newbie- any parents treating their ASD kids with?

[Guest guest]

Susie~ thanks for the reply. We see Pfeiffer in Chicago and are under the care of Dr. . We are on a TON of supps...clo, b vitamins, b-12, probiotics, enzymes, too much to list. TD-DMPS, HBOT...Devin is doing fantastic!

we live in North Carolina. Good luck to you!

Aimee

[Guest guest]

Hi all~ looking into starting my son on LDN. Devin is 2 1/2 and on

the autistic spectrum, pdd-nos to be specific. We are currently

following the DAN protocol...chelation, supplementation, and HBOT.

Dev's doing great. The research into LDN looks very

promising...particularly since my father-in-law has Crohn's disease and

I feel that this is possibly Devin's predisposition.

Any parents using LDN with success? What ups and downs can I expect?

Is there a particular child that this seems to work well with, or vice

versa? And any of these children with a history of Chron's in their

family? thanks in advance

Aimee

[Guest guest]

Hi Aimee,

I will send you some earlier chats from other parents that have been using

or looking into using LDN for Autistic children.

This site is great for all uses of LDN, but there is a specific site that

was posted earlier for Autism that you may get better information from. LDN

has been a real miracle for my husband and many others with MS. I hope it

is just as wonderful for your child.

Please keep us posted

Aletha

[low dose naltrexone] newbie- any parents treating their ASD kids

with?

> Hi all~ looking into starting my son on LDN. Devin is 2 1/2 and on

> the autistic spectrum, pdd-nos to be specific. We are currently

> following the DAN protocol...chelation, supplementation, and HBOT.

> Dev's doing great. The research into LDN looks very

> promising...particularly since my father-in-law has Crohn's disease and

> I feel that this is possibly Devin's predisposition.

>

> Any parents using LDN with success? What ups and downs can I expect?

> Is there a particular child that this seems to work well with, or vice

> versa? And any of these children with a history of Chron's in their

> family? thanks in advance

>

> Aimee

>

>

>

>

>

>

>

[Guest guest]

Aimmee,

We started a few weeks ago and haven't seen any WOWs but also haven't

had any problems. (We have a 3 1/2 year old on the autism spectrum and

also follows the DAN! protocol supplements, etc.

I'd be curious to read what supplements you are using right now. I feel

like we should start pulling back from some.

I just picked this up off the Autism_LDN group, so

maybe you should go there and be a part of the study:

Several drop-outs from the study have indicated that are willing to

send the kits to those who would like to join at this last minute, and

those on the waiting list have been contacted. Dr. Vojdani has given

me permission to allow several more to join if they can get the blood

drawn early next week, so if you are interested, please let me know

ASAP so I can send the health questionnaire and all instructions to

you. Please send it personally to JMcCandless@.... This can

be either for the kids or the parents and must be for those not yet

started on the LDN. Dr. JM

I'm in Texas, where are you? What Dr. do you see?

Susie

On Wednesday, January 25, 2006, at 07:15 PM, aim1036 wrote:

> Hi all~ looking into starting my son on LDN. Devin is 2 1/2 and on

> the autistic spectrum, pdd-nos to be specific. We are currently

> following the DAN protocol...chelation, supplementation, and HBOT.

> Dev's doing great. The research into LDN looks very

> promising...particularly since my father-in-law has Crohn's disease and

> I feel that this is possibly Devin's predisposition.

>

> Any parents using LDN with success? What ups and downs can I expect?

> Is there a particular child that this seems to work well with, or vice

> versa? And any of these children with a history of Chron's in their

> family? thanks in advance

>

> Aimee

>

>

>

>

>

>

>

[Guest guest]

I think the HBOT, Valtrex and Diflucan are all we haven't done. Lily is

doing okay, but we just never see any WOWs. Maybe it's because she has

always been verbal so it's harder to see marked progress---maybe we

just thought she'd be more normal. She still so verbally stemmy and

often hard to interact with...(we'll have to ask her a question a bunch

of times before she responds). She responds well to commands, but she's

a little girl--not a dog.

It's just one of those nights. NC has so much more state support and

pays for so much more therapy. Two of Lily's therapist went to school

there. We've often felt like we should move.

Good luck back to you. I'm happy things are going so well,

Susie

On Wednesday, January 25, 2006, at 10:42 PM, Aim1036@... wrote:

> Susie~  thanks for the reply.  We see Pfeiffer in Chicago and are

> under the care of Dr. .  We are on a TON of supps...clo, b

> vitamins, b-12, probiotics, enzymes, too much to list.  TD-DMPS,

> HBOT...Devin is doing fantastic! 

>  

> we live in North Carolina.  Good luck to you!

>  

> Aimee

>

>

>