Re: thank yous and a question about restarting ldn.

[Guest guest]

Welcome , LDN should be started immediately. I do not know if you have MS but with MS you should not stop LDN ever or you risk having an attack or progression. There is not a waiting period unless you have been on opiates. Don't know your situation. Welcome back....Kiki

[Guest guest]

Hi ,

Thanks for the kind words for the group. Please let me know if I have not

sent you a copy of the welcome e-mail packet that we have been trying to

circulate. I am having a difficult time remembering to whom it has been

sent out to.

My best

Aletha

[low dose naltrexone] thank yous and a question about restarting ldn.

> hello.

>

> i just wanted to send a big shout and say thank you to this community.

> your candor and

> steadfastness in helping out, as each newcomer surfaces with the same

> questions and fears

> has been outstanding in my experience reading the posts over the past few

> months. i would

> like to give very special thanks to marsha smith, who originally turned me

> on to ldn and this

> newsgroup, and to carolina van der lande, someone i've never met, who

> graciously sent me

> some liquid measuring equipment from the netherlands when i couldn't find

> anything

> suitable in france. i've met this kind of warmth time and again, and it is

> this kind-

> heartedness, more than anything, that has made the challenge of this

> malady a positive, even

> welcome, new road.

>

> on a lesser note, i was wondering if anyone could tell me the best way to

> " restart " ldn. is

> there a recommended waiting period, or any factors i should be concerned

> about? will it be

> less effective because of the break in treatment? i'm sorry if this

> subject has already been

> addressed, but i couldn't find anything in the archives.

>

> thank you!

> i wish you all the very best year to come.

> lisa.

>

>

>

>

>

>

>

>

[Guest guest]

And I would like to say "Thank You" for everyone's patience, no matter how many times the same question or request is asked . . . Thank you!!!thepapineau <thepapineau@...> wrote: hello.i just wanted to send a big shout and say thank you to this community. your candor and steadfastness in helping out, as each newcomer surfaces with the same questions and fears has been outstanding in my experience reading the posts over the past few months. i would like to give very special thanks to marsha smith, who originally turned me on to ldn and this newsgroup, and to carolina van der lande, someone i've never met, who graciously sent me some liquid measuring equipment from the netherlands when i couldn't find anything suitable in france. i've met this kind of warmth time and again,

and it is this kind-heartedness, more than anything, that has made the challenge of this malady a positive, even welcome, new road.on a lesser note, i was wondering if anyone could tell me the best way to "restart" ldn. is there a recommended waiting period, or any factors i should be concerned about? will it be less effective because of the break in treatment? i'm sorry if this subject has already been addressed, but i couldn't find anything in the archives.thank you!i wish you all the very best year to come.lisa.

DSL Something to write home about. Just $16.99/mo. or less

[Guest guest]

HI LISA!!

So happy to hear from you way over in my beloved Paris! You are

welcome! I'm thrilled that you started LDN and keeping up with this

message board! Great!

love,

Marcia

At 06:05 PM 1/4/2006 +0000, you wrote:

>hello.

>

>i just wanted to send a big shout and say thank you to this community.

>your candor and

>steadfastness in helping out, as each newcomer surfaces with the same

>questions and fears

>has been outstanding in my experience reading the posts over the past few

>months. i would

>like to give very special thanks to marsha smith, who originally turned me

>on to ldn and this

>newsgroup, and to carolina van der lande, someone i've never met, who

>graciously sent me

>some liquid measuring equipment from the netherlands when i couldn't find

>anything

>suitable in france. i've met this kind of warmth time and again, and it is

>this kind-

>heartedness, more than anything, that has made the challenge of this

>malady a positive, even

>welcome, new road.

>

>on a lesser note, i was wondering if anyone could tell me the best way to

> " restart " ldn. is

>there a recommended waiting period, or any factors i should be concerned

>about? will it be

>less effective because of the break in treatment? i'm sorry if this

>subject has already been

>addressed, but i couldn't find anything in the archives.

>

>thank you!

>i wish you all the very best year to come.

>lisa.

>

>

>

>

>

>

>

>

[Guest guest]

--- In low dose naltrexone , " thepapineau " <thepapineau@y...>

wrote:

>

> hello.

>

> i just wanted to send a big shout and say thank you to this community. your

candor and

> steadfastness in helping out, as each newcomer surfaces with the same

questions and fears

> has been outstanding in my experience reading the posts over the past few

months. i would

> like to give very special thanks to marsha smith, who originally turned me on

to ldn and this

> newsgroup, and to carolina van der lande, someone i've never met, who

graciously sent me

> some liquid measuring equipment from the netherlands when i couldn't find

anything

> suitable in france. i've met this kind of warmth time and again, and it is

this kind-

> heartedness, more than anything, that has made the challenge of this malady a

positive, even

> welcome, new road.

>

> on a lesser note, i was wondering if anyone could tell me the best way to

" restart " ldn. is

> there a recommended waiting period, or any factors i should be concerned

about? will it be

> less effective because of the break in treatment? i'm sorry if this subject

has already been

> addressed, but i couldn't find anything in the archives.

>

> thank you!

> i wish you all the very best year to come.

> lisa.

>

=========

,

When you were on it before what dose were you using? Did you have any adverse

problems with LDN the first try? If you had no problems before then start out

on the same dose as you did the first time. If you had problems the first time

start at a smaller dose and gradually build up to either 3.0mg or 4.5mg.

[Guest guest]

hi kiki. thanks for your response. i do have ms, and knew that i might risk a

relapse, but i

had to stop for a bit.... after getting over the first few weeks of no sleep

(insomnia was

nothing new), i was starting to see some relief with the numbness, clumsiness

and sharp

stitches in my legs. still felt exhausted, but...the problem, and it's rather

embarassing, was

that i became REALLY gut-crampy, swollen and constipated. have always been

extremely

sensitive to medications and side effects. i tried everything i could find

recommended by

this group , and other home remedies, but it became too much. i know that seems

probably crazy considering the greater risks of the ms, but, well. perhaps i'm

still getting

mentally adjusted to the fact that i have this malady (i was diagnosed in

september after a

very frightening year of not knowing what was up.) i figured maybe i should try

to work

out my nutritional regime and then start back up. anyway, all are welcome to

roll their

eyes.

and, so to re-word my query...have i risked the ldn not working so well the next

time?

also...i've see some conflicting opinions in the group on what is the most

comfortable

dosage for a woman with ms... i tried both 3mg and 4.5 mg and didn't experience

much

difference.

thank you again!

lisa.

...... I do not know if you have MS

> but with MS you should not stop LDN ever or you risk having an attack or

> progression. There is not a waiting period unless you have been on opiates.

Don't

> know your situation. Welcome back....Kiki

[Guest guest]

thanks brenda, i will try to start at a lower dose next time and build up,

GRADUALLY (i think

maybe that was the problem the last time...too excited for it to work

asap...need to give my

body time to adjust.)

...... If you had problems the first time start at a smaller dose and gradually

build up to either

3.0mg or 4.5mg.

>

>

[Guest guest]

Hi. I just joined this and was wondering how I could get an e-mail out to everyone to find out if anyone knows of a doc in or near St. Louis, Mo who will prescribe LDN for my daughter.

Thank you in advance for your help.

[low dose naltrexone] thank yous and a question about restarting ldn.> hello.>> i just wanted to send a big shout and say thank you to this community. > your candor and> steadfastness in helping out, as each newcomer surfaces with the same > questions and fears> has been outstanding in my experience reading the posts over the past few > months. i would> like to give very special thanks to marsha smith, who originally turned me > on to ldn and this> newsgroup, and to carolina van der lande, someone i've never met, who > graciously sent me> some liquid measuring equipment from the netherlands when i couldn't find > anything> suitable in france. i've met this kind of warmth time and again, and it is > this kind-> heartedness, more than anything, that has made the challenge of this > malady a positive, even> welcome, new road.>> on a lesser note, i was wondering if anyone could tell me the best way to > "restart" ldn. is> there a recommended waiting period, or any factors i should be concerned > about? will it be> less effective because of the break in treatment? i'm sorry if this > subject has already been> addressed, but i couldn't find anything in the archives.>> thank you!> i wish you all the very best year to come.> lisa.>>>>>>>>

[Guest guest]

Hi ,

What is it that your daughter would be taking the LDN for. I can send you some doctors names, and I can send you other info if it would be helpful.

My best

Aletha

[low dose naltrexone] thank yous and a question about restarting ldn.> hello.>> i just wanted to send a big shout and say thank you to this community. > your candor and> steadfastness in helping out, as each newcomer surfaces with the same > questions and fears> has been outstanding in my experience reading the posts over the past few > months. i would> like to give very special thanks to marsha smith, who originally turned me > on to ldn and this> newsgroup, and to carolina van der lande, someone i've never met, who > graciously sent me> some liquid measuring equipment from the netherlands when i couldn't find > anything> suitable in france. i've met this kind of warmth time and again, and it is > this kind-> heartedness, more than anything, that has made the challenge of this > malady a positive, even> welcome, new road.>> on a lesser note, i was wondering if anyone could tell me the best way to > "restart" ldn. is> there a recommended waiting period, or any factors i should be concerned > about? will it be> less effective because of the break in treatment? i'm sorry if this > subject has already been> addressed, but i couldn't find anything in the archives.>> thank you!> i wish you all the very best year to come.> lisa.>>>>>>>>

[Guest guest]

My daughter has MS. She also has fibromyalgia. She had been taking the daily injection (Copaxone) for over a year. A friend told me about ldn and I read the book, and I am so impressed with it. Like the book says, what have you got to lose by trying it. My daughter faxed all the info about ldn to her neuro 3 weeks ago and has not heard back, which is what we expected.

I cannot thank you enough for answering my e-mail. Any names or info will so appreciated.

Thank you again!

[low dose naltrexone] thank yous and a question about restarting ldn.> hello.>> i just wanted to send a big shout and say thank you to this community. > your candor and> steadfastness in helping out, as each newcomer surfaces with the same > questions and fears> has been outstanding in my experience reading the posts over the past few > months. i would> like to give very special thanks to marsha smith, who originally turned me > on to ldn and this> newsgroup, and to carolina van der lande, someone i've never met, who > graciously sent me> some liquid measuring equipment from the netherlands when i couldn't find > anything> suitable in france. i've met this kind of warmth time and again, and it is > this kind-> heartedness, more than anything, that has made the challenge of this > malady a positive, even> welcome, new road.>> on a lesser note, i was wondering if anyone could tell me the best way to > "restart" ldn. is> there a recommended waiting period, or any factors i should be concerned > about? will it be> less effective because of the break in treatment? i'm sorry if this > subject has already been> addressed, but i couldn't find anything in the archives.>> thank you!> i wish you all the very best year to come.> lisa.>>>>>>>>