Guest guest Posted October 6, 1998 Report Share Posted October 6, 1998 I am interested in any information on the Cochlear Implant and The Shapiro syndrome. My son Trynton has been diognosed with CHARGE since birth. He is now 4 1/2 yrs. old. He also has seizers, alot of allergies, G-tube fed, browns syndrome, apnoea, sleep depervation, low immune system, temperature fluxuations, failure to thrive, wide swings in heart rate and blood pressure, and he has recently had the Cochlear Implant done. Any information that anybody can give us would be greatly appreciated, or someone who just wants to talk is more then welcome to write. Thank you Debra (mother of Trynton) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 1999 Report Share Posted January 28, 1999 Dila, Hi ! And welcome to the list! I hope we get to hear more about your little 4yr old boy real soon! Mom to Kennedy 1 yr CHARgEr, 9, 7 and wife to Graeme New Brunswick Canada -- Graeme & Weir gweir@... http://www.geocities.com/SunsetStrip/Palms/5716 *ICQ* UIN:1426476 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 1999 Report Share Posted January 29, 1999 Hi Dila, I have a 4 year old son with Charge too. Welcome to the list, I hope that you can find the help you need here. It is full of great people and great information! Jacque Clifton Austin's mother Rose Hill, Kansas, USA Quote Link to comment Share on other sites More sharing options...
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