Re: Welcome to fibromyalgiacured

November 17, 2000

This is amazing! I'm so glad I found your site! In January 1998, after my

own recovery, I started a support group for people with fibromyalgia/chronic

fatigue syndrome. We named it Getting Well because getting well is the focus

of our meetings. The group grew rapidly. I wrote a leaders guide to help

other people start Getting Well groups in their area. There have been 30 some

groups started throughout the US plus existing groups that are now

incorporating Getting Well into their meetings. We have now evolved into a

nonprofit organization called Fibromyalgia Coalition International. FCI will

be hosting the International Awareness Day conference here in Kansas City May

11 & 12, 2001. Speakers include three doctors who will talk about what

people can do to reverse FM/CFS and two women who have been well for 7-8

years well tell us how they did it.

Thanks for all you do to offer hope to suffering people!

Keeny, Executive Director

Fibromyalgia Coalition Int'l

www.fibrocoalition.org

January 19, 2001

Hello everyone:

I have just been diagnosed with FMS. I have joined this group desperate to

find information on coping skills and cures for FMS. Thought this would be

the best way to get help. I have just moved to Syracuse, NY. I was

wondering if anyone has found any connection between Chiari malformation and

FMS. I have (had) a full-time job as a paralegal but find it hard to even

get out of bed most days. I do find that starting the day with a hot bath

helps sometimes if I can stand the hot water on my skin. Does anyone have

numbness in the extremities? My hands (to my elbows) and feet (to my

calves) are numb most of the time. If anyone else experiences numbness I

would like to know what you have done to help this.

Welcome to fibromyalgiacured

>

> Hello,

>

> Welcome to the list. Please take a moment to review this message.

>

> Fibromyalgia cured !

>

> Read Archives of this list:

> http://www.onelist.com/archives.cgi/fibromyalgiacured

>

> _______________________________________________

>

May 11, 2001

Welcome to the group. Does anyone know who started the fibrocured

site,gallbladder site,etc. , for some reason I thought it was you:>)

Whoever got all of the info together did a GREAT job.......Tonya

May 11, 2001

Hello everyone,

I have just recently joined your group and would like to introduce myself.

I am a person who is trying to improve my health by doing the right things

(whatever they may be.) A friend of mine was looking at this list and has

read a number of Hulda books. It seems like there is information out

there for people who have symptoms of Fibromyaligia. I could easily just

ask my friend for advice or I could do some of the searching myself. I

think using both sources would be of benefit. My frind is knowledgeable and

takes the time to research. At the same time I need to know specifically

what I need to do for myself since it is my body and my health I am trying

to deal with. I think this list will be helpful in finding help.

So far I haven't told you much about myself. I do suffer from certain

fibromyalgia symptoms however, have not been diagnosed by a doctor. I am

able to work as a substitute teacher and can function for the most part. I

am not struggling terribly with pain and exhaustion so I am able to function

fairly well. I would like to function better since I have had moments when

I have felt really good. At that time I felt like a different person. I am

a caring person and I have friends who suffer with poor help. I try to

understand and help them in the best way that I can.

Sincerely,

May 11, 2001

if you haven't been diagnosed you might want to do that. a rheumatologist

might be a good place to start., once the symptoms get bad, you won't want

to do the running around it takes to get a formal diagnosis for disability

etc.

also, there are other diseases that act similarly to FMS...Lyme Disease, MS,

Lupus...just to name a few,.

take care

r.