down off my steroids I

started exercycling. I was still recovering quite quickly and

surprisingly little in pain. It could have been helping me. I think

that you just have to find YOUR limit. Everyone is different.

>

>

> Hi everyone.

>

> I seem to remember some postings a while back about exercise and

> EN. I can't remember if the thread was along the lines of

> exercising during a flare up aggravates the condition or whether it

> was that exercise can possibly cause a flare up - maybe one of you

> can put me right on that bit!

>

> I just wanted to say that after far too long being inactive my

> husband bought me a course of 10 sessions on some 'toning tables'.

> Basically you work your way around 6 different exercise tables with

> each one working a different part of the body with the overall

> effect being to tone up the flabby bits! (Not sure how that will

> work as I have a lot of flabby bits to tone! - may need a good deal

> more than the 10 sessions I think!)

>

> Each table's exercising takes 8 minutes, the first one is

a 'rowing'

> type action, another almost folds you in half and you have to

> flatten the lower section of the table by pressing down with your

> feet/legs, another has two pads - one for each bottom cheek, which,

> when switched on wobble that part of you!! You have to remember on

> each one to hold in your tummy and clench your buttocks in order

for

> it to start working effectively. In addition to these tables the

> place also has a Chi massager which you place your slightly

elevated

> ankles on and then whilst lyng flat it wobbles you from head to

toe!

> That one is very relaxing:-) The tables do take more physical work

> than I expected but having been 3 times so far I haven't noticed

any

> untoward lumps appearing (or flab disappearing either:-( )

>

> I was wondering if anyone else had tried this form of exercising

and

> if so had they got on OK with it or had it caused problems with the

> EN?

>

> I just hope that the toning up works and that the lumps stay

> dormant. It's been about a year since I had my last flare up and

> I'm keeping my fingers crossed that it stays that way.

>

> Night night for now

>

>

>