clearing up misunderstanding (long)

[Guest guest]

Wow, i must have made this post really confusing, i didnt

mean to. These are not my symptoms, Arizona had posted and Ellen had

responded, I was responding to Ellen.... I have heard Dr Lowe speak

several times and have his 1000+ page, very technical book. His

protocol has helped 2 of my very close friends control the fibro. He

treats Fibro and a metabolic dysfunction ie: hypothyroid. And gets

results!! Arizona went to see him and had some progress but her MD

will not prescribe the meds needed for the next steps. Ellen was

unaware of this ( I think) and was telling her what she already

knows. I was giving and explanation to Ellen and all of you (at least

that is what i was attempting to do) about why fibro LOOKS like

hypothyroidism and why Dr Lowe treats it successfully as just that.

His hypotheses gives explanation for almost all of the common

symptoms of fibro. He said once that some of his patients are taking

enough T3 to kill someone that doesnt need it and yet they are well.

I am relatively pain free (well, compared to 10 years ago

anyway) I still have myofascial pain some of the time and so do my

friends, but all three of us are working and pretty functional. I

know that i dont have any life threatening Dx such as MS or Lyme's.

I am so sorry that so many of you and so many undiagnosed

people out there have such a hard time with the MDs. Many of the

rheumatologists are working on the serotonin deficiency without even

looking at what has caused it. The theory just doesnt hold much water

once you have seen the documentation that Dr Lowe has presented.

Even if it did, they still are not treating the cause and are only

temporarily helping with meds. (if you are lucky).

I also have been on several natural health groups and I

believe that many of the answers are found there as well. Most of

them take a LOT of work. Change of diet, not consuming poisons,

fixing the leaky gut, etc. Many people are removing all the silver

fillings from their mouth, mercury being the poison there, drinking

pure water and lots of it (chlorine and floride = poison). So many

of the things that we done give much thought to because the

government has said that it is OK. So much of this info sounds

strange and untrue at first, but the more you read and educate

yourself, the more it makes sense.

I have been blessed with being in the right place at the

right time i suppose. There are 2 MDs here Holistic doctors that are

willing and able to help people get well, and I have heard several

Naturopathic Doctors speak in the subject also. I have listened to

many fibro victims talk about how difficult it is to get diagnosed. I

was dignosed when the word Fibromyalgia was new, but they still told

me to " go away, we cant help you " . At least it wasnt all that bad yet

when that happened. I found Myotherapy and it helped a lot. Now i do

something similar called myofascial trigger point therapy for a

living and I can help many people with fibro to get at least the pain

aspect of it better controlled. With my education I can help them

find these doctors that will help them with the other aspects.

The biggest problem is that there are very few trigger point

therapists out there and few doctors that are doing much to help

people with fibro. Most of the time YOU know more than the Dr, YOU

have done more research, YOU KNEW what you had long before the Dr

would give you a diagnosis. Somehow that doesnt say much for the Drs

as a whole does it?

Anyway,, rant over. below i have included the posts in

question, I hope this clears things up. thanks

>____________________________

>

>Message: 13

> Date: Wed, 7 Nov 2001 00:37:22 -0500

>

>Subject: temps and thyroid function

>

> The thyroid tests are deceiving because the hormones are

>there. Many times there is not a problem with the gland at all, it is

>doing its job. The problem is that the cells are not using the T3, so

>one still gets the symptoms of hypothyroidism ie: fibromyalgia. If

>the symptoms didnt say " hypothyroid " the drs wouldnt be doing the

>tests over and over. The things that Dr Lowe looks for are -- low

>temp, slow relaxation response on reflex test (Dr hits your achilles

>tendon at the ankle and it jumps but relaxes slowly), high

>cholesterol, lack of eyebrow hairs at the lateral end of the brow,

>weight loss or gain, low energy, pain, etc. As a person in the

>audience said, " a boy scout could see it " But the MDs would rather

>believe the tests than think. It is the same as a person eating, but

>not having the ability to use the nutrients. The nutrients are there,

>the person is starving and dies. Is the person not dying of

>starvation because the doc saw the food go in and the person poops it

>out?? All the symptoms say there is a problem, but will the doc

>ignore the fact that the person has symptoms of malnutrition. Maybe

>they do..

>

> Arizona has been under the care of IMHO the most educated

>person on the fibro/hypothyroid connection, she knows what she is

>talking about. Dr Lowe also treats the invaders and nutrition part

>of the picture. He has helped many people and will continue to do

>so. 10 years from now someone in the AMA will come up with the same

>idea and be a hero, but for now most MDs have blinders on and will

>continue to treat fibro with drugs and more drugs and not treat the

>real problem, just cover up the symptoms. The same way they treat

>heart disease and cancer. I am not saying that every one that has

>fibro is hypothyroid, there are so many other things that are causing

>the problems. Leaky gut, statin drugs, endocrine system, chemicals

>and poisons in the food and environment, parasite and yeast

>infestations and myofascial pain (Trigger points) are all in the

>picture.

>

> I KNOW that he has many of the answers and i am so sad that

>it is soooo difficult to get the proper treatment. Pray for the docs

>to look outside the box, and take the blinders off.

>

>Thanks for listening

>anomie

>

Arizona's post-------

> > Thanks Ellen,

>> I could have told any doctor who would listen that I feel all those

>> things even with just a slightly low thyroid but according to Dr. Lowe,

>you

>> don't even need to have a low thyroid at all to have these problems

>because

>> for some reason, many Fibromyalgia patients have these symptoms with

>normal

>> thyroid test results.

>> Arizona

>>

Ellen's response-----

> > > Arizona,

>> >

>> > doctors do not pick up on slightly low thyroid conditions but they still

>can

>> > cause problems.... tiredness , weight gain , etc... check out this

>website

>> > and read how you can test yourself at home for low thyroid and some

>natural

>> > means of stimulating the thyroid as well...

>> >

>> > http://www.theherbhouse.net/thyroid.html

>> >

>> > Ellen

>--

>

TJ's posts------

> > Anomie,

>It sounds like you may have FMS from the way you desribe it. Please

>be careful as others could possibly redescribe it for you. Make sure

>you have been tested that you don't have MS, Lupus, FMS, etc. These

>are very serious illnesses that could be life threatening.

>It sounds like what you are going through is awful and I sure feel

>for you you! You make my pain feel simple and I watch this line every

>night. But I know your pain and it is awful and you feel miserable

>all the time. I love you Anomie!

>As a friend, Love, TJ

>

>I hope and pray you are still with us! Keep On Anomie!

>

>Love and Hugs,

>

>TJ

>

>Anomie,

>I am going to reply again because I did not think I did do a good job

>of reading your message the first time. I am so sorry things are not

>going well for you but I have been going through the same problem.

>These doctors don't know or want to know shit about this illness. I

>went to 5 of them here in Des Moines, IA and they treated me like

>shit. I ended up going to Mayo in Rochester, MN to get a final

>diagnosis and they diagnosised me to the tune of $10,313 which I

>will probably be stuck with $3,000 or more. These doctors don't

>understand FMS in Des Moines. They treat me like I am crazy! I

>finally found one that treats me nice and is very FMS friendly.

>I can't believe it took so long! It's best to go to a rheumatologist

>or holistic doctor. I do to the holistic one as she treats primarily

>with dietary supplements. As I am not into narcotics, etc.

>I wish you sucess hon and if you ever need someone to talk to I am

>here!

>Lots of support and love,

>

>TJ

>

>________________________________________________________________________

--

anomie

" Pain is the common enemy of all mankind "

Fall Equinox 2001

NAMTPT web site

http://www.myofascialtherapy.org