Help....need some advice please

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Hi everyone, I wish I could get here more but like with a baby is hectic. I really need some advice and know there are a number of you here well up on LDN....especially and would really appreciate some advice. I'll try make this post short but I doubt it will be :-/ MS started with Optic Neuritis in 2000...then fatigue etc etc and was eventually dx in Jan 2002. Started avonex..did copaxone following year..got awful sides from both and then on researchign more on net decided to quit ALL drugs and take a natural approach. In April 2003 I started the Best Bet Diet and after 2 months I reaped great benefits. Sicne then my MS has really stabilised. I dont' think I have RR MS, it seems to be a slow progressive type. Anyway I gave birth to my first baby last Jan 20th. I ahd a great pregnancy. I know a few other MSer's who had babies the last year too who did now do anything aswell as me during pregnany but I

was one of the lucky ones where all my MS symptoms disappeared from 4 months into pregnancy till 4 months postpartum. From four months postpartum MS slowly started to retuen. MY hormones probably started to drop around then as even though I was breastfeeding exclusively (and I swear the breastfeeding kept my hormones in the right state for my MS) but there were less night feeds from here on and I guess from 5 motnhs when I introduces some goats formula that I began producing less milk and my hormones bagan dropping more. I had a flare in July when baby was 6 months , it wasn't too bad and came about because of the awful hot humid heatwave we got for most of the summer...this sort of weather is freaky in Ireland and I just couldnt' bare the humidity and suffered horrible nausea and dizziness on and off. I never suffered these symptoms before. Forgot to mention that when my MS started returning 4 motnhs postpartum that my knees were awful sore for weeks but foudn out it's common after

having a baby but then I started getting stiff joints and when I restarted LDN in September when I weane dmy baby at 7 and a half months, the stiffness gradually got worse. I got my LDN from Dr. Lawrence. He now uses avicel as filler....last time I was on LDN in 2004 prior to pregnancy I got my LDN from him too and it was CC filler and that time round LDN did so much mroe for me....but I dont' think it could be the filler, I guess it's harder for LDN to work now after having a baby. I took 3mg for first month and then upped to 4.5mg. I'm now on it jsut over 3 months. In early December I had to go to dentist as I had a cavity since late pregnancy( nodoubt baby was sucking all the calcium out of me even though I took loads of calcium supplemetns) . Luckily I didnt' need an extraction but I was given an local and a temporary filling was put in to calm the nerve and it was supposed to be replaced with permanent filling before xmas. BUT the day after I got the local I got awful fatigue

and everything has gone haywire since. I spent three whoel weeks with the most awful fatigue and it was soooooooo hard trying to care for baby with it. Then it was jsut back to normal when returned to dentist but I asked coudl we leave that tooth alone for another while as I reckon the local brought on a flare of my fatgue. I got another tiny composite filling that day I needed instead of them touching the other tooth and I got this fillign with no local as it was only tiny , it was fine. Anyway few days later my left eye started blurring. I've not had eye prblems at all sicne starting the BBD in April 2003. The BBD sorted out my utthoffs syndrome completely and my symptoms have not flared from heat since nor has my eye ever flared since either. The weird thing is that it was always my right eye between 2000 and 2003 and now it's my left so I'm not sure whether it's classed as a flare of an old symptom or whether it's considered a new symptom and more serious. It's not as bad as I

used get in my right eye but it gets wrose when I ahve a shower or get stressed, hot etc so I have to watch it.My fatigue is still pretty bad too....surprisingly though my stiffness is improving...maybe it's because I upped my calcium and magnesium a few motnhs back or maybe the stiffness you gbet with LDN wares off after a few months..anyone know? My diet isn't as perfect asit used and to be honest I've induldged in too much sigar the last few months and I know I shouldn't have ...alwso have been eating some dairy and gluten and I wouldn't touch any of these before baby was born but caring for a baby and having MS is so hard that when you're hungry at times you crab what's available within reason. I dont' eat junk food and infact eat all organic meat and veg and fruit but I have been eating some bread, cheese and the odd biscuit here and there so I know I need to rid these foods again and I'm motivated now with the new year. I saw a post here earlier bout the candida home

test,,,,thanks for posting this. I know all bout it through the BBD etc and have done it in the past and needed the reminder. I will be doign ti tomorrow morning..I'm pretty sure I must have some candida at least but I wonder if it's the dental stuff has triggered everything off? When I got Optic Neuritis in 2000, it took 6 months for my vision to come back fully, I'm terrified my left eye will take this long too ( I havent' been to my Neuro since late 2003 as he wouldnt' prescribe LDN and was pushing other CRABS whiich I have no interest in. Since then I've felt so ontop on my MS and am proud I stabilised it and have done so well by sticking to natural methods...I'm hopign though with getting my diet back on track I can get back to a mroe stabilised state.....am I mad...does it sound like my MS is goign to get worse? The stiffness has been very scary the last few months and I've been having nitemares that I might loose my legs..I've never had leg problems before baby

arrived. Should I redice my dose to 3mg. I was only on 3mg in 2004 when it worked far better but I was only on it 2 months and I became pregnant so it wasn't much time to test it really and I know Dr. Bihari says you need 4.5mg to halt progression so maybe i shoudl stick to it. I'm not as confident bout LDN as I used be...at times I'm nearly tempted to ditch it but I have a months supply left in my bottle so I'll finsih that at least. Please if anyone has any advice or been through similar I'd love to hear from you! Thanks

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