Guest guest Posted January 5, 2006 Report Share Posted January 5, 2006 Hi , I don't think it has run its course. But lets try and figure out what is going on. First off, you have MS, is that right? What fillers are you using and who is your pharmacist? What is your diet like? What other supplements and meds are you taking? Do you take the DLP in the morning on an empty stomach and then again in the afternoon on an empty stomach? Are you using the Solary brand? Have you tried putting your LDN in liquid (pouring it out of the capsule into liquid)? Have you been checked for Lymes? I will e-mail you some of the previous chats regarding fatigue. Hang in there and hopefully we can get to the bottom of what is going on for you. Aletha [low dose naltrexone] naltrexone not working anymore >I am looking for some responses to a problem in am now encountering. I > have been on ldn (starting with 3mg and now on 4.5mg) for approx 6 mos > now. I have noticed in the past week that it doesnt seem to be working > the same as before. I even took the advice from this website to add the > DL-phenylenamine to enhance/prolong the endorphines. I am back to being > fatigued and sore all over and not sleeping at night too well due to > pain in the hips, shoulders, etc. I am on enough meds as it is and I > really dont want to add anymore to the list. I'm wondering if I should > drop the LDN ....i.e. (has it run its course?). > > If anyone has any ideas about what is going on, please e-mail me. > > As always.....thank you to everyone. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2006 Report Share Posted January 5, 2006 I wondered if LDN had stopped working for my wife. It was everything but a miracle in the first 2 months. Then came fertility hormones, surgery, stop of hormones, exacerbation, IV steroids, bad sinus infection, major stress and major summer heat, worst exacerbation ever, more IV steroids. That spanned 16 months. We hoped LDN would make things better during the last exacerbation and negate the need for steroids. We gave it 4-6 weeks after the major stress and hot weather were gone but to no avail. It may have been unrealistic to expect such results or maybe if we had waited longer LDN alone would have worked. I now do not believe LDN has stopped working for . She's doing better than ever and the very bad MS symptoms of the last exacerbation are slowly disappearing, now after the time period when IV steroids alone would normally still be making significant improvements for her. There is a developing pattern on this group of people having substantial problems after any surgery. I know that in 's case sinus infections are detrimental. In her case, at least, she doesn't realize she has one until I notice her MS symptoms worsening much and ask to probe her face for sinus pain (she has MS and doesn't feel the internal pain and pressure except in the form of headaches, which she has anyway). By then we realize she's had subtle sinus infection symptoms for 2 months or so. I think stress is the real killer, for those with MS or without. It's quite a catch-22, of course, reducing stress, but it's very important. cscob@... wrote: >I am looking for some responses to a problem in am now encountering. I >have been on ldn (starting with 3mg and now on 4.5mg) for approx 6 mos >now. I have noticed in the past week that it doesnt seem to be working >the same as before. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2006 Report Share Posted January 6, 2006 I started on 3 mg and was doing well untill I started te 4.5 mg....I was on it for a month and I was going downhill. so I stopped for 10 days and started the 3.0 mg back up again.....That seemed to do the trick for me,,,,,doc said it could of been because I jumped up to the 4.5 to fast. So If I go up again it is going to be baby steps. --- cscob@... wrote: > I am looking for some responses to a problem in am > now encountering. I > have been on ldn (starting with 3mg and now on > 4.5mg) for approx 6 mos > now. I have noticed in the past week that it doesnt > seem to be working > the same as before. I even took the advice from > this website to add the > DL-phenylenamine to enhance/prolong the endorphines. > I am back to being > fatigued and sore all over and not sleeping at night > too well due to > pain in the hips, shoulders, etc. I am on enough > meds as it is and I > really dont want to add anymore to the list. I'm > wondering if I should > drop the LDN ....i.e. (has it run its course?). > > If anyone has any ideas about what is going on, > please e-mail me. > > As always.....thank you to everyone. > > > > __________________________________________ DSL – Something to write home about. Just $16.99/mo. or less. dsl. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2006 Report Share Posted January 6, 2006 Hi , What meds are you on? Maybe there is a conflict with LDN? What are you eating? Are you on the Best Bet Diet for MS? Don't drop the LDN! It is still working for you and may be working in spite of something happening in your life. Are you under a lot of stress right now? Terria On Thu, 05 Jan 2006 14:55:45 -0500 cscob@... writes: I am looking for some responses to a problem in am now encountering. I have been on ldn (starting with 3mg and now on 4.5mg) for approx 6 mos now. I have noticed in the past week that it doesnt seem to be working the same as before. I even took the advice from this website to add the DL-phenylenamine to enhance/prolong the endorphines. I am back to being fatigued and sore all over and not sleeping at night too well due to pain in the hips, shoulders, etc. I am on enough meds as it is and I really dont want to add anymore to the list. I'm wondering if I should drop the LDN ....i.e. (has it run its course?).If anyone has any ideas about what is going on, please e-mail me.As always.....thank you to everyone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2006 Report Share Posted January 6, 2006 , the following comes from Dr. Lawrence's MS/LDN protocol: At any time, there may be an increase in symptoms during the treatment. This increase in symptoms may be due to one of a number of conditions. 1) The dose of LDN may have become excessive. This may occur as the body begins to respond more efficiently to the drug, when the dose used may become more inhibitory than stimulant. This is readily confirmed by the observation that symptoms improve during the break period (see " Intermittent therapy " , LDN Information sheet). In this circumstance the dose is simply reduced to the previous effective dose. 2) The increase in symptoms may be due to an exceptional degree of stress. This may be associated with infection (eg, UTI; URTI); anxiety (eg, due to grief, marriage breakup, moving house); or excessive tiredness, simply by trying to do too much (eg, working long hours, or excessive heat exposure). Obviously, these problems must be dealt with according to the relevant circumstances. Exceptional stress in MS (often referred to as oxidative stress) may also be improved by taking the full range of basic antioxidants (selenium, plus the vitamins E, C, and beta carotene. Please see information sheet on Diet and Nutrient Therapy), perhaps also including the plant-based flavonoid antioxidants, anthocyanidins (see information sheet). Hope it's helpful. Quote Link to comment Share on other sites More sharing options...
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