Re: Getting ready to start LDN (Rebif)

[Guest guest]

--- In low dose naltrexone , " Roskelley " <dave@r...>

wrote:

>

> My wife was recently diagnosed with RR/MS (July 2005) and has been

taking

> Rebif ever since (~5 months). We have been excitedly reading about

LDN and

> have just recently filled the prescription (3mg). Any opinions on

how long

> my wife should be off Rebif prior to starting LDN? We understand

that the

> two conflict with one another.

>

> Thanks,

>

> DCR

>============

She can start LDN tonight and not take her Rebif from there. The

sooner LDN is started the better. Where did you get script filled and

what filler is being used? Is the pharmacy using Pure Naltrexone

Powder or crushing the ReVia Naltrexone pills?

[Guest guest]

> >

> > My wife was recently diagnosed with RR/MS (July 2005) and has

been

> taking

> > Rebif ever since (~5 months). We have been excitedly reading

about

> LDN and

> > have just recently filled the prescription (3mg). Any opinions

on

> how long

> > my wife should be off Rebif prior to starting LDN? We

understand

> that the

> > two conflict with one another.

> >

> > Thanks,

> >

> > DCR

> >============

>

> She can start LDN tonight and not take her Rebif from there. The

> sooner LDN is started the better. Where did you get script filled

and

> what filler is being used? Is the pharmacy using Pure Naltrexone

> Powder or crushing the ReVia Naltrexone pills?

>

>

,

We had the prescription filled at Skip's and my research suggests

he's one of the better (if not best) pharmacies for LDN. Thanks for

the response. Just curious, are you speaking from experience?

DCR

>

[Guest guest]

I quit Rebif on a Monday and started LDN on Thursday only because I had to wait for prescription to be filled. Dr. B knew this and said it was fine ..no waiting is necessary. Good luck to your wife and welcome her to our world!!!..... There is great support here!! Kiki (PPMS on LDN 2 1/2 yrs..no progression)

[Guest guest]

> > >

> > > My wife was recently diagnosed with RR/MS (July 2005) and has

> been

> > taking

> > > Rebif ever since (~5 months). We have been excitedly reading

> about

> > LDN and

> > > have just recently filled the prescription (3mg). Any opinions

> on

> > how long

> > > my wife should be off Rebif prior to starting LDN? We

> understand

> > that the

> > > two conflict with one another.

> > >

> > > Thanks,

> > >

> > > DCR

> > >============

> >

> > She can start LDN tonight and not take her Rebif from there. The

> > sooner LDN is started the better. Where did you get script filled

> and

> > what filler is being used? Is the pharmacy using Pure Naltrexone

> > Powder or crushing the ReVia Naltrexone pills?

> >

> >

>

> ,

>

> We had the prescription filled at Skip's and my research suggests

> he's one of the better (if not best) pharmacies for LDN. Thanks for

> the response. Just curious, are you speaking from experience?

>

> DCR

> >

>

=======

I'm an LDN user 2 1/2 years for Progressive/Relapsing MS from 1989 to 2003.

July 2003 started 4.5mg LDN with Pure Naltrexone Powder and Lactose filler. MS

has been halted dead in its tracks for 2 1/2 years on LDN. I use Cantrell Drug

in Little Rock, Arkansas. I'm allergic to Avicel, the filler Skip uses...causes

me nausea, headache and near vomiting. Skip uses Pure Naltrexone Powder and so

does Irmat in NY(the pharmacy Bihari uses). I have spoken to Cantrell Drug,

Irmat and Skip about their naltrexone choice and get the same response from all

as to why it is so important to use the pure powder over the crushed naltrexone

tablets. You can speak to the pharmacists and they are willing to share this

info with you.

[Guest guest]

--- In low dose naltrexone , <rich1101hiro@y...>

wrote:

>

> Hi Bren

>

> I'm not in the position to speak to the pharmacists you mention (I live in

Japan), and your post has made me a little concerned. I have just begun using

LDN in tablet form (that's all I can get hold of at the moment) , dissolving the

tablet into distilled water and making 3.5 - 4.5 mg doses with it.

>

> You said you know " why it is so important to use the pure powder over the

crushed naltrexone tablets " . Could you share this information? I'm only asking

as I want to optimize my usage and increase effectivenss of LDN.

>

> As it's impossible for me to find this information, could you (or someone

else) explain why we should obtain powder? If so, does anyone know of a source

that I can tap.

>

> Sincerely

>

> (LDN/Best Better)

======

The (PNP)Pure Naltrexone Powder has no fillers so a precise measurement can be

obtained that way. With the Naltrexone tablets they have fillers and precise

measuring is not 100%. It's okay the way you are doing LDN but if somehow you

could find a pharmacist who can get the PNP that'd be best. Only licensed

pharmacists can get the PNP.

[Guest guest]

Thanks Bren!

So, the tablets I am using may have too much or too little

Naltrexone in them then? If anything too little I'd wager. There

is no way of getting complete accuracy unless I get the powder.

This seems obvious, but I had overlooked this on my initial boost

given by LDN. I think that I had better go the 4.5 route in case

the dose's are too low.

I'm going to research what is in the fillers? Do we know? Does it

contain dairy/gluten because if so it clashes with my Best Bet

diet.

I will continue crushing the tablets until I can get hold of a

pharmacist who can get the PNP. I'm going to see a neurologist in

March and will hopefully have translated some of the crucial

information into Japanese, but even then my hopes of getting a Dr to

look this way is slim. Will try though.

Thanks for making me think more about dosage, Bren:) I'm overjoyed

to have gotten hold of Revia/LDN in the first place, but one must

look for the best possible effects.

Best wishes,

> >

> > Hi Bren

> >

> > I'm not in the position to speak to the pharmacists you mention

(I live in Japan), and your post has made me a little concerned. I

have just begun using LDN in tablet form (that's all I can get hold

of at the moment) , dissolving the tablet into distilled water and

making 3.5 - 4.5 mg doses with it.

> >

> > You said you know " why it is so important to use the pure powder

over the crushed naltrexone tablets " . Could you share this

information? I'm only asking as I want to optimize my usage and

increase effectivenss of LDN.

> >

> > As it's impossible for me to find this information, could you

(or someone else) explain why we should obtain powder? If so, does

anyone know of a source that I can tap.

> >

> > Sincerely

> >

> > (LDN/Best Better)

> ======

>

> The (PNP)Pure Naltrexone Powder has no fillers so a precise

measurement can be obtained that way. With the Naltrexone tablets

they have fillers and precise measuring is not 100%. It's okay the

way you are doing LDN but if somehow you could find a pharmacist who

can get the PNP that'd be best. Only licensed pharmacists can get

the PNP.

>