Guest guest Posted January 9, 2006 Report Share Posted January 9, 2006 Hi , Thanks! I happen to like , but I would never judge others for not liking him. There are people who will like him and some who dislike him. It depends on what you believe in. When it boils right down to it, people are going to believe what they want to, regardless of who is telling the story. People who believe in something that strongly can't be swayed that easily. It's funny you mention the drug companies. Last year I would have sworn up and down that the drug companies would do no harm. Nor would my doctor. My opinion has changed dramatically. I finally saw and heard for myself that their claims were not 100% accurate. I finally heard from my neuro's own mouth, when I asked are these crabs really modest at best, and she said yes. So I am with you! I would much rather take my chances with a controversial figure than large companies who are pulling the wool over everyone's eyes. At least is upfront. He clearly shows what he stands for. He also isn't harming our health short or long term. Take Care > > , I think it's great that you've been in contact with . > So what that he's controversial? The lack of interest of the drug companies > in LDN is better?????? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2006 Report Share Posted January 9, 2006 Hi Dee, Thank you! *blushing* My worst day on ldn is better than any days on copaxone and avonex. I ended up in the er while on copaxone with high temp. chills, anxiety and good stuff like that! I also had large bright red welts about 4 " wide by 6 " long at injection sites. My neuro. had never seen anyone like that. I then tried to get into the antegren study but had alot of problems with the iv. Then I started avonex. My hair fell out, my dental health declined, I had 2 days of the week with flu like stuff. I stuck with it for almost a year. I always thought I was doing the right thing. I remember being so discouraged when the antegren did not pan out, cause after all, I thought we were better on something. I hated doing the needles but there again I felt I had to suck up my fear and just do it. I told myself each shot day that I was doing myself a favour and preventing longterm damage due to ms exacerbations. I know wonder if I have done longterm damage by doing the avonex. Sorry so long! I guess I wanted to vent and let you know just how much I agree with you! Take Care > > Well stated , > > If one person could benefit with any " knowledge " of LDN it would be worth it. My worst day with MS on LDN is better, and more productive, than any day I had taking Copaxone. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Hi , We all need to vent some of the time, and dealing with M.S. one could vent everyday, all of the time. In reading all of the other histories/stories. I am more convinced and grateful, that I resisted any of the ABCR drugs as long as I could. Initially, it took me a year to agree to any drug. I agreed to Novantrone, which was my miracle, at that time it was not FDA approved, yet. I took the first intravenous injection and walked out of the hospital a normal person. I had no side affects, none. At that time I had a job, which involved five to seven days out of the week of public speaking, presentations, health fairs, etc... When I went back for my next injection , 3 months later I was told the head doctor of the practice was not allowing Novantrone to be dispensed to any patient. Apparently, one patient had some ill effects, and had to be hospitalized. I could not believe it. So after going to about five different neurologist trying to get another injection of Novantrone, a year later it was finally FDA approved. I returned to the initial doctor and was prescribed another injection of Novantrone. I knew, when I got up from the chair the treatment did not have the same affect as before. I took another Novantrone treatment one month later still no positive affect. I had extreme vertigo, and dizziness. Out of frustration I tried another Neuro, who supposedly was such an expert he was Montel's Neuro at some point. Not for long I'm sure, because he loves Copaxone, so I consented to try it for my Mom's sake. I took it about six months, I started out taking the shots every day, then every other day, then once a week, and then I stumbled upon the LDN website. I did not need much convincing to give LDN a chance. From the first day, I felt better. (I do not know if my reaction to M.S. drugs is different because there is no history of M.S. in my family background. I am 42, and I still have all my grandparents. My grand elders live biblical years. I have some speculations of how my M.S, came about, however I won't go there now.) I personally do not care if it is ever FDA approved, because the price will sky rocket. I do want those with M.S. to know about it. Therefore, if were to mention it in his film, and be able to interview Dr, Bihari and/or any of the other Dr.s on the LDN list, the information would be invaluable to someone with M.S. Furthermore, Fahrenheit 9/11 made millions at the box office, and I would be willing to bet 'Sicko" does as well. God Bless, Dee <pomsaregreat@...> wrote: Photos – Showcase holiday pictures in hardcover Photo Books. You design it and we’ll bind it! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Hi Dee, Yes we sure do need to vent! I think in my case I feel an injustice has been done and I have no where else to share my story. Meaning the crab drugs. I would never tell anyone not to take them because what if they are one of the few, that respond well to them. All I can do is share my experiance for what its worth ;op--- That goes with my thinking that in the end people will do what they want to do. Same goes for ldn. I can share what I know but you can lead a horse to water but you can't make him drink. I use to be guilty of turning a blind eye to others telling me about the crab drugs. Once I found the evidence for myself I changed my tune. Guess that makes me human huh! My cousin did novantrone and it did stablize her ms. It's too bad they halted the use of it just as you were gaining some ground. It sounds alot like what happened with antegren (tysibri). Course there were 3 deaths reported. My neuro. recently told me that the tysibri was showing a 70% reduction in exacerbations and symptoms. I read somewhere that tysibri works with endorphins also. I forget exactly what it said. I wish I had of known about ldn before trying the crabs. The longterm side effects of the crabs do scare me to a degree. Farenheit 911 did do well and Bowling for Calombine (sp?). Take Care > Hi , > > We all need to vent some of the time, and dealing with M.S. one could vent everyday, all of the time. In reading all of the other histories/stories. I am more convinced and grateful, that I resisted any of the ABCR drugs as long as I could. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 Is this what SICKO will be about? Plot Outline: This film will focus on the American healthcare system, and will look at it through an inspection of the system of mental health care. http://www.imdb.com/title/tt0386032/ Quote Link to comment Share on other sites More sharing options...
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