Re: Upside down

[Guest guest]

That is a very good question, has anybody tried being upside down for a

period of time? I have dreamed with this but I am afraid to do it. I will

love to hear about anyone else experience on this.

De:

Responder a: < >

Fecha: lunes 28 de mayo de 2012 07:53

Para: < >

Asunto: Re: Diamox alternatives

Hi Debbie,

Well the doctors surprise makes sense, if you had your

MRI laying down (where you seem to be ok), you probably

had your decompression a little bit on the upright side, to

some degree or another (and that's when your problems

start), so the surgeon would be seeing it 'as it really was'

when it was affecting you. Gravity has a lot to do with it,

it can fight with us, or against us.

Head/neck position is also an important factor as, it can

allow, or restrict, CSF flow depending on the level and/or

most affected side of your 'cerebellar tonsilar ectopia'

(the brain tissue that's partially blocking the hole at the

bottom of your skull). I am best with my head straight

forwards, slightly rotated to the left.

When I was still at work, I had to have all of my

computer equipment moved from the right hand side

of my desk, to the left, to ease my discomfort.

I can also understand how stretching could work,

just a theory mind, could it make any 'pliable'

components (maybe the brainstem/spinal cord

marginally thinner, allowing better passage of fluids

Don't know, any other ideas on this one? I know

some of us are recommended to have traction, or

inversion therapy (being upside down for periods)

Has anyone tried this ? Was it successful at all ?

Regards

Barbara

(UK)

[Guest guest]

I cringe at the thought. I can't even lay flat, much less be upside down. It

would set off too many issues for me including trying to normalize.

My best position is anything that supports my upper back and the back of my

head.

I seem to recall on another listserv that inversion was discouraged, but I don't

remember why.

I also have that vaso vagal something thing, so it could be my own sensiitivity

to position.

Hanna

Sent from my phone. Please excse typos and short messages.

Re: Upside down

 

That is a very good question, has anybody tried being upside down for a

period of time? I have dreamed with this but I am afraid to do it. I will

love to hear about anyone else experience on this.

De: <ThatBarbaraLady@... <mailto:ThatBarbaraLady%40aol.com> >

Responder a: <

<mailto:%40yahoogroups.com> >

Fecha: lunes 28 de mayo de 2012 07:53

Para: <

<mailto:%40yahoogroups.com> >

Asunto: Re: Diamox alternatives

Hi Debbie,

Well the doctors surprise makes sense, if you had your

MRI laying down (where you seem to be ok), you probably

had your decompression a little bit on the upright side, to

some degree or another (and that's when your problems

start), so the surgeon would be seeing it 'as it really was'

when it was affecting you. Gravity has a lot to do with it,

it can fight with us, or against us.

Head/neck position is also an important factor as, it can

allow, or restrict, CSF flow depending on the level and/or

most affected side of your 'cerebellar tonsilar ectopia'

(the brain tissue that's partially blocking the hole at the

bottom of your skull). I am best with my head straight

forwards, slightly rotated to the left.

When I was still at work, I had to have all of my

computer equipment moved from the right hand side

of my desk, to the left, to ease my discomfort.

I can also understand how stretching could work,

just a theory mind, could it make any 'pliable'

components (maybe the brainstem/spinal cord

marginally thinner, allowing better passage of fluids

Don't know, any other ideas on this one? I know

some of us are recommended to have traction, or

inversion therapy (being upside down for periods)

Has anyone tried this ? Was it successful at all ?

Regards

Barbara

(UK)

[Guest guest]

Hi guys..

Just returned from the shore ( hot , humid...Uhgghhhhh)

Just wanted to comment on this.

Before I was diagnosed with CM I was a fitness instructor. ( how ironic <g>)

One of the things that we had were inversion boots... I used them a couple

of time a week, even doing things like " sit ups " in an inverted position. It

always felt somewhat like my head was going to explode!!! I thought this was

" normal " .. ;-}

Needless to say, after knowing what I know now...there is NO was that I

would want to try this again....

Sally R... Decompression '91, Hydro, VP shunt, 2 shunt revisions, Feeling

pretty good on NO meds in Bethlehem,Pa

Re: Upside down

That is a very good question, has anybody tried being upside down for a

period of time? I have dreamed with this but I am afraid to do it. I will

love to hear about anyone else experience on this.

De: <ThatBarbaraLady@... <mailto:ThatBarbaraLady%40aol.com> >

Responder a: <

<mailto:%40yahoogroups.com> >

Fecha: lunes 28 de mayo de 2012 07:53

Para: <

<mailto:%40yahoogroups.com> >

Asunto: Re: Diamox alternatives

Hi Debbie,

Well the doctors surprise makes sense, if you had your

MRI laying down (where you seem to be ok), you probably

had your decompression a little bit on the upright side, to

some degree or another (and that's when your problems

start), so the surgeon would be seeing it 'as it really was'

when it was affecting you. Gravity has a lot to do with it,

it can fight with us, or against us.

Head/neck position is also an important factor as, it can

allow, or restrict, CSF flow depending on the level and/or

most affected side of your 'cerebellar tonsilar ectopia'

(the brain tissue that's partially blocking the hole at the

bottom of your skull). I am best with my head straight

forwards, slightly rotated to the left.

When I was still at work, I had to have all of my

computer equipment moved from the right hand side

of my desk, to the left, to ease my discomfort.

I can also understand how stretching could work,

just a theory mind, could it make any 'pliable'

components (maybe the brainstem/spinal cord

marginally thinner, allowing better passage of fluids

Don't know, any other ideas on this one? I know

some of us are recommended to have traction, or

inversion therapy (being upside down for periods)

Has anyone tried this ? Was it successful at all ?

Regards

Barbara

(UK)

[Guest guest]

I bought an inversion table last year and I tried it out. It didn't help me feel

much different.

My Physical Therapist thought it wasn't worth it for me to use. I also have a

condition called

chiari malformation and i was hoping it would help this also. My PT thought that

having myself

inverted was putting too much strain on my shoulders and not helping my head.

She thought that it

would only help the 2 vertebrae in my spine that weren't fused but because of

everything else that it was making worse the 2 vertebrae arn't worth it. So I

didn't have any good luck with it.

erica

________________________________

To:

Sent: Wednesday, May 30, 2012 5:49 PM

Subject: Re: Upside down

Hi guys..

Just returned from the shore ( hot , humid...Uhgghhhhh)

Just wanted to comment on this.

Before I was diagnosed with CM I was a fitness instructor. ( how ironic <g>)

One of the things that we had were inversion boots... I used them a couple

of time a week, even doing things like " sit ups " in an inverted position. It

always felt somewhat like my head was going to explode!!! I thought this was

" normal " .. ;-}

Needless to say, after knowing what I know now...there is NO was that I

would want to try this again....

Sally R... Decompression '91, Hydro, VP shunt, 2 shunt revisions, Feeling

pretty good on NO meds in Bethlehem,Pa

Re: Upside down

That is a very good question, has anybody tried being upside down for a

period of time? I have dreamed with this but I am afraid to do it. I will

love to hear about anyone else experience on this.

De: <ThatBarbaraLady@... <mailto:ThatBarbaraLady%40aol.com> >

Responder a: <

<mailto:%40yahoogroups.com> >

Fecha: lunes 28 de mayo de 2012 07:53

Para: <

<mailto:%40yahoogroups.com> >

Asunto: Re: Diamox alternatives

Hi Debbie,

Well the doctors surprise makes sense, if you had your

MRI laying down (where you seem to be ok), you probably

had your decompression a little bit on the upright side, to

some degree or another (and that's when your problems

start), so the surgeon would be seeing it 'as it really was'

when it was affecting you. Gravity has a lot to do with it,

it can fight with us, or against us.

Head/neck position is also an important factor as, it can

allow, or restrict, CSF flow depending on the level and/or

most affected side of your 'cerebellar tonsilar ectopia'

(the brain tissue that's partially blocking the hole at the

bottom of your skull). I am best with my head straight

forwards, slightly rotated to the left.

When I was still at work, I had to have all of my

computer equipment moved from the right hand side

of my desk, to the left, to ease my discomfort.

I can also understand how stretching could work,

just a theory mind, could it make any 'pliable'

components (maybe the brainstem/spinal cord

marginally thinner, allowing better passage of fluids

Don't know, any other ideas on this one? I know

some of us are recommended to have traction, or

inversion therapy (being upside down for periods)

Has anyone tried this ? Was it successful at all ?

Regards

Barbara

(UK)

[Guest guest]

I posted something similar to this recently and didnt get alot of responses. I

am having a hysterectomy in July due to cancer and the dr is telling me the

best way is for my legs to be higher than my head (like and inversion table) so

that my other organs will be " out of the way " . I freaked out! He spoke with a

neurologist who said that it should be fine and that my brain will probably just

go back up in my head (I have no idea if this dr even is familiar with chiari).

So, I'm thinking...whats the worst thing that could happen? My CSF get stuck in

my head during surgery and I wake up with my head feeling like it's going to

explode? Then what? They sit me up and it gets stuck up there? Any thoughts?

Sally G.

7mm not decompressed

TSC surgery @ TCI 2006

[Guest guest]

Could all responses be posted? I know that I am interested in this also. I am

sure that one time or another someone may need this information also.

Thank you all,

Debi

>

> I posted something similar to this recently and didnt get alot of responses. I

am having a hysterectomy in July due to cancer and the dr is telling me the

best way is for my legs to be higher than my head (like and inversion table) so

that my other organs will be " out of the way " . I freaked out! He spoke with a

neurologist who said that it should be fine and that my brain will probably just

go back up in my head (I have no idea if this dr even is familiar with chiari).

> So, I'm thinking...whats the worst thing that could happen? My CSF get stuck

in my head during surgery and I wake up with my head feeling like it's going to

explode? Then what? They sit me up and it gets stuck up there? Any thoughts?

> Sally G.

> 7mm not decompressed

> TSC surgery @ TCI 2006

>