Re: Weight Gain proteins and SM

[Guest guest]

Hi everybody

Since I started with the main problems of Chiari and SM I have more weight

gained than ever, although I have been chuby all my life. There were just

like 10 years in which I was not fat, and this was because I have high

prolactin levels, so they gave me medicine to control them. At that time

they thought it was because I have little tumors, named microadenomas, but

it was not true. The real problem was Chiari, intracranial pressure was

pressuring my pituitary gland and then I had high prolactin level. After the

TCS surgery they came back to normal, but now I have noticed that I have

intracranial pessure peaks, and when this happens I have high prolactin

levels again.

Another issue that I have told my doctor since the begining was that I am

all day hungry, and that if I do not eat I feel defintively worst, all my

Chiari and SM symptoms worsen with out food. At the begininig my doctor

thought it was hypoglicemia, so he make me check it with lab tests, but it

was not, as my all the studies related are find, then I started to observe

that I need to eat more often than the rest of the people, and it is not

sugar or food with sugar, as I have tried to eat a sweet but this not make

me any better or make me improve my symtpoms, I then noticed that what

really helps me is to eat proteins, when I eat proteins I really feel

better. I took me many years to understand that I have a special need for

proteins, that I have this protein need. This means that I have breakfast

and then 2 hours later I am starving again, so it is impossible for me to

stay on a diet as I need to eat quite often. But the issue here is that I do

not feel well by eating fruits, vegetables, or sweets, what I need is

proteins. I really feel better and all my symptoms really improve when I eat

proteins!! I told this to my doctor, and he found out an article thay says

that there is a relationship between SM and proteíns, that proteins

disminishes in the CSF pressure and when this happens the SM does not gets

worst. So according to this article SM has a relationship with lack of

proteins in the CSF.

My doctor says this could not be true completely as this would mean that SM

would be more common in poor countries than in the northern countries, so

this is not true, but that there is a relationship between proteins, oncotic

CSF pressure and protein consumption. This will explain my desesperate need

for eating, not any food, but eating proteins.

Has any body with Chiari and SM in a desperate need for proteins?

Mex.

De: Cortney

Responder a: Cortney

Fecha: Thu, 16 Feb 2012 17:25:05 -0800 (PST)

Para: " "

< >

Asunto: Re: Weight Gain/ Get the posts

rolling

Soooo.... Thought I would share something on this subject. I decided to call

my surgeon's office and ask them about hormone/ weight gain issues. The

nurse told me that if she could give me an answer, she'd be the most popular

person on earth right now! She said I was about the 5th person to call in

the last week or two with the exact same symptoms. She also said that all of

their female patients have struggled with this issue after surgery. They

don't know what the cause is and therefore don't know how to treat it. She

suggested getting some good blood work done to check thyroid and hormone

levels. If nothing comes up there, to go see a good gyn for further testing.

If nothing shows up wrong, she referred to it as an " unknown monster "

somehow caused by the chiari or the surgery....

Cortney

[Guest guest]

This is so strange!! I have been a very poor eater, most people love food but I

eat because my body is hungry, not because it tastes good. Once I begin to fill

up, the food starts tasting not so good so I eat very little. You would think

this would make me a tiny person but just the opposite. It has caused me a

tremendous weight gain. My hubby would always say my body was holding on to

whatever I put in because I was not eating enough. I was eating child size

portions and only 1 meal a day.

A year ago, I was at my highest weight of 225 following my 2 surgeries. This was

very worrisome to me, knowing my lack of movement was adding to my weight gain.

But something changed for me and one day, I looked in the mirror and saw I had

lost ALOT of weight and had not even noticed. I lost my mom a year ago so I was

very distracted in my life. We didn't have a scale so I went out and bought one

and sure enough, I was down 50 lbs!! Crazy, then because I can now weigh myself,

I lost another 10 lbs.

I have noticed that my need for food has changed alot. when I am hungry, I crave

proteins so badly. In the last year, though my mission has not been to diet to

lose weight, I decided that because I have had a major decline in my health due

to chiari, the one thing I can do and control is to become a healthier

individual and take better care of myself with eating better. I still don't love

food but I try to snack through out the day. My protein cravings are satisfied

by a handful of almonds and strangely, I have noticed that this does help me

with fatigue.

I get a feeling that I just must rest my body, my eyes can't stay open any

longer. Generally, I just give up and take a nap. But now, taking a portion of

almonds, that extreme fatigue feeling dissipate. So this is very interesting to

me. I always believed that the pressure was causing me to get so tired I

couldn't go on so if proteins can help, proteins will surely be continued!!

On one last note, dropping 60 lbs so quickly makes me wonder why, so just to be

on the safe side, I am going to schedule a complete work up but my hopes are,

chiari does do crazy things to our bodies so hopefully this is one of them

Take care