been gone for a while but advice

[Guest guest]

Have not been here while die to the fact I didn't have a computer

and I have moved 3 times since August. Just moved in a new place 1

week before xmas. I will try a brief synopsis of what I have

beengoing through and then ask for any adived offered. Moved from

different state to NY. Had two house deals fall through and just

rented a place for six months because my stuff was packed up in July

from CHicago and needed all my stuff out of storgage. Good old Cook

moving systomsoms dumped my stufff of at our rental before xmas.

Before that we rented a furnished apartment but that doesn't come

with clothes. Gets a little cold in Buffalo. Spent 3 weeks living

in a rectory( husbands Uncle a priest) before we moved into the last

place. Rectory was very relaxing though and I have a new found

respec for priests ( I am not catholic) Experience a lot of burning

in back had a MRI done. Lesion in brain and cervical enhanced. Did

a course of IV steroids. Told Dr I was on LDN and he told me that I

couldn't waste time on that and I need to do chemo . He would write

me a script for LDN if I started chemo. I think he is actually a dr

that is not a puppet for the drug companys per conversation with

him. He looked me in the eye an said I will not hurt you. I know

what you are all thinking after I just mentioned chemo. He also

recommended that I start doing some meditation and there is

a " Himylaian Inst " in downtown Buffalo that he said he would hook me

up with. I have found my own group. He says he meditates every

day. He does a ld Novatrone(sp) and wanted me to start rebif. I

told him I wanted to continue with the ldn and that I have had a lot

of stress and I don't believe anything would have stop my

progression. Have been doing reiki yoga and meditation to destress

myself. I have now noticed the past two weeks that I have lost

strength in my arms and

agiility in both hand as well as my legs being weaker. I am in a

quandry. I trust my soource of LDN , I have done the yeast test and

I am on 4mg. Some qustions. Why would 3mg stop a male from

progressing and not a female? I have a new script for 4.5 who

belives that .5 mg will make a world of difference? . I have

been on since Jan 05. By the way if you are on the BBD you can not

have soy icecream as soy is a legume!? And thank you Wesley for

the offer of the LDN when I forgot it on my trip to Conn. I did

notice a difference that weekend without it(very tired). Kim

[Guest guest]

.. I've seen and heard of miracles with LDN and calcium EAP immediately with

individuals. These are the two therapies that seem to give a quick response

for some people. The LDN dose is alot more complicated than gender I

believe. It has to do more with how much your pituitary needs tweaking. I

would find an alternative to chemo but that is only one of many opinions you

have gathered I'm sure!! Search your heart and ask God to give you the

intuitive wisdom to make the best decision for yourself. He will do it if

you are proactive in caring for your mind, body and spirit. Kathy

[low dose naltrexone] been gone for a while but advice

> Have not been here while die to the fact I didn't have a computer

> and I have moved 3 times since August. Just moved in a new place 1

> week before xmas. I will try a brief synopsis of what I have

> beengoing through and then ask for any adived offered. Moved from

> different state to NY. Had two house deals fall through and just

> rented a place for six months because my stuff was packed up in July

> from CHicago and needed all my stuff out of storgage. Good old Cook

> moving systomsoms dumped my stufff of at our rental before xmas.

> Before that we rented a furnished apartment but that doesn't come

> with clothes. Gets a little cold in Buffalo. Spent 3 weeks living

> in a rectory( husbands Uncle a priest) before we moved into the last

> place. Rectory was very relaxing though and I have a new found

> respec for priests ( I am not catholic) Experience a lot of burning

> in back had a MRI done. Lesion in brain and cervical enhanced. Did

> a course of IV steroids. Told Dr I was on LDN and he told me that I

> couldn't waste time on that and I need to do chemo . He would write

> me a script for LDN if I started chemo. I think he is actually a dr

> that is not a puppet for the drug companys per conversation with

> him. He looked me in the eye an said I will not hurt you. I know

> what you are all thinking after I just mentioned chemo. He also

> recommended that I start doing some meditation and there is

> a " Himylaian Inst " in downtown Buffalo that he said he would hook me

> up with. I have found my own group. He says he meditates every

> day. He does a ld Novatrone(sp) and wanted me to start rebif. I

> told him I wanted to continue with the ldn and that I have had a lot

> of stress and I don't believe anything would have stop my

> progression. Have been doing reiki yoga and meditation to destress

> myself. I have now noticed the past two weeks that I have lost

> strength in my arms and

> agiility in both hand as well as my legs being weaker. I am in a

> quandry. I trust my soource of LDN , I have done the yeast test and

> I am on 4mg. Some qustions. Why would 3mg stop a male from

> progressing and not a female? I have a new script for 4.5 who

> belives that .5 mg will make a world of difference? . I have

> been on since Jan 05. By the way if you are on the BBD you can not

> have soy icecream as soy is a legume!? And thank you Wesley for

> the offer of the LDN when I forgot it on my trip to Conn. I did

> notice a difference that weekend without it(very tired). Kim

>

>

>

>

>

>

>

[Guest guest]

Kim,

I forgot to mention another possibility to you, strictly for what it's

worth, take it with a grain of salt, your mileage may vary. I started

LDN by way of http://medsmex.com, recommended by several on this group

in early October. I take it because Dr. Bihari thinks everyone should

and I have thyroid issues. I haven't seen my new doctor in my new

location yet, though has and likes him and we had my records

transferred to him. I'm not going to tell him about the LDN at least

until I get a read on him in person. Then I may or may not. Of course,

my health situation isn't as acute as yours and I can't say how I would

approach not telling a neurologist about taking LDN behind his or her

back if I had MS. 's new neuro does prescribe LDN, though it's

only because the other docs. in her group believe in it. She says she

isn't aware of it working but isn't opposed to it. takes the

liquid form, now 4.0 mg because reducing from 4.5 mg reduced her

stiffness and fatigue.

's last neuro. advocated novantrone (sp?). After I did some

research, she refused. Dr. Batchu was an excellent doctor who I

respected very much, but he had a tendency to treat 's symptoms

more so than her person. There's much to be said for quality of life.

There have been recent posts by some here about their experiences with

chemo. that sounded awful. What about a different doctor? What about

getting naltrexone mail order, no prescription, despite the docs.

protests?

Have not been here while die to the fact I didn't have a computer

>>and I have moved 3 times since August. Just moved in a new place 1

>>week before xmas. I will try a brief synopsis of what I have

>>beengoing through and then ask for any adived offered. Moved from

>>different state to NY. Had two house deals fall through and just

>>rented a place for six months because my stuff was packed up in July

>>from CHicago and needed all my stuff out of storgage. Good old Cook

>>moving systomsoms dumped my stufff of at our rental before xmas.

>>Before that we rented a furnished apartment but that doesn't come

>>with clothes. Gets a little cold in Buffalo. Spent 3 weeks living

>>in a rectory( husbands Uncle a priest) before we moved into the last

>>place.

>>

[Guest guest]

Kim,

I have been getting my LDN through phone consultations with Dr.

Sullivan who is not too expensive. You can also look into ordering

as Wesley suggests. I took the drug and chemotherapy way only

because I did not know better. I regret that Soooo much. On a day

when I was really down I got on my computer and I believe that God

guided me in all that I discovered. It has been just over one year

that I have been on LDN, changed my diet, got rid of my Candida, my

dental fillings, detoxed, did a colon cleanse, began my supplements

and I have not had a relapse or progressed. I am a PPMS. Did your

doctor tell you about the risks to your heart by taking Novantrone?

http://www.novantrone.com/patients/novantrone/risks/side_effects.jsp;

jsessionid=DyX9rZd1skr1CsQhjydgGCG8Xbs0GSQ5TRTfh4clGvVxh6G0gqCw!

1723665

I was not aware. My doctor did not even mention it. I did

absolutely no research on my own and trusted his advice. It took me

over five months to get my liver and kidneys back into order and I

stopped the treatment after 5 months because I wsa just TOO sick to

take it any more.

There are some people here on Copaxone and LDN. Research and

decide. Good luck.

Kind regards

Joanne

No

>

> Kim,

>

> I forgot to mention another possibility to you, strictly for what

it's

> worth, take it with a grain of salt, your mileage may vary. I

started

> LDN by way of http://medsmex.com, recommended by several on this

group

> in early October.