Re: I Am New To The Group - Diane

October 10, 2006

Diane,

My moms -lewy- days had some good days mixed in. Those good days are the ones

that I remember, and it wasn't hard to forget the worst.

From the many stories that people have shared on this list, often it isn't

-Lewy- that actually causes the end. Frequently it is the complications.

When my mom's hip went during a fall, she lost so much in her brief hospital

stay. This is a common theme, that hospital meds given during the stay are

devistating on our loved ones with LBD.

After some dark valleys, we had some sunny days that we really appreciated.

My mom's final decline was very brief, and caught us by surprise.

We didn't do an optopsy, but my guess is that her heart failed.

This group helped me a lot. I too, spent a lot of hours reading posts and

gleaning information.

Dann

Diane wrote:

October 10, 2006

Hi Dann,

Thanks for writing. Yes, I am too trying to enjoy the good days but

they are getting less and less. I try to keep her out of the hospital

although a few times I went against the Doctor's wishes. Before I knew

it was LBD Mom was on anti-dep and Resperidal...tried Aricept...these

always made her worse. Now I know why. I finally decided about 6

months ago to take her off everything. She did much better. Then I

found out about LBD. I am trying a low dose of Exelon and she seems to

be tolerating it very well. As far as any Mental health meds she is

not going back on them at this point as long as I have anything to say

about it. I find I really have to advocate for her or else they just

want to fill her up on meds. Not her primary care Doctor A but all the

specialists we have seen. So, I stay away from them as much as

possible. <smile>

Have a great day...

Thanks again,

Diane

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