Good results with LDN for MS and Fibromyalgia

[Guest guest]

I read with interest Ed's reply (to from Spain)... It sounds as

if things are going well for him so far.

I've been on LDN for MS (and fibromyalgia) since October 2005. With

the exception of some lower leg increased muscle tone/cramping (due

to increasing the dosage to 4.0 mg too quickly after beginning the

drug), my experience has been very good. I did go back to 3.0 mg for

a couple months, then up in increments back up to 4.0 mg - now with

good results.

I, too, have noticed a healthy increase in my energy level, better

balance, less daytime sleepiness, deeper sleep at night and much less

brain fog during the day. Also, I've been able to stop using

Provigil, for fatigue, Gabapentin (Neurontin) for pain and am off

antidepressants, too. So far, I can see no downside to taking LDN.

Although I still take Copaxone, I'm looking forward to trying to ween

myself off of it by summer 2006. If anyone has advice about how to

go about this with the least chance of a boomerang exacerbation, I'm

listening!

Having been diagnosed since January 1998 with RRMS, I am more stable

and stronger now than I have been in all my years since diagnosis.

My neurologist says I'm doing way better than the doctors usually

expect for someone 8 years out from Dx. She said to keep doing

whatever I've been doing to stay healthy. (However, I did have to go

to my primary care doctor in order to get it prescribed in the first

place.) I believe we just have to keep doing everything we can as

MSers to keep ourselves as healthy as possible...until a cure is

found or something better than LDN comes along to arrest the

progression of MS.

One question: I use the ReVia tablets compounded into capsules

for my LDN. What is taking the liquid like? Is it as bitter as

some have said?

Thanks for having a forum such as this. I find it very helpful.

Would someone please send me the newbie's packet? Thanks.

[Guest guest]

, Liquid Naltrexone is very bitter. I squirt my dose (4.5mg) into a cup and then add a few tablespoons of Red Grape Juice. NOT GRAPEFRUIT JUICE. Not bad. Sorta like an LDN cocktail! Good Luck, Ed"jul.russell" <julrussell@...> wrote: I read with interest Ed's reply (to from Spain)... It sounds as if things are going well for him so far.I've been on LDN for MS (and fibromyalgia) since October 2005. With the exception of some lower leg increased muscle tone/cramping (due to increasing the dosage to 4.0 mg too quickly after beginning the drug), my experience has been very good. I did go back to 3.0 mg for a couple months,

then up in increments back up to 4.0 mg - now with good results.I, too, have noticed a healthy increase in my energy level, better balance, less daytime sleepiness, deeper sleep at night and much less brain fog during the day. Also, I've been able to stop using Provigil, for fatigue, Gabapentin (Neurontin) for pain and am off antidepressants, too. So far, I can see no downside to taking LDN.Although I still take Copaxone, I'm looking forward to trying to ween myself off of it by summer 2006. If anyone has advice about how to go about this with the least chance of a boomerang exacerbation, I'm listening!Having been diagnosed since January 1998 with RRMS, I am more stable and stronger now than I have been in all my years since diagnosis. My neurologist says I'm doing way better than the doctors usually expect for someone 8 years out from Dx. She said to keep doing whatever I've been

doing to stay healthy. (However, I did have to go to my primary care doctor in order to get it prescribed in the first place.) I believe we just have to keep doing everything we can as MSers to keep ourselves as healthy as possible...until a cure is found or something better than LDN comes along to arrest the progression of MS. One question: I use the ReVia tablets compounded into capsulesfor my LDN. What is taking the liquid like? Is it as bitter assome have said?Thanks for having a forum such as this. I find it very helpful. Would someone please send me the newbie's packet? Thanks.

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[Guest guest]

Hi .. Should you make the incredibly difficult personal

decision to go off copaxone and go LDN alone .. and I do understand

that it is a very, very scary move .. why rock the boat etc. etc. ..

but ... if you do decide on your own to do that .. you do not have

to wean off copaxone .. you just stop and take the LDN as normal.

When my husband stopped avonex to go on LDN he had copaxone on stand

by .. ready to take as soon as he progressed. 3.5years later .. he

has not progressed and is still only taking LDN. It is a tough

decision to make without question.

All the Best

>

> I read with interest Ed's reply (to from Spain)... It sounds

as

> if things are going well for him so far.

>

> I've been on LDN for MS (and fibromyalgia) since October 2005.

With

> the exception of some lower leg increased muscle tone/cramping

(due

> to increasing the dosage to 4.0 mg too quickly after beginning the

> drug), my experience has been very good. I did go back to 3.0 mg

for

> a couple months, then up in increments back up to 4.0 mg - now

with

> good results.

>

> I, too, have noticed a healthy increase in my energy level, better

> balance, less daytime sleepiness, deeper sleep at night and much

less

> brain fog during the day. Also, I've been able to stop using

> Provigil, for fatigue, Gabapentin (Neurontin) for pain and am off

> antidepressants, too. So far, I can see no downside to taking LDN.

>

> Although I still take Copaxone, I'm looking forward to trying to

ween

> myself off of it by summer 2006. If anyone has advice about how

to

> go about this with the least chance of a boomerang exacerbation,

I'm

> listening!

>

> Having been diagnosed since January 1998 with RRMS, I am more

stable

> and stronger now than I have been in all my years since

diagnosis.

> My neurologist says I'm doing way better than the doctors usually

> expect for someone 8 years out from Dx. She said to keep doing

> whatever I've been doing to stay healthy. (However, I did have to

go

> to my primary care doctor in order to get it prescribed in the

first

> place.) I believe we just have to keep doing everything we can as

> MSers to keep ourselves as healthy as possible...until a cure is

> found or something better than LDN comes along to arrest the

> progression of MS.

>

> One question: I use the ReVia tablets compounded into capsules

> for my LDN. What is taking the liquid like? Is it as bitter as

> some have said?

>

> Thanks for having a forum such as this. I find it very helpful.

> Would someone please send me the newbie's packet? Thanks.

>

>

>