Re: Versed/ Dianne P.and Janet (urgent reply needed)

[Guest guest]

Thanks Debbie and Janet for this info since my mom is scheduled for surgery

tomorrow

had no ideal that anesthesia need to be thought about will have to ask them this

question

today when they give the time and info for surgery. Do you know if there is

anything else I should be aware

of or need to ask.

TEE

-------------- Original message ----------------------

> Hi Dianne,

> Versed or Propofal are said to be the two most compatible anesthesias for

LBD,

> with the least amount of reactions to them or set backs. It is good to hear

that

> your dad's doctor knew this. Most of us have to request that these anesthesias

> be used.

>

> Dianne wrote:

> My dad is due to have a colonoscopy (with Versed as the anesthetic) and I

> wanted to know if anyone has had experience with Versed use in LBD patients.

My

> dad has been diagnosed with LBD for 4 years but has had symptoms for several

> years before that. I know that many of you have had experiences with other

> anesthetics affecting your LOs, but I didn't know if Versed (since it is sort

of

> a " twilight sleep " ) causes the same reactions. He is 83 and has had

precancerous

> polyps removed during a couple of other colonoscopies, so we're not sure what

to

> do about having it or not.

> Dianne P

> daughter of Bill, 83

>

>

> ---------------------------------

> Want to start your own business? Learn how on Yahoo! Small Business.

>

>

[Guest guest]

Tee -- Make sure you write in your mom's paperwork that your mom

is " allergic " to Haldol and Ativan -- those are the two worst meds

that can be given to those with LBD and many hospitals toss those

meds around like candy... (and on a personal note I'll say add

Risperidol -- that's the med. that did my mom in... BUT some of those

with LBD can handle small doses of that drug.) A lot of caregivers

have a medical bracelet made with the 'allergic' meds on it. BRING

the pamphlets from LBDA with you and pass them around, leave them on

the nightstand, talk about Lewy to anyone and everyone. Here is the

link to the pamphlets:

http://www.lewybodydementia.org/docs/brochure/3_brochure.pdf

http://www.lewybodydementia.org/docs/lbd1poster8x11.pdf

AND FYI

This is from our files section:

BAD LBD MEDICATIONS

Based on actual experiences reported by caregivers.

Revised, January, 2004.

One of the symptoms of LBD is extreme sensitivity to many

medications.

NEUROLEPTICS AND OPIATES ARE LIFE THREATENING.

DO NOT GIVE:

Haldol, Clozapine, Morphine, Demerol or any other neuroleptics or

opiates. All medications ending in " azine " may cause neuroleptic

malignant syndrome.

AVOID:

Zyprexa/olanzapine

Risperdal/risperidone

Ativan/lorazepam

Mirapex/pramipexole

Eldepryl/selegeline

Ambien/zolpidem

Ultram/tramadol

Detrol & Detropan

Benedryl (OTC allergy medication)

USE CAUTION:

Dilantin....extremely careful monitoring of levels is needed.

Sinemet/carbidopa-levodopa may cause increased dementia, stiffness,

and hallucinations.

Cough and Cold medications

----------------

GOOD LBD MEDICATIONS

When working on the list of " good meds " what meds can the dentist use

and not use and what meds are recommended for surgery.

Our neurologist very carefully said that for surgery Joe could have

Versed [used to make you drowsy and temporary] and Propofal as an

anesthetic.

He also told us he could have 1/2 to 1 Vicodin [hydrocodone] for

pain, but we went very easy on that. I talked to the anestheologist

and he came through it with just that beautifully. However, coming

out of the anesthetic the doctor told me that he took about 40

minutes, where the average person takes about 8 to 10 minutes or

less. It has something to do with an enzyme, but I am not sure it is

related to LBD. My son talked to the doctor at the time and I can

find out if anyone is interested in knowing about it in case it is

LBD related.

Eve

Such timing with this question, h. I just printed out

everything I had a few days ago to take to the dentist as I think Bob

MAY need a root canal. An abscess isn't suspected. She equilibrated

but the problem returned and we go back in a few days. He hasn't had

any trouble with Novocain.

Cheryl

Dot Kingrey wrote: I know that some of you are

using the timed release Sinement and I'd like to know how this works

for your spouses.

Dot, so far so good although I really have nothing to compare it to,

as this was the first med given re the LBD. This was prescribed,

primarily because of the severe tremors. It has helped but not

eliminated these. He can hold a bowl of pudding now without spilling

it whereas he could not before, without it actually going over the

sides of the bowl--now it just jiggles (sounds like a male stripper)!

Could not help saying that --it made me smile when it came to

mind! Eileen G.

After going through so much with orthostatic hypotension, the

proamatine and fluorinef seem to be controlling it. Then all the

falls, and there were plenty of them, seem to be coming from the

Parkinson's.

Trademark name Generic name

Aricept donepezil

Exelon rivastigmine

Reminyl galantamine

Sinemet carbidopa-levodopa

Requip ropinirole

ProAmatine midodrine

Propofal

Versed

Fluorinef

BuSpar buspirone

Comtan entacapone

We'll keep your mom in our thoughts & prayers tomorrow -- what type

of surgery is she having?

[Guest guest]

Hi Tee,

gave you other good information of medications not to give to LBD

Loved Ones. Scroll to the bottom of her message to Good Medications for LBD. It

states that Versed is to make drowsy and Propofal is the anesthesia. This is

probably too late, since you were going in today for the time and schedule for

surgery. Hope you can get this information to the doctor on time or better yet,

I hope they, the anesthesiologist and the doctor are aware of these two combined

for the LBD patient. Jan

teegurl@... wrote:

Thanks Debbie and Janet for this info since my mom is scheduled for surgery

tomorrow

had no ideal that anesthesia need to be thought about will have to ask them this

question

today when they give the time and info for surgery. Do you know if there is

anything else I should be aware

of or need to ask.

TEE

-------------- Original message ----------------------

From: Janet Colello

> Hi Dianne,

> Versed or Propofal are said to be the two most compatible anesthesias for LBD,

> with the least amount of reactions to them or set backs. It is good to hear

that

> your dad's doctor knew this. Most of us have to request that these anesthesias

> be used.

>

> Dianne wrote:

> My dad is due to have a colonoscopy (with Versed as the anesthetic) and I

> wanted to know if anyone has had experience with Versed use in LBD patients.

My

> dad has been diagnosed with LBD for 4 years but has had symptoms for several

> years before that. I know that many of you have had experiences with other

> anesthetics affecting your LOs, but I didn't know if Versed (since it is sort

of

> a " twilight sleep " ) causes the same reactions. He is 83 and has had

precancerous

> polyps removed during a couple of other colonoscopies, so we're not sure what

to

> do about having it or not.

> Dianne P

> daughter of Bill, 83

>

>

> ---------------------------------

> Want to start your own business? Learn how on Yahoo! Small Business.

>

>

[Guest guest]

My husband's neurologist pronounced " Versed " , Verse ed, I was pronouncing it

like the verse of a poem in the past tense versed.

Janet Colello wrote: Hi Tee,

gave you other good information of medications not to give to LBD

Loved Ones. Scroll to the bottom of her message to Good Medications for LBD. It

states that Versed is to make drowsy and Propofal is the anesthesia. This is

probably too late, since you were going in today for the time and schedule for

surgery. Hope you can get this information to the doctor on time or better yet,

I hope they, the anesthesiologist and the doctor are aware of these two combined

for the LBD patient. Jan

teegurl@... wrote:

Thanks Debbie and Janet for this info since my mom is scheduled for surgery

tomorrow

had no ideal that anesthesia need to be thought about will have to ask them this

question

today when they give the time and info for surgery. Do you know if there is

anything else I should be aware

of or need to ask.

TEE

-------------- Original message ----------------------

From: Janet Colello

> Hi Dianne,

> Versed or Propofal are said to be the two most compatible anesthesias for LBD,

> with the least amount of reactions to them or set backs. It is good to hear

that

> your dad's doctor knew this. Most of us have to request that these anesthesias

> be used.

>

> Dianne wrote:

> My dad is due to have a colonoscopy (with Versed as the anesthetic) and I

> wanted to know if anyone has had experience with Versed use in LBD patients.

My

> dad has been diagnosed with LBD for 4 years but has had symptoms for several

> years before that. I know that many of you have had experiences with other

> anesthetics affecting your LOs, but I didn't know if Versed (since it is sort

of

> a " twilight sleep " ) causes the same reactions. He is 83 and has had

precancerous

> polyps removed during a couple of other colonoscopies, so we're not sure what

to

> do about having it or not.

> Dianne P

> daughter of Bill, 83

>

>

> ---------------------------------

> Want to start your own business? Learn how on Yahoo! Small Business.

>

>

[Guest guest]

Thanks Janet, I will meet with the anesthesisologist and nurse before they prep

her

and go from their had already been speaking with nurse for the past week and

made

that request first thing this morning for the versed and propofal and she

questioned me

how did I know what to request and would make sure flag her papers and speak

with the

Doctor today. Hoping all will go well will post tomorror what happens.

Tee

-------------- Original message ----------------------

> My husband's neurologist pronounced " Versed " , Verse ed, I was pronouncing it

> like the verse of a poem in the past tense versed.

>

> Janet Colello wrote: Hi Tee,

> gave you other good information of medications not to give to LBD

> Loved Ones. Scroll to the bottom of her message to Good Medications for LBD.

It

> states that Versed is to make drowsy and Propofal is the anesthesia. This is

> probably too late, since you were going in today for the time and schedule for

> surgery. Hope you can get this information to the doctor on time or better

yet,

> I hope they, the anesthesiologist and the doctor are aware of these two

combined

> for the LBD patient. Jan

>

> teegurl@... wrote:

> Thanks Debbie and Janet for this info since my mom is scheduled for surgery

> tomorrow

> had no ideal that anesthesia need to be thought about will have to ask them

this

> question

> today when they give the time and info for surgery. Do you know if there is

> anything else I should be aware

> of or need to ask.

>

> TEE

> -------------- Original message ----------------------

> From: Janet Colello

> > Hi Dianne,

> > Versed or Propofal are said to be the two most compatible anesthesias for

LBD,

> > with the least amount of reactions to them or set backs. It is good to hear

> that

> > your dad's doctor knew this. Most of us have to request that these

anesthesias

> > be used.

> >

> > Dianne wrote:

> > My dad is due to have a colonoscopy (with Versed as the anesthetic) and I

> > wanted to know if anyone has had experience with Versed use in LBD patients.

> My

> > dad has been diagnosed with LBD for 4 years but has had symptoms for several

> > years before that. I know that many of you have had experiences with other

> > anesthetics affecting your LOs, but I didn't know if Versed (since it is

sort

> of

> > a " twilight sleep " ) causes the same reactions. He is 83 and has had

> precancerous

> > polyps removed during a couple of other colonoscopies, so we're not sure

what

> to

> > do about having it or not.

> > Dianne P

> > daughter of Bill, 83

> >

> >

> > ---------------------------------

> > Want to start your own business? Learn how on Yahoo! Small Business.

> >

> >

[Guest guest]

Thanks , made copies of the brochure and meds.

Tee

-------------- Original message ----------------------

> Tee -- Make sure you write in your mom's paperwork that your mom

> is " allergic " to Haldol and Ativan -- those are the two worst meds

> that can be given to those with LBD and many hospitals toss those

> meds around like candy... (and on a personal note I'll say add

> Risperidol -- that's the med. that did my mom in... BUT some of those

> with LBD can handle small doses of that drug.) A lot of caregivers

> have a medical bracelet made with the 'allergic' meds on it. BRING

> the pamphlets from LBDA with you and pass them around, leave them on

> the nightstand, talk about Lewy to anyone and everyone. Here is the

> link to the pamphlets:

> http://www.lewybodydementia.org/docs/brochure/3_brochure.pdf

> http://www.lewybodydementia.org/docs/lbd1poster8x11.pdf

>

> AND FYI

>

> This is from our files section:

>

> BAD LBD MEDICATIONS

>

> Based on actual experiences reported by caregivers.

> Revised, January, 2004.

>

>

> One of the symptoms of LBD is extreme sensitivity to many

> medications.

>

> NEUROLEPTICS AND OPIATES ARE LIFE THREATENING.

>

> DO NOT GIVE:

>

> Haldol, Clozapine, Morphine, Demerol or any other neuroleptics or

> opiates. All medications ending in " azine " may cause neuroleptic

> malignant syndrome.

>

> AVOID:

> Zyprexa/olanzapine

>

> Risperdal/risperidone

>

> Ativan/lorazepam

>

> Mirapex/pramipexole

>

> Eldepryl/selegeline

>

> Ambien/zolpidem

>

> Ultram/tramadol

>

> Detrol & Detropan

>

> Benedryl (OTC allergy medication)

>

>

> USE CAUTION:

>

> Dilantin....extremely careful monitoring of levels is needed.

>

> Sinemet/carbidopa-levodopa may cause increased dementia, stiffness,

> and hallucinations.

>

> Cough and Cold medications

>

> ----------------

>

> GOOD LBD MEDICATIONS

>

> When working on the list of " good meds " what meds can the dentist use

> and not use and what meds are recommended for surgery.

>

>

> Our neurologist very carefully said that for surgery Joe could have

> Versed [used to make you drowsy and temporary] and Propofal as an

> anesthetic.

>

> He also told us he could have 1/2 to 1 Vicodin [hydrocodone] for

> pain, but we went very easy on that. I talked to the anestheologist

> and he came through it with just that beautifully. However, coming

> out of the anesthetic the doctor told me that he took about 40

> minutes, where the average person takes about 8 to 10 minutes or

> less. It has something to do with an enzyme, but I am not sure it is

> related to LBD. My son talked to the doctor at the time and I can

> find out if anyone is interested in knowing about it in case it is

> LBD related.

> Eve

>

> Such timing with this question, h. I just printed out

> everything I had a few days ago to take to the dentist as I think Bob

> MAY need a root canal. An abscess isn't suspected. She equilibrated

> but the problem returned and we go back in a few days. He hasn't had

> any trouble with Novocain.

> Cheryl

>

> Dot Kingrey wrote: I know that some of you are

> using the timed release Sinement and I'd like to know how this works

> for your spouses.

>

> Dot, so far so good although I really have nothing to compare it to,

> as this was the first med given re the LBD. This was prescribed,

> primarily because of the severe tremors. It has helped but not

> eliminated these. He can hold a bowl of pudding now without spilling

> it whereas he could not before, without it actually going over the

> sides of the bowl--now it just jiggles (sounds like a male stripper)!

> Could not help saying that --it made me smile when it came to

> mind! Eileen G.

>

> After going through so much with orthostatic hypotension, the

> proamatine and fluorinef seem to be controlling it. Then all the

> falls, and there were plenty of them, seem to be coming from the

> Parkinson's.

>

> Trademark name Generic name

> Aricept donepezil

> Exelon rivastigmine

> Reminyl galantamine

> Sinemet carbidopa-levodopa

> Requip ropinirole

> ProAmatine midodrine

> Propofal

> Versed

> Fluorinef

> BuSpar buspirone

> Comtan entacapone

>

> We'll keep your mom in our thoughts & prayers tomorrow -- what type

> of surgery is she having?

>

>

[Guest guest]

Tee,

I hope your mom's surgery went well. My dad's colonoscopy won't be until the

first of the year, but I really appreciated the responses of Jan and Donna about

the effects on LBD patients. It seems as if EVERYTHING isn't just simple

anymore--there's always something else to check on!

Dianne P

teegurl@... wrote:

Thanks Janet, I will meet with the anesthesisologist and nurse before

they prep her

and go from their had already been speaking with nurse for the past week and

made

that request first thing this morning for the versed and propofal and she

questioned me

how did I know what to request and would make sure flag her papers and speak

with the

Doctor today. Hoping all will go well will post tomorror what happens.

Tee

-------------- Original message ----------------------

> My husband's neurologist pronounced " Versed " , Verse ed, I was pronouncing it

> like the verse of a poem in the past tense versed.

>

> Janet Colello wrote: Hi Tee,

> gave you other good information of medications not to give to LBD

> Loved Ones. Scroll to the bottom of her message to Good Medications for LBD.

It

> states that Versed is to make drowsy and Propofal is the anesthesia. This is

> probably too late, since you were going in today for the time and schedule for

> surgery. Hope you can get this information to the doctor on time or better

yet,

> I hope they, the anesthesiologist and the doctor are aware of these two

combined

> for the LBD patient. Jan

>

> teegurl@... wrote:

> Thanks Debbie and Janet for this info since my mom is scheduled for surgery

> tomorrow

> had no ideal that anesthesia need to be thought about will have to ask them

this

> question

> today when they give the time and info for surgery. Do you know if there is

> anything else I should be aware

> of or need to ask.

>

> TEE

> -------------- Original message ----------------------

> From: Janet Colello

> > Hi Dianne,

> > Versed or Propofal are said to be the two most compatible anesthesias for

LBD,

> > with the least amount of reactions to them or set backs. It is good to hear

> that

> > your dad's doctor knew this. Most of us have to request that these

anesthesias

> > be used.

> >

> > Dianne wrote:

> > My dad is due to have a colonoscopy (with Versed as the anesthetic) and I

> > wanted to know if anyone has had experience with Versed use in LBD patients.

> My

> > dad has been diagnosed with LBD for 4 years but has had symptoms for several

> > years before that. I know that many of you have had experiences with other

> > anesthetics affecting your LOs, but I didn't know if Versed (since it is

sort

> of

> > a " twilight sleep " ) causes the same reactions. He is 83 and has had

> precancerous

> > polyps removed during a couple of other colonoscopies, so we're not sure

what

> to

> > do about having it or not.

> > Dianne P

> > daughter of Bill, 83

> >

> >

> > ---------------------------------

> > Want to start your own business? Learn how on Yahoo! Small Business.

> >

> >