Re: hello /epilepsy sufferers please/measles virus B

[Guest guest]

Dear mary B,

Thank you so much for all the info and taking the time to go through

all of that for me!! I promise you I will be researching all of

this and I do have a dr. in mind locally ( sort of ) who could test

for fatty acids. I am so encouraged.

In Him,

Joanie

, " mbrookh " <mbrookh@y...> wrote:

>

> Joanie,

> I would strongly encourage you to look at gluten and casein free

diet

> or an elimination diet to try and define seizure triggers. Our now

21

> year old began a serious migraine pattern 6-8 weeks after boosters

of

> dt and polio when she was 6. The migraine pattern became more

> frequent over several years with vomiting til dry heaves, light

and

> noise sensitivity, inability to function etc. When she was 9,

onset

> of seizures began and the migraines disappeared. Her seizures

became

> increasingly frequent(sometimes a couple dozen obvious ones per

day

> and some not so obvious-just a little odd cough and/or period of

> inattention) and not well controlled by meds. It was her great

> response to the gfcf diet that brought me to the toxic metal

> connection. In summer 2000, she went gfcf `cold turkey'. This

> provoked a 3 day onslaught of seizures that looked like DTs. By

day 4

> they were tapering and gone by the end of day 5. We can relate

almost

> every seizure episode since then to a dietary infraction. They

occur

> 8-12 hours after ingestion and generally continue for 24 hours.

The

> number seems to depend on how much of an offending item she has

> eaten. (and no we don't feed her these things but she plugs

machines

> at school etc). Other foods, additives, dyes put her in what I

call a

> pre-seizure mode-unreasonable, aggressive, etc. so I am pretty

rigid

> about what she puts in her mouth. We were Feingold and pretty low

> oxalate before I ever knew what those were. We've been able to

> reduce her seizure med to a fraction of the formal level. I still

> keep her on a minimal bedtime dose, but hope to have her

completely

> weaned by mid-year. She was on the ketogenic diet for about 10 mos

> when she was 12. It did help with seizure control but also caused

her

> to develop a tourette's pattern and self injury., both of which

> disappeared when we stopped the ketogenic diet. Gfcfsf is a breeze

> compared to ketogenic! and much more family friendly. When we

finally

> were able to get fatty acids tested, she was low on Omega 6's. If

you

> suspect measles as the culprit, there is a high dose vitamin A

> protocol that has helped many. Have you done any hair testing to

see

> what may be toxicity issues? I'm sorry as I know how difficult

the

> seizure road is. B.

>

>

>

> >

> > Hello,

> > I have been encouraged to join here to pick up information. I

have

> > a son who may have gotten a form of epilepsy which is not under

> > control and well, it makes hoping for any kind of independence

in

> > his future slim. He is on a lot of meds and also went through a

> > rough steroid treatment last year to calm his brain waves down.

I

> > will cut to the chase, it is probable he has this either due to

the

> > MMR vaccine or that it is genetic and has something to do with

my

> > autoimmune diseases. I believe it is the MMR and the last neuro

we

> > had felt it was possible he had the measles virus alive in the

> > brain. There is differences of opinion on how to determine that

(

> > brain biopsy, spinal tap), but our dr - then- told us the

treatment

> > was steroids, so why put him through it when he was going to do

> > steroids anyhow? So, the steroid treatment helped, but was not

as

> > successful as he would have liked. SO, I went back to my

epilepsy

> > cured group and am focusing on this idea he may have the measles

> > virus. Has anyone here used naltrexone for epilepsy and has it

> > helped? Anyone here think their child had encephalitis which

led

> to

> > epilepsy and tried this? Am I understanding this correctly that

> > Naltrexone might suppress the measles virus in his brain?

Pardon

> my

> > ignorance!! I am just learning about this and am a bit

overwhelmed

> > at the moment with lots and lots of good info. Trying to check

it

> > all out. Thank you!!

> >

> > Blessings!

> >

> > joanie

> >

>