in AU

[Guest guest]

For those of you on the list that remember and

, I got this on another list I'm on..

Casey

>Subject: Fw: Aussie Update

>Date: Thu, 15 Oct 1998 22:04:02 +1000

>

> Just a very brief Aussie update - brief because I

am feeling pretty

> emotionally wrung out..........

>

> Wednesday afternoon suffered a full cardiac

arrest. He required CPR

> for a few minutes and came around but was without

oxygen for about 5

> minutes in total.

>

> We transported him to the Children's Hospital (not

without drama - an

> ambulance collision) By this time he was stable but I

suppose the best

way

> of describing it was " neurologically injured " . He was

unable to talk,

> sit or even stay conscious for very long.

>

> The ped and neuro tried to reassure me that they

thought he would make a

> full recovery because his responses were good

considering.

>

> He tried crashing again a couple of times during the

night - the big

> problem being in trying to stabilise his blood pressure

which was very

very

> low (50/24), heart rate and temperature. But he made it

through and then

> around 4 o'clock he woke up and it was like someone

flicked a switch and

he

> was almost his normal self.

>

> We were to stay in the hospital for a while but

unfortunately many of

> the treating doctors have decided that it is not worth

trying to do

> anymore

for

> him. So after discussing it with his ped we decided that

rather than

> sitting in the hospital worrying and feeling frustrated to

bring him

> home and just to return for follow ups next week. At

home I can worry

> but I

can

> also be amongst you guys, advocate better and find

doctors who will help

> :-)

>

> So my big need at the moment is to find a cardiologist

that we can talk

to

> - not to actually do anything but rather to discuss the

pros and cons of

> putting a pacemaker in and whether there is anything

else that we can

> do. After that we can decide what the next step should be.........

> anyone

know

> someone? Also an intensivist to discuss home resus issues.

>

> If anyone needs more info throw the questions my way I should regain a

> little more emotional energy after some sleep........ Thanks for your

> prayers - they worked - is here!

>

> Take Care and

> Keep Looking for Rainbows!!

> , mum to (4, T-18 mosaic, Shapiro

Syndrome)

> http://homepages.tig.com.au/~karens

> ICQ Pager: http://wwp.mirabilis.com/4723851

>